Alzheimers Innovation 2013

Alzheimer’s Disease
Innovation 2013
A National Plan to Fight Back

© 2013 Griswold International, LLC

November is
National
Alzheimer’s
Disease
Awareness
Month

“During National Alzheimer's
Disease Awareness Month, we
stand united in our commitment to
improve care for Alzheimer's patients,
identify new therapies for the disease,
and support all those whose lives
have been touched by this
tragic ailment.”
Excerpt from President
Obama’s Proclaimation


November is
National
Family
Caregivers
Month

“Family members,
friends, and neighbors devote
countless hours to providing care
to their relatives or loved ones.
During National Family Caregivers
Month, we recognize and thank the
humble heroes who do so much
to keep our families and
communities strong.”
Excerpt from President
Obama’s Proclaimation


Goals for Today
• Review the National Alzheimer’s Plan 2013 and share tools for
reaching key goals and overcoming challenges
• Share innovative non-medical Alzheimer’s treatment approaches
• Empower clients and their family/professional caregivers to fight
Alzheimer’s Disease through quality care, advocacy, education
and support


Presented by:
Linda Barba

Family Caregiver, Advocate and
Support Group Facilitator

Chris Kelly, MEd

Director of Learning and Development
Griswold Home Care


Thank you for your courage, energy, and dedication!
Healthcare Providers

Professional Caregivers

Family Caregivers

Clients Living with Alzheimer’s


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BRAIN WRITING

Solutions

Brainwriting is…
• a fun, engaging way to brainstorm
• sharing as many ideas as possible within a short timeframe
Brainwriting Process
• Listen for our questions
• When prompted, enter your solutions using the webinar chat function
• Don’t overthink or agonize…There are no right or wrong answers
Brainwriting Outcomes
• Peer-to-peer learning and sharing
• A publication that benefits others who are living with Alzheimer’s
Important
• Avoid sharing any information that you would not want others to see


Lit Review
Social Media
Advocacy
Solutions Webinar & Toolkit


Challenging Symptoms
Memory loss that disrupts life

Decreased or poor judgment

Problems with planning and
problem-solving

Changes in movement/
coordination

Struggle to complete
familiar tasks

Changes in mood
or personality

Confusion with person,
place and time

Agitation and/or aggression

New problems with
reading, writing or speaking
Misplacing things in
unusual places

Sundowning
Wandering
Inability to eat or swallow

“I feel like I have been
hearing about ‘plaques’ and
‘tangles’ for 15 years. Isn’t there
anything new that would generate
hope and excitement for people
living with this horrible disease?
All you hear is the negative. You
can’t help but develop a sense of
helplessness. Helplessness
can be paralyzing.”
Family caregiver quote


A National Plan
to Address
Alzheimer's Disease

Source: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf

USDHHS Identifies 5 Key Priorities
Prevent and Effectively Treat Alzheimer’s
Disease by 2025
Enhance Care Quality and Efficiency
Expand Support for People with Alzheimer’s
Disease and Their Families
Enhance Public Awareness and Engagement
Improve Data to Track Progress

Alzheimer’s Association 10 Core Challenges
A lack of public
awareness

Specific challenges facing
diverse communities

Insufficient
research funding

Specific challenges facing
those with younger-onset
Alzheimer’s

Difficulties with
diagnosis

Unprepared caregivers

Inadequate
treatments

Ill-equipped communities

Poor dementia care

Mounting costs

Alzheimer’s Association Top Challenges: http://www.alz.org/documents_custom/napareport.pdf

Real Stories
Linda Barba

- Lou Gehrig


Prevent & Effectively
Treat Alzheimer's Disease
A Focus on Non-Medical Treatment Approaches


"If you say Alzheimer's,
everyone immediately thinks
that it's the plaques that actually
cause the disease. That couldn't
be further from the truth…
the data actually suggests
these plaques are a form of
protection that the body
tries to put on.”

