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"Words for a Journey" (GIES2017)

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"Words for a Journey: A Pattern Language for Living Well with Dementia" in Plenary Session 3: Innovation in health and social care, at Gerontech and Innovation Expo cum Summit, Hong Kong, June 2017

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"Words for a Journey" (GIES2017)

  1. 1. Gerontech and Innovation Expo cum Summit Plenary Session 3: Innovation in health and social care Words for a Journey A Pattern Language for Living Well with Dementia Takashi Iba Associate Professor Faculty of Policy Management, Keio University Ph.D in Media and Governance 旅旅ののここととばば 認認知知症症ととととももにによよりりよよくく生生ききるるたためめののヒヒンントト 旅旅程程的的關關鍵鍵字字 與與認認知知障障礙礙症症共共存存的的啟啟示示
  2. 2. Studying methodology to support people to enhance the Quality of Life with their daily creativity Learning CollaborationPresentation Surviving Earthquakes Change Making Living well with dementiaProject Design Cooking Parenting & Working Open Dialogue ….. All Books Available in Amazon
  3. 3. Gerontech and Innovation Expo cum Summit Plenary Session 3: Innovation in health and social care Words for a Journey A Pattern Language for Living Well with Dementia Takashi Iba Associate Professor Faculty of Policy Management, Keio University Ph.D in Media and Governance 旅旅ののここととばば 認認知知症症ととととももにによよりりよよくく生生ききるるたためめののヒヒンントト 旅旅程程的的關關鍵鍵字字 與與認認知知障障礙礙症症共共存存的的啟啟示示
  4. 4. 旅旅程程的的關關鍵鍵字字 與與認認知知障障礙礙症症共共存存的的啟啟示示 三三聯聯書書店店((香香港港)) 編編著著::井井庭庭崇崇、、岡岡田田誠誠 著著 ::慶慶應應義義塾塾大大學學井井庭庭研研究究室室、、 認認知知障障礙礙症症 FFRRIIEENNDDLLYY JJAAPPAANN··IINNIITTIIAATTIIVVEE 港港幣幣$$8888
  5. 5. When diagnosed with dementia, many people often become depressed by negative images of disability and lose the will to do anything else.
  6. 6. When diagnosed with dementia, many people often become depressed by negative images of disability and lose the will to do anything else. There are people who are living well with dementia.
  7. 7. How to live well with Dementia When diagnosed with dementia, many people often become depressed by negative images of disability and lose the will to do anything else. There are people who are living well with dementia.
  8. 8. How to live well with Dementia When diagnosed with dementia, many people often become depressed by negative images of disability and lose the will to do anything else. There are people who are living well with dementia. Many people can improve their quality of life by themselves with the practical knowledge.
  9. 9. How to live well with Dementia When diagnosed with dementia, many people often become depressed by negative images of disability and lose the will to do anything else. There are people who are living well with dementia. Many people can improve their quality of life by themselves with the practical knowledge.
  10. 10. http://www.amazon.com/dp/1312734841/ The book of English-version is available at You are putting effort into caregiving.If you do everything for the cared person, including the tasks that they can do on their own, eventually they would become unable to do anything. Provide small opportunities for the cared person to contribute to the family. ▼ In the context ▼ Therefore Chance to Shine Small contributions matter. 21 FOR THE CARING You have begun spending less time outside and more time inside your home. Staying inside your home all the time is not fun and may be tiring. Find a place where you can go by yourself without any trouble, and make sure your family knows about the place too. ▼ In the context ▼ Therefore Favorite Place A place outside the home, which your family also knows about. 9FOR THE CARED
  11. 11. Silver News 2015.01.16 Silver News 2015.06.19 Sankei 2015.07.03 Kanagawa 2014.11.08Asahi 2015.06.12 Ohayo 21. 2015 Oct Gendai 2015.10.28 Japanese Newspapers
  12. 12. Kawasaki Innovation Standard Grand Prix of Dementia Friendly Award
  13. 13. Newspaper in UK
  14. 14. http://www.amazon.com/dp/1312734841/ The book of English-version is available at You are putting effort into caregiving.If you do everything for the cared person, including the tasks that they can do on their own, eventually they would become unable to do anything. Provide small opportunities for the cared person to contribute to the family. ▼ In the context ▼ Therefore Chance to Shine Small contributions matter. 21 FOR THE CARING You have begun spending less time outside and more time inside your home. Staying inside your home all the time is not fun and may be tiring. Find a place where you can go by yourself without any trouble, and make sure your family knows about the place too. ▼ In the context ▼ Therefore Favorite Place A place outside the home, which your family also knows about. 9FOR THE CARED
  15. 15. WORDS FOR CARING FAMILIES WORDS FOR THOSE LIVING WITH DEMENTIA WORDS FOR EVERYONE The patterns are categorized into three groups. Each group contains words that provide problems and solutions for the person in the corresponding group.
  16. 16. WORDS FOR THOSE LIVING WITH DEMENTIA 15 Gift of Words12 Live in the Moment 13 Self-Intro Album 14 Own Way of Expressing 11 Turning the Tide10 Voice of Experience 7 Daily Chore 8 Self-Reflecting Room 9 Favorite Place 6 Can-Do List5 Fellow Travelers2 The First Step 3 Departure Announcement 4 Travel Plan
  17. 17. Context You recently have many opportunities to meet new people. ▼ In this context You sometimes have trouble introducing yourself with words. You notice yourself taking more time putting yourself into words. Or you may notice the person having trouble understanding your words. It is not unusual to have trouble remembering things about yourself on the spot. This might cause you a small panic, making the situation worse. If such situations occur multiple times, you might become afraid to meet new people again. ▼ Therefore Problem
  18. 18. Keep a small item with you, such as an album, which you can use to show who you are. The album can contain pictures of your family, your work, and your hobby, for example. It can be anything related to you or your past: magazine clippings, favorite sayings…. When you meet someone new, you can show them the album to introduce and talk about yourself. Spend time with your family and friends to create the album together. ▼ Consequently This will basically become your portable “Self-Reflecting Room.” With it, you can stay calm and easily introduce yourself to others. Better yet, the pictures and items in your “Self-Intro Album” will make your introduction more attractive and interesting. New conversations can start from the items in the album too. In addition, creating the album itself will become a fun and valuable time to reflect on yourself and your life. If you create it with your family and friends, even better. Solution Consequence
  19. 19. at a day care center, Machida, Tokyo“Can-Do List”
  20. 20. “I was able to realize that I should select and practice the ones that I personally felt effective. For example, I would like to use No.8 (Self-Reflecting Room) and No.13 (Self-Intro Album) starting today. … This also gave me a chance to reconsider what kind of a family relationship I want to have.”
  21. 21. WORDS FOR CARING FAMILIES 16 Going Together 17 Team Leader 30 Generational Mix 31 The Amusement Committee 32 Hint of Feelings28 Casual Counseling 29 Special Day 25 The Seen World 26 Personal Time 27 Emotion Switch23 Make it Funny 24 Usual Talk 20 Disclosing Chat 21 Chance to Shine 22 Preparation for the Dream 18 Family Expert 19 The Three Consultants
  22. 22. “Especially with caregiving, I feel that friends you feel empathy with you and time off from the caregiving that you can enjoy for yourself are the key points to endurance. People often feel bad for caregiving family members to go out to enjoy, but I think I can use patterns like ‘The Amusement Committee,’ ‘Special Day,’ and ‘Encouraging Supporter’ effectively to make my life more and more fulfilled.”
  23. 23. WORDS FOR EVERYONE 37 Mix-Up Event 33 Job-Specific Contributions 38 Inventing Jobs 34 On-the-Spot Helper 39 Delivering the Voice 35 Encouraging Supporter 40 Warm Design 36 Personal Connections
  24. 24. http://runtomo.org
  25. 25. “By seeing the word ‘dementia’ as not something that is ‘dark, suffering, and going down into a deep ditch,’ but by recapturing it with the Words for a Journey, the society as a whole (the local areas, people working for welfare, the family, and the people with dementia themselves) will be able to change how they see ‘dementia’. ”
  26. 26. The words can be used as vocabulary for communication
  27. 27. Reading one page when finishing the Orange cafe gathering, Kamakura, Kanagawa
  28. 28. “The simple expressions made it easy to understand, and with the cute illustrations, a theme that could easily become very depressing was shown in a very positive way.”
  29. 29. You are putting effort into caregiving.If you do everything for the cared person, including the tasks that they can do on their own, eventually they would become unable to do anything. Provide small opportunities for the cared person to contribute to the family. ▼ In the context ▼ Therefore Chance to Shine Small contributions matter. 21 FOR THE CARING You have begun spending less time outside and more time inside your home. Staying inside your home all the time is not fun and may be tiring. Find a place where you can go by yourself without any trouble, and make sure your family knows about the place too. ▼ In the context ▼ Therefore Favorite Place A place outside the home, which your family also knows about. 9FOR THE CARED
  30. 30. Doctor and Nurse select and display some cards everyday in Hospital, Ibasaki, Osaka
  31. 31. “I want to give it to everyone who receives a dementia diagnosis along with their families. There are too many cases where people just have to go home after they receive the despair from their doctors” “The people with dementia, the family members, and the caregiving employees all get confused on what to do next once they get diagnosed with dementia.”
  32. 32. Action Guidebook for people with dementia, provided by local government, Kawasaki, Kanagawa
  33. 33. Training courses for care staffs of residences with health and welfare services for the elderly, Tokyo
  34. 34. Applying to Education of Nursing Undergraduate Program, Fujisawa, Kanagawa
  35. 35. Planning among city officers and dementia supporters, Nagoya, Aichi
  36. 36. Dialogue Workshop in the Dementia Friendly Japan Summit 2015, Tokyo
  37. 37. Idea Generation Workshop, Fujisawa, Kanagawa
  38. 38. Idea Generation Workshops, Rome, Italy; IL & CA, USA
  39. 39. An idea was actually realized as an event, Tokyo “Own Way of Expressing”
  40. 40. Mining Dialogue (Interview) with people with dementia and caring families
  41. 41. Clustering, Writing, and Illustrating
  42. 42. “Even with the uncertainty of dementia, the idea of looking at the the future that the dementia patient and their family is about to create as a ‘journey’ was very heartwarming. This would become a goal for many without becoming too pushing. I was attracted to the idea of thinking how you can actualize the things you want to do through the metaphor of a journey, and not giving up just because you have dementia. ” “Journey” as a metaphor for living with dementia
  43. 43. How to live well with Dementia There are people who are living well with dementia. Many people can improve their quality of life by themselves with the practical knowledge. Words for a Journey
  44. 44. outside inside Pick my handout later at the exit of this room
  45. 45. 旅旅程程的的關關鍵鍵字字 與與認認知知障障礙礙症症共共存存的的啟啟示示 三三聯聯書書店店((香香港港)) 編編著著::井井庭庭崇崇、、岡岡田田誠誠 著著 ::慶慶應應義義塾塾大大學學井井庭庭研研究究室室、、 認認知知障障礙礙症症 FFRRIIEENNDDLLYY JJAAPPAANN··IINNIITTIIAATTIIVVEE 港港幣幣$$8888
  46. 46. A11 Words for a Journey 旅旅程程的的關關鍵鍵字字 A11
  47. 47. Gerontech and Innovation Expo cum Summit Plenary Session 3: Innovation in health and social care Words for a Journey A Pattern Language for Living Well with Dementia Takashi Iba Associate Professor Faculty of Policy Management, Keio University Ph.D in Media and Governance 旅旅ののここととばば 認認知知症症ととととももにによよりりよよくく生生ききるるたためめののヒヒンントト 旅旅程程的的關關鍵鍵字字 與與認認知知障障礙礙症症共共存存的的啟啟示示
  48. 48. Takashi Iba, Aya Matsumoto, Arisa Kamada, Nao Tamaki, and Tomoki Kaneko, “A Pattern Language for Living Well with Dementia: Words for a Journey,” International Journal of Organisational Design and Engineering, Volume 4, No. 1/2, 2016, pp.85-112. Takashi Iba, Tomoki Kaneko, Arisa Kamada, Nao Tamaki, and Makoto Okada, “Words for a Journey: A Pattern Language for Living Well with Dementia,” Peter Baumgartner, Tina Gruber-Muecke, Richard Sickinger (Eds.), Pursuit of Pattern Languages for Societal Change. Designing Lively Scenarios in Various Fields. Berlin: epubli, 2016, pp.152-176. 井庭 崇, 岡田 誠(編著), 慶應義塾大学 井庭崇研究室, 認知症フレンドリージャパン・イニシアチブ, 『旅の ことば:認知症とともによりよく生きるためのヒント』, 丸善出版, 2015. Takashi Iba & Makoto Okada (eds), Iba Lab., and DFJI (Dementia Friendly Japan Initiative), Words for a Journey: The Art of Being with Dementia, CreativeShift Lab, 2015. 井庭崇, 岡田誠 (編著), 慶應義塾大學井庭研究室, 認知障礙症 FRIENDLY JAPAN・INITIATIVE, 旅程的關鍵字 - 與認知障礙症共存的啟示, 三聯書店(香港)有限公司, 2017

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