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The ACA and LGBT Individuals:
New Options for Coverage & Care
Jen Kates, PhD
May 20, 2014
Vice President; Director, Global Health & HIV Policy
Kaiser Family Foundation
@jenkatesdc
EXPANDED
ACCESS TO
COVERAGE &
MARKET
REFORMS
PREVENTIVE
SERVICES/
BENEFITS
STANDARDS
NON-
DISCRIMINATION
PROTECTIONS
DATA
COLLECTION
& RESEARCH
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Key ACA Provisions for the LGBT Community
• Medicaid expansion to nearly all
low income individuals (up to
138% FPL) in states opting to
expand
• Health insurance marketplaces
in every state, with subsidies for
those who are low income
• Medicaid: Supreme Court decision
made Medicaid expansion a state
option
• Marketplaces: Plans must meet
federal standards but vary
significantly in terms of provider
networks, benefit packages, etc.
Provision Issues to Consider
• 10 Essential Health Benefits (EHB)
categories, including preventive
services, mental health/substance
use, prescription drugs
• Preventive services include HIV &
STD screening, immunizations,
other chronic disease screenings
• Preventive Services: all USPSTF “A”
and “B” rated services must be
provided at no cost in all non-
grandfathered health plans and for
Medicaid expansion population in
states that expand
Overview of Changes due to the ACA
Expanded
Access to
Coverage &
Market
Reforms
Preventive
Services/
Benefits
Standards
NOTES: USPSTF = U.S. Preventive Services Task Force; FPL = Federal Poverty Level.
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
Figure 3
NOTES: Data are as of April 2014.
SOURCES: KFF, State health facts, http://kff.org/health-reform/state-indicator/state-activity-around-expanding-medicaid-under-the-affordable-care-
act/#notes; KFF analysis of data from CDC; personal communication with Kellan Baker, Center for American Progress, May 2014.
WY
WI*
WV
WA
VA
VT
UT
TX
TN
SD
SC
RI
PA
OR
OK
OH
ND
NC
NY
NM
NJ
NH*
NV
NE
MT
MO
MS
MN
MI*
MA
MD
ME
LA
KYKS
IA
INIL
ID
HI
GA
FL
DC
DE
CT
CO
CA
AR*AZ
AK
AL
Implementing Expansion in 2014 (27 States including DC)
Open Debate (5 States)
Not Moving Forward at this Time (19 States)
Status of State Medicaid Expansion Decisions, 2014
41% LGBT,
44% PLWHA
live in states
not expanding
• End to pre-existing condition
exclusions (cannot be charged
more for being LGBT, HIV+)
• Section 1557 prohibits
discrimination based on sex,
(includes Gender ID, sex
stereotypes), in any health
program receiving federal funds
• Plans offering EHB barred from
discriminating based on sexual
orientation and gender identity
(SOGI)
• Health plans outside
marketplace required to offer
married same sex spouses
coverage if offered to opposite
sex spouses (as of 2015)
• Section 1557 not currently
interpreted to include sexual
orientation
• While transgender individuals
should have access to needed
services if covered for others in
health plan, plans can still exclude
care related to gender transition
• Seven states offer SOGI insurance
protections (CA, CO, CT, DC, MD,
OR, VT).
