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BLOOD DONATIONS in the US

 A look at a controversial
          history
BLOOD DONATIONS
   A history of discrimination
World War II 1940 USA
 Dr. Charles Drew was the first black person in the
  U.S. to receive a Doctor of Science in Medicine
  degree from Columbia University
 He researched techniques in blood and plasma
  donation and was named Director of the
  American Red Cross Blood Bank in New York
  City
 At this time, the need for blood was great due to
  the soldiers fighting in WWII.
American Red Cross WWII Flyer
Red Cross Flyer from WWII
However, in 1941,Dr.
Charles Drew resigned
from his position as


  Director of the American
  Red Cross Blood Bank



    …   WHY???
        ???????
        ???????
        ???????
        ?
Because , in 1941, the War
Department issued a directive
stating that blood taken from
white donors should not be
mixed with that taken from
African American donors.

"It is not advisable to
indiscriminately mix Caucasian
and Negro blood for use in
blood transfusions for the U.S.
Military".
Do you think this was a
decision based on
scientific research

        or



discrimination ?
Dr. Drew called this unscientific and said "the blood of
  individual human beings may differ by blood
  groupings, but there is absolutely no scientific basis
  to indicate any difference in human blood from race to
  race.“

   The US Military still continued to implement this
  policy, even during the crisis of need for blood to
  send to the American troops, until 1949. After
  that, transfusions were allowed, but Black and
  White blood was still stored separately!
So, for nearly a decade (1941-1949), U.S.
soldiers were denied blood that might have
saved their lives because of a fear-
based, discriminatory policy.
• Fast forward : By September
         1982, the CDC began
         calling a new, deadly
         disease AIDS (acquired

1982     immune deficiency
         syndrome




       • Many were dying but no one
         knew why.

       • Some doctors were reluctant

WHY?     to investigate the causes of
         AIDS at all.
Dr Joel Weisman summed up the general
attitude by describing a conversation:
"I remember calling a person [in
infectious diseases] to describe what
was occurring. He said - and this was a
theme very early on –

 'I don't know what you're making such a
big deal of it for. If it kills a few of them
off, it will make society a better place‟.”
(Black , 1986).
Do you think this was a decision
based on scientific research

               or




discrimination ?
"An entire political movement grew up
around the silence of the Reagan
administration. The AIDS activist movement
took as its call to action 'silence equals
death' because literally the silence of the
Reagan administration was resulting in the
deaths of thousands and thousands of gay
men in our communities across the
country."Sue Hyde, National Gay and
Lesbian Task Force (Jacobs, 2004).
The silence of the US government on the topic of AIDS essentially
endorsed the deaths of gay and bisexual men
Keith Haring graphic art
Atmosphere of fear and panic
 It was in 1983, during this time of rampant
    homophobia and panic when the FDA chose to
    decree its lifetime ban policy on donations from
    gay/bi men. Billboards and bumperstickers
    stated things like “Thank GOD for AIDS”
   This was a climate of fear and uncertainty
   Blood testing was not yet very sophisticated
   There was a huge stigma placed upon anyone
    with AIDS
   As if an HIV + person was a leper :filthy and
    unclean
   Sadly, many of these attitudes still persist today
No one seemed to care…
 Few seemed to care about these people who
  were dying until it began to affect the straight
  communities as well. People had no idea how it
  was spread and rumors were flying. The first
  national AIDS education campaign was not
  launched until 1988.
 By then, nearly 83,000 cases of AIDS had been
  identified in America, and


