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Heartbeat of Hope: Global Efforts to
Protect Children with Congenital Heart
Defects
Presented By: Faisal Raza
SCHOOL OF MEDICINE
АДАМ УНИВЕРСИТЕТИ
УНИВЕРСИТЕТ АДАМ
ADAM UNIVERSITY
Structure of presentation
• Introduction
• Understanding Congenital Heart Defects
• Types of Congenital Heart Defects
• Global Initiatives and International Organizations
• Organizations in Kyrgyzstan
• Organizations in Pakistan
• World Congenital Heart Defects Awareness Day
• International Conferences and Symposia
• Fundraising Campaigns
• Collaborative Research Efforts
• Conclusion
Introduction
• Congenital heart defects (CHD) are structural
abnormalities of the heart present at birth.
• CHDs are the most common birth defects,
affecting approximately 1 in 100 children
worldwide.
• Raising awareness and providing support are
crucial in protecting and improving the lives
of children with CHD.
Graph illustrating the global prevalence of
congenital heart defects
Understanding Congenital Heart Defects
• Congenital heart defects are abnormalities in the structure or function
of the heart.
• They can range from simple conditions, such as a small hole in the
heart, to complex abnormalities affecting multiple heart structures.
• CHDs can impact the heart's ability to pump blood effectively and may
require medical intervention.
Diagram explaining the impact of CHDs on
heart function
Types of Congenital Heart Defects
• There are various types of congenital heart defects, including:
• Atrial septal defect (ASD)
• Ventricular septal defect (VSD)
• Tetralogy of Fallot
• Transposition of the great arteries (TGA)
• Coarctation of the aorta
• Each type has specific characteristics and requires individualized
treatment approaches.
Images of each specific type of congenital
heart defect (normal vs defect)
Global Initiatives and International
Organizations
• Several international organizations are actively involved in the protection and support of
children with congenital heart defects.
• Organizations include Like:
• American Heart Association (AHA): Leading efforts in research, education, and advocacy.
• World Heart Federation (WHF): Focusing on prevention, control, and treatment of heart diseases,
including CHD.
• Children's HeartLink: Working to improve pediatric cardiac care and training in underserved
regions.
• These organizations raise awareness, support research, and advocate for improved
access to care.
Organizations in Kyrgyzstan
• Kyrgyz Association of Cardiology: The Kyrgyz
Association of Cardiology focuses on promoting
cardiovascular health, including the prevention,
diagnosis, and treatment of congenital heart
defects. They collaborate with healthcare
professionals, organize conferences, and raise
awareness about CHDs.
• Republican Perinatal Center: The Republican
Perinatal Center in Kyrgyzstan provides specialized
care for pregnant women and newborns, including
diagnosis, treatment, and management of
congenital heart defects. They work closely with
pediatric cardiologists and other healthcare
professionals to ensure timely interventions and
support.
Organizations in Pakistan
• Pakistan Pediatric Cardiology Society (PPCS):
PPCS is a professional society dedicated to
pediatric cardiology in Pakistan. They work on
raising awareness, providing training to
healthcare professionals, and advocating for
improved access to care for children with
congenital heart defects.
• Children's Heart Foundation Pakistan (CHFP):
CHFP is a non-profit organization that supports
children with congenital heart defects in Pakistan.
They provide financial assistance for surgeries,
medication, and post-operative care. CHFP also
conducts awareness campaigns and facilitates
research in the field of pediatric cardiology.
World Congenital Heart Defects Awareness
Day
• World Congenital Heart Defects Awareness
Day is observed annually on February 14th.
• On this day, events are organized worldwide
to raise awareness about CHDs and provide
support to affected children and their
families.
• Activities include educational campaigns,
fundraisers, and community events.
International Conferences and Symposia
• International conferences and symposia play a vital role in advancing knowledge
and collaboration in the field of congenital heart defects.
• Events include Like:
• International Symposium on Congenital Heart Disease: Bringing together experts to share
research and advancements.
• World Congress of Pediatric Cardiology and Cardiac Surgery: Facilitating discussions on
pediatric cardiology and surgery.
• Annual Scientific Sessions of the American College of Cardiology: Showcasing the latest
research and breakthroughs.
• These events foster collaboration, disseminate knowledge, and drive innovation.
International conferences and symposia on congenital heart
defects
Fundraising Campaigns
• Fundraising campaigns play a crucial role in
providing financial support for children in need
of heart surgeries and treatments.
• International organizations, hospitals, and
community initiatives organize various
campaigns to raise funds.
• These campaigns ensure that children from all
backgrounds have access to life-saving
interventions.
• Examples include charity runs, crowdfunding,
and partnerships with corporate sponsors.
Collaborative Research Efforts
• Collaborative research efforts between international organizations,
hospitals, and research institutions aim to improve the understanding
and treatment of congenital heart defects.
• Researchers work together to identify causes, develop preventive
measures, and advance treatment options.
• These collaborations lead to breakthroughs in medical technology and
improved outcomes for children with CHD.
• Projects may focus on genetic factors, surgical techniques, or
innovative therapies.
Collaborative Research Efforts graph and Changing epidemiology of
congenital heart disease
Conclusions
• Congenital heart defects in children require global efforts to protect
and support affected individuals.
• International organizations, awareness campaigns, conferences,
fundraising, and collaborative research play a significant role in this
endeavor.
• Let us continue to raise awareness, support research, and advocate
for better access to care for children with CHD.
• Together, we can make a difference in the lives of these children and
their families.
