Here are 7 resources which will empower caregivers – with information, knowledge of available programs and tools necessary to make good decisions for their loved ones and themselves.
2. According to the National Family Caregivers
Association, more than 50 million Americans provide
care for a chronically ill, disabled or aged family
member or friend during any given year, and that
number is growing. Caregivers often do so much more
than provide care.
They are companions, friends and, often times, become
family, to those in their care.
3. Caregivers commonly report that it’s most difficult
to make time for themselves, manage emotional
and physical stress, and balance work and family
responsibilities. Many are at risk of becoming
patients themselves, primarily due to these
unmet needs.
It is important for caregivers to
realize that being exhausted,
stressed or “burned out” will
diminish the quality of care they
can provide.
4. Here we catalog 7 resources which will empower
caregivers - with information, knowledge of
available programs and tools necessary to make good
decisions for their loved ones and themselves.
5. These resources cover issues like
Home safety
Driving
Dealing with the diagnosis
Financial planning for seniors
Choosing a nursing home
Services provided by community centers
Resources provided by Govt/State/Local programs
Self education on diseases
Communicating with seniors
Recognizing behavioral changes
End of life options
Home care services – both medical and non-
medical as provided by BrightStar Care
6. 1 Family Caregiver Alliance
Founded in 1977, Family Caregiver Alliance was the first
community-based nonprofit organization in the country to
address the needs of families and friends providing long-
term care at home. Long recognized as a pioneer in health
services, FCA now offers programs at national, state and
local levels to support and sustain caregivers.
7. 2 The National Alliance for Caregiving
Established in 1996, The National Alliance for Caregiving
(NAC) is a non-profit coalition of national organizations
focusing on issues of family caregiving. Alliance members
include grassroots organizations, professional associations,
service organizations, disease-specific organizations, a
government agency, and corporations.
Recognizing that family caregivers provide
important societal and financial contributions
toward maintaining the well-being of those
they care for, the Alliance's mission is to be
the objective national resource on family
caregiving with the goal of improving the
quality of life for families and care recipients.
8. 3 Family Caregiving 101
A joint effort by the National Family Caregivers Association
(NFCA) and the National Alliance for Caregiving (NAC) to
recognize, support and advise family caregivers.
Their outreach program is called “Family Caregiving: It’s not all
up to you.” This effort is national in scope, and includes radio
announcements and magazine and newspaper advertisements
that connect family caregivers to information and services that
can help improve their lives and the level of care they can offer
their loved ones.
9. 4 The National Family Caregivers
Association
The National Family Caregivers Association (NFCA)
educates, supports, empowers and speaks up for the more
than 50 million Americans who care for loved ones with a
chronic illness or disability or the frailties of old age. NFCA
reaches across the boundaries of diagnoses, relationships
and life stages to help transform family caregivers' lives by
removing barriers to health and well being.
10. 5 AARP Caregiving Resource Center
AARP Caregiving Resource Center includes information
about getting started, providing care, housing options,
legal issues, financial information, end of life care,
and more.
11. 6 MedlinePlus
MedlinePlus is a goldmine of good health information from
the world's largest medical library, the National Library of
Medicine. MedlinePlus is a partnership of the U.S. National
Library of Medicine and the National Institutes of Health.
At this caregivers landing page, visitors find a lengthy list
of links (in various categories) on all aspects of caregiving.
12. 7 National Institute on Aging's ADEAR
(Alzheimer’s Disease Education &
Referral Center) Center
The National Institute on Aging's ADEAR (Alzheimer’s
Disease Education & Referral Center) Center offers
information and publications for families, caregivers, and
professionals on diagnosis, treatment, patient care,
caregiver needs, long-term care, education and training,
and research related to Alzheimer's disease.