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health insights
                     research findings for development
                        policymakers and practitioners

                                                                                                   October 2009 issue 78
                                                                                                       an IDS Knowledge Services publication


Getting
research
into policy
and practice
Experiences from sexual
and reproductive health,
HIV and AIDS


T
     he true test of the effectiveness of
     health and development research is          study did not find a genital herpes treatment    DJ at a local radio station, presenting a
     whether people use it – for decision-       drug, acyclovir, effective for preventing HIV.   programme about HIV and AIDS, Guinea
making, influencing, referencing, or most        The process of engaging with different           Bissau. Giacomo Pirozzi, Panos Pictures, 2003
importantly, to bring about change.              community groups throughout the trials
                                                 increased the understanding of health
Development actors are paying increasing         research in communities where few people         establishing a personal touch can be crucial.
attention to the question of how research,       previously trusted biomedical research.          Rose Oronje describes how the African
despite barriers, can fulfil its potential to                                                     Population and Health Research Center
improve policy and practice.                     At the national level, Eleanor Hutchinson        holds regular meetings and lunches for
                                                 reveals how the same evidence on the             journalists, communications experts and
Researchers and communications experts           effectiveness of Cotrimoxazole resulted in       researchers to build mutual understanding
are using innovative approaches to               different kinds of uptake in Malawi and          and stronger working relationships between
communicate their research but they do not       Zambia. This was because of the different        the media and academia.
often share their experiences and                policy processes in each country and the
achievements. This issue of insights sets out    different roles that individual ‘champions’ of   Talking things through
to redress this, focusing on their experiences   the policy and moments of opportunity can        Sabina Rashid tells us how a BRAC
of working on sexual and reproductive            play in promoting the use of research            workshop on sexuality raised awareness
health, HIV and AIDS globally. The articles      evidence.                                        about the rights of homosexuals and
are all based on case studies presented                                                           transgendered people, marginalised in
during a meeting at the Liverpool School of      Building partnerships                            Bangladeshi society and neglected by
Tropical Medicine, in the UK, in May 2009.       Academics and research institutions will         policymakers. The workshop provided a
                                                 have different attributes that can help them     platform to highlight their experiences, needs
Politics influences how open decision-makers     influence policy and practice. The challenge     and rights, by bringing together diverse
are to using evidence-based research in          is to identify opportunities and partnerships    groups and creating a space for discussion,
formulating policy or making decisions.          and use these to get people’s attention and      and by associating the workshop with the
For example, in the field of sexual and          persuade them that the research is important     credibility and legitimacy that academics
reproductive health, social or religious         for their work.                                  hold among key stakeholders in Bangladesh.
attitudes and interest groups play a powerful
                                                                                                                                          ➔ p2
role in politics and can encourage decision-     Johnny Gyapong describes how the
makers to ignore new research evidence.          Research and Development Division, by            Contents
The role of research in policy processes can     being part of Ghana’s Ministry of Health,
also be hampered by weak capacity to             can play a critical role in policy               Editorial                               1
assess and use research evidence or a lack       development processes by participating in        Investing in the future                 2
of appreciation of how research can identify     key fora. Others establish formal
                                                                                                  Influencing legislative change          3
health problems and unmet needs, develop         partnerships: Wambura Mwita and his
effective interventions, and improve the         colleagues in Tanzania helped create a           Building ownership of research          3
accessibility and targeting of services.         Taskforce Committee and Technical Working        Knowledge intermediaries                4
                                                 Group that brought policymakers,                 Scaling up male circumcision            5
Trial and error                                  researchers, donors and non-government
                                                                                                  Sexuality and rights                    6
At the community level, Sinead Delany-           organisations (NGOs) together to design
Moretlwe describes how some trials               policy on male circumcision.                     Acting on the evidence                  7
achieved a positive impact even though the       Building relationships with individuals and      Making headlines                        8
Strategic partnerships, writes Nana Ole          to this, which of course takes energy and         with research-to-policy processes and to
Lithur, between researchers, legal activists     resources – human and financial. The              increase the funding available to take this
and parliamentarians have helped develop         current economic crisis has increased             work forward and further share experiences
and draw on different strengths to improve       scrutiny of research impact as donors are         of what works, what does not and why.
the law on gender-based violence in Ghana.       under increasing pressure to justify their
Kate Hawkins discusses the diversity of          spending. Rapid shifts in policy, such as the     Jo Crichton and Sally Theobald
organisations seeking to influence policy        US administration’s stance on sexual and
with research and the need to work with          reproductive health, provide opportunities        Sally Theobald
networks such as parliamentary committees        and challenges that researchers and               Liverpool School of Tropical Medicine,
and civil society coalitions to harmonise        communications experts need to address.           Pembroke Place, Liverpool, L3 5QA, UK
messages and communicate them through                                                              T +44 151 7053197
multiple channels.                               Changing attitudes                                sjt@liverpool.ac.uk
                                                 Ensuring that research findings impact on         www.liv.ac.uk/lstm
The discussions at the Liverpool workshop        policy and practice can be challenging and
showed that good influencing strategies are      time-consuming. It requires careful                See also
based on critical consideration of the           consultation, negotiation and partnership          Lessons Learned from Health Researchers
specific policy context, the characteristics     building. Policy engagement is not just about      and Communications Specialists at an
and purpose of a research project, and           communicating results. It is about
                                                                                                    International Meeting on Strengthening
whether the research issue is neglected,         communicating and building partnerships at
                                                                                                    the Research to Policy and Practice
contested or mainstreamed. Some                  all stages of the research process, during
                                                                                                    Interface, Policy Briefing, by Olivia Tulloch,
researchers or communications staff are          project design, fieldwork and analysis as
                                                                                                    Jo Crichton, Sally Theobald and
using policy analysis methods when               well as at the end.
                                                                                                    Kate Hawkins, 2009 (PDF)
developing their research strategies or tools
                                                                                                    http://tiny.cc/12t6A
for evaluating the impact of their research.     It can also be about contributing to longer-
There may be a need to bring policy              term social processes, such as changing            Cross RPC Meeting on Strengthening the
analysis into the skills set of research and     attitudes to sexual rights. This takes time and    Research to Policy and Practice Interface:
communications teams.                            energy but is a necessary investment: the          Exploring Strategies Used by Research
                                                 growing attention on the research-to-policy-       Organisations Working on Sexual and
Donor pressure                                   and-practice interface will continue to gather     Reproductive Health, and HIV and AIDS,
The climate for policy processes and for         momentum. There is a need to continue to           Liverpool School of Tropical Medicine, UK,
research projects is constantly changing and     build the capacity of everyone involved –          18th to 19th May 2009
researchers and communicators need to            individuals and communities, policymakers,         http://tinyurl.com/yzh5sq5
continually adapt their strategies in response   researchers, and intermediaries – to engage




Investing in the                                 these tensions and go beyond their
                                                 traditional role.
                                                                                                   policymakers, researchers and communities,
                                                                                                   creating an enabling environment for future
                                                                                                   partnerships.
future                                           In South Africa, several important lessons
                                                 have been learnt about communicating the          Sinead Delany-Moretlwe
Communicating HIV trial                          results of four HIV prevention trials which       Reproductive Health and HIV Research Unit,
                                                 evaluated the potential role of acyclovir         Johannesburg National Office,
results in South Africa                          treatment in preventing HIV transmission.         University of the Witwatersrand,
                                                 Acyclovir is a widely available antiviral drug    PO 18512, Hillbrow 2038,


R
      andomised controlled trials are            that is used to suppress genital herpes and is    South Africa
      considered the gold standard for           mainly taken in tablet form.                      T +27 11 3585300
      evaluating the effectiveness of new                                                          sdelany@rhru.co.za
interventions. Communicating the results of      These trials showed that treatment with           www.rhru.co.za
these trials presents challenges for             acyclovir did not prevent HIV acquisition or
researchers who need to work with                transmission—results which were                   The Reproductive Health and HIV Research Unit
stakeholders to prepare for potentially                                                            is a partner in the Programme for Research and
                                                 disappointing and which meant that no
positive outcomes, while at the same time                                                          Capacity Building in Sexual and Reproductive
                                                 change to policy would be required. Yet the
living with the knowledge that trials may                                                          Health and HIV in Developing Countries.
                                                 investments in building partnerships and
show no effect.
                                                 communicating these research results did
                                                 lead to some positive outcomes.                   See also
Donors are placing increasing emphasis on
the need to communicate research results to      • Researchers demonstrated the importance
                                                                                                   Effect of Aciclovir on HIV-1 Acquisition in
policymakers. In an ideal world, researchers        of research for informing policy.
                                                                                                   Herpes Simplex Virus 2 Seropositive
conduct research to provide evidence to          • Communities developed a greater
                                                                                                   Women and Men Who Have Sex With
guide policy change. Once the research is           understanding of the research process and
                                                                                                   Men: A Randomised, Double-blind,
completed, there is an expectation that             gained the confidence to handle multiple
                                                                                                   Placebo-controlled Trial, The Lancet, 371:
policymakers will either accept the evidence        outcomes.
                                                                                                   2109-2119, by Connie Celum, et al,
or that informed advocates will use the          • Stakeholders from government and
                                                                                                   June 2008
evidence to lobby for policy change. There          communities and researchers came
                                                                                                   http://tinyurl.com/yj6bqct
may be challenges to this model.                    together to discuss the implications of
                                                    these results.                                 Impact of Aciclovir on Genital and Plasma
In many low-and middle-income countries for      • Important bodies, such as the National          HIV-1 RNA in HSV-2/HIV-1 Co-infected
example, there may be mistrust of science,          AIDS Council, were supported to                Women: A Randomized Placebo-
shortage of skills in government to interpret       anticipate these results and consider the      controlled Trial in South Africa, AIDS,
research results, and a weak media which            implications.                                  23(4): 461-469, by Sinead Delany, et al,
hampers debates. In these situations,                                                              February 2009
researchers are often required to mediate        These processes built trust between

