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The Use of Social
Media for Patient
Empowerment
Jessica Chapman, M.D.
June 20, 2017
Social Media Networks
 Facebook
 Twitter
 Instagram
 Google+
 Pinterest
 LinkedIn
 Youtube
 Tumblr
 Reddit
 WhatsApp
 Snapchat
 StumbleUpon
 Vine
 Periscope
 Quora
 Flickr
 Etc…
Social Media Networks
 Facebook = 1.59 billion users
 Twitter = 320 million users
 LinkedIn = 400 million users
 Google+ = 418 million users
 Youtube = 1 billion website visitors per month
 Pinterest = 100 million users
 Instagram = 400 million users
The Millennial
Patient
 Generally refers to a person born between 1981 and 1997.
 In 2016, the Pew Research Center found that Millennials surpassed Baby
Boomers to become the largest living generation in the United States.
 “Digital Native”. More likely to use the internet for research.
 Many are entering their 30’s, the age where autoimmune diseases tend to
start emerging.
Correlates of health-related
social media use among adults
How are people using social media for health care
related activities and who?
Thackeray R, Crookston BT, West JH. Correlates of health-related social media use among adults. J Med Internet Res. 2013 Jan
30;15(1):e21. doi: 10.2196/jmir.2297.
 Online rankings or reviews (41.15%)
 SNS for health (31.58%)
 Respondents with a chronic disease were nearly twice as
likely to consult online rankings
 Older respondents were less likely to use SNS for health-
related activities
 Respondents with a regular provider had nearly twice the
likelihood of using SNS for health-related activities
Dangers
Privacy,
confidentiality, one-
on-one interactions,
formal conduct
Sharing, openness, connection,
transparency, and informality
Dangers
• Liability
• Litigation
• Privacy/HIPAA
• Lack of time/compensation
AMA Guidelines
• Need to maintain patient confidentiality
• Utilize privacy settings
• Maintain appropriate patient-physician boundaries
• Provide accurate and truthful information
• Act with collegiality
• Avoid anonymity
• Declare conflicts of interest
• Maintain separate personal and professional profiles
Guidelines PDF
https://www.law360.com/articles/743560/a-checklist-for-avoiding-hipaa-violations-on-social-media
Kind T. Professional Guidelines for Social Media Use: A Starting Point. AMA Journal of Ethics. May 2015, Volume 17,
Number 5: 441-447.
Opportunities
Opportunities
 Improve patient-physician interactions
 Enhance patient motivation
 Drive awareness
 Provide accurate information
 Raise timely issues
 Facilitate the exchange of ideas
 Frame and reframe health-related questions
 Engage a larger community
 Improve outcomes across health systems
Examples
 Provide general information regarding cardiovascular disease and rheumatoid arthritis. Guidance on keeping blood pressure low.
 Provide information regarding seasonal vaccinations
 Provide information regarding osteoporosis screening
 Provide healthy recipes
 Provide general information regarding health insurance coverage.
 Provide up to date research data
 Healthcare law changes
 Post stretching exercise videos
 “When to consult a rheumatologist?” series
 “I just got diagnosed with” series
 Keep patient’s informed with community events: farmers’ markets, 5K runs
 Mobilize the community around local advocacy measures: walking paths, increased funding for free clinic
 Increase awareness: e.g., Ice bucket challenge – ALS, Organ donor – Facebook
 Health research recruitment – IRB compliant
Social media use for patient empowerment
Social media use for patient empowerment

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Social media use for patient empowerment

  • 1. The Use of Social Media for Patient Empowerment Jessica Chapman, M.D. June 20, 2017
  • 2.
  • 3. Social Media Networks  Facebook  Twitter  Instagram  Google+  Pinterest  LinkedIn  Youtube  Tumblr  Reddit  WhatsApp  Snapchat  StumbleUpon  Vine  Periscope  Quora  Flickr  Etc…
  • 4. Social Media Networks  Facebook = 1.59 billion users  Twitter = 320 million users  LinkedIn = 400 million users  Google+ = 418 million users  Youtube = 1 billion website visitors per month  Pinterest = 100 million users  Instagram = 400 million users
  • 5. The Millennial Patient  Generally refers to a person born between 1981 and 1997.  In 2016, the Pew Research Center found that Millennials surpassed Baby Boomers to become the largest living generation in the United States.  “Digital Native”. More likely to use the internet for research.  Many are entering their 30’s, the age where autoimmune diseases tend to start emerging.
  • 6. Correlates of health-related social media use among adults How are people using social media for health care related activities and who? Thackeray R, Crookston BT, West JH. Correlates of health-related social media use among adults. J Med Internet Res. 2013 Jan 30;15(1):e21. doi: 10.2196/jmir.2297.
  • 7.  Online rankings or reviews (41.15%)  SNS for health (31.58%)  Respondents with a chronic disease were nearly twice as likely to consult online rankings  Older respondents were less likely to use SNS for health- related activities  Respondents with a regular provider had nearly twice the likelihood of using SNS for health-related activities
  • 9. Privacy, confidentiality, one- on-one interactions, formal conduct Sharing, openness, connection, transparency, and informality
  • 10. Dangers • Liability • Litigation • Privacy/HIPAA • Lack of time/compensation
  • 11. AMA Guidelines • Need to maintain patient confidentiality • Utilize privacy settings • Maintain appropriate patient-physician boundaries • Provide accurate and truthful information • Act with collegiality • Avoid anonymity • Declare conflicts of interest • Maintain separate personal and professional profiles Guidelines PDF https://www.law360.com/articles/743560/a-checklist-for-avoiding-hipaa-violations-on-social-media Kind T. Professional Guidelines for Social Media Use: A Starting Point. AMA Journal of Ethics. May 2015, Volume 17, Number 5: 441-447.
  • 13.
  • 14. Opportunities  Improve patient-physician interactions  Enhance patient motivation  Drive awareness  Provide accurate information  Raise timely issues  Facilitate the exchange of ideas  Frame and reframe health-related questions  Engage a larger community  Improve outcomes across health systems
  • 15. Examples  Provide general information regarding cardiovascular disease and rheumatoid arthritis. Guidance on keeping blood pressure low.  Provide information regarding seasonal vaccinations  Provide information regarding osteoporosis screening  Provide healthy recipes  Provide general information regarding health insurance coverage.  Provide up to date research data  Healthcare law changes  Post stretching exercise videos  “When to consult a rheumatologist?” series  “I just got diagnosed with” series  Keep patient’s informed with community events: farmers’ markets, 5K runs  Mobilize the community around local advocacy measures: walking paths, increased funding for free clinic  Increase awareness: e.g., Ice bucket challenge – ALS, Organ donor – Facebook  Health research recruitment – IRB compliant

Notas del editor

  1. Patients are living with the condition, they’re going to want to get accurate information.