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An Individualized, Evidence-Based Approach To Medically Unexplained Symptoms Francesca C. Dwamena, MD MS Robert C. Smith, MD ScM Michigan State University AACH Research and Teaching Forum, Scottsdale, Arizona October 17, 2010
Learner Objectives
Video Presentation: A 34 year old female with intractable diarrhea, nausea/vomiting,  abdominal pain
Workshop Objectives Participants will be able to: Describe steps required to diagnose “Medically Unexplained Symptoms” (MUS) in primary care. assist MUS patients in understanding their illnesses committing to participate in their care. setting and achieving realistic goals negotiate treatment plans with patients with MUS
What do we mean by MUS? Symptoms that are not adequately explained by the presence of organic disease (metaphor for psychic distress)  ,[object Object],[object Object]
Mechanism --- patient avoids emotion
Psychodynamic – ineffective emotional expression
Behavioral – reinforcement of illness behaviors
Socio-cultural – emotional suppression
Biological – gate control theory,[object Object],[object Object],[object Object]
Normal-Mild (~80% MUS pts.)
Moderate (~15% MUS pts.)
Severe MUS (~5-6% MUS pts.)
Differential / Co-morbidity
Our Case – Ms G MUS was characterized by: High utilization, Multiple symptoms Chronic; recent acceleration Both medical and psychiatric co-morbidity Type 2 DM, OSA, depression, anxiety, dependent personality, obesity
Our Case – Ms G To rule out organic disease, We reviewed med records  CT scan abdomen (2 non-obstructing stones), EGD, colonoscopy (2 years prior), cholecystectomy Ordered the following in hospital stool studies, antiendomyseal antibodies, repeat CT (same), 240 urine VIP, 5-HIAA, ERCP with sphincterotomy, repeat colonoscopy with terminal ileum visualization (mild anemia) And followed her over time
Questions?
(Smith et al. JGIM, 2006;21:671-677)
Primary Care Physicians  Assisted by Case Manager Can Also Treat MUS
What is the patient’s perspective?
Qualitative Methods - Sampling
Sample - Characteristics 16 (84%) were females 9 (47%) married 14 (74%) > 2 years of college Mean age 48years (31 – 65) >11 visits/year; 69.6% medically unexplained per chart review Only 7 (37%) diagnosed MUS (5 fibromyalgia, 2 IBS) So, typical primary care patients with a lot of visits (or symptoms); many not recognized by doc as having MUS --- need to diagnose to treat.
Qualitative Methods – Long Interview (60 – 90 minutes)
Qualitative Methods – Grounded Theory
Results There were 3 different types of patients The 3 types wanted different things from their visits
Coping High Utilizers ,[object Object],[object Object],[object Object],[object Object]
Skills Needed To Treat MUS Establish and maintain a successful doctor-patient relationship Help patient to understand his/her illness (Education) Help patient to Commit to actively participate in his/her care Help patient to set realistic Goals Negotiate and agree on pharmacologic and non-pharmacologic treatment elements
1: Establish & Maintain a Successful Doctor-Patient Relationship Awareness of Self Relationship-Building Skills Listen Ask about emotions Express empathy
Developing Self Awareness Mindfulness paying attention, on purpose, to one's own mental and physical processes during everyday tasks, so as to act with clarity and insight a set of habits of mind and habits of practice in the moment Can be enhanced by: Meditation Journaling Balint Groups Advanced Communication Training with Personal Awareness Component American Academy on Communication in Healthcare (AACH) www.aachonline.org Finding Meaning in Medicine Groups www.meaninginmedicine.org
Relationship-Building Skills LISTEN   1. Non-focusing ,[object Object]
nonverbal  encouragement ,[object Object],	 2. Focusing ,[object Object]
requests
summarizingASK ABOUT EMOTION Direct 		 2. Indirect ,[object Object]
belief
self-disclosureEXPRESS EMPATHY      1. Name 	 2. Understand 	 3. Respect 	 4. Support
Express Empathy “NURS” often ,[object Object]
Understand: “I can understand your feeling this way.”
Respect: “This has been a difficult time for you. You show a lot of courage.”
Support: “I want to help you to get better.” ,[object Object]
We do not need any more tests
Illness is real, “not in your head”
It is common, it has a name, and I have experience
We think it is caused by…
Bad news is it cannot be cured
But you can feel better and get on with your lifeTELL Confidently ASKIf theyunderstand This is a lot to throw at you. Can you tell me what you understand so far?
What can you say to help patients understand… Chronic pain Irritable bowel syndrome
3:  Help Patients to Commit  I am committed to helping you feel better, but I can’t do it alone. A lot of effort, especially from you. We can go at your pace, but you have to be on board. Are you ready? ASK for commitment ,[object Object]
What 1 or 2 things can you commit to doing by our next visit?

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An individualized, evidence based approach to mus

  • 1. An Individualized, Evidence-Based Approach To Medically Unexplained Symptoms Francesca C. Dwamena, MD MS Robert C. Smith, MD ScM Michigan State University AACH Research and Teaching Forum, Scottsdale, Arizona October 17, 2010
  • 3. Video Presentation: A 34 year old female with intractable diarrhea, nausea/vomiting, abdominal pain
  • 4. Workshop Objectives Participants will be able to: Describe steps required to diagnose “Medically Unexplained Symptoms” (MUS) in primary care. assist MUS patients in understanding their illnesses committing to participate in their care. setting and achieving realistic goals negotiate treatment plans with patients with MUS
  • 5.