Provision Issues to Consider
Overview of Changes due to the ACA, continued
Non-
Discrimination
Provisions
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
• ACA calls for routine data
collection/surveillance on
health disparities, including for
LGBT populations; also Healthy
People 2020 goal
• Sexual orientation question
added to NHIS
• CDC approved SOGI questions
for state-administered BRFSS
• SOGI metrics in Electronic
Health Records (meaningful use
standards)
Provision Issues to Consider
Overview of Changes due to the ACA, continued
Data
Collection &
Research
• Still not routine for researchers
and health data systems to
collect and report SOGI data
NOTES: NHIS = National Health Interview Survey; BRFSS = Behavioral Risk Factor Surveillance System
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
IRS RECOGNITION
OF LEGALLY
MARRIED SAME-
SEX COUPLES
SAME-SEX
SPOUSAL
BENEFITS IN
FEDERAL
PROGRAMS
ACA COVERAGE
EXPANSIONS &
LEGALLY
MARRIED SAME-
SEX COUPLES
OTHER
CHANGES
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Implications of DOMA Decision & Other Policy Changes for
LGBT Health Care Access
Provision Issues to Consider
• Recognizes legally married same
sex couples which affects a
number of health-related
financial issues (e.g., spousal
health benefits now non-taxable
income for same sex couples)
• Requires all ERISA plans to
include legally married same-sex
couples in definition of “spouse”
and “marriage,” for purposes of
COBRA and other dependent
benefits
• Based on “state of celebration,”
regardless of whether couple lives
in state that recognizes same-sex
marriage
• But access to spousal coverage still
governed by patchwork of state-
policy and law. Majority of states
still impose bans on same-sex
marriages and do not recognize
same-sex marriages conducted
legally in other states. Employers in
these states not required to offer
coverage
DOMA Decision - Implications
IRS
Recognition
of Married
Same-Sex
Couples
NOTES: ERISA = Employee Retirement Income Security Act of 1974, a federal law that sets minimum standards for most voluntarily established pension and
health plans in private industry to provide protection for individuals in these plans; COBRA= Consolidated Omnibus Budget Reconciliation Act, an amendment to
ERISA, which provides some workers and their families with the right to continue health coverage for a limited time after certain events, such as the loss of a job.
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
Figure 8
NOTE: Under the ACA and Supreme Court DOMA ruling, states that recognize same-sex marriages required to provide insurance parity to same-sex couples.
Nevada- No Insurance Requirement, Insurance Coverage is the same as opposite-sex spouses, except for group health insurance benefits. Wisconsin- No
insurance requirement, but have limited spousal rights.
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in
the U.S., Kaiser Family Foundation, January 2014 (see issue brief for detailed list of data sources).
Relationship Recognition & Insurance Coverage Policies
for Same-Sex Partners, by State
AZ
AR
MS
LA
WA
MN
ND
WY
ID
UT
CO
OR
NV
CA
MT
IA
WI
MI
NE
SD
ME
MOKS
OHIN
NY
KY
TN
NC
NH
MA
VT
PA
VA
WV
CT
NJ
DE
MD
RI
HI
DC
AK
SC
NM
OK
GA
TX
IL
FL
AL
Civil union or domestic partner recognition AND requires insurance coverage, Same as Opposite-Sex Spouses (2 states)
State law banning same sex marriage and no law requiring insurance coverage for same-sex partners (29 states)
Same sex marriage legal AND requires insurance coverage, Same as Opposite-Sex Spouses (17 states + DC)
Civil union or domestic partner recognition BUT no insurance coverage requirement ( 2 states)
• Legally married same-sex federal
employees have same eligibility
for dependent spousal health
coverage and other dependent
benefits in Federal Employees
Health Benefits Program (FEHBP)
• Extends Family Medical Leave
Act (FMLA) workplace
protections to legally married
same sex couples, allowing time
off to care for a family member in
event of illness or birth of a child
• Based on “state of celebration,”
regardless of whether or not couple
lives in a state that recognizes same-
sex marriage
• But does not apply to state programs
or state employees (unless state
recognizes same sex marriage, civil
unions, or has other protections)
Provision Issues to Consider
DOMA Decision - Implications, continued
Same-sex
spousal
benefits in
federal
programs
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
• Marketplaces: Insurance plans in
health care marketplaces must
recognize legally married same-
sex couples for purposes of
determining tax credit eligibility
• Medicaid: Federal government
encouraging states to recognize
same-sex marriages for purposes
of determining Medicaid income
eligibility; states make ultimate
determination
Provision Issues to Consider
DOMA Decision - Implications, continued
ACA Coverage
& Legally
Married
Same-Sex
Couples
• Medicaid: No state has yet
submitted a State Plan Amendment
(SPA) for or against recognition of
same-sex spouses for
Medicaid/CHIP purposes
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
• Federal regulations require
hospitals participating in
Medicare and Medicaid (virtually
all in U.S.) to adopt written
policies and procedures
regarding patient’s right to visit
same-sex partner and must
prohibit discrimination based on
SOGI
• Federal regulations require long-
term care facilities, such as
nursing homes, to allow same-
sex spouses and domestic
partners to visit residents
• Health care proxy and advance
care directive provisions for
LGBT individuals
Provision Issues to Consider
Other Policy Changes
Other
Changes
• Enforcement still remains
challenge
SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the
U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.