“While research
on AD has made
steady progress, there
are no pharmacological
or other interventions
to definitively prevent,
treat, or cure
the disease.”
National Alzheimer’s
Plan excerpt

Andrew Dillin, of the Salk Institute in California
and the Howard Hughes Medical Institute


“NPTs emerge
as a useful, versatile
and potentially costeffective approach to
improve outcomes and
quality of life for both the
person with dementia
and caregivers.”
Javier Olazarán

Neurologist and NPT Researcher


Improve Cognitive Symptoms
Cognitive training and rehab
(individual and group)

Physical activity/
Staying active

Reminiscence

Support groups

Personalized music

Yoga/Tai Chi/
Meditation

Creative expression
(writing, scrapbooking)

Combining all of
the above

Source: http://www.nptherapies.org/pdf/Non-pharmacological%20Therapies%20in%20AD,%20a%20Systematic%20Review%20of%20Efﬁcacy.pdf

Improve Activities of Daily Living (ADLs)

ADL training

Guided performance

Yoga/Tai Chi

Physical activity/
Staying active


Improve Mood and Peace of Mind
Cognitive Behavioral
Therapy (CBT)

Meditation/Yoga/Tai Chi

Meaningful diversion

Validation therapy

Personalized music

Adult day care

Support

Memory care center

Improve Quality of Life for
Family Caregivers
In-home counseling sessions

Online connection
with peers/HCPs

Cognitive Behavioral
Therapy (CBT)

Education:
- Coping skills
- Problem solving

Ongoing telephone
support/coordination

Support groups
(with and w/o client)

Alzheimer’s Disease Treatment Toolkit

The Society for Cognitive Rehabilitation

Recollection Connection

NICE.org.uk

Latest Treatment Options

http://bit.ly/1fx7kK8

http://bit.ly/1cOTZiY

http://bit.ly/1isrbga

http://bit.ly/1aGi5rZ


Enhance Care
Quality & Efficiency
A Focus on Care Coordination, Empowerment & Recognition


Effective Care Coordination Practices
Learn from best practice dementia care models:
Develop a single point of contact for clients/families
Form a multi-disciplinary care team that communicates
effectively
Develop a personalized action plan for clients/families
Offer ongoing, dynamic Learning/Development opportunities
for dementia care professionals

A Dynamic
Dementia
Care Team

Massage
Therapist

Home care
Professional

Nurse

Recreational
Therapist

Social Worker/
Geriatric
Care Manager

Neurologist/Geriatrician
Geriatric Psychiatrist

PCP/NP/PA

Rehab
Professionals:
OT/PT/Speech

Facility
Professionals

Adult Day Care
Professional

Cognitive
Behavioral
Therapist (CBT)

Dietician

Cognitive
Rehabilitative
Therapist (CRT)

Real Stories
Linda Barba



Care Coordination Toolkit

Alzheimer’s Quality of Care

CDPH.ca.gov

Working With Providers

http://bit.ly/17lKTT2

http://bit.ly/1aR0IHw

http://bit.ly/1a0Nq9f


Quality Care Toolkit

AD Research Centers

IPCed Professional Training

http://1.usa.gov/1e1fQAE

http://bit.ly/1fT52W4

Alzheimer’s Association Professional Training
http://bit.ly/17JB2qq

Expand Support for People
with Alzheimer’s Disease
& Their Families


Improving the Experience
Core challenges:
Widespread lack of knowledge/understanding about
Alzheimer’s Disease
High level of public/professional stigma
Negative experiences for people living with AD
Poor understanding of the scope of Alzheimer’s Disease
Isolation for clients and caregivers
Lack of targeted services and support for those living with
Younger-Onset AD

Expanding Support Toolkit

Overcoming Stigma

Confronting Ageism and Stigma

http://bit.ly/1aCBXIT

http://bit.ly/1hCSeHI

Early Onset AD Info

AD Support Groups

http://bit.ly/1hIafBU

http://bit.ly/16YR1mY

Enhance Public
Awareness & Engagement


Understand the Scope

PBS: The Forgetting

Alzheimer’s Basics

http://to.pbs.org/1cjMpI7

http://1.usa.gov/1a10RWQ

What is Alzheimer’s?

About Alzheimer’s

http://bit.ly/HPpewl

http://bit.ly/1bzGLBJ

Enhance Engagement

Alz Assoc Advocacy: Join The Cause
http://bit.ly/HS1KXK

Fisher Center for AD

Alz. Foundation of America

http://bit.ly/17ROVbJ

http://bit.ly/HV5zKU

Key Takeaways
Review the National Alzheimer’s Plan and get involved
Non-medical treatment approaches DO offer promise and
hope today
Effective care coordination is critical
Let’s work together to “improve the experience” for those
who are living with AD

Open Q&A
1. Click to expand
if necessary
2. Type questions here


Brought to you by:

Griswold Home Care offers access to affordable
non-medical care options to assist your loved one.
CareAssure Screening System™

The Griswold Golden Rule: We only approve
caregivers we would trust in our own homes.

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at Affordable Rates Since 1982

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We give each family access to the most
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National 24x7 Care Line:
800-GRISWOLD
www.GriswoldHomeCare.com


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