Measuring willingness to pay in patients with alopecia areata to gauge their willingness to pay out of pocket for a cure or control of their condition.

1. Willingness to pay and quality of life in
alopecia areata
Jean-Phillip Okhovat, Tristan Grogan, Lewei Duan, Carolyn Goh
2018 Alopecia Areata Research Summit
National Alopecia Areata Foundation

2. Conflicts of interest
• I have no conflicts of interest to disclose

3. Willingness to pay (WTP) as a concept to assess burden of disease
in dermatology
Seidler et al (2012)
J Invest Dermatol

4. Willingness‐to‐pay and quality of life in patients
with vitiligo
Radtke et al (2009)
Br J Dermatol

5. Willingness‐to‐pay and quality of life in patients
with atopic dermatitis
Beikert et al (2014)
Arch Dermatol Res

7. Patient characteristics Value, N (%)
Age, y (range) 40.5 (18-68)
Disease duration
<1 year
1-5 years
> 5 years
8 (20)
12 (30)
19 (48)
Male
Female
12 (30)
28 (70)
Race
Black
Asian
White
Multiple/other
3 (8)
14 (35)
15 (38)
8 (20)
Education
High school
2-year college
4- year college
Graduate school
Professional school
4 (10)
8 (20)
15 (38)
8 (20)
5 (13)
Annual income, US$
< 10,000
10,000-49,999
50,000-100,000
>100,000
9 (23)
4 (10)
14 (35)
13 (33)

8. 0
10
20
30
40
50
60
70
AASISScore(mean)
WTP (US Dollars)
Willingness to pay for control of disease
< $1000 > $1000 < $5000 > $5000
30.4*
53.7*
30.9*
66.3*
* p < 0.05

9. 0
10
20
30
40
50
60
AASISScore(mean)
26.0*
Willingness to pay for cure of disease
WTP (US dollars)< $1000 > $1000 < $5000 > $5000
47.8*
25.8*
53.2*
* p < 0.05

10. Other findings and take home points
• Higher SALT scores correlated with higher AASIS scores
• WTP for AA was similar to that for vitiligo, atopic dermatitis, and
rosacea
• Median WTP as a percentage of monthly income was 10%-20%,
comparable to that of atopic dermatitis and psoriasis patients
• As expected, severity of disease was associated with quality of life,
and quality of life was associated with WTP

11. Other considerations
• What are other predictors of willingness to pay
• Role of health insurance in determining WTP
• Further ongoing research toward a cure for AA is warranted
Augustin et al (2018)
PLoS One

12. Thank You
• Dr. Carolyn Goh, UCLA
• Dr. Melvin Chiu, UCLA
• University of California, Los Angeles, Clinical and Translational Science Institute
• Hair Academic Innovative Research Unit, Massachusetts General Hospital
• Dr. Maryanne Senna
• Dustin Marks
• Dina Hagigeorges
• Athena Manatis Lornell