Page 2 www.eldis.org/insights
Influencing legislative change                                                    Parliamentarians acted on the research
                                                                                  findings and amended the Domestic
                                                                                                                              Policy change
                                                                                                                              does not
                                                                                  Violence Bill to include a provision that
for sexual violence survivors                                                     mandates health care providers to
                                                                                                                              always lead to
                                                                                                                              practical
                                                                                  provide free medical treatment to
in Ghana                                                                          sexual abuse and domestic violence          change
                                                                                  survivors, pending a complaint to the



A
        s a human rights lawyer,        at health care facilities, thereby        police and the issuance of a report.
        I was commissioned by a         exposing them to the risk of HIV          Sexual violence survivors can receive
        research organisation, the      infection.                                free medical treatment whether or not
INDEPTH Network, to work with a                                                   they have reported a sexual violence
                                        We shared our findings widely with        case to the police.
team to assess the laws and policies
governing sexual and reproductive       parliamentarians, regional directors
                                        of health, social services, the           Policy change does not always lead
health (SRH) in Ghana.
                                        Commission on Human Rights and            to practical change: participants in
SRH rights and policy were not very     Administrative Justice and traditional,   regional workshops stated that fees
visible in policy and received little   religious and women leaders, in the       are still demanded by health
attention or prioritisation by          capital Accra and in two regions.         providers who are not aware of law
politicians or government officials.    We also worked with the media             changes. There is a need to work
Our assessment showed that sexual       using statistics and compelling human     with the Ghana Health Service to
abuse and domestic violence survivors   stories to generate wider interest.       ensure the law on free medical
could not afford the fee they were                                                treatment is enforced.
required to pay for medical reports     At the same time as our dissemination
and examinations. This meant that:      activities, a Bill on Domestic Violence   Nana Oye Lithur
• A large proportion of cases could     was being considered in Parliament.       Human rights lawyer, Ghana
   not be completed and prosecuted.     This provided an excellent opportunity    nanaoyel@yahoo.co.uk
• Some health facilities refused to     to influence parliamentarians. As         www.indepth-network.org
   treat survivors who had not been     parliamentarians are busy people, we      The INDEPTH Network is a partner in
   referred to them by the police.      researched their interests and chose      the Realising Rights RPC.
• Survivors were unable to access the   short focused presentations from
   few post-traumatic stress services   credible and well-known researchers       See also
   available at the police Domestic     and legal advocates, and ensured we
                                                                                  Working With Parliamentarians on
   Violence and Victim Support Unit.    were available for follow-up. The
                                                                                  Sexual and Reproductive Health in
                                        choice of message bearer was
                                        critical. We made clear
                                                                                  Ghana, Realising Rights Case Study 2,
Furthermore, post-exposure
                                        recommendations that could easily be      July 2009 (PDF)
prophylaxis was not offered to those
                                        followed by the Parliamentarians.         http://tinyurl.com/l34w8r
survivors who did present themselves



                                                                                  working with OVCs and had ongoing
Building ownership of research                                                    interaction with users of research
                                                                                  findings to ensure that suitable formats
in Ghana                                                                          for dissemination were being used.
                                                                                  The success of RDD’s approach points


T
     he Research and Development        Consortium on HIV and orphans and
                                        vulnerable children (OVCs) with the       to the value of collaboration and
     Division (RDD) is the research                                               dialogue with multiple stakeholders as
     arm of the Ghana Health            following aims:
                                        • to tackle the lack of knowledge and     a means of taking ownership of a
Service. Previously named the Health                                              research process and making it more
Research Unit, the RDD was                 awareness of policy guidelines for
                                           OVCs                                   likely that research findings are
established over 20 years ago with                                                relevant and used by different groups.
the aim of building research capacity   • to better identify OVCs in
                                           communities and consider changes       The work on OVCs has led to a
within the Ghana Health Service to                                                greater awareness of the existence of
conduct policy-relevant research.          to how interventions are
                                           implemented                            policy guidelines for OVCs in Ghana,
                                        • to build awareness of organisations     and has informed RDD’s decision to
By being situated within the Ghana                                                use documentaries as an effective
Health Service, RDD has good               and services provided for OVCs.
                                                                                  way to disseminate findings.
access, through meetings with senior
management and progress reports, to     The research focus was agreed
                                                                                  Johnny Gyapong
different programme managers and        following national and regional
                                                                                  Research and Development Division,
directors. They have used this to       meetings that brought together key
                                                                                  Ghana Health Service, Private Mail
encourage collaboration with senior     stakeholders including policymakers,
                                                                                  Bag, Ministries, Accra, Ghana
managers within the Ghana Health        people living with HIV and AIDS, and
                                                                                  John.Gyapong@hru-ghs.org
Service throughout the cycle of         orphanage managers. These
                                                                                  www.ghanahealthservice.org
research: from setting agendas to       meetings took careful planning and
discussing policy relevance.            skilled facilitation to manage and
                                                                                  The Research and Development
                                        reach consensus between people with
                                                                                  Division is a partner in the Addressing
RDD have applied this approach to       different views on research priorities.
                                                                                  the Balance of Burden in AIDS (ABBA)
research conducted within the                                                     RPC.
Addressing the Balance of Burden in     RDD provided regular updates of
AIDS (ABBA) Research Programme          preliminary research findings to those


                                                                                                                    www.eldis.org/insights Page 3
access to its extensive contacts lists
Knowledge intermediaries                                                               and networks.
                                                                                                                                 Policy
                                                                                                                                 processes are
Communicating sexual and reproductive                                                This approach also has its challenges.
                                                                                                                                 often ‘messy’
                                                                                                                                 rather than
health research                                                                      Translating research into products and
                                                                                                                                 linear and
                                                                                     activities that are easily accessed by
                                          understanding that policy processes                                                    well ordered

P
     olicymakers in the UK                                                           policymakers is time intensive and
     struggle to take up and use          are often ‘messy’ rather than linear
                                                                                     working with networks is based upon
     information on health in             and well ordered. The use of
                                                                                     long-term relationship building. When
developing countries. Researchers         intermediaries tries to ensure
                                                                                     you are working as part of a coalition
and the private and non-government        Realising Rights’ messages reach
                                                                                     it can be difficult to assess the impact
sectors are engaged in ever more          decision-makers through multiple
                                                                                     the research is having and whether
sophisticated marketing and               routes or pathways.
                                                                                     any impact can be attributed to the
advocacy campaigns which can leave                                                   programme, and hence its donor.
policymakers overwhelmed.                 The complexity of the bargains,
                                                                                     Finally, using research in this way
                                          compromises, advances, reversals,
                                                                                     creates questions about intellectual
The Realising Rights research             second thoughts and changes that
                                                                                     property and who owns ideas.
consortium, funded by the UK              constitute the policy process, coupled
Department for International              with its inherently political nature,
                                                                                     Kate Hawkins
Development (DFID), is working to try     make the monitoring of opportunities
                                                                                     Institute of Development Studies,
and ensure that its research is used in   to influence a full-time job. Realising
                                                                                     University of Sussex, Brighton
policy and practice. Many of the          Rights sought to work with
                                                                                     BN1 9RE, UK
topics that the programme focuses on      intermediaries who map and
                                                                                     T +44 1273 915678
are neglected, contested or ignored.      navigate the policy realm as part of
                                                                                     K.Hawkins@ids.ac.uk
                                          their remit. Because research and
                                                                                     www.ids.ac.uk
The strategy                              policy cycles are rarely synchronised,
Using intermediaries to communicate       Realising Rights placed its research
                                                                                     The Institute of Development Studies is
research is a strategy that has           on online web platforms that would
                                                                                     a partner in the Realising Rights RPC.
received increased attention in recent    outlive the project and help to secure
years. The media is a traditional         a legacy – potentially prompting the       See also
means of broadcasting research            uptake of evidence in the future.
                                                                                     Knowledge to Policy: Making the
findings, acting as amplifiers or                                                    Most of Development Research,
multipliers of messages. In addition to   What has been learnt?
                                                                                     Sage/IDRC, by Fred Carden, 2009
using the media, Realising Rights         This approach has allowed Realising
                                                                                     www.idrc.ca/en/ev-135779-201-1-
targets parliamentary and civil           Rights to:
                                                                                     DO_TOPIC.html
society networks and knowledge            • influence agendas – such as
intermediaries in the UK to                 raising the profile of neglected         From Muddling Through to Muddling
encourage research uptake. The main         issues like congenital syphilis          Up – Evidence Based Policy Making
intermediaries have been:                   amongst parliamentarians                 and the Modernisation of British
• the UK Network on Sexual and            • frame messages and research in           Government, Public Policy and
   Reproductive Health                      ways that better suit target audiences   Administration, 17(3): 43-60, by
• the All Party Parliamentary Group         – health advocates have advised          Wayne Parsons, 2002                         Teenage girls
   on Population, Development and           Realising Rights of opportunities to     http://ppa.sagepub.com/cgi/                 reading 'Style &
   Reproductive Health                      showcase its research                    content/abstract/17/3/43                    Substance', a
• the Institute of Development Studies    • communicate its research through                                                     magazine for
   (IDS) Knowledge Services                 online and email products with a         Using Intermediaries to
                                                                                                                                 young Kenyan
• DFID’s Research for Development           wider reach and coverage than is         Communicate with DFID, PowerPoint
                                                                                                                                 women, Kisumu.
   portal.                                  possible through Realising Rights’       Presentation, Liverpool, by Kate Hawkins,
                                                                                                                                 Sven Torfinn,
                                            own website – using IDS                  May 2009
                                                                                                                                 Panos Pictures,
The approach is based on the                Knowledge Services has provided          http://tiny.cc/hbEWX
                                                                                                                                 2004