 Over 45,000 people had died.
1983 FDA GAY BLOOD BAN
 FDA: Ban is necessary because : Men who have
  sex with men are at an increased risk for HIV
  and Hepatitis
 While it has been historically true that MSM
  experience higher rates of HIV infection than
  some other groups-classifying blood donors by
  their level of risky sexual behavior is a less
  discriminatory, safer way to screen donors.
  Additionally, more people with safe blood would
  be eligible to donate: helping reduce our recurring
  national blood shortages.
Stop the discrimination
 Being a MSM does not make someone
  particularly susceptible to HIV or hepatitis
  infection. Due to economic and social
  discrimination, MSM as a group experience
  increased rates of drug use and unsafe sexual
  practices, as do many other groups experiencing
  discrimination.
 Adding further unnecessary discrimination
  against MSM is not the answer to addressing the
  HIV/AIDS crisis. Nor is it the safest way to screen
  blood donors.
FDA says but other places do it
too
 FDA : Other countries also have
  lifetime/restrictive bans on this group BUT
 The principal of “everyone else is doing it” does
  not justify unethical behavior. Discrimination
  against the (L)GBT community generally and
  MSM specifically has hardly been unique to
  America. The FDA‟s attempt to use more socially
  progressive European countries for political cover
  is also misguided. Many countries, including
  European ones, have reformed or are reforming
  their Gay Blood Bans as we speak. Here is a
  partial list: Russia, Spain, Italy, the Thailand Red
  Cross, Sweden, Brazil, Argentina, Japan,
  Hungary, and New Zealand.
POLAND
 A very interesting point here is that the AIDS rate
  in Poland is VERY low and primarily occurs from
  IV drug use.
 Poland is a country that DOES NOT BAN anyone
  from blood donations based solely upon sexual
  orientation.
FDA
 FDA:The deferral for men who have had sex with men
 is based on the following considerations regarding
 risk of HIV: Men who have had sex with men since
 1977 have an HIV prevalence (the total number of
 cases of a disease that are present in a population at
 a specific point in time) 60 times higher than the
 general population, 800 times higher than first time
 blood donors and 8000 times higher than repeat
 blood donors (American Red Cross). Even taking into
 account that 75% of HIV infected men who have sex
 with men already know they are HIV positive and
 would be unlikely to donate blood, the HIV prevalence
 in potential donors with history of male sex with males
 is 200 times higher than first time blood donors and
 2000 times higher than repeat blood donors.
Response to FDA claims
  Right off the bat, it‟s not fair or useful to compare gay men as
    a group to repeat blood donors. Repeat blood donors have
    actually had their blood tested for HIV – the FDA requires it!
    That‟s a self-selecting HIV negative subset of the population.
  Adopted from: http://www.gayblooddonation.org/against.html.
 If 75% of HIV+ MSM know they are infected, some portion of
    that 25% who doesn‟t “know” their status likely have strong
    inclinations about their risk of infection based on their past
    sexual behavior. These MSM who don‟t “know” their HIV+
    status in the sense that they haven‟t confirmed it through
    medical testing are also less likely to donate blood. We
    suspect that MSM who truly have no idea they are HIV+, who
    also may have had limited sex education, would also be a
    subset less likely to attempt to donate blood than MSM who do
    already know their HIV status.
  The FDA could further discourage all individuals who practice
    risky sexual behavior from donating with a questionnaire
    based upon risky behavior rather than sexual orientation.
FDA is ignoring :
 1) the number of gay men with HIV is only a miniscule
   fraction of the overall number of gay men,
  2) the overwhelming majority of gay men have not and
   will not acquire HIV because they do practice safe sex,
  3) the cause of HIV infection in almost all cases is
   unsafe behavior - unsafe sex or use of dirty needles,
  4) while HIV may be slightly more prevalent amongst
   gay men than in the general population it is also more
   prevalent amongst other social groups which are not
   barred, as groups, from blood donation,
  5) higher prevalence in any particular group, does not
   mean that individuals within that group are at higher risk.
   In short, it is wrong to conclude that all gay men are at
   high risk from HIV infection simply because the majority
   of HIV infections occur through male-to-male sex.
Possible blood shortages ignored
 It may be easy to lump all MSM together, but
  administrative convenience is not an excuse for
  discrimination. This risk analysis also fails to account
  for the very real benefits of increasing the blood donor
  pool. The U.S. has experienced repeated blood
  shortages that are only projected to worsen as the
  population ages. The FDA needs to consider the
  benefits of an increased donor pool, especially in
  mass-casualty scenarios, when conducting its cost-
  benefit analysis.
 Furthermore, the FDA can meet its safety obligations
  more effectively and efficiently by using behaviorally –
  based intake questionnaires.
Ignorance is NOT bliss
 Men who have had sex with men account for the
 largest single group of blood donors who are
 found HIV positive by blood donor testing.
   True, but only because the FDA chooses to
    categorize donors based on sexual orientation and
    refuses to categorize donors by the risk level of
    their sexual behavior.
   We suspect that a group of potential blood donors
    who admits to practicing unsafe sex with multiple
    partners would have a higher prevalence of HIV
    infection than MSM.
 BE AWARE OF RISKS
About „window periods‟…..
 There are many less discriminatory, more effective ways to reduce
unknowing “window period” donations. The FDA could (privately
and anonymously) ask all potential donors about their recent sexual
history and whether/when they have been tested for HIV. The FDA
could impose a short-term, rather than permanent, deferral on
sexually active MSM. The FDA could educate potential donors about
sexual safety, the risks and effects of HIV/AIDS, and the various
testing methods available.
  The FDA‟s MSM policy is underinclusive in that it fails to account
for heterosexuals who unknowingly donate blood during the
“window period” of their infections.
 It is also overinclusive because the rate of infection within the
MSM grouping varies drastically based on the risk level of their
sexual behaviors.
The stigma of AIDS remains and many still think of it as a
White, gay man‟s disease. However- this is no longer true:
as of 2008, cases of AIDS have dramatically risen in the
Black population.
Black women have 18-20 times the rate of HIV of white
women
Black men have over six times that of White men.