• Once you choose Hope, Everything is Possible.
Thank you for your attention

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Congenital heart disease new.pptx

  • 1. Heartbeat of Hope: Global Efforts to Protect Children with Congenital Heart Defects Presented By: Faisal Raza SCHOOL OF MEDICINE АДАМ УНИВЕРСИТЕТИ УНИВЕРСИТЕТ АДАМ ADAM UNIVERSITY
  • 2. Structure of presentation • Introduction • Understanding Congenital Heart Defects • Types of Congenital Heart Defects • Global Initiatives and International Organizations • Organizations in Kyrgyzstan • Organizations in Pakistan • World Congenital Heart Defects Awareness Day • International Conferences and Symposia • Fundraising Campaigns • Collaborative Research Efforts • Conclusion
  • 3. Introduction • Congenital heart defects (CHD) are structural abnormalities of the heart present at birth. • CHDs are the most common birth defects, affecting approximately 1 in 100 children worldwide. • Raising awareness and providing support are crucial in protecting and improving the lives of children with CHD.
  • 4. Graph illustrating the global prevalence of congenital heart defects
  • 5. Understanding Congenital Heart Defects • Congenital heart defects are abnormalities in the structure or function of the heart. • They can range from simple conditions, such as a small hole in the heart, to complex abnormalities affecting multiple heart structures. • CHDs can impact the heart's ability to pump blood effectively and may require medical intervention.
  • 6. Diagram explaining the impact of CHDs on heart function
  • 7. Types of Congenital Heart Defects • There are various types of congenital heart defects, including: • Atrial septal defect (ASD) • Ventricular septal defect (VSD) • Tetralogy of Fallot • Transposition of the great arteries (TGA) • Coarctation of the aorta • Each type has specific characteristics and requires individualized treatment approaches.
  • 8. Images of each specific type of congenital heart defect (normal vs defect)
  • 9. Global Initiatives and International Organizations • Several international organizations are actively involved in the protection and support of children with congenital heart defects. • Organizations include Like: • American Heart Association (AHA): Leading efforts in research, education, and advocacy. • World Heart Federation (WHF): Focusing on prevention, control, and treatment of heart diseases, including CHD. • Children's HeartLink: Working to improve pediatric cardiac care and training in underserved regions. • These organizations raise awareness, support research, and advocate for improved access to care.
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  • 11. Organizations in Kyrgyzstan • Kyrgyz Association of Cardiology: The Kyrgyz Association of Cardiology focuses on promoting cardiovascular health, including the prevention, diagnosis, and treatment of congenital heart defects. They collaborate with healthcare professionals, organize conferences, and raise awareness about CHDs. • Republican Perinatal Center: The Republican Perinatal Center in Kyrgyzstan provides specialized care for pregnant women and newborns, including diagnosis, treatment, and management of congenital heart defects. They work closely with pediatric cardiologists and other healthcare professionals to ensure timely interventions and support.
  • 12. Organizations in Pakistan • Pakistan Pediatric Cardiology Society (PPCS): PPCS is a professional society dedicated to pediatric cardiology in Pakistan. They work on raising awareness, providing training to healthcare professionals, and advocating for improved access to care for children with congenital heart defects. • Children's Heart Foundation Pakistan (CHFP): CHFP is a non-profit organization that supports children with congenital heart defects in Pakistan. They provide financial assistance for surgeries, medication, and post-operative care. CHFP also conducts awareness campaigns and facilitates research in the field of pediatric cardiology.
  • 13. World Congenital Heart Defects Awareness Day • World Congenital Heart Defects Awareness Day is observed annually on February 14th. • On this day, events are organized worldwide to raise awareness about CHDs and provide support to affected children and their families. • Activities include educational campaigns, fundraisers, and community events.
  • 14. International Conferences and Symposia • International conferences and symposia play a vital role in advancing knowledge and collaboration in the field of congenital heart defects. • Events include Like: • International Symposium on Congenital Heart Disease: Bringing together experts to share research and advancements. • World Congress of Pediatric Cardiology and Cardiac Surgery: Facilitating discussions on pediatric cardiology and surgery. • Annual Scientific Sessions of the American College of Cardiology: Showcasing the latest research and breakthroughs. • These events foster collaboration, disseminate knowledge, and drive innovation.
  • 15. International conferences and symposia on congenital heart defects
  • 16. Fundraising Campaigns • Fundraising campaigns play a crucial role in providing financial support for children in need of heart surgeries and treatments. • International organizations, hospitals, and community initiatives organize various campaigns to raise funds. • These campaigns ensure that children from all backgrounds have access to life-saving interventions. • Examples include charity runs, crowdfunding, and partnerships with corporate sponsors.
  • 17. Collaborative Research Efforts • Collaborative research efforts between international organizations, hospitals, and research institutions aim to improve the understanding and treatment of congenital heart defects. • Researchers work together to identify causes, develop preventive measures, and advance treatment options. • These collaborations lead to breakthroughs in medical technology and improved outcomes for children with CHD. • Projects may focus on genetic factors, surgical techniques, or innovative therapies.
  • 18. Collaborative Research Efforts graph and Changing epidemiology of congenital heart disease
  • 19. Conclusions • Congenital heart defects in children require global efforts to protect and support affected individuals. • International organizations, awareness campaigns, conferences, fundraising, and collaborative research play a significant role in this endeavor. • Let us continue to raise awareness, support research, and advocate for better access to care for children with CHD. • Together, we can make a difference in the lives of these children and their families.
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