AAA

1. Knowledge Database
• Slide Presentation for the lecture of: Dana Roth
Beit Issie Shapiro, Israel
• Topic of lecture: Autonomy and Dependency Relationship
with Self-Perception and Quality of Life among People with
Complex Learning Disabilities, Adjustment and Function
Disorders: An Inclusive Research
• The lecture was given at Beit Issie Shapiro’s 6th International
Conference on Disabilities - Israel
• Year: 2015

3. Inclusion
“No longer
researching
about us
without us”

4. Action Research
Action research generates
knowledge to impact practice

5. Inclusive Action Research
Inclusive / participatory research approach
includes representatives of those who are
the “Subjects” of the research.
This approach is geared to study the issues
most relevant and important to the group.
Based on finding of the research one
outcome is action (Social, Policy, etc.)

6. People with disabilities participate in establishing the
research topic and research question (s).
People with disabilities participate in the literature review.
People with disabilities participate in designing the
research methods?
People with disabilities participate in designing the
instruments to assure relevance, accessibility, and
usability.
People with disabilities participate in selecting and
recruiting study participants (sample).
How Inclusive is the research?
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D. N. Bryen 2012

7. People with disabilities participate in designing the
institutional review application (ethics review), especially as it
relates to informed consent.
People with disabilities participate in data collection.
People with disabilities participate in data analysis.
People with disabilities participate in writing the research
results and conclusions.
People with disabilities participate in research dissemination,
including publication, presentations, brochures, papers in
easy language to ensure accessibility and ease of
understanding.
People with disabilities participate in ensuring that research
findings are sustainable and are used for social justice
changes.
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8. The Researchers
Adults with complex learning, adjustment &
Function disabilities (4); Professional
researches (2).
The Research process
20 work meetings, about 3 hours each,
(May 2012-may 2015),
all graduates of BIS “Inclusive University”.

9. The Research Question
Is there a correlation between
autonomy, dependency, self- image
(perception) & Quality of life of
people with complex learning
disabilities, adjustment and function
disorders

10. Literature Review
[Patricia ,Sitlington and Frank (1990) Cuskelly and Bryde (2004) Deci, Hodges, Pierson and
Tommasone (2001), Margalit and Schulman (2001), shessel and reif (1999), Gereber (1999)]
Discussion pre-study
• What is the difference between disability &
dependency?
• Does disability means dependence?
• Are autonomy & dependency Antonyms?
• Is autonomy positive & dependency negative?
Almost no publications regarding ADULTS with LD

11. Research Measures (based on)
1. Quality of life Questionnaire, (Cummins, 2005).
2. Autonomy, Dependence scale, (ACS -30)
(Bekker & Van - Assen, 2006)
3. Self Esteem Questionnaire, (Rosenberg, 1965)
4. Sociodemographic information
-pilot-

12. Research Measures
2. Autonomy, Dependence scale (ACS -30)
1. Quality of life Questionnaire
i.e. How satisfied are you from your life generally
How satisfied are you from thing you achieved in life
3. Self Esteem Questionnaire
i.e. I feel that I am worth less than others
I don't feel there is much I can be proud of
i.e. I can not stand that someone is angry at me
Very rarely I think about experiences or feelings of others
A. Autonomy in relationships
i.e. Many times I am not sure of what my opinions are
Usually when I am asked I know the answer
B. Autonomy in thinking/thought
C. Initiations
i.e. It is hard for me to plan new activities
I easily deal with problems

13. Data Collection
• Respondents recruited by the
researchers with disability :
• explaining the study
• Supporting respondents
• Collecting questionnaires

14. gender
%N
49.145Female
55.957Male
7No response
109
Age
7.2S.D.33.9Mean
21-54Range
Employment Statues
%N
90.990Employed
9.19Un-Employed
10No response
109
Family Statues
%N
69.972Single
31.131In relationship
Residential Setting
%N
10.111Independent
14.716With parents
37.641Satellite
13.815Training apt.
8.39Therapeutic apt.
Social Demographic Profile

15. Means of Scales
0
0.5
1
1.5
2
2.5
3
3.5
4
Quality of life Self esteem Autonomy in
relationships
independent
thinking
Initiative
r=.461
r=.320
r=.501
r=.354
r=.292

16. Significant findings Based on indept. Var
0
0.5
1
1.5
2
2.5
3
3.5
QOLSelf Esteem
Single
In a relationship

17. Correlations among the variable
independent
thinking
Initiative
Autonomy in
relationships
Self esteem
Quality of
life
.083.354**.292**.461**1Quality of life
.311**.320**.0741Self esteem
.211*.278**1Autonomy in
relationships
.501**1Initiative
1Independent
thinking

18. Conclusion
 Relationship is an area where emphasis must take
place, its complexity, significance in self esteem and
quality of life , with relations to independence and
dependence, etc.
 The correlation of independent thinking and
initiative, implication for early intervention
approach.
 The correlation of self-esteem and QOL, and the fact
that those in relationships rate a higher self esteem.

19. Recommendations
Inclusive research is a MUST when conducting
research on lives of people, critical in
formulating the relevant questions and in
selecting the measures.
In the future a measure of efficacy and self-
efficacy should be included.