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Willingness to Pay and Quality of Life in Alopecia Areata

Measuring willingness to pay in patients with alopecia areata to gauge their willingness to pay out of pocket for a cure or control of their condition.

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Willingness to Pay and Quality of Life in Alopecia Areata

  1. 1. Willingness to pay and quality of life in alopecia areata Jean-Phillip Okhovat, Tristan Grogan, Lewei Duan, Carolyn Goh 2018 Alopecia Areata Research Summit National Alopecia Areata Foundation
  2. 2. Conflicts of interest • I have no conflicts of interest to disclose
  3. 3. Willingness to pay (WTP) as a concept to assess burden of disease in dermatology Seidler et al (2012) J Invest Dermatol
  4. 4. Willingness‐to‐pay and quality of life in patients with vitiligo Radtke et al (2009) Br J Dermatol
  5. 5. Willingness‐to‐pay and quality of life in patients with atