Intro to Big Data session, AAMC GREAT/GRAND Meeting, 2014Richard Bookman
Introductory remarks for the Big Data in Biomedical Research and Training session at the annual meeting of the AAMC GREAT & GRAND groups. Fort Worth, Texas, 9/19/2014
Is the increasing availability of automated image analysis a possibility to strengthen the application of diffusion-MRI as a biometric parameter, and to enhance the future of image biobanks? Or is this evolution threatening the position of radiologists as medical doctors. Is a redefinition of radiologist as computer technicians inevitable?
Intro to Big Data session, AAMC GREAT/GRAND Meeting, 2014Richard Bookman
Introductory remarks for the Big Data in Biomedical Research and Training session at the annual meeting of the AAMC GREAT & GRAND groups. Fort Worth, Texas, 9/19/2014
Is the increasing availability of automated image analysis a possibility to strengthen the application of diffusion-MRI as a biometric parameter, and to enhance the future of image biobanks? Or is this evolution threatening the position of radiologists as medical doctors. Is a redefinition of radiologist as computer technicians inevitable?
Eysenbach: PHR 2.0 (Personal Health Records 2.0) VancouverGunther Eysenbach
Brief talk from the COACH workshop in Vancouver in May 2008 on patient-accessible electronic health records. I am talking about a new paradigm which I call PHR 2.0
1)Health data is sensitive and confidential; hence, it should .docxteresehearn
1)
Health data is sensitive and confidential; hence, it should be kept safe. Data security is one of the critical activities which has become challenging for many organizations (Frith, 2019). Due to technology advancements, people can save their health data online. Similarly, people are also able to share data with close friends or any other person of interest. Using online platforms to store the data has brought a lot of benefits. The primary benefit is the fact that individuals can share data with medical experts easily. By, this the medical experts will be able to assist the sick people if possible. The data is always accessible as long as one is authorized.
I read different articles that shared information concerning health data breaches. Various health organizations have been affected by data breaches (Garner, 2017). A good example is the University of Washington Medicine. This organization reported that 974,000 patients' data was affected. The attack was noticed by a patient who found some files containing personal information on public sites. The patient then notified the organization, which claimed that some employees made some errors, which led to the leakage. The files were accessible through Google, so the organization had to ask Google to remove the data. Fortunately, the files were removed from the search list, and this occurred in January 2019.
It was risky to let the files containing personal information available on the website (Ronquillo, Erik Winterholler, Cwikla, Szymanski & Levy, 2018). The organization was lucky that the data breach was not significant, and hence, the patients were not significantly affected. It is good to ensure that files containing health data are handled carefully to avoid some problems. In keeping the health data secure, it is good to ensure that the systems are well-protected. The systems can be protected by making use of firewalls which prevent unauthorized people from accessing them. During the data sharing process, a health organization should ensure that the information is encrypted. Encryption prevents unauthorized people from understanding the message that is being shared using different channels. Users should make sure that they use strong passwords.
2)
Protection of patient’s information is the top most priority of health care providers and professionals. Patient’s health information contains personal data and their health conditions hence the federal laws requires to maintain security and privacy to safeguards health information. Privacy, as distinct from confidentiality, is viewed as the right of the individual client or patient to be let alone and to make decisions about how personal information is shared (Brodnik, 2012). Health data is usually stored on paper or electronically, in both these ways it is important to respect the privacy of the patients and hence follow policies to maintain security and privacy rules.
The Health Insurance Portability and Accountabili.
Public Health informatics, Consumer health informatics, mHealth & PHRs (Novem...Nawanan Theera-Ampornpunt
Presented at the M.S. and Ph.D. Programs in Data Science for Health Care, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand on November 11, 2019
PLEASE POST EACH DISCUSSION SEPARATELYEach healthcare organisamirapdcosden
PLEASE POST EACH DISCUSSION SEPARATELY
Each healthcare organization has its own internal policies related to how data is managed. There are also
federal guidelines and regulations
regarding the use of patient data. The data harvested by healthcare organizations is no longer uniquely derived from HIT systems.
Wearable technologies
have emerged in the market. Mega companies like Apple and Samsung, have also teamed up with some telehealth platforms to connect doctors, institutions, and insurance companies.
Evaluate the impact of data derived from wearable technology on healthcare technology.
Include the following aspects in the discussion:
Select
Apple's Health Kit
or another consumer platform of your choice.
Discuss how the consumer wearable market is changing the healthcare delivery process.
Summarize why cybersecurity continues to be a major obstacle to consumer wearable adoption specifically in the H.I.T. space.