Useful weblinks
Healthlink Worldwide, UK                  Research and Policy in Development,
www.healthlink.org.uk                     Overseas Development Institute, UK
                                          www.odi.org.uk/programmes/rapid
Influencing Policy, Eldis Resource
Guide                                     Research for Development:
www.eldis.org/go/topics/resource-         Communications Corner, Department
guides/influencing-policy                 for International Development, UK
                                          www.research4development.
Knowledge Services, Institute of          info/communicationsCorner.asp
Development Studies, UK
www.ids.ac.uk/go/knowledge-               Research Matters, International
services/our-services                     Development Research Centre,
                                          Canada
Relay programme, Panos London,            www.idrc.ca/research-matters
UK
www.panos.org.uk/relay



Page 4 www.eldis.org/insights
the active participation of
Scaling up male circumcision for                                                     policymakers, donors, advocacy
                                                                                                                                The
                                                                                                                                introduction
                                                                                     groups, researchers and
HIV prevention in Tanzania                                                           implementing partners. It was this
                                                                                                                                and scaling
                                                                                                                                up of
                                            HIV, Tuberculosis and Malaria for        partnership that was crucial in setting


H
      IV and AIDS remain the most                                                                                               circumcision
                                            funding to roll out male                 into motion the drive to roll out
      important public health                                                        circumcision services in Tanzania.
                                                                                                                                services
      problems in Tanzania.                 circumcision services nationwide.                                                   requires
Promoting effective interventions that                                               Wambura Mwita                              actions
prevent new infection and control the     Tanzania’s National Institute for                                                     from several
                                          Medical Research (NIMR) reviews,           National Institute for Medical Research,
epidemic is a priority. Male                                                         PO Box 1462, Mwanza, Tanzania              key stakeholder
circumcision is effective in preventing   synthesises, and presents evidence to
                                          ensure that decisions are based on         T +255 28 2500399                          groups
HIV in men. However, there have                                                      wmwita@yahoo.com
been some challenges in scaling up        strong evidence. NIMR conducted
                                          two sub-studies to assess the              www.nimr.or.tz
circumcision services in Tanzania.
                                          acceptability and feasibility of
                                          carrying out safe circumcision             The National Institute for Medical
To provide national leadership,                                                      Research is a partner in the Programme
coordination, resource mobilisation       services in health facilities and to
                                          explore the role of traditional            for Research and Capacity Building in
and advocacy, the Tanzanian                                                          Sexual and Reproductive Health and
Ministry of Health, with support from     circumcision service providers in the
                                          national strategy. Findings from these     HIV in Developing Countries.
World Health Organization (WHO),
formed two bodies (the Taskforce          studies show:
Committee and Technical Working           • There is a high level of acceptability
Group) to oversee the scaling up of          in both traditional and non-
                                                                                     See also
circumcision services in the country.        traditional circumcising populations.
                                          • Traditional circumcisers play a key      Randomized, Controlled
These bodies were formed through a                                                   Intervention Trial of Male
series of consultative and inclusive         decision-making role in traditional
                                             circumcising populations and            Circumcision for Reduction of HIV
processes involving multiple partners.                                               Infection Risk: The ANRS 1265
Members of the oversight bodies              should have a role to play in the
                                             national strategy.                      Trial, PLoS Medicine, 2(11):e298,
were selected on the basis of                                                        by Bertran Auvert, et al, 2005
experience in policy formulation,         • Health systems need strengthening
                                             for the effective delivery of           http://tinyurl.com/qhsbug
implementation and advocacy issues,
and technical competence in                  circumcision services.                  Male Circumcision for HIV
circumcision issues.                                                                 Prevention in Men in Rakai,
                                          The presentation of NIMR’s findings        Uganda: A Randomised Trial,
The two oversight bodies took the         before the two oversight bodies has        The Lancet, 369: 657-666,
following steps and decisions:            led to the development of an               by Ronald H. Gray, et al, 2007
• establishing national leadership to     enabling policy, plan of action and        http://tinyurl.com/ykydw9s
  scale up circumcision services          implementation strategy. However
                                          several challenges remain, such as         Male Circumcision for HIV
• designating a focal person at the                                                  Prevention in Young Men in Kisumu,
  Ministry of Health to coordinate        the integration of traditional and
                                          clinical-based male circumcision, and      Kenya: A Randomised Controlled
  day-to-day work                                                                    Trial, The Lancet, 369: 643-656,
• drafting circumcision guidelines for    inherent limitations within the public
                                                                                     by Robert C. Bailey, et al, 2007
  health practitioners and using these    health system.
                                                                                     http://tinyurl.com/2z9trf
  to train service providers
• preparing sites for the roll out of     The introduction and scaling up of
  circumcision services in Kagera,        circumcision services requires actions
  Iringa and Mbeya Regions                from several key stakeholder groups.       Research Programme
• applying to the Global Fund for         The technical working group ensured        Consortia
                                                                                     This edition of insights includes contributions from four
                                                                                     UK Department for International Development-funded
                                                                                     Research Programme Consortia.

                                                                                     Addressing the Balance of Burden in AIDS
                                                                                     www.abbarpc.org

                                                                                     Evidence for Action
                                                                                     www.evidence4action.org

                                                                                     Programme for Research and
                                                                                     Capacity Building in Sexual and
                                                                                     Reproductive Health and HIV in
                                                                                     Developing Countries
                                                                                     www.lshtm.ac.uk/dfid/aids

                                                                                     Realising Rights
                                                                                     www.realising-rights.org


A man in Tanzania listens to an HIV and AIDS radio programme as part of the
Strategic Radio Communication for Development project. Bob Msangi,
Photoshare, 2008
                                                                                                                      www.eldis.org/insights Page 5
Bringing sexuality and rights                                                            change and progress at individual,
                                                                                         work and community levels.
                                                                                                                                  Policy
                                                                                                                                  champions,
into the open in Bangladesh                                                              The activities have brought together
                                                                                                                                  can link
                                                                                                                                  research
                                                                                         people from diverse backgrounds,
                                                                                         including those who have been
                                                                                                                                  findings to
                                                                                         invisible or silenced, and encouraged    policy
                                                                                         them to meet, speak freely, and          networks
                                                                                         critically reflect on sexuality and
                                                                                         rights issues in Bangladesh.

                                                                                         While this is an ongoing process in a
                                                                                         challenging environment, an initial
                                                                                         platform now exists upon which
                                                                                         marginalised groups can build and
                                                                                         grow. This emergence may produce
                                                                                         specific policy changes in
                                                                                         Bangladesh in the future.

