We at PersonalGenomes.org are thrilled to announce that our Open Humans Network was awarded a $500,000 grant from the Knight News Challenge: Health. The winners were announced at the Clinton Foundation Health Matters Conference on January 14, 2014 in La Quinta, CA. The John S. and James L. Knight Foundation is the leading funder of journalism and media innovation. It has been seeking the next generation of innovations to inform and engage communities. With its Knight News Challenge: Health, the Knight Foundation is funding breakthrough ideas that harness data and information for the health of communities. The five-stage competition began in August 2013 with an “Inspiration Phase” during which anyone could post needs, interests, and ideas online at its website, and continued with the submission of 630 health and data news projects, all competing for a share of $5 million in funding and support. After a feedback stage, 39 semi-finalists – the Open Humans Network among them – were invited to refine their projects and submit videos prior to judging. Ten winners were awarded grants. The Open Humans Network, led by Jason B and Madeleine Ball of PersonalGenomes.org, attempts to break down health data silos through an online portal that will connect participants willing to share data about themselves publicly with researchers who are interested in using that public data and contributing their analyses and insight to it. The portal will showcase public health data and facilitate its exploration and download. The Open Humans Network ultimately hopes to revolutionize research by making it easy for anyone to participate in research projects and facilitating highly integrated, longitudinal health data. This portal will consist of three components: individual data profile pages, a public data explorer and a set of design guidelines for researchers seeking a collaborative data-sharing model. The Open Humans Network grows out of the Personal Genome Project (PGP), a research study founded in 2005 that has pioneered open-access sharing of genomic and trait data. Current partners with the Open Humans Network include the Harvard Personal Genome Project (PI: George Church, Harvard Medical School), American Gut project (PI: Rob Knight, University of Colorado, Boulder), Flu Near You: GoViral Study (Rumi Chunara, Boston Children’s Hospital) and the Mt. Sinai School of Medicine (Eric Schadt, Icahn Institute). By helping participants locate legitimate, open research projects and promoting data sharing, the Open Humans Network will allow any individual to make valuable contributions to science. We believe that everyone benefits from a health research community that is more transparent, efficient, and equitable. Toward this end, we aim to reimagine health research and biodiscovery! Visit us online at: openhumans.org

1. Find equitable research studies and donate
your personal data for public benefit
Jason Bobe
Executive Director
PersonalGenomes.org
@jasonbobe
Clinton Foundation
Health Matters Conference
January 14, 2014
La Quinta, CA

2. value of sharing is clear
Rembrandt, 1632

3. Thanks Flickr user: mag3737, CC-BY-NC-SA

6. Annual event attended by hundreds of volunteers who
have donated extensive health data and researchers
who seek to collaborate with them:
www.getconference.org

7. Special Thanks
Harvard Personal Genome Project
-Staff and participants
Madeleine Price Ball, PhD
-Co-founder of Open Humans

8. Thanks to
PersonalGenomes.org Board of Directors
Misha Angrist
Esther Dyson
John Halamka
George Church
Juan Enriquez
Ryan Phelan

9. Thanks to Advisors
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Clinical data: Eric Schadt (Mt. Sinai School of Medicine)
Secure data protocols: Jeremie Miller
(Jabber, Telehash, Singly)
Open health devices: Charles Fracchia (MIT CBA / HMS)
Citizen-scientist advocate: Abigail Wark (Harvard)
Outreach: Celia Fulton Walden (GET Conference & GET
Labs)
Ux: Involution Studios

10. CONTACT ME
Jason Bobe
jason@personalgenomes.org
@jasonbobe
Learn more
OpenHumans.org
@OpenHumansOrg