  • 6. Mechanism --- patient avoids emotion
  • 7. Psychodynamic – ineffective emotional expression
  • 8. Behavioral – reinforcement of illness behaviors
  • 10.
  • 13. Severe MUS (~5-6% MUS pts.)
  • 15. Our Case – Ms G MUS was characterized by: High utilization, Multiple symptoms Chronic; recent acceleration Both medical and psychiatric co-morbidity Type 2 DM, OSA, depression, anxiety, dependent personality, obesity
  • 16. Our Case – Ms G To rule out organic disease, We reviewed med records CT scan abdomen (2 non-obstructing stones), EGD, colonoscopy (2 years prior), cholecystectomy Ordered the following in hospital stool studies, antiendomyseal antibodies, repeat CT (same), 240 urine VIP, 5-HIAA, ERCP with sphincterotomy, repeat colonoscopy with terminal ileum visualization (mild anemia) And followed her over time
  • 18. (Smith et al. JGIM, 2006;21:671-677)
  • 19. Primary Care Physicians Assisted by Case Manager Can Also Treat MUS
  • 20. What is the patient’s perspective?
  • 21.
  • 23. Sample - Characteristics 16 (84%) were females 9 (47%) married 14 (74%) > 2 years of college Mean age 48years (31 – 65) >11 visits/year; 69.6% medically unexplained per chart review Only 7 (37%) diagnosed MUS (5 fibromyalgia, 2 IBS) So, typical primary care patients with a lot of visits (or symptoms); many not recognized by doc as having MUS --- need to diagnose to treat.
  • 24. Qualitative Methods – Long Interview (60 – 90 minutes)
  • 25. Qualitative Methods – Grounded Theory
  • 26. Results There were 3 different types of patients The 3 types wanted different things from their visits
  • 27.
  • 28. Skills Needed To Treat MUS Establish and maintain a successful doctor-patient relationship Help patient to understand his/her illness (Education) Help patient to Commit to actively participate in his/her care Help patient to set realistic Goals Negotiate and agree on pharmacologic and non-pharmacologic treatment elements
  • 29. 1: Establish & Maintain a Successful Doctor-Patient Relationship Awareness of Self Relationship-Building Skills Listen Ask about emotions Express empathy
  • 30. Developing Self Awareness Mindfulness paying attention, on purpose, to one's own mental and physical processes during everyday tasks, so as to act with clarity and insight a set of habits of mind and habits of practice in the moment Can be enhanced by: Meditation Journaling Balint Groups Advanced Communication Training with Personal Awareness Component American Academy on Communication in Healthcare (AACH) www.aachonline.org Finding Meaning in Medicine Groups www.meaninginmedicine.org
  • 31.
  • 32.
  • 34.
  • 36. self-disclosureEXPRESS EMPATHY 1. Name  2. Understand  3. Respect  4. Support
  • 37.
  • 38. Understand: “I can understand your feeling this way.”
  • 39. Respect: “This has been a difficult time for you. You show a lot of courage.”
  • 40.
  • 41. We do not need any more tests
  • 42. Illness is real, “not in your head”
  • 43. It is common, it has a name, and I have experience
  • 44. We think it is caused by…
  • 45. Bad news is it cannot be cured
  • 46. But you can feel better and get on with your lifeTELL Confidently ASKIf theyunderstand This is a lot to throw at you. Can you tell me what you understand so far?
  • 47. What can you say to help patients understand… Chronic pain Irritable bowel syndrome
  • 48.
  • 49. What 1 or 2 things can you commit to doing by our next visit?
  • 50. You thought that walking 15 minutes 2X/week was possible for you. What got in the way?ASK again and again
  • 51. What would you say to following patients? Multiple no-shows Not making progress in changing unhealthy behavior
  • 52. Commitment DOs and DON’Ts DO Ask for commitment again and again; key to success Acknowledge patient’s plight and obstacles Praise small victories Express curiosity and be patient Use contracts to emphasize plan and partnership DON‘T Use language that blames the patient Give up when success is elusive or fleeting NURS! “You can’t keep doing the same things expecting different results…”
  • 53.
  • 56. Improved symptomse.g., Even though there is no cure, you can do/have some of these. What would you like to have/do in the next 6 to 12 months? ASK forLong-term goals Assess and celebrate progress at each visit
  • 57.
  • 58. Meditate for 10 minutes everyday
  • 59.
  • 60. What will you do if it rains?SUMMARIZEand record To Operationalize Long Term Goals ASK What can you accomplish by next visit? Review, revise, update goals each visit
  • 61. 5. Negotiate – a) Non-Pharmacologic Treatment Regular Visits Agreement not to self-refer Exercise Physical Therapy Relaxation techniques Involvement of significant other
  • 62.
  • 63. The test shows that you have major depression.
  • 64. X helps significantly to improve pain.
  • 65. We can stay away from X and try Y.
  • 66. It can help the pain and also help you to sleep.
  • 67. We can start low dose so you can get used to it.
  • 68.
  • 69. As X builds up in your system, we can wean Z.
  • 70. Don’t worry; if we have to, we can add it right back.
  • 71. I want to help you feel better, not worse.
  • 72. Take Z the same way everyday. Don’t skip or take more no matter how you feel.
  • 73.
  • 74. Demonstration: Development of Initial Plan Discussion (assign components) How did he establish/maintain relationship? NURS (Name, Understand, Respect, Support)? How did he educate (what were elements?) How did he help patient to commit? How did he help patient to set goals (long-term, short-term)? How did he negotiate?
  • 75.
  • 76. Please fill out your evaluations!!!