                                                                                         Sabina Faiz Rashid
                                                                                         Centre for Gender Sexuality and
                                                                                         HIV/AIDS, James P. Grant School of
                                                                                         Public Health, BRAC University, 66
Members of the VAMP sex worker collective in India talk to the press after a             Mohakhali, Dhaka 1212, Bangladesh
demonstration against proposed law reform to criminalise the purchase of                 T +88 2 8824051-4
sexual services. Copyright: Veshya Anyay Mukti Parishad, 2009                            sabina@bracuniversity.ac.bd
                                                                                         www.bracuniversity.net/I&S/
                                                                                         sph/centres_initiatives/cgsha.htm


I
  n Bangladesh there is an                     The Centre continued to work with and
  environment of conservatism and a            provide space for minority groups to
                                               meet and discuss advocacy strategies      BRAC is a partner in the Realising
  culture of collective denial of the
                                               and to develop their own influencing      Rights RPC.
existence of same-sex sexualities,
                                               agendas. The follow up meetings and
which stifles public debate. The lack
                                               workshops in 2008 and 2009, as
of protection of sexual rights of                                                        See also
                                               well as the unpublicised Sexual
homosexuals and transgendered
                                               Diversity and Coalition Building          Pushing Boundaries, Star Weekend
people results in harassment, silence,
                                               workshop organised by gay rights          Magazine, Special Feature, Vol 6,
shame and fear. This pushes the
                                               activists in 2009, resulted in a strong   Issue 31, August 10, by Srabonti
issues underground.
                                               relationship of trust and confidence      Narmeen Ali and Elita Karim, 2007
                                               between sexual minority groups as         www.thedailystar.net/magazine/
Since 2007, the Centre for Gender
                                               well as the development of a database     2007/08/02/sfeature.htm
Sexuality and HIV/AIDS at BRAC
                                               of key individuals and organisations.
University in Dhaka, has been working
to create a climate of open discussion
                                               Three key groups were targeted by
on sexuality and rights and to put in
                                               the Centre for initial training:
place mechanisms for monitoring
                                               academics from outside Dhaka,
influence on policy and practice.
                                               journalists and sexual minority           What is insights?
                                               groups. Academics outside Dhaka
The Centre organised a series of                                                         insights provides a thematic overview of recent
                                               were encouraged to offer courses on
activities to create visibility. It hosted a                                             policy-relevant research findings on international
local workshop in January 2007 with            gender, sexuality and rights. Through
                                               an award system and training              development.
affected communities, interested
people and organisations to gauge              sessions, journalists are now writing
                                               more about sexuality, marginalised        Funded by the UK Department for International
levels of interest in challenging the                                                    Development, insights is intended for policymakers
existing situation. In July 2007 the           communities and transgender rights.
                                                                                         and practitioners worldwide, in particular those with
Centre hosted an international                                                           limited internet access.
conference on Gender, Sexuality and            The Centre has received many
Rights, where over 150 health                  requests from activists, journalists,
                                               researchers and minority groups for       insights is published 6 times a year and is online at
professionals, academics, activists,
                                               materials and resources. A striking       www.eldis.org/insights. Readers may copy or quote
queer groups, students, journalists and
                                               indicator of success in breaking some     from any article providing the source (insights) and
NGO professionals discussed future
                                               of the silence was the presence of        the author are acknowledged and informed.
research, training and advocacy
ideas. With hindsight, it could be             two members of a ‘women who love
argued that the Centre quickly                 women’ organisation at a Gender           Subscribe to insights
initiated activities aimed at building a       and Sexuality workshop hosted by          Email insights@ids.ac.uk with your name and
platform for sexuality and rights,             the Centre.                               postal address or write to:
without considering the possibility of a
backlash from conservative groups.             Research on sexuality and rights by       insights
Fortunately there was widespread               the Centre in 2008 sought to              Institute of Development Studies
positive media coverage of the                 understand local constructions of         University of Sussex, Brighton BN1 9RE, UK
conference in Bangladesh and                   sexuality and rights and to inform        T +44 1273 915777
encouraging responses from many                workshops and advocacy efforts.           F +44 1273 877335
different segments of society.                 Evaluation questionnaires monitored       www.eldis.org/insights


Page 6 www.eldis.org/insights
Acting on the evidence                                                               • multiple conducive elements are
                                                                                       needed for an effective research-to-
                                                                                                                                Building
                                                                                                                                links between
                                                                                       policy model                             the research

T
     he uptake of research findings        (not physicians) who have less
                                           freedom to choose their own clinical      • the links between evidence and           community and
     into policy is often subject to
                                           practice. As such, these health             policy need to be crystal clear
     contextual and political factors.                                                                                          policymaking
                                           workers found it difficult to use the     • key actors and mechanisms,
Research from the Evidence for Action
                                                                                       including established institutions
                                                                                                                                bodies has the
research programme illustrates the         findings, without endorsement from                                                   potential to
                                           national guidelines.                        and policy champions, can link
need to use policy analysis                                                                                                     encourage
                                                                                       research findings to policy
frameworks to understand how                                                                                                    uptake of
                                           Researchers working in health               networks with positive results.
research can play a role in policy                                                                                              findings
processes.                                 programming (in government or in
                                           NGOs) appear to have had a                Eleanor Hutchinson, on behalf of the
                                           particularly powerful impact on           EfA Cotrimoxazole project group
Two research trials, showing the
                                           policymaking by sitting in both           Health Policy Unit, London School of
benefits of Cotrimoxazole
                                           research and traditional                  Hygiene and Tropical Medicine,
prophylaxis in HIV-infected adults in
                                           policymaking circles. This is an          Keppel Street, London WC1E 7HT, UK
Côte d’Ivoire in 2000, were rapidly
                                           illustration of how building links        T +44 207 927 2534
translated into provisional WHO and
                                           between the research community and        eleanor.hutchinson@lshtm.ac.uk
UNAIDS recommendations. In 2004,
                                           policymaking bodies has the               www.lshtm.ac.uk/hpu
evidence from a large longer-term
randomised paediatric trial in             potential to encourage uptake of
                                           findings. Established institutions or     The London School of Hygiene and
Zambia endorsed these results
                                           practices that bring research findings    Tropical Medicine is a partner in the
despite high levels of bacterial
                                           to policymakers is one such               Evidence for Action RPC.
resistance to Cotrimoxazole in the
area. Paediatric guidance was              approach, as is having key
updated by WHO, UNAIDS and                 individuals or ‘policy champions’
UNICEF, and detailed definitive            working to promote change in the
guidelines were published in 2006          right circles. Researchers who also sit
by WHO.                                    on NGO or government bodies may
                                                                                     See also
                                           fit this role particularly well.
Although these international                                                         Bridging Research and Policy:
recommendations were widely                The attention paid to antiretrovirals     Context, Evidence and Links, ODI
available, at national levels, countries   earlier in the decade may have            Working Paper, 173, by Emma Crewe
with high burdens of HIV and AIDS          overshadowed Cotrimoxazole.               and John Young, September 2002
show different histories of the uptake     However, in Zambia’s case, later          (PDF)
and use of Cotrimoxazole                   revisions of national guidelines for      www.odi.org.uk/resources/download/
prophylaxis. Uganda and Malawi,            antiretroviral therapy provided a         151.pdf
for instance, incorporated                 window of opportunity to get              Scaling-Up Cotrimoxazole
Cotrimoxazole into policy in 2005,         Cotrimoxazole into official policy                                                   Peer educators
                                                                                     Prophylaxis in HIV-Exposed and HIV-
while Zambia did not until 2007,           in 2007.                                                                             discussing family
                                                                                     Infected Children in High HIV-
despite several trials having been                                                                                              planning and
                                                                                     Prevalence Countries, The Lancet
undertaken there.                          This study shows:                                                                    AIDS prevention,
                                                                                     Infectious Diseases, 7(10): 686-693,
                                           • the dangers of assuming that policy                                                Uganda.
                                                                                     by Rony Zachariah, et al, 2007
Evidence for Action compared the             will follow directly from research                                                 Giacomo Pirozzi,
                                                                                     http://tinyurl.com/mo8qa5
uptake of research findings in these         findings                                                                           Panos Pictures
three African countries, with in-depth
work done so far in Malawi and
Zambia. They found that a number of
contextual and political factors could
help explain the research-to-policy
process in each country. Using a
model developed by the Overseas
Development Institute’s Research and
Policy in Development (RAPID)
programme, the researchers
investigated the nature of the
evidence, the context in which policy
change was happening, and the key
links between influential actors.

Evidence needs to be interpreted
against the local context in which the
research was carried out. Yet to
ensure uptake into policy and
practice, findings need to be
conceptualised in terms of bringing
about policy change. In Zambia, for
instance, the findings were initially
conceptualised as a clinical matter.
Yet, service provision for HIV care is
increasingly done by clinical officers


                                                                                                                      www.eldis.org/insights Page 7
Making                                            • creating opportunities for informal
                                                    interactions between journalists
headlines                                           and researchers
                                                  • strengthening the capacity of
                                                    journalists and researchers to work
Working with the                                    together to ensure research is
media to communicate                                communicated in an accessible
                                                    and accurate manner.
research
                                                  APHRC has held regional awards of