Discuss your personal perspective on how the lack of ethnic diversity in data collection impacts the future of healthcare research.
REPLY TO 2 OF MY CLASSMATES DISCUSSION TO THE ABOVE QUESTIONS AND EXPLAIN WHY YOU AGREE. MINIMUM OF 150 WORDS EACH
CLASSMATE POST 1
The Apple Health Kit and the many other wearable device technology is creating data in a bountiful way. What the Health Kit does is collect the relevant data and process it specifically for the person wearing the device. The device monitors things such as blood pressure, heart rate, calories burned in a day etc. and that data can be directly sent to your doctor as well. The wearable market is impacting healthcare in that it is making it more accessible, and your data is becoming more personable. If something is on you every day it will learn your habits, your sleep patterns, your calories burned each day and be able to tell you where improvements could be made and commend a healthy change. According to the International Journal of Recent Research Aspects the number of connected medical devices is expected to increase from 10 billion to 50 billion over the next decade (Chawala, 2020). With an increased number of connected devices, it also increases the likelihood of someone accessing private information that is not a health care team member. Cyber security is becoming as important as homeland security as most attackers can do the same damage anonymously and behind a computer screen. The problem with wearable devices is that they are connected mainly via Bluetooth which is a public network were others could see the device connected. Secondly, the data that is being sent or monitored could be interfered while in transmission or an apple watch or device could be stolen that has all the owner’s information freely on it. Despite the tracking and privacy networks they have installed, it is easily overcome or stolen off a wrist.
The ethical concerns in the lack of diversity in data entry is inter ...
Exploración de un modelo de gobernanza y gestión colectiva ciudadana de los datos de salud
Este modelo permitiría a los ciudadanos compartir sus datos de salud para acelerar la investigación y la innovación con el fin de maximizar los beneficios sociales y colectivos.
When most patients visit physicians in a clinic or a hospital, they are asked about their medical history and related medical tests’ results which might not exist or might simply have been lost over time. In emergency situations, many patients suffer or sadly die because of lack of pertinent medical information. Patient’s Health information (PHI) saved by Electronic Medical Record (EMR) could be accessible only by a hospital using their EMR system. Furthermore, Personal Health Record (PHR) information cannot be solely relied on since it is controlled solely by patients. This paper introduces a novel framework for accessing, sharing, and controlling the medical records for patients and their physicians globally, while patients’ PHI are securely stored and their privacy is taken into consideration. Based on the framework, a proof of concept prototype is implemented. Preliminary performance evaluation results indicate the validity and viability of the proposed framework.
Eysenbach AMIA Keynote: From Patient Needs to Personal Health ApplicationsGunther Eysenbach
AMIA Spring Conference, May 29th-31st, 2008, Phoenix/AZ. PHR Track Keynote covers: An international perspective on the importance of PHR/PHA development & research; patient needs (and other drivers of Personal Health Records); Emerging technological trends, with an emphasis on what Eysenbach calls PHR 2.0 – impact of Web 2.0 approaches e.g. to reduce attrition in ehealth applications
Eysenbach: Personal Health Applications and Personal Health RecordsGunther Eysenbach
Keynote talk at the AMIA Spring Conference in the PHR track (Personal Health Records), focussing on international develoments and a new paradigm which I call PHR 2.0
Can patient summaries help in the emergency department?
What are the challenges? What are the opportunities?
How can we overcome barriers?
Can patient summaries help in Health information exchange?
Eysenbach: PHR 2.0 (Personal Health Records 2.0) VancouverGunther Eysenbach
Brief talk from the COACH workshop in Vancouver in May 2008 on patient-accessible electronic health records. I am talking about a new paradigm which I call PHR 2.0
1)Health data is sensitive and confidential; hence, it should .docxteresehearn
1)
Health data is sensitive and confidential; hence, it should be kept safe. Data security is one of the critical activities which has become challenging for many organizations (Frith, 2019). Due to technology advancements, people can save their health data online. Similarly, people are also able to share data with close friends or any other person of interest. Using online platforms to store the data has brought a lot of benefits. The primary benefit is the fact that individuals can share data with medical experts easily. By, this the medical experts will be able to assist the sick people if possible. The data is always accessible as long as one is authorized.
I read different articles that shared information concerning health data breaches. Various health organizations have been affected by data breaches (Garner, 2017). A good example is the University of Washington Medicine. This organization reported that 974,000 patients' data was affected. The attack was noticed by a patient who found some files containing personal information on public sites. The patient then notified the organization, which claimed that some employees made some errors, which led to the leakage. The files were accessible through Google, so the organization had to ask Google to remove the data. Fortunately, the files were removed from the search list, and this occurred in January 2019.