               What does this mean ?

Do we revert back to the racist ideas of the past ?



                        NO!
• Choosing to use IV drugs
Risk

     • Choosing to travel to
Risk   certain countries

     • Choosing to have unsafe
       sex with multiple partners
Risk • THESE ARE ALL RISKY
       BEHAVIORS!!!!!
A few words from Mr. Schaefer of the Gay Men‟s
Health Crisis in New York City:

“…A better policy could be like that of Spain or
Italy, in which ALL potential donors are asked
how many sex partners they have had in the
past six months. Anyone, gay or straight, who
says they have had only one partner, can
donate blood, while others are deferred for a
period of time. That would ensure that „high-
risk heterosexuals‟ are deferred too.”
Simply being a sexually active gay or
 bisexual man, on its own, is NOT a
health risk. The idea that their blood
will automatically be HIV positive is a
 sad relic from the 1980s epidemic-
when no one cared how many died.
       Small minds tainted by
        homophobia are the
       biggest threat that gay
       and bisexual men face
               today.


             End the ban.
REFERENCES
   1.)Carlson, K. (2011, March 31). Saving lives with helpful guy:safely and
sensibly reforming the fda's gay blood bans. Retrieved from
http://www.savingliveswithhelpfulguys.com/
     2.) Starr, D. (Writer), Segaller, S. (Director), Read, N. (Producer), & Del
Guercio, G. (Director) (2002). Blood and war [Television series episode]. In
Marengo, A. (Executive Producer), Red gold the epic story of blood:i. New York, NY:
Thirteen/WNET. Retrieved from
http://www.pbs.org/wnet/redgold/innovators/bio_drew.html
    3.) Black , D. (1986). The plague years: A chronicle of aids, the epidemic of our
times. New York, NY: Picador, USA. Retrieved from http://www.avert.org/aids-
history-america.html
     4.) Jacobs, E. (2004, June 18). Activists recall reagan's record on aids. Bay
Windows. Retrieved from http://www.baywindows.com/activists-recall-reagans-
record-on-aids-59558
    5.) WHO, UN AIDS,UNICEF, WOrld Health Organization. (2008).
Epidemiological fact sheet on hivand aids:core data on epidemiology and response
poland. Retrieved from website:
http://apps.who.int/globalatlas/predefinedReports/EFS2008/full/EFS2008_PL.p
df
   6.) CDC Centers for Disease Control, (2012). Expanded hiv testing and african
americans. Retrieved from website: http://www.cdc.gov/hiv/resources
   7.) Wetzstein, C. (2012, May 16). Study could end ban on gay men donating
blood would make a subset eligible. Washingtom times. Retrieved from
http://www.washingtontimes.com/news/2012/may/16/study-could-end-ban-
on-gay-men-donating-blood/

