EURORDIS - Rare Diseases Europe

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RareConnect.org webinar How to use Twitter to build your online rare disease presence

RareConnect.org Update 2016

RareConnect.org webinar: How to start an awareness day for your rare disease

Pitt Hopkins syndrome community on RareConnect.org

The Value of Online Communities

Updates to RareConnect.org in 2014

Update on the Mysasthenia Gravis community on RareConnect.org

Surveys and polls: The RareConnect.org Experience

RareConnect.org - Connecting Rare Disease Patients Globally

Rare disease day 2011 highlights

Results of Survey on the role of Patient Groups in Research and their priorities for the future

Results of Survey on the role of Patient Groups in Research and their priorities for the future

Results of a survey on the role of Patient Groups in Research and their priorities for the future

Conference 3 "Outcomes of 15 National Conferences, "

Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EURORDIS