It was risky to let the files containing personal information available on the website (Ronquillo, Erik Winterholler, Cwikla, Szymanski & Levy, 2018). The organization was lucky that the data breach was not significant, and hence, the patients were not significantly affected. It is good to ensure that files containing health data are handled carefully to avoid some problems. In keeping the health data secure, it is good to ensure that the systems are well-protected. The systems can be protected by making use of firewalls which prevent unauthorized people from accessing them. During the data sharing process, a health organization should ensure that the information is encrypted. Encryption prevents unauthorized people from understanding the message that is being shared using different channels. Users should make sure that they use strong passwords.
2)
Protection of patient’s information is the top most priority of health care providers and professionals. Patient’s health information contains personal data and their health conditions hence the federal laws requires to maintain security and privacy to safeguards health information. Privacy, as distinct from confidentiality, is viewed as the right of the individual client or patient to be let alone and to make decisions about how personal information is shared (Brodnik, 2012). Health data is usually stored on paper or electronically, in both these ways it is important to respect the privacy of the patients and hence follow policies to maintain security and privacy rules.
The Health Insurance Portability and Accountabili.
Public Health informatics, Consumer health informatics, mHealth & PHRs (Novem...Nawanan Theera-Ampornpunt
Presented at the M.S. and Ph.D. Programs in Data Science for Health Care, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand on November 11, 2019
PLEASE POST EACH DISCUSSION SEPARATELYEach healthcare organisamirapdcosden
PLEASE POST EACH DISCUSSION SEPARATELY
Each healthcare organization has its own internal policies related to how data is managed. There are also
federal guidelines and regulations
regarding the use of patient data. The data harvested by healthcare organizations is no longer uniquely derived from HIT systems.
Wearable technologies
have emerged in the market. Mega companies like Apple and Samsung, have also teamed up with some telehealth platforms to connect doctors, institutions, and insurance companies.
Evaluate the impact of data derived from wearable technology on healthcare technology.
Include the following aspects in the discussion:
Select
Apple's Health Kit
or another consumer platform of your choice.
Discuss how the consumer wearable market is changing the healthcare delivery process.
Summarize why cybersecurity continues to be a major obstacle to consumer wearable adoption specifically in the H.I.T. space.
Discuss your personal perspective on how the lack of ethnic diversity in data collection impacts the future of healthcare research.
REPLY TO 2 OF MY CLASSMATES DISCUSSION TO THE ABOVE QUESTIONS AND EXPLAIN WHY YOU AGREE. MINIMUM OF 150 WORDS EACH
CLASSMATE POST 1
The Apple Health Kit and the many other wearable device technology is creating data in a bountiful way. What the Health Kit does is collect the relevant data and process it specifically for the person wearing the device. The device monitors things such as blood pressure, heart rate, calories burned in a day etc. and that data can be directly sent to your doctor as well. The wearable market is impacting healthcare in that it is making it more accessible, and your data is becoming more personable. If something is on you every day it will learn your habits, your sleep patterns, your calories burned each day and be able to tell you where improvements could be made and commend a healthy change. According to the International Journal of Recent Research Aspects the number of connected medical devices is expected to increase from 10 billion to 50 billion over the next decade (Chawala, 2020). With an increased number of connected devices, it also increases the likelihood of someone accessing private information that is not a health care team member. Cyber security is becoming as important as homeland security as most attackers can do the same damage anonymously and behind a computer screen. The problem with wearable devices is that they are connected mainly via Bluetooth which is a public network were others could see the device connected. Secondly, the data that is being sent or monitored could be interfered while in transmission or an apple watch or device could be stolen that has all the owner’s information freely on it. Despite the tracking and privacy networks they have installed, it is easily overcome or stolen off a wrist.
The ethical concerns in the lack of diversity in data entry is inter ...
Exploración de un modelo de gobernanza y gestión colectiva ciudadana de los datos de salud
Este modelo permitiría a los ciudadanos compartir sus datos de salud para acelerar la investigación y la innovación con el fin de maximizar los beneficios sociales y colectivos.