W
             hile the mass media play             excellence for African journalists to
             a critical role in                   build interest and enthusiasm for
             communicating information,           reporting on research. The awards
it is often difficult to interest them in         were thematic, raising journalists’
covering research. Many journalists               awareness and knowledge about
argue that research is presented in               underreported issues such as                       APHRC’s engagement with the media                    A journalist from
technical formats that are difficult to           sexuality. APHRC has learnt that the               has led to two-way learning and                      Citizen TV (a
understand and that researchers are               awards need to be carefully designed               engagement between journalists and                   leading national
sometimes elitist and or too                      to create the right incentives and                 researchers, enhanced capacity,                      TV station)
theoretical. Researchers, on the other            provide support to journalists. Where              confidence and motivation of                         interviews Alex
hand, can be wary about engaging                  budgets are limited, smaller cash                  researchers to engage with journalists
                                                                                                                                                          Ezeh (APHRC), in
with the media because they lack                  awards may still be valued for the                 and vice-versa, increased demand for
                                                                                                                                                          Korogocho, an
experience of working with them or                prestige they offer but in other cases             APHRC’s research and enhanced
                                                                                                     media coverage.                                      informal
fear their work will be misrepresented.           only larger prizes may attract entries.
                                                                                                                                                          settlement in
                                                  Having larger numbers of winning
The African Population and Health                                                                    Rose N. Oronje and Joanna Crichton                   Nairobi. Rose
                                                  categories may encourage more
Research Center (APHRC) has used                  journalists to apply. The awards led to            African Population and Health                        Oronje, 2007
innovative strategies to encourage                increased quantity and coverage of                 Research Center (APHRC), Shelter
African media to cover its research               reporting on APHRC research.                       Afrique Centre, Longonot Road,
on health, including:                                                                                Upper Hill, PO Box 10787-00100
• enhancing media interest in and                 Collaborating with professional media              GPO, Nairobi, Kenya
  motivation for reporting on research            associations and networks or building              T +254 20 2720400
                                                  relationships with individual                      roronje@aphrc.org
                                                  journalists are both effective ways of             www.aphrc.org
What has APHRC learnt?
                                                  engaging with journalists. Holding
• Effective strategies vary according             regular informal meetings between                  APHRC is a partner in the Realising
  to the characteristics of the media             journalists and researchers can help               Rights RPC.
  in different countries.                         build good working relationships, for
• For awards of excellence in                     example by organising lunch
                                                  discussions, informal talks and visits to           See also
  journalism, ask your target
  journalists what kind of awards and             research sites. APHRC was able to                   Engaging Media in Communicating
  incentives would appeal to them.                increase journalists’ motivation by                 Research on Sexual and
  Include support for journalists, such           holding briefing sessions before large              Reproductive Health and Rights in
  as information packs.                           research dissemination meetings and                 sub-Saharan Africa: Experiences
                                                  producing media packs that break                    and Lessons Learned, Interview with
• Build respect and trust between                 down technical issues in an accessible              Rose Oronje, African Population and
  journalists and researchers by                  way. Helping them to identify people
  creating opportunities for informal                                                                 Health Research Centre, Kenya
                                                  to interview or ways to access further              www.youtube.com/watch?v=
  regular interaction and mutual                  resources can also be useful.
  skills building.                                                                                    LWt_iG6SNrg
• Building the capacity of journalists            For APHRC, building capacity to                     Engaging Media in Communicating
  and researchers to work together                report on research works both ways.                 Research on Sexual and
  can lead to greater appreciation                Journalists need training and                       Reproductive Health and Rights in
  of each other’s role and increased              awareness-raising events whilst                     sub-Saharan Africa: Experiences
  interest in getting research into the           researchers need training in media                  and Lessons Learned, Using
  media.                                          skills. And journalists and researchers             Intermediaries to Communicate with
• Journalist associations can be                  can help train each other, for                      DFID, PowerPoint Presentation, by Rose
  effective platforms for reaching                example by speaking at training                     Oronje, et al, Liverpool, May, 2009
  journalists.                                    workshops or facilitating sessions.                 http://tinyurl.com/yhkdqo3


Keywords: Evidence-based, HIV and AIDS, intermediaries, influencing, policy change, research communication, research to policy and practice, sexual and reproductive health


id21 editor: Tom Barker                                    Funded by the UK Department for International
Editorial and technical support: id21 team                 Development. The views expressed in this
Design: Michael Munday                                     publication do not necessarily reflect those of
Printer: Synergygroup.uk.com                               DFID, IDS or any other contributing institution.

insights                                                   IDS is a Charitable Company No.877338
Institute of Development Studies                           limited by guarantee and registered in England.
University of Sussex, Brighton BN1 9RE, UK                 © Institute of Development Studies 2009
T +44 1273 915777 F +44 1273 877335
                                                           ISSN 1460-4205
insights@ids.ac.uk
www.eldis.org/insights


Page 8 www.eldis.org/insights

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Ghana abba experience gettingresearchintopolicyandpractice health insights, oct 09 issue 78

