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“Big Data” in Cancer
Control & Prevention
Bradford W. Hesse, PhD
Chief, Health Communication
& Informatics Research
Thursday, February 9, 2012
Thursday, February 9, 2012
Thursday, February 9, 2012
Unravelling the complex gene x
environment interactions in
cancer may be the “emperor” of
all science problems
Thursday, February 9, 2012
The Network I.T. solutions must
include patients, practitioners” PCAST
Thursday, February 9, 2012
Cost of data production is plummeting

Thursday, February 9, 2012
We need data discovery tools

Thursday, February 9, 2012
Clinical data from multiple sources

Thursday, February 9, 2012
Visualization at bedside

Thursday, February 9, 2012
NCI Investments in Data Presentation

Educate

Inform
Thursday, February 9, 2012

Persuade

Support
Decisions
Perceptual Basics

SOURCE: http://alleydog.com/topics/sensation_and_perception.php

Thursday, February 9, 2012
Cognitive / Perceptual
Research
•
•

Constructive process

•

Contiguous labels for
meaning

•

Left to right tendency
in western culture

•

Perceptual rules
guide meaning

Gaze goes to center
for pattern

source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension.
J Educ Psychol. 1999, 91(4): 690-702.
Thursday, February 9, 2012
Visualizing Long Term
Change
•
•

Constructive process

•

Contiguous labels for
meaning

•

Left to right tendency
in western culture

•

Perceptual rules
guide meaning

Gaze goes to center
for pattern

source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension.
J Educ Psychol. 1999, 91(4): 690-702.
Thursday, February 9, 2012
Overcome Cognitive
Biases

Thursday, February 9, 2012
Overcome Cognitive
Biases
Fallacy of small numbers;
Tversky & Kahneman, 1971

Exceptional Case

Thursday, February 9, 2012
Clinical / Personal
Decision-making

Centers of Excellence in
Cancer Communication
Research: p-50

See: Fagerlin, A., Ubel, P. A., Smith, D. M., & Zikmund-Fisher, B. J. (2007). Making numbers matter: present and future research in risk
communication. Am J Health Behav, 31 Suppl 1, S47-56.
Thursday, February 9, 2012
Using Interface
Opportunities in EHR

Thursday, February 9, 2012
Dissolving Barriers between
Clinical & Public Health
Added User Controls
14 datasets spanning 6 years

NSF, NIH
Collaboration
Thursday, February 9, 2012
Dissolving Barriers between
Clinical & Public Health
Added User Controls
14 datasets spanning 6 years

NSF, NIH
Collaboration
Thursday, February 9, 2012
Data-based Interfaces
for Policy
BLS

Thursday, February 9, 2012

USDA

CDC
Data-based Interfaces
for Policy
BLS

Thursday, February 9, 2012

USDA

CDC
Old question:

How do we communicate in such a way
and in such frequency so as to change behavior?

Dose > Response
Thursday, February 9, 2012
New question:

How do we structure the communication
environment to support self-determined pathways of
health for individuals, loved ones, and communities?
Safety, Quality
Improvement

Institute of Medicine’s
Crossing the Quality
Chasm series

Patient
Engagement
“Meaningful Use”
Continuity of
Care

Population
Health

* Hesse, B. W., & Shneiderman, B. (2007). eHealth research from the user's
perspective. Am J Prev Med, 32(5 Suppl), S97-103.
Thursday, February 9, 2012

Privacy,
Security

TRUST

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