When most patients visit physicians in a clinic or a hospital, they are asked about their medical history and related medical tests’ results which might not exist or might simply have been lost over time. In emergency situations, many patients suffer or sadly die because of lack of pertinent medical information. Patient’s Health information (PHI) saved by Electronic Medical Record (EMR) could be accessible only by a hospital using their EMR system. Furthermore, Personal Health Record (PHR) information cannot be solely relied on since it is controlled solely by patients. This paper introduces a novel framework for accessing, sharing, and controlling the medical records for patients and their physicians globally, while patients’ PHI are securely stored and their privacy is taken into consideration. Based on the framework, a proof of concept prototype is implemented. Preliminary performance evaluation results indicate the validity and viability of the proposed framework.
Eysenbach AMIA Keynote: From Patient Needs to Personal Health ApplicationsGunther Eysenbach
AMIA Spring Conference, May 29th-31st, 2008, Phoenix/AZ. PHR Track Keynote covers: An international perspective on the importance of PHR/PHA development & research; patient needs (and other drivers of Personal Health Records); Emerging technological trends, with an emphasis on what Eysenbach calls PHR 2.0 – impact of Web 2.0 approaches e.g. to reduce attrition in ehealth applications
Eysenbach: Personal Health Applications and Personal Health RecordsGunther Eysenbach
Keynote talk at the AMIA Spring Conference in the PHR track (Personal Health Records), focussing on international develoments and a new paradigm which I call PHR 2.0
Can patient summaries help in the emergency department?
What are the challenges? What are the opportunities?
How can we overcome barriers?
Can patient summaries help in Health information exchange?
Public Health Informatics, Consumer Health Informatics, mHealth & Personal He...Nawanan Theera-Ampornpunt
Presented at the Health Informatics and Health Information Technology Course, Doctor of Philosophy and Master of Science Programs in Data Science for Health Care (International Program), Faculty of Medicine Ramathibodi Hospital, Mahidol University on October 24, 2017
Why merging medical records, hospital reports, and clinical trial data is a v...Arete-Zoe, LLC
Medical privacy and breaches of personal health information (PHI) has been a hot topic for several years. For the clinical trial industry, the main concerns are decline in recruitment resulting from lack of confidence in data handling and instances of breaches that affect data integrity that adversely affect NDA and MA applications in major markets, which precipitates administrative action taken by national regulators in response to local incidents.
European legislators rely extensively on administrative measures implemented by national competent authorities. Although specific and detailed EU-level legislation exists, specific information about data breaches, cases and incidents, volume and type of affected data, root causes and analysis of consequences is largely missing. According to Howard and Gulyas (2014), this lack of organized event records is currently an empirical obstacle but provides opportunity to generate new knowledge about data and privacy protection that could bolster future trial recruitment.
In the U.S., summary details of breaches that involved more than 500 individuals are available at the OCR portal called Wall of Shame for everyone to analyze. Disclosure obligations in HIPAA made the problem of data breaches in healthcare obvious and protection of the privacy of patients has been an important part of physicians’ code of conduct. This offers lessons learned to mitigate systemic vulnerabilities that undermine trial participation.
Explore the essential graphic design tools and software that can elevate your creative projects. Discover industry favorites and innovative solutions for stunning design results.
Between Filth and Fortune- Urban Cattle Foraging Realities by Devi S Nair, An...Mansi Shah
This study examines cattle rearing in urban and rural settings, focusing on milk production and consumption. By exploring a case in Ahmedabad, it highlights the challenges and processes in dairy farming across different environments, emphasising the need for sustainable practices and the essential role of milk in daily consumption.
Visual Style and Aesthetics: Basics of Visual Design
Visual Design for Enterprise Applications
Range of Visual Styles.
Mobile Interfaces:
Challenges and Opportunities of Mobile Design
Approach to Mobile Design
Patterns
Maximize Your Content with Beautiful Assets : Content & Asset for Landing Page pmgdscunsri
Figma is a cloud-based design tool widely used by designers for prototyping, UI/UX design, and real-time collaboration. With features such as precision pen tools, grid system, and reusable components, Figma makes it easy for teams to work together on design projects. Its flexibility and accessibility make Figma a top choice in the digital age.
White wonder, Work developed by Eva TschoppMansi Shah
White Wonder by Eva Tschopp
A tale about our culture around the use of fertilizers and pesticides visiting small farms around Ahmedabad in Matar and Shilaj.
1. From PHR to NHR? An UCD challenge
Giampaolo Armellin, Dario Betti, Stefano Bussolon,
Annamaria Chiasera, Manuela Corradi, Jovan Stevovic
Personal Health Records and patient-oriented infrastructures
3. Declaratio terminorum (2)
3
Personal Health Records vs. Electronic Medicals
vs. Electronic Health Records
Dictionary by By jwyg on http://www.flickr.com/photos/jwyg/3745559121/
5. Beyond the boundaries
5
putting into action eHealth interoperability
Border-USA-Mexico by By `David on http://www.flickr.com/photos/david_ludwig/386317095/
6. What's about PHRs?
6
Can we name them NHRs (Networked Health Records)?