  • 1. health insights research findings for development policymakers and practitioners October 2009 issue 78 an IDS Knowledge Services publication Getting research into policy and practice Experiences from sexual and reproductive health, HIV and AIDS T he true test of the effectiveness of health and development research is study did not find a genital herpes treatment DJ at a local radio station, presenting a whether people use it – for decision- drug, acyclovir, effective for preventing HIV. programme about HIV and AIDS, Guinea making, influencing, referencing, or most The process of engaging with different Bissau. Giacomo Pirozzi, Panos Pictures, 2003 importantly, to bring about change. community groups throughout the trials increased the understanding of health Development actors are paying increasing research in communities where few people establishing a personal touch can be crucial. attention to the question of how research, previously trusted biomedical research. Rose Oronje describes how the African despite barriers, can fulfil its potential to Population and Health Research Center improve policy and practice. At the national level, Eleanor Hutchinson holds regular meetings and lunches for reveals how the same evidence on the journalists, communications experts and Researchers and communications experts effectiveness of Cotrimoxazole resulted in researchers to build mutual understanding are using innovative approaches to different kinds of uptake in Malawi and and stronger working relationships between communicate their research but they do not Zambia. This was because of the different the media and academia. often share their experiences and policy processes in each country and the achievements. This issue of insights sets out different roles that individual ‘champions’ of Talking things through to redress this, focusing on their experiences the policy and moments of opportunity can Sabina Rashid tells us how a BRAC of working on sexual and reproductive play in promoting the use of research workshop on sexuality raised awareness health, HIV and AIDS globally. The articles evidence. about the rights of homosexuals and are all based on case studies presented transgendered people, marginalised in during a meeting at the Liverpool School of Building partnerships Bangladeshi society and neglected by Tropical Medicine, in the UK, in May 2009. Academics and research institutions will policymakers. The workshop provided a have different attributes that can help them platform to highlight their experiences, needs Politics influences how open decision-makers influence policy and practice. The challenge and rights, by bringing together diverse are to using evidence-based research in is to identify opportunities and partnerships groups and creating a space for discussion, formulating policy or making decisions. and use these to get people’s attention and and by associating the workshop with the For example, in the field of sexual and persuade them that the research is important credibility and legitimacy that academics reproductive health, social or religious for their work. hold among key stakeholders in Bangladesh. attitudes and interest groups play a powerful ➔ p2 role in politics and can encourage decision- Johnny Gyapong describes how the makers to ignore new research evidence. Research and Development Division, by Contents The role of research in policy processes can being part of Ghana’s Ministry of Health, also be hampered by weak capacity to can play a critical role in policy Editorial 1 assess and use research evidence or a lack development processes by participating in Investing in the future 2 of appreciation of how research can identify key fora. Others establish formal Influencing legislative change 3 health problems and unmet needs, develop partnerships: Wambura Mwita and his effective interventions, and improve the colleagues in Tanzania helped create a Building ownership of research 3 accessibility and targeting of services. Taskforce Committee and Technical Working Knowledge intermediaries 4 Group that brought policymakers, Scaling up male circumcision 5 Trial and error researchers, donors and non-government Sexuality and rights 6 At the community level, Sinead Delany- organisations (NGOs) together to design Moretlwe describes how some trials policy on male circumcision. Acting on the evidence 7 achieved a positive impact even though the Building relationships with individuals and Making headlines 8
  • 2. Strategic partnerships, writes Nana Ole to this, which of course takes energy and with research-to-policy processes and to Lithur, between researchers, legal activists resources – human and financial. The increase the funding available to take this and parliamentarians have helped develop current economic crisis has increased work forward and further share experiences and draw on different strengths to improve scrutiny of research impact as donors are of what works, what does not and why. the law on gender-based violence in Ghana. under increasing pressure to justify their Kate Hawkins discusses the diversity of spending. Rapid shifts in policy, such as the Jo Crichton and Sally Theobald organisations seeking to influence policy US administration’s stance on sexual and with research and the need to work with reproductive health, provide opportunities Sally Theobald networks such as parliamentary committees and challenges that researchers and Liverpool School of Tropical Medicine, and civil society coalitions to harmonise communications experts need to address. Pembroke Place, Liverpool, L3 5QA, UK messages and communicate them through T +44 151 7053197 multiple channels. Changing attitudes sjt@liverpool.ac.uk Ensuring that research findings impact on www.liv.ac.uk/lstm The discussions at the Liverpool workshop policy and practice can be challenging and showed that good influencing strategies are time-consuming. It requires careful See also based on critical consideration of the consultation, negotiation and partnership Lessons Learned from Health Researchers specific policy context, the characteristics building. Policy engagement is not just about and Communications Specialists at an and purpose of a research project, and communicating results. It is about International Meeting on Strengthening whether the research issue is neglected, communicating and building partnerships at the Research to Policy and Practice contested or mainstreamed. Some all stages of the research process, during Interface, Policy Briefing, by Olivia Tulloch, researchers or communications staff are project design, fieldwork and analysis as Jo Crichton, Sally Theobald and using policy analysis methods when well as at the end. Kate Hawkins, 2009 (PDF) developing their research strategies or tools http://tiny.cc/12t6A for evaluating the impact of their research. It can also be about contributing to longer- There may be a need to bring policy term social processes, such as changing Cross RPC Meeting on Strengthening the analysis into the skills set of research and attitudes to sexual rights. This takes time and Research to Policy and Practice Interface: communications teams. energy but is a necessary investment: the Exploring Strategies Used by Research growing attention on the research-to-policy- Organisations Working on Sexual and Donor pressure and-practice interface will continue to gather Reproductive Health, and HIV and AIDS, The climate for policy processes and for momentum. There is a need to continue to Liverpool School of Tropical Medicine, UK, research projects is constantly changing and build the capacity of everyone involved – 18th to 19th May 2009 researchers and communicators need to individuals and communities, policymakers, http://tinyurl.com/yzh5sq5 continually adapt their strategies in response researchers, and intermediaries – to engage Investing in the these tensions and go beyond their traditional role. policymakers, researchers and communities, creating an enabling environment for future partnerships. future In South Africa, several important lessons have been learnt about communicating the Sinead Delany-Moretlwe Communicating HIV trial results of four HIV prevention trials which Reproductive Health and HIV Research Unit, evaluated the potential role of acyclovir Johannesburg National Office, results in South Africa treatment in preventing HIV transmission. University of the Witwatersrand, Acyclovir is a widely available antiviral drug PO 18512, Hillbrow 2038, R andomised controlled trials are that is used to suppress genital herpes and is South Africa considered the gold standard for mainly taken in tablet form. T +27 11 3585300 evaluating the effectiveness of new sdelany@rhru.co.za interventions. Communicating the results of These trials showed that treatment with www.rhru.co.za these trials presents challenges for acyclovir did not prevent HIV acquisition or researchers who need to work with transmission—results which were The Reproductive Health and HIV Research Unit stakeholders to prepare for potentially is a partner in the Programme for Research and disappointing and which meant that no positive outcomes, while at the same time Capacity Building in Sexual and Reproductive change to policy would be required. Yet the living with the knowledge that trials may Health and HIV in Developing Countries. investments in building partnerships and show no effect. communicating these research results did lead to some positive outcomes. See also Donors are placing increasing emphasis on the need to communicate research results to • Researchers demonstrated the importance Effect of Aciclovir on HIV-1 Acquisition in policymakers. In an ideal world, researchers of research for informing policy. Herpes Simplex Virus 2 Seropositive conduct research to provide evidence to • Communities developed a greater Women and Men Who Have Sex With guide policy change. Once the research is understanding of the research process and Men: A Randomised, Double-blind, completed, there is an expectation that gained the confidence to handle multiple Placebo-controlled Trial, The Lancet, 371: policymakers will either accept the evidence outcomes. 2109-2119, by Connie Celum, et al, or that informed advocates will use the • Stakeholders from government and June 2008 evidence to lobby for policy change. There communities and researchers came http://tinyurl.com/yj6bqct may be challenges to this model. together to discuss the implications of these results. Impact of Aciclovir on Genital and Plasma In many low-and middle-income countries for • Important bodies, such as the National HIV-1 RNA in HSV-2/HIV-1 Co-infected example, there may be mistrust of science, AIDS Council, were supported to Women: A Randomized Placebo- shortage of skills in government to interpret anticipate these results and consider the controlled Trial in South Africa, AIDS, research results, and a weak media which implications. 23(4): 461-469, by Sinead Delany, et al, hampers debates. In these situations, February 2009 researchers are often required to mediate These processes built trust between Page 2 www.eldis.org/insights
  • 3. Influencing legislative change Parliamentarians acted on the research findings and amended the Domestic Policy change does not Violence Bill to include a provision that for sexual violence survivors mandates health care providers to always lead to practical provide free medical treatment to in Ghana sexual abuse and domestic violence change survivors, pending a complaint to the A s a human rights lawyer, at health care facilities, thereby police and the issuance of a report. I was commissioned by a exposing them to the risk of HIV Sexual violence survivors can receive research organisation, the infection. free medical treatment whether or not INDEPTH Network, to work with a they have reported a sexual violence We shared our findings widely with case to the police. team to assess the laws and policies governing sexual and reproductive parliamentarians, regional directors of health, social services, the Policy change does not always lead health (SRH) in Ghana. Commission on Human Rights and to practical change: participants in SRH rights and policy were not very Administrative Justice and traditional, regional workshops stated that fees visible in policy and received little religious and women leaders, in the are still demanded by health attention or prioritisation by capital Accra and in two regions. providers who are not aware of law politicians or government officials. We also worked with the media changes. There is a need to work Our assessment showed that sexual using statistics and compelling human with the Ghana Health Service to abuse and domestic violence survivors stories to generate wider interest. ensure the law on free medical could not afford the fee they were treatment is enforced. required to pay for medical reports At the same time as our dissemination and examinations. This meant that: activities, a Bill on Domestic Violence Nana Oye Lithur • A large proportion of cases could was being considered in Parliament. Human rights lawyer, Ghana not be completed and prosecuted. This provided an excellent opportunity nanaoyel@yahoo.co.uk • Some health facilities refused to to influence parliamentarians. As www.indepth-network.org treat survivors who had not been parliamentarians are busy people, we The INDEPTH Network is a partner in referred to them by the police. researched their interests and chose the Realising Rights RPC. • Survivors were unable to access the short focused presentations from few post-traumatic stress services credible and well-known researchers See also available at the police Domestic and legal advocates, and ensured we Working