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ACA LGBT Coverage

  • 1. The ACA and LGBT Individuals: New Options for Coverage & Care Jen Kates, PhD May 20, 2014 Vice President; Director, Global Health & HIV Policy Kaiser Family Foundation @jenkatesdc
  • 2. EXPANDED ACCESS TO COVERAGE & MARKET REFORMS PREVENTIVE SERVICES/ BENEFITS STANDARDS NON- DISCRIMINATION PROTECTIONS DATA COLLECTION & RESEARCH •This is an example text. Go ahead an replace it with your own text. This is an example text. • Go ahead and replace it with your own text. •This is an example text. Go ahead and replace it with your own text Key ACA Provisions for the LGBT Community
  • 3. • Medicaid expansion to nearly all low income individuals (up to 138% FPL) in states opting to expand • Health insurance marketplaces in every state, with subsidies for those who are low income • Medicaid: Supreme Court decision made Medicaid expansion a state option • Marketplaces: Plans must meet federal standards but vary significantly in terms of provider networks, benefit packages, etc. Provision Issues to Consider • 10 Essential Health Benefits (EHB) categories, including preventive services, mental health/substance use, prescription drugs • Preventive services include HIV & STD screening, immunizations, other chronic disease screenings • Preventive Services: all USPSTF “A” and “B” rated services must be provided at no cost in all non- grandfathered health plans and for Medicaid expansion population in states that expand Overview of Changes due to the ACA Expanded Access to Coverage & Market Reforms Preventive Services/ Benefits Standards NOTES: USPSTF = U.S. Preventive Services Task Force; FPL = Federal Poverty Level. SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
  • 4. Figure 3 NOTES: Data are as of April 2014. SOURCES: KFF, State health facts, http://kff.org/health-reform/state-indicator/state-activity-around-expanding-medicaid-under-the-affordable-care- act/#notes; KFF analysis of data from CDC; personal communication with Kellan Baker, Center for American Progress, May 2014. WY WI* WV WA VA VT UT TX TN SD SC RI PA OR OK OH ND NC NY NM NJ NH* NV NE MT MO MS MN MI* MA MD ME LA KYKS IA INIL ID HI GA FL DC DE CT CO CA AR*AZ AK AL Implementing Expansion in 2014 (27 States including DC) Open Debate (5 States) Not Moving Forward at this Time (19 States) Status of State Medicaid Expansion Decisions, 2014 41% LGBT, 44% PLWHA live in states not expanding
  • 5. • End to pre-existing condition exclusions (cannot be charged more for being LGBT, HIV+) • Section 1557 prohibits discrimination based on sex, (includes Gender ID, sex stereotypes), in any health program receiving federal funds • Plans offering EHB barred from discriminating based on sexual orientation and gender identity (SOGI) • Health plans outside marketplace required to offer married same sex spouses coverage if offered to opposite sex spouses (as of 2015) • Section 1557 not currently interpreted to include sexual orientation • While transgender individuals should have access to needed services if covered for others in health plan, plans can still exclude care related to gender transition • Seven states offer SOGI insurance protections (CA, CO, CT, DC, MD, OR, VT). Provision Issues to Consider Overview of Changes due to the ACA, continued Non- Discrimination Provisions SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
  • 6. • ACA calls for routine data collection/surveillance on health disparities, including for LGBT populations; also Healthy People 2020 goal • Sexual orientation question added to NHIS • CDC approved SOGI questions for state-administered BRFSS • SOGI metrics in Electronic Health Records (meaningful use standards) Provision Issues to Consider Overview of Changes due to the ACA, continued Data Collection & Research • Still not routine for researchers and health data systems to collect and report SOGI data NOTES: NHIS = National Health Interview Survey; BRFSS = Behavioral Risk Factor Surveillance System SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
  • 7. IRS RECOGNITION OF LEGALLY MARRIED SAME- SEX COUPLES SAME-SEX SPOUSAL BENEFITS IN FEDERAL PROGRAMS ACA COVERAGE EXPANSIONS & LEGALLY MARRIED SAME- SEX COUPLES OTHER CHANGES •This is an example text. Go ahead an replace it with your own text. This is an example text. • Go ahead and replace it with your own text. •This is an example text. Go ahead and replace it with your own text Implications of DOMA Decision & Other Policy Changes for LGBT Health Care Access