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STOP the FDA's Gay Lood Donor Ban

  • 1. BLOOD DONATIONS in the US A look at a controversial history
  • 2. BLOOD DONATIONS  A history of discrimination
  • 3. World War II 1940 USA  Dr. Charles Drew was the first black person in the U.S. to receive a Doctor of Science in Medicine degree from Columbia University  He researched techniques in blood and plasma donation and was named Director of the American Red Cross Blood Bank in New York City  At this time, the need for blood was great due to the soldiers fighting in WWII.
  • 4. American Red Cross WWII Flyer
  • 5. Red Cross Flyer from WWII
  • 6. However, in 1941,Dr. Charles Drew resigned from his position as Director of the American Red Cross Blood Bank … WHY??? ??????? ??????? ??????? ?
  • 7. Because , in 1941, the War Department issued a directive stating that blood taken from white donors should not be mixed with that taken from African American donors. "It is not advisable to indiscriminately mix Caucasian and Negro blood for use in blood transfusions for the U.S. Military".
  • 8. Do you think this was a decision based on scientific research or discrimination ?
  • 9. Dr. Drew called this unscientific and said "the blood of individual human beings may differ by blood groupings, but there is absolutely no scientific basis to indicate any difference in human blood from race to race.“ The US Military still continued to implement this policy, even during the crisis of need for blood to send to the American troops, until 1949. After that, transfusions were allowed, but Black and White blood was still stored separately! So, for nearly a decade (1941-1949), U.S. soldiers were denied blood that might have saved their lives because of a fear- based, discriminatory policy.
  • 10. • Fast forward : By September 1982, the CDC began calling a new, deadly disease AIDS (acquired 1982 immune deficiency syndrome • Many were dying but no one knew why. • Some doctors were reluctant WHY? to investigate the causes of AIDS at all.
  • 11. Dr Joel Weisman summed up the general attitude by describing a conversation: "I remember calling a person [in infectious diseases] to describe what was occurring. He said - and this was a theme very early on – 'I don't know what you're making such a big deal of it for. If it kills a few of them off, it will make society a better place‟.” (Black , 1986).
  • 12. Do you think this was a decision based on scientific research or discrimination ?
  • 13. "An entire political movement grew up around the silence of the Reagan administration. The AIDS activist movement took as its call to action 'silence equals death' because literally the silence of the Reagan administration was resulting in the deaths of thousands and thousands of gay men in our communities across the country."Sue Hyde, National Gay and Lesbian Task Force (Jacobs, 2004).
  • 14. The silence of the US government on the topic of AIDS essentially endorsed the deaths of gay and bisexual men
  • 16. Atmosphere of fear and panic  It was in 1983, during this time of rampant homophobia and panic when the FDA chose to decree its lifetime ban policy on donations from gay/bi men. Billboards and bumperstickers stated things like “Thank GOD for AIDS”  This was a climate of fear and uncertainty  Blood testing was not yet very sophisticated  There was a huge stigma placed upon anyone with AIDS  As if an HIV + person was a leper :filthy and unclean  Sadly, many of these attitudes still persist today
  • 17. No one seemed to care…  Few seemed to care about these people who were dying until it began to affect the straight communities as well. People had no idea how it was spread and rumors were flying. The first national AIDS education campaign was not launched until 1988.  By then, nearly 83,000 cases of AIDS had been identified in America, and  Over 45,000 people had died.
  • 18. 1983 FDA GAY BLOOD BAN  FDA: Ban is necessary because : Men who have sex with men are at an increased risk for HIV and Hepatitis  While it has been historically true that MSM experience higher rates of HIV infection than some other groups-classifying blood donors by their level of risky sexual behavior is a less discriminatory, safer way to screen donors. Additionally, more people with safe blood would be eligible to donate: helping reduce our recurring national blood shortages.
