1. Maine girl with 'mermaid syndrome' dies
at 10
Sat Oct 24, 11:11 AM PDT
Shiloh Pepin, a girl who was born with fused legs, a rare condition often called "mermaid
syndrome," and gained a wide following on the Internet and national television, has died.
She was 10.
Doctors had predicted she would only survive only for days after her birth at the most,
but the girl, described by her mother as "a tough little thing," died at Maine Medical
Center on Friday afternoon, hospital spokesman John Lamb said. She had been
hospitalized in critical condition for nearly a week.
Being born with "mermaid syndrome," also known as sirenomelia, meant that the
Kennebunkport girl had only one partially working kidney, no lower colon or genital
organs and legs fused from the waist down.
Some children who have survived sirenomelia have had surgery to separate their legs, but
Shiloh did not because blood vessels crossing from side to side in her circulatory system
would have been severed. She had received two kidney transplants, the last one in 2007.
Her story was featured recently on "The Oprah Winfrey Show" and other national
television programs.
Earlier this month, her mother, Leslie Pepin, said her daughter came down with a cold
that quickly turned to pneumonia. Shiloh rushed to Maine Medical Center on Oct. 10 and
was placed on antibiotics and a ventilator.
For a while, Leslie Pepin said, things were looking up. "She's a tough little thing," she
said of her daughter earlier this week.
Shiloh was a fifth-grader at Kennebunkport Consolidated School. "She was such a
shining personality in that building," said Maureen King, chairwoman of the board of the
regional school district. Counselors will be available next week to talk to students.

2. Through the television shows, news articles, Facebook and other Web sites, Shiloh
inspired many.
"I live in Iowa. I have cerebral palsy. I love your video," 12-year-old Lydia Dawley wrote
to Shiloh on Facebook. "You have a great personality I wish you lived close so we could
be friends and hang out. You opened my eyes because you are so brave."