With Parliamentarians on Violence and Victim Support Unit. were available for follow-up. The Sexual and Reproductive Health in choice of message bearer was critical. We made clear Ghana, Realising Rights Case Study 2, Furthermore, post-exposure recommendations that could easily be July 2009 (PDF) prophylaxis was not offered to those followed by the Parliamentarians. http://tinyurl.com/l34w8r survivors who did present themselves working with OVCs and had ongoing Building ownership of research interaction with users of research findings to ensure that suitable formats in Ghana for dissemination were being used. The success of RDD’s approach points T he Research and Development Consortium on HIV and orphans and vulnerable children (OVCs) with the to the value of collaboration and Division (RDD) is the research dialogue with multiple stakeholders as arm of the Ghana Health following aims: • to tackle the lack of knowledge and a means of taking ownership of a Service. Previously named the Health research process and making it more Research Unit, the RDD was awareness of policy guidelines for OVCs likely that research findings are established over 20 years ago with relevant and used by different groups. the aim of building research capacity • to better identify OVCs in communities and consider changes The work on OVCs has led to a within the Ghana Health Service to greater awareness of the existence of conduct policy-relevant research. to how interventions are implemented policy guidelines for OVCs in Ghana, • to build awareness of organisations and has informed RDD’s decision to By being situated within the Ghana use documentaries as an effective Health Service, RDD has good and services provided for OVCs. way to disseminate findings. access, through meetings with senior management and progress reports, to The research focus was agreed Johnny Gyapong different programme managers and following national and regional Research and Development Division, directors. They have used this to meetings that brought together key Ghana Health Service, Private Mail encourage collaboration with senior stakeholders including policymakers, Bag, Ministries, Accra, Ghana managers within the Ghana Health people living with HIV and AIDS, and John.Gyapong@hru-ghs.org Service throughout the cycle of orphanage managers. These www.ghanahealthservice.org research: from setting agendas to meetings took careful planning and discussing policy relevance. skilled facilitation to manage and The Research and Development reach consensus between people with Division is a partner in the Addressing RDD have applied this approach to different views on research priorities. the Balance of Burden in AIDS (ABBA) research conducted within the RPC. Addressing the Balance of Burden in RDD provided regular updates of AIDS (ABBA) Research Programme preliminary research findings to those www.eldis.org/insights Page 3
  • 4. access to its extensive contacts lists Knowledge intermediaries and networks. Policy processes are Communicating sexual and reproductive This approach also has its challenges. often ‘messy’ rather than health research Translating research into products and linear and activities that are easily accessed by understanding that policy processes well ordered P olicymakers in the UK policymakers is time intensive and struggle to take up and use are often ‘messy’ rather than linear working with networks is based upon information on health in and well ordered. The use of long-term relationship building. When developing countries. Researchers intermediaries tries to ensure you are working as part of a coalition and the private and non-government Realising Rights’ messages reach it can be difficult to assess the impact sectors are engaged in ever more decision-makers through multiple the research is having and whether sophisticated marketing and routes or pathways. any impact can be attributed to the advocacy campaigns which can leave programme, and hence its donor. policymakers overwhelmed. The complexity of the bargains, Finally, using research in this way compromises, advances, reversals, creates questions about intellectual The Realising Rights research second thoughts and changes that property and who owns ideas. consortium, funded by the UK constitute the policy process, coupled Department for International with its inherently political nature, Kate Hawkins Development (DFID), is working to try make the monitoring of opportunities Institute of Development Studies, and ensure that its research is used in to influence a full-time job. Realising University of Sussex, Brighton policy and practice. Many of the Rights sought to work with BN1 9RE, UK topics that the programme focuses on intermediaries who map and T +44 1273 915678 are neglected, contested or ignored. navigate the policy realm as part of K.Hawkins@ids.ac.uk their remit. Because research and www.ids.ac.uk The strategy policy cycles are rarely synchronised, Using intermediaries to communicate Realising Rights placed its research The Institute of Development Studies is research is a strategy that has on online web platforms that would a partner in the Realising Rights RPC. received increased attention in recent outlive the project and help to secure years. The media is a traditional a legacy – potentially prompting the See also means of broadcasting research uptake of evidence in the future. Knowledge to Policy: Making the findings, acting as amplifiers or Most of Development Research, multipliers of messages. In addition to What has been learnt? Sage/IDRC, by Fred Carden, 2009 using the media, Realising Rights This approach has allowed Realising www.idrc.ca/en/ev-135779-201-1- targets parliamentary and civil Rights to: DO_TOPIC.html society networks and knowledge • influence agendas – such as intermediaries in the UK to raising the profile of neglected From Muddling Through to Muddling encourage research uptake. The main issues like congenital syphilis Up – Evidence Based Policy Making intermediaries have been: amongst parliamentarians and the Modernisation of British • the UK Network on Sexual and • frame messages and research in Government, Public Policy and Reproductive Health ways that better suit target audiences Administration, 17(3): 43-60, by • the All Party Parliamentary Group – health advocates have advised Wayne Parsons, 2002 Teenage girls on Population, Development and Realising Rights of opportunities to http://ppa.sagepub.com/cgi/ reading 'Style & Reproductive Health showcase its research content/abstract/17/3/43 Substance', a • the Institute of Development Studies • communicate its research through magazine for (IDS) Knowledge Services online and email products with a Using Intermediaries to young Kenyan • DFID’s Research for Development wider reach and coverage than is Communicate with DFID, PowerPoint women, Kisumu. portal. possible through Realising Rights’ Presentation, Liverpool, by Kate Hawkins, Sven Torfinn, own website – using IDS May 2009 Panos Pictures, The approach is based on the Knowledge Services has provided http://tiny.cc/hbEWX 2004 Useful weblinks Healthlink Worldwide, UK Research and Policy in Development, www.healthlink.org.uk Overseas Development Institute, UK www.odi.org.uk/programmes/rapid Influencing Policy, Eldis Resource Guide Research for Development: www.eldis.org/go/topics/resource- Communications Corner, Department guides/influencing-policy for International Development, UK www.research4development. Knowledge Services, Institute of info/communicationsCorner.asp Development Studies, UK www.ids.ac.uk/go/knowledge- Research Matters, International services/our-services Development Research Centre, Canada Relay programme, Panos London, www.idrc.ca/research-matters UK www.panos.org.uk/relay Page 4 www.eldis.org/insights
  • 5. the active participation of Scaling up male circumcision for policymakers, donors, advocacy The introduction groups, researchers and HIV prevention in Tanzania implementing partners. It was this and scaling up of HIV, Tuberculosis and Malaria for partnership that was crucial in setting H IV and AIDS remain the most circumcision funding to roll out male into motion the drive to roll out important public health circumcision services in Tanzania. services problems in Tanzania. circumcision services nationwide. requires Promoting effective interventions that Wambura Mwita actions prevent new infection and control the Tanzania’s National Institute for from several Medical Research (NIMR) reviews, National Institute for Medical Research, epidemic is a priority. Male PO Box 1462, Mwanza, Tanzania key stakeholder circumcision is effective in preventing synthesises, and presents evidence to ensure that decisions are based on T +255 28 2500399 groups HIV in men. However, there have wmwita@yahoo.com been some challenges in scaling up strong evidence. NIMR conducted two sub-studies to assess the www.nimr.or.tz circumcision services in Tanzania. acceptability and feasibility of carrying out safe circumcision The National Institute for Medical To provide national leadership, Research is a partner in the Programme coordination, resource mobilisation services in health facilities and to explore the role of traditional for Research and Capacity Building in and advocacy, the Tanzanian Sexual and Reproductive Health and Ministry of Health, with support from circumcision service providers in the national strategy. Findings from these HIV in Developing Countries. World Health Organization (WHO), formed two bodies (the Taskforce studies show: Committee and Technical Working • There is a high level of acceptability Group) to oversee the scaling up of in both traditional and non- See also circumcision services in the country. traditional circumcising populations. • Traditional circumcisers play a key Randomized, Controlled These bodies were formed through a Intervention Trial of Male series of consultative and inclusive decision-making role in traditional circumcising populations and Circumcision for Reduction of HIV processes involving multiple partners. Infection Risk: The ANRS 1265 Members of the oversight bodies should have a role to play in the national strategy. Trial, PLoS Medicine, 2(11):e298, were selected on the basis of by Bertran Auvert, et al, 2005 experience in policy formulation, • Health systems need strengthening for the effective delivery of http://tinyurl.com/qhsbug implementation and advocacy issues, and technical competence in circumcision services. Male Circumcision for HIV circumcision issues. Prevention in Men in Rakai, The presentation of NIMR’s findings Uganda: A Randomised Trial, The two oversight bodies took the before the two oversight bodies has The Lancet, 369: 657-666, following steps and decisions: led to the development of an by Ronald H. Gray, et al, 2007 • establishing national leadership to enabling policy, plan of action and http://tinyurl.com/ykydw9s scale up circumcision services implementation strategy. However several challenges remain, such as Male Circumcision for HIV • designating a focal person at the Prevention in Young Men in Kisumu, Ministry of Health to coordinate the integration of traditional and clinical-based male circumcision, and Kenya: A Randomised Controlled day-to-day work Trial, The Lancet, 369: 643-656, • drafting circumcision guidelines for inherent limitations within the public by Robert C. Bailey, et al, 2007 health practitioners and using these health system. http://tinyurl.com/2z9trf to train service providers • preparing sites for the roll out of The introduction and scaling up of circumcision services in Kagera, circumcision services requires actions Iringa and Mbeya Regions from several key stakeholder groups. Research Programme • applying to the Global Fund for The technical working group ensured Consortia This edition of insights includes contributions from four UK Department for International Development-funded Research Programme Consortia. Addressing the Balance of Burden in AIDS www.abbarpc.org Evidence for Action www.evidence4action.org Programme for Research and Capacity Building in Sexual and Reproductive Health and HIV in Developing Countries www.lshtm.ac.uk/dfid/aids Realising Rights www.realising-rights.org A man in Tanzania listens to an HIV and AIDS radio programme as part of the Strategic Radio Communication for Development project. Bob Msangi, Photoshare, 2008 www.eldis.org/insights Page 5