  • 19. Stop the discrimination  Being a MSM does not make someone particularly susceptible to HIV or hepatitis infection. Due to economic and social discrimination, MSM as a group experience increased rates of drug use and unsafe sexual practices, as do many other groups experiencing discrimination.  Adding further unnecessary discrimination against MSM is not the answer to addressing the HIV/AIDS crisis. Nor is it the safest way to screen blood donors.
  • 20. FDA says but other places do it too  FDA : Other countries also have lifetime/restrictive bans on this group BUT  The principal of “everyone else is doing it” does not justify unethical behavior. Discrimination against the (L)GBT community generally and MSM specifically has hardly been unique to America. The FDA‟s attempt to use more socially progressive European countries for political cover is also misguided. Many countries, including European ones, have reformed or are reforming their Gay Blood Bans as we speak. Here is a partial list: Russia, Spain, Italy, the Thailand Red Cross, Sweden, Brazil, Argentina, Japan, Hungary, and New Zealand.
  • 21. POLAND  A very interesting point here is that the AIDS rate in Poland is VERY low and primarily occurs from IV drug use.  Poland is a country that DOES NOT BAN anyone from blood donations based solely upon sexual orientation.
  • 22. FDA  FDA:The deferral for men who have had sex with men is based on the following considerations regarding risk of HIV: Men who have had sex with men since 1977 have an HIV prevalence (the total number of cases of a disease that are present in a population at a specific point in time) 60 times higher than the general population, 800 times higher than first time blood donors and 8000 times higher than repeat blood donors (American Red Cross). Even taking into account that 75% of HIV infected men who have sex with men already know they are HIV positive and would be unlikely to donate blood, the HIV prevalence in potential donors with history of male sex with males is 200 times higher than first time blood donors and 2000 times higher than repeat blood donors.
  • 23. Response to FDA claims  Right off the bat, it‟s not fair or useful to compare gay men as a group to repeat blood donors. Repeat blood donors have actually had their blood tested for HIV – the FDA requires it! That‟s a self-selecting HIV negative subset of the population.  Adopted from: http://www.gayblooddonation.org/against.html. If 75% of HIV+ MSM know they are infected, some portion of that 25% who doesn‟t “know” their status likely have strong inclinations about their risk of infection based on their past sexual behavior. These MSM who don‟t “know” their HIV+ status in the sense that they haven‟t confirmed it through medical testing are also less likely to donate blood. We suspect that MSM who truly have no idea they are HIV+, who also may have had limited sex education, would also be a subset less likely to attempt to donate blood than MSM who do already know their HIV status.  The FDA could further discourage all individuals who practice risky sexual behavior from donating with a questionnaire based upon risky behavior rather than sexual orientation.
  • 24. FDA is ignoring : 1) the number of gay men with HIV is only a miniscule fraction of the overall number of gay men,  2) the overwhelming majority of gay men have not and will not acquire HIV because they do practice safe sex,  3) the cause of HIV infection in almost all cases is unsafe behavior - unsafe sex or use of dirty needles,  4) while HIV may be slightly more prevalent amongst gay men than in the general population it is also more prevalent amongst other social groups which are not barred, as groups, from blood donation,  5) higher prevalence in any particular group, does not mean that individuals within that group are at higher risk. In short, it is wrong to conclude that all gay men are at high risk from HIV infection simply because the majority of HIV infections occur through male-to-male sex.
  • 25. Possible blood shortages ignored  It may be easy to lump all MSM together, but administrative convenience is not an excuse for discrimination. This risk analysis also fails to account for the very real benefits of increasing the blood donor pool. The U.S. has experienced repeated blood shortages that are only projected to worsen as the population ages. The FDA needs to consider the benefits of an increased donor pool, especially in mass-casualty scenarios, when conducting its cost- benefit analysis.  Furthermore, the FDA can meet its safety obligations more effectively and efficiently by using behaviorally – based intake questionnaires.
