Presentation by Louise Wilson, Programme Manager, Great North Care Record: Great North Care Record at ECO: Digital Health in the North on Wednesday 27 September at Kings House Conference Centre, Manchester

1. The Great North Care Record
Louise Wilson
@NetworkLouise
louise.wilson@newcastle.ac.uk

2. What is the Great North Care Record?
The Great North Care Record
makes information
appropriately accessible for
individual healthcare, service
planning and research.

3. Our ecosystem: game changing citizen engagement

4. Our ecosystem: game changing citizen engagement
• 25 focus groups across the
North East and North Cumbria
• Delivered in partnership with
local Healthwatch groups
• Teesside and Newcastle
University independently
evaluated responses
• Explored their views on data
sharing within and outside NHS
and managing their own privacy
preferences
• YouGov poll

5. It’s my data and I decide who sees it
My privacy
preferences

6. An ecosystem of conversations: professional engagement
• Professional network
• Discourse
• Informatics in the Pub
• Time In Time Out
• Caffe Informatica
• Amy’s Page
workshops
• Blogs
• Social media

7. Introducing Amy

8. You
and
your
team
Mapping the constellation of care
Your ‘Work Activity’
1. Having conversations withfamily
members
2. Having conversations withthe whole
family
3. Having one to one conversations with
other professionals/workers
4. Having conversations inmulti-agency
meetings
5. Having supervisionmeetings
6. Finding information
7. Other
Your role and
organisation:
_____________
The
Family

9. 9
123
Amy’s Page
workshops
participants
3personas &
scenarios
53 different
participant
roles
plus 18 who didn’t say

10. Thank you.
louise.wilson@newcastle.ac.uk
greatnorthcarerecord.org
@greatnorthcare
@greatnorthcarerecord
CHC North East and North Cumbria