  • 6. Bringing sexuality and rights change and progress at individual, work and community levels. Policy champions, into the open in Bangladesh The activities have brought together can link research people from diverse backgrounds, including those who have been findings to invisible or silenced, and encouraged policy them to meet, speak freely, and networks critically reflect on sexuality and rights issues in Bangladesh. While this is an ongoing process in a challenging environment, an initial platform now exists upon which marginalised groups can build and grow. This emergence may produce specific policy changes in Bangladesh in the future. Sabina Faiz Rashid Centre for Gender Sexuality and HIV/AIDS, James P. Grant School of Public Health, BRAC University, 66 Members of the VAMP sex worker collective in India talk to the press after a Mohakhali, Dhaka 1212, Bangladesh demonstration against proposed law reform to criminalise the purchase of T +88 2 8824051-4 sexual services. Copyright: Veshya Anyay Mukti Parishad, 2009 sabina@bracuniversity.ac.bd www.bracuniversity.net/I&S/ sph/centres_initiatives/cgsha.htm I n Bangladesh there is an The Centre continued to work with and environment of conservatism and a provide space for minority groups to meet and discuss advocacy strategies BRAC is a partner in the Realising culture of collective denial of the and to develop their own influencing Rights RPC. existence of same-sex sexualities, agendas. The follow up meetings and which stifles public debate. The lack workshops in 2008 and 2009, as of protection of sexual rights of See also well as the unpublicised Sexual homosexuals and transgendered Diversity and Coalition Building Pushing Boundaries, Star Weekend people results in harassment, silence, workshop organised by gay rights Magazine, Special Feature, Vol 6, shame and fear. This pushes the activists in 2009, resulted in a strong Issue 31, August 10, by Srabonti issues underground. relationship of trust and confidence Narmeen Ali and Elita Karim, 2007 between sexual minority groups as www.thedailystar.net/magazine/ Since 2007, the Centre for Gender well as the development of a database 2007/08/02/sfeature.htm Sexuality and HIV/AIDS at BRAC of key individuals and organisations. University in Dhaka, has been working to create a climate of open discussion Three key groups were targeted by on sexuality and rights and to put in the Centre for initial training: place mechanisms for monitoring academics from outside Dhaka, influence on policy and practice. journalists and sexual minority What is insights? groups. Academics outside Dhaka The Centre organised a series of insights provides a thematic overview of recent were encouraged to offer courses on activities to create visibility. It hosted a policy-relevant research findings on international local workshop in January 2007 with gender, sexuality and rights. Through an award system and training development. affected communities, interested people and organisations to gauge sessions, journalists are now writing more about sexuality, marginalised Funded by the UK Department for International levels of interest in challenging the Development, insights is intended for policymakers existing situation. In July 2007 the communities and transgender rights. and practitioners worldwide, in particular those with Centre hosted an international limited internet access. conference on Gender, Sexuality and The Centre has received many Rights, where over 150 health requests from activists, journalists, researchers and minority groups for insights is published 6 times a year and is online at professionals, academics, activists, materials and resources. A striking www.eldis.org/insights. Readers may copy or quote queer groups, students, journalists and indicator of success in breaking some from any article providing the source (insights) and NGO professionals discussed future of the silence was the presence of the author are acknowledged and informed. research, training and advocacy ideas. With hindsight, it could be two members of a ‘women who love argued that the Centre quickly women’ organisation at a Gender Subscribe to insights initiated activities aimed at building a and Sexuality workshop hosted by Email insights@ids.ac.uk with your name and platform for sexuality and rights, the Centre. postal address or write to: without considering the possibility of a backlash from conservative groups. Research on sexuality and rights by insights Fortunately there was widespread the Centre in 2008 sought to Institute of Development Studies positive media coverage of the understand local constructions of University of Sussex, Brighton BN1 9RE, UK conference in Bangladesh and sexuality and rights and to inform T +44 1273 915777 encouraging responses from many workshops and advocacy efforts. F +44 1273 877335 different segments of society. Evaluation questionnaires monitored www.eldis.org/insights Page 6 www.eldis.org/insights
  • 7. Acting on the evidence • multiple conducive elements are needed for an effective research-to- Building links between policy model the research T he uptake of research findings (not physicians) who have less freedom to choose their own clinical • the links between evidence and community and into policy is often subject to practice. As such, these health policy need to be crystal clear contextual and political factors. policymaking workers found it difficult to use the • key actors and mechanisms, Research from the Evidence for Action including established institutions bodies has the research programme illustrates the findings, without endorsement from potential to national guidelines. and policy champions, can link need to use policy analysis encourage research findings to policy frameworks to understand how uptake of Researchers working in health networks with positive results. research can play a role in policy findings processes. programming (in government or in NGOs) appear to have had a Eleanor Hutchinson, on behalf of the particularly powerful impact on EfA Cotrimoxazole project group Two research trials, showing the policymaking by sitting in both Health Policy Unit, London School of benefits of Cotrimoxazole research and traditional Hygiene and Tropical Medicine, prophylaxis in HIV-infected adults in policymaking circles. This is an Keppel Street, London WC1E 7HT, UK Côte d’Ivoire in 2000, were rapidly illustration of how building links T +44 207 927 2534 translated into provisional WHO and between the research community and eleanor.hutchinson@lshtm.ac.uk UNAIDS recommendations. In 2004, policymaking bodies has the www.lshtm.ac.uk/hpu evidence from a large longer-term randomised paediatric trial in potential to encourage uptake of findings. Established institutions or The London School of Hygiene and Zambia endorsed these results practices that bring research findings Tropical Medicine is a partner in the despite high levels of bacterial to policymakers is one such Evidence for Action RPC. resistance to Cotrimoxazole in the area. Paediatric guidance was approach, as is having key updated by WHO, UNAIDS and individuals or ‘policy champions’ UNICEF, and detailed definitive working to promote change in the guidelines were published in 2006 right circles. Researchers who also sit by WHO. on NGO or government bodies may See also fit this role particularly well. Although these international Bridging Research and Policy: recommendations were widely The attention paid to antiretrovirals Context, Evidence and Links, ODI available, at national levels, countries earlier in the decade may have Working Paper, 173, by Emma Crewe with high burdens of HIV and AIDS overshadowed Cotrimoxazole. and John Young, September 2002 show different histories of the uptake However, in Zambia’s case, later (PDF) and use of Cotrimoxazole revisions of national guidelines for www.odi.org.uk/resources/download/ prophylaxis. Uganda and Malawi, antiretroviral therapy provided a 151.pdf for instance, incorporated window of opportunity to get Scaling-Up Cotrimoxazole Cotrimoxazole into policy in 2005, Cotrimoxazole into official policy Peer educators Prophylaxis in HIV-Exposed and HIV- while Zambia did not until 2007, in 2007. discussing family Infected Children in High HIV- despite several trials having been planning and Prevalence Countries, The Lancet undertaken there. This study shows: AIDS prevention, Infectious Diseases, 7(10): 686-693, • the dangers of assuming that policy Uganda. by Rony Zachariah, et al, 2007 Evidence for Action compared the will follow directly from research Giacomo Pirozzi, http://tinyurl.com/mo8qa5 uptake of research findings in these findings Panos Pictures three African countries, with in-depth work done so far in Malawi and Zambia. They found that a number of contextual and political factors could help explain the research-to-policy process in each country. Using a model developed by the Overseas Development Institute’s Research and Policy in Development (RAPID) programme, the researchers investigated the nature of the evidence, the context in which policy change was happening, and the key links between influential actors. Evidence needs to be interpreted against the local context in which the research was carried out. Yet to ensure uptake into policy and practice, findings need to be conceptualised in terms of bringing about policy change. In Zambia, for instance, the findings were initially conceptualised as a clinical matter. Yet, service provision for HIV care is increasingly done by clinical officers www.eldis.org/insights Page 7
  • 8. Making • creating opportunities for informal interactions between journalists headlines and researchers • strengthening the capacity of journalists and researchers to work Working with the together to ensure research is media to communicate communicated in an accessible and accurate manner. research APHRC has held regional awards of W hile the mass media play excellence for African journalists to a critical role in build interest and enthusiasm for communicating information, reporting on research. The awards it is often difficult to interest them in were thematic, raising journalists’ covering research. Many journalists awareness and knowledge about argue that research is presented in underreported issues such as APHRC’s engagement with the media A journalist from technical formats that are difficult to sexuality. APHRC has learnt that the has led to two-way learning and Citizen TV (a understand and that researchers are awards need to be carefully designed engagement between journalists and leading national sometimes elitist and or too to create the right incentives and researchers, enhanced capacity, TV station) theoretical. Researchers, on the other provide support to journalists. Where confidence and motivation of interviews Alex hand, can be wary about engaging budgets are limited, smaller cash researchers to engage with journalists Ezeh (APHRC), in with the media because they lack awards may still be valued for the and vice-versa, increased demand for Korogocho, an experience of working with them or prestige they offer but in other cases APHRC’s research and enhanced media coverage. informal fear their work will be misrepresented. only larger prizes may attract entries. settlement in Having larger numbers of winning The African Population and Health Rose N. Oronje and Joanna Crichton Nairobi. Rose categories may encourage more Research Center (APHRC) has used journalists to apply. The awards led to African Population and Health Oronje, 2007 innovative strategies to encourage increased quantity and coverage of Research Center (APHRC), Shelter African media to cover its research reporting on APHRC research. Afrique Centre, Longonot Road, on health, including: Upper Hill, PO Box 10787-00100 • enhancing media interest in and Collaborating with professional media GPO, Nairobi, Kenya motivation for reporting on research associations and networks or building T +254 20 2720400 relationships with individual roronje@aphrc.org journalists are both effective ways of www.aphrc.org What has APHRC learnt? engaging with journalists. Holding • Effective strategies vary according regular informal meetings between APHRC is a partner in the Realising to the characteristics of the media journalists and researchers can help Rights RPC. in different countries. build good working relationships, for • For awards of excellence in example by organising lunch discussions, informal talks and visits to See also journalism, ask your target journalists what kind of awards and research sites. APHRC was able to Engaging Media in Communicating incentives would appeal to them. increase journalists’ motivation by Research on Sexual and Include support for journalists, such holding briefing sessions before large Reproductive Health and Rights in as information packs. research dissemination meetings and sub-Saharan Africa: Experiences producing media packs that break and Lessons Learned, Interview with • Build respect and trust between down technical issues in an accessible Rose Oronje, African Population and journalists and researchers by way. Helping them to identify people creating opportunities for informal Health Research Centre, Kenya to interview or ways to access further www.youtube.com/watch?v= regular interaction and mutual resources can also be useful. skills building. LWt_iG6SNrg • Building the capacity of journalists For APHRC, building capacity to Engaging Media in Communicating and researchers to work together report on research works both ways. Research on Sexual and can lead to greater appreciation Journalists need training and Reproductive Health and Rights in of each other’s role and increased awareness-raising events whilst sub-Saharan Africa: Experiences interest in getting research into the researchers need training in media and Lessons Learned, Using media. skills. And journalists and researchers Intermediaries to Communicate with • Journalist associations can be can help train each other, for DFID, PowerPoint Presentation, by Rose effective platforms for reaching example by speaking at training Oronje, et al, Liverpool, May, 2009 journalists. workshops or facilitating sessions. http://tinyurl.com/yhkdqo3 Keywords: Evidence-based, HIV and AIDS, intermediaries, influencing, policy change, research communication, research to policy and practice, sexual and reproductive health id21 editor: Tom Barker Funded by the UK Department for International Editorial and technical support: id21 team Development. The views expressed in this Design: Michael Munday publication do not necessarily reflect those of Printer: Synergygroup.uk.com DFID, IDS or any other contributing institution. insights IDS is a Charitable Company No.877338 Institute of Development Studies limited by guarantee and registered in England. University of Sussex, Brighton BN1 9RE, UK © Institute of Development Studies 2009 T +44 1273 915777 F +44 1273 877335 ISSN 1460-4205 insights@ids.ac.uk www.eldis.org/insights Page 8 www.eldis.org/insights