  • 26. Ignorance is NOT bliss  Men who have had sex with men account for the largest single group of blood donors who are found HIV positive by blood donor testing.  True, but only because the FDA chooses to categorize donors based on sexual orientation and refuses to categorize donors by the risk level of their sexual behavior.  We suspect that a group of potential blood donors who admits to practicing unsafe sex with multiple partners would have a higher prevalence of HIV infection than MSM.  BE AWARE OF RISKS
  • 27. About „window periods‟….. There are many less discriminatory, more effective ways to reduce unknowing “window period” donations. The FDA could (privately and anonymously) ask all potential donors about their recent sexual history and whether/when they have been tested for HIV. The FDA could impose a short-term, rather than permanent, deferral on sexually active MSM. The FDA could educate potential donors about sexual safety, the risks and effects of HIV/AIDS, and the various testing methods available. The FDA‟s MSM policy is underinclusive in that it fails to account for heterosexuals who unknowingly donate blood during the “window period” of their infections. It is also overinclusive because the rate of infection within the MSM grouping varies drastically based on the risk level of their sexual behaviors.
  • 28. The stigma of AIDS remains and many still think of it as a White, gay man‟s disease. However- this is no longer true: as of 2008, cases of AIDS have dramatically risen in the Black population. Black women have 18-20 times the rate of HIV of white women Black men have over six times that of White men. What does this mean ? Do we revert back to the racist ideas of the past ? NO!
  • 29. • Choosing to use IV drugs Risk • Choosing to travel to Risk certain countries • Choosing to have unsafe sex with multiple partners Risk • THESE ARE ALL RISKY BEHAVIORS!!!!!
  • 30. A few words from Mr. Schaefer of the Gay Men‟s Health Crisis in New York City: “…A better policy could be like that of Spain or Italy, in which ALL potential donors are asked how many sex partners they have had in the past six months. Anyone, gay or straight, who says they have had only one partner, can donate blood, while others are deferred for a period of time. That would ensure that „high- risk heterosexuals‟ are deferred too.”
  • 31. Simply being a sexually active gay or bisexual man, on its own, is NOT a health risk. The idea that their blood will automatically be HIV positive is a sad relic from the 1980s epidemic- when no one cared how many died. Small minds tainted by homophobia are the biggest threat that gay and bisexual men face today. End the ban.
  • 32. REFERENCES 1.)Carlson, K. (2011, March 31). Saving lives with helpful guy:safely and sensibly reforming the fda's gay blood bans. Retrieved from http://www.savingliveswithhelpfulguys.com/ 2.) Starr, D. (Writer), Segaller, S. (Director), Read, N. (Producer), & Del Guercio, G. (Director) (2002). Blood and war [Television series episode]. In Marengo, A. (Executive Producer), Red gold the epic story of blood:i. New York, NY: Thirteen/WNET. Retrieved from http://www.pbs.org/wnet/redgold/innovators/bio_drew.html 3.) Black , D. (1986). The plague years: A chronicle of aids, the epidemic of our times. New York, NY: Picador, USA. Retrieved from http://www.avert.org/aids- history-america.html 4.) Jacobs, E. (2004, June 18). Activists recall reagan's record on aids. Bay Windows. Retrieved from http://www.baywindows.com/activists-recall-reagans- record-on-aids-59558 5.) WHO, UN AIDS,UNICEF, WOrld Health Organization. (2008). Epidemiological fact sheet on hivand aids:core data on epidemiology and response poland. Retrieved from website: http://apps.who.int/globalatlas/predefinedReports/EFS2008/full/EFS2008_PL.p df 6.) CDC Centers for Disease Control, (2012). Expanded hiv testing and african americans. Retrieved from website: http://www.cdc.gov/hiv/resources 7.) Wetzstein, C. (2012, May 16). Study could end ban on gay men donating blood would make a subset eligible. Washingtom times. Retrieved from http://www.washingtontimes.com/news/2012/may/16/study-could-end-ban- on-gay-men-donating-blood/