Could be NHR the european way to UHRs (Universal Health Records)?
Border-USA-Mexico by By `David on http://www.flickr.com/photos/david_ludwig/386317095/
authorizes such sharing.
There are several possible approaches to creating a functional
PHR (Fig. 1).3
In the first approach, an individual may create
his or her PHR using commercially available applications,
ranging from stand-alone systems to Web-based applications.
The patient can enter and access his or her health data through
such systems. In its simplest form, the PHR is a stand-alone ap-
plication that does not connect with any other system. At the
other end of the spectrum, PHR functionality can be provided
by allowing patients to view their own health information that
is stored in their health care provider’s EHR. The EHR-based
tion per se, the
specific motiv
patient reports
to-measure ob
and temperatu
cannot reliably
specific choles
Although there
symposium p
with EHRs, eit
vide much gre
grated PHR-EH
data to the pa
equipped with
ter such as tha
more likely th
vive. The abili
restore patient
addition, the bu
to make (see d
considers the i
Data Source
Ideally, the PH
possible over t
including heal
F i g u r e 1 . Range of complexity in various approaches to
personal health records (PHRs).from: Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc.2006
7. At least two big issues
7
- the semantic gap on the data flowing from EMRs and EHRs into NHRs
- the privacy control on the data flowing from PHRs into NHRs
Flow by By Yogendra174 on http://www.flickr.com/photos/yogendra174/5980718184
8. 8
How to address?
It is necessary to involve the citizens- patients in designing the modalities in
which their PHRs merge in the NHRs.
9. The semantic gap
9
“Both terminology and data presentation must be adapted
to the individual using the PHR, so that they realize optimal benefits". (Tang et al., 2006)
The New York Times on the New Art of Flick by By Thomas Hawk on http://www.flickr.com/photos/thomashawk/2442371176/
10. The semantic gap: the terminology issue/1
10
Many relevant works have been done on the problem of the linguistic gap between
consumer-oriented vocabularies and specialized medical terminologies
(Soergel et al., 2004, Zeng et al. 2006, Rosembloom et al., Keselman et al., 2007) by
machine-automated analysis and mapping.
11. The semantic gap: the terminology issue/2
11
The hybrid approach: machine-automated tools
plus the direct involvement of lay people (Cardillo et al., 2009, 2010)
12. The semantic gap: the data presentation issue/1
12
To avoid information overload,
patients need individualized view on their health data. (Knaup␣et al., 2007)
13. The semantic gap: the data presentation issue/2
13
Which data are relevant to patients?
How to organize them?
14. The semantic gap: the Trentino case study
14
Event oriented architecture (EDA) is an architectural pattern widely used in the design
of the interoperability infrastructures in the healthcare domain
(National Institutes of Health, 2006).
16. The semantic gap: beyond linguistic mapping
16
yellow crowd by twose on http://www.flickr.com/photos/twose/887903401/
Which events are relevant to patients?
Which data should these events delivery to PHRs?
18. Different privacy regulations
18
Safe by rpongsaj on http://www.flickr.com/photos/pong/288491653/
The patient under European Data Protection Directives
The data producers under HIPAA
Who is the data owner?
19. Our previous work: data filtering rules
19
A purpose-based access control with sub-document level granularity
To specify which documents and which parts can be used for which purposes
To allow organizations to gain complete control over data sharing
20. Data filtering rules: the policy definition GUI
20
Allow users and organizations to specify which documents
and its parts can be accessed for which purposes
22. Patient vs. Organization produced data
22
How to provide GUIs that allow flexible policy definition?
Patients have different rights on different records
23. Crossing country boundaries
23
How to share data across organizations belonging to different regulations?
US-EU Safe Harbor privacy principle
By DeusXFloridam on http://farm3.staticflickr.com/2430/3976943870_8f3a033bd0_b.jpg
24. Lessons learned
24
Crucial role of citizens/patients to successfully create an NHR:
beyond linguistic mapping, towards process mapping
Methodology for tight and incremental control on the access and dissemination of
sensitive information
A purpose-based access control mechanism that is suitable for data sharing in health care
25. Future work
25
On-field experimentation of UCD techniques in a real example of evolution of a PHR in NHR
for an empirical evaluation of the effectiveness of the patients involvement
Analysis of different regulations and requirements
Design flexible user interfaces to satisfy mentioned problems