  • 8. Provision Issues to Consider • Recognizes legally married same sex couples which affects a number of health-related financial issues (e.g., spousal health benefits now non-taxable income for same sex couples) • Requires all ERISA plans to include legally married same-sex couples in definition of “spouse” and “marriage,” for purposes of COBRA and other dependent benefits • Based on “state of celebration,” regardless of whether couple lives in state that recognizes same-sex marriage • But access to spousal coverage still governed by patchwork of state- policy and law. Majority of states still impose bans on same-sex marriages and do not recognize same-sex marriages conducted legally in other states. Employers in these states not required to offer coverage DOMA Decision - Implications IRS Recognition of Married Same-Sex Couples NOTES: ERISA = Employee Retirement Income Security Act of 1974, a federal law that sets minimum standards for most voluntarily established pension and health plans in private industry to provide protection for individuals in these plans; COBRA= Consolidated Omnibus Budget Reconciliation Act, an amendment to ERISA, which provides some workers and their families with the right to continue health coverage for a limited time after certain events, such as the loss of a job. SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
  • 9. Figure 8 NOTE: Under the ACA and Supreme Court DOMA ruling, states that recognize same-sex marriages required to provide insurance parity to same-sex couples. Nevada- No Insurance Requirement, Insurance Coverage is the same as opposite-sex spouses, except for group health insurance benefits. Wisconsin- No insurance requirement, but have limited spousal rights. SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014 (see issue brief for detailed list of data sources). Relationship Recognition & Insurance Coverage Policies for Same-Sex Partners, by State AZ AR MS LA WA MN ND WY ID UT CO OR NV CA MT IA WI MI NE SD ME MOKS OHIN NY KY TN NC NH MA VT PA VA WV CT NJ DE MD RI HI DC AK SC NM OK GA TX IL FL AL Civil union or domestic partner recognition AND requires insurance coverage, Same as Opposite-Sex Spouses (2 states) State law banning same sex marriage and no law requiring insurance coverage for same-sex partners (29 states) Same sex marriage legal AND requires insurance coverage, Same as Opposite-Sex Spouses (17 states + DC) Civil union or domestic partner recognition BUT no insurance coverage requirement ( 2 states)
  • 10. • Legally married same-sex federal employees have same eligibility for dependent spousal health coverage and other dependent benefits in Federal Employees Health Benefits Program (FEHBP) • Extends Family Medical Leave Act (FMLA) workplace protections to legally married same sex couples, allowing time off to care for a family member in event of illness or birth of a child • Based on “state of celebration,” regardless of whether or not couple lives in a state that recognizes same- sex marriage • But does not apply to state programs or state employees (unless state recognizes same sex marriage, civil unions, or has other protections) Provision Issues to Consider DOMA Decision - Implications, continued Same-sex spousal benefits in federal programs SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
  • 11. • Marketplaces: Insurance plans in health care marketplaces must recognize legally married same- sex couples for purposes of determining tax credit eligibility • Medicaid: Federal government encouraging states to recognize same-sex marriages for purposes of determining Medicaid income eligibility; states make ultimate determination Provision Issues to Consider DOMA Decision - Implications, continued ACA Coverage & Legally Married Same-Sex Couples • Medicaid: No state has yet submitted a State Plan Amendment (SPA) for or against recognition of same-sex spouses for Medicaid/CHIP purposes SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.
  • 12. • Federal regulations require hospitals participating in Medicare and Medicaid (virtually all in U.S.) to adopt written policies and procedures regarding patient’s right to visit same-sex partner and must prohibit discrimination based on SOGI • Federal regulations require long- term care facilities, such as nursing homes, to allow same- sex spouses and domestic partners to visit residents • Health care proxy and advance care directive provisions for LGBT individuals Provision Issues to Consider Other Policy Changes Other Changes • Enforcement still remains challenge SOURCES: Ranji U, Beamesderfer A, Kates J, Salganicoff A, Health and Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., Kaiser Family Foundation, January 2014; Cray A, Baker K, How the Affordable Care Act Helps the LGBT Community, Center for American Progress, May 2013.