Michael Brennan, MD gives an update on the Huntersville Cluster, North Carolina at the 2017 CURE OM Patient & Caregiver Symposium.

1. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG
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Financial Disclosure
 No financial disclosure or conflict of interest

2. Huntersville Cluster
Michael W Brennan, MD
NC Society of Eye Physicians and
Surgeons
International Envoy, American Academy
of Ophthalmology

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Professionalism
 Contract with Society—Our Patients and Families, Our
Colleagues
 “Beyond” Competence, Ethics….. Caring
 Huntersville, NC

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Original Demographics
Now 12 patients, too many young
females
Patient Gender Age at Diagnosis Date of Diagnosis Residence at Diagnosis
Institution that made
Official Diagnosis
Residence at Time of
Suspected Clustering
Dates at Residence During
Time of Suspected
Clustering
ML F 22 4/13/2009 Aiken, SC
Wills Eye
Philadelphia, PA
Huntersville, NC
(Hopewell High School)
2002-2005
KK F 24 12/2008 Charleston, SC
Duke Eye Center
Durham, NC
Huntersville, NC
(Hopewell High School)
1994-2007
Away at college in
between?
SH F 20 7/8/2013 Charlotte, NC
Wills Eye
Philadelphia, PA
Huntersville, NC
(Hopewell High School)
2006-2011
VK F 31 2/7/11 Charlotte, NC Wills Eye Philadelphia, PA Huntersville, NC 2005/2007-2013
CB F 30 2/2014 Concord, NC
Duke Eye Center
Durham, NC
Huntersville, NC 2005-2007

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RESPONSE
 Patient, Family and Community “Care”
• Physician –Patient
 NC and Philadelphia(Wills, Jefferson)
• Support Group/5Ks; Media attention
 Institutional/Governmental
• State DHHS
 Occupational and Environmental Epidemiology Branch
 Central Cancer Registry
• County Health and School System (Phase One Study)
• Referral Institutions (Wills, Duke, **UNC)
• ***State Legislature---Grant to Huntersville Council
 National ophthalmology, oncology
 International Society of Ophthalmic Oncologists

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AMERICAN ACADEMY OF OPHTHALMOLOGY
NC Society of Eye Physicians
and Surgeons
 Community Visits –media, governmental
 Discussion with Diagnosing and Referral
Ophthalmologists and Oncologists
 Design of Community Outreach
• Discussion with families, patients
• Media release “encouraging” exam, incl Complementary
 Internal Discussion—grand rounds, meetings(state,
national and international---Australia next week)
 MRF: CURE OM

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Professional Partnerships
 Maintain Contact/Collaboration
• Community -- Patients and Families
• Media, Schools, County Health, DHHS
• Physician Providers(Eye/Oncology—
National and Global)
 Legislative Grant—patients, families!!
• Environmental Assessment including
Geospatial and Epidemiological
• Genetic Complement, including Counseling
• Face to Face with Patients, Families, City
Council, Media