CancerBase is driven by patients who choose to answer as few or many questions they wish for anonymized inclusion on a real time global cancer map. CancerBase is a grassroots collaboration of patients, scientists, and volunteers seeking a new way to connect patients all around the world. Our participation in this endeavor being launched simultaneous with June 29th Moonshot Summit is to let everyone on the planet know: we want our voices heard. We want to share our Information among ourselves and with anyone who seeks to take a look. It's time for patients to take the lead. Our lives are on the line, we should be more pro-active in pushing an agenda that will make a difference in our lives.

1. Final – June 28 2016

2. It’s a platform for
cancer patients to share data
to expand the knowledge of
the
global cancer community

3. “When I google it all I get is doom and gloom
and I don’t know where to turn or whom to
trust”
Sonja Durham, 2016
“What are my treatment options and how many
lines of therapy are available to me?”
Lori Marx-Rubiner, 2016
Patient side

4. Today, CancerBase, a grassroots
collaboration of patients, scientists, and
social media volunteers, will go live with a
way to connect patients all around the
world.
The White House Factsheet

5. • Basic but critical information about most cancers and how
they spread through the body just isn't readily available
• CancerBase seeks to solve this problem.
• Potentially millions of patients might use CancerBase to
anonymously contribute data
• Helps patients and scientists to see cancer more clearly
The White House Factsheet

6. • For an intuitive sign-in experience patients
connect to CancerBase using Facebook and
Twitter Login
• Patients can answer as few or many questions as
they want about their diagnosis
• Anonymized inclusion in a global cancer map.
The White House Factsheet

7. What’s the biggest
problem?
Data
Cancer data are
typically outdated and
scattered around the
world

8. Fresh, dynamic, data about cancer…
from tens or hundreds of millions of people
who each answer 5 simple questions.
The first ever global
crowd-sourced cancer map
=

9. 5 questions
What type of cancer do you have?
Has it metastasized?
When were you born?
Where are you from?
Male or Female

10. To help
patients
understand
“What’s my life
going to look
like?
“Am I getting
the best care?”
“What should I
ask my
doctor?”

11. Demo

12. Key considerations
• Patients share only as much as they want to
• Data are de-identified and anonymized before sharing
• No Protected Health Information
• No genomics
• No eMR
• 100% for patients, by patients
• Single click data wipe and forget option

13. Patients are
in control
• Can skip
questions
• Can choose to
not share data
• Can delete
account

14. Anonymity
Sex
Age bracket
First organ affected
Metastasis [Y/N]
Location within 70
miles
keep identifying info
private
CancerBase shares
only:

15. Cut through
the clutter Have questions be
responsive to
previous answers
Make relevant data
easy to navigate
Keep questions and
data relevant to each
patient

16. Get info now

17. Real-time data
map

18. Store your
data
in a timeline

19. Gain traction

20. Ready to Light Up the World
Sonja
Durham
Jack
Whelan
AnneMarie
Ciccarella
Rachael
Porter
Karen G.
Lori Marx-
Rubiner

21. Thanks to numerous
patients, survivors,
and families, who
provided stories,
questions, and ideas
Thanks to many
people (from many
different
organizations) who
volunteered

22. The Future …

23. Patients should
be able to
invest their data
to understand
their cancer and
make better
decisions
Researchers
should be able
to prioritize their
science based
on real-time
data
The public and
policy makers
should have
much better
information at
their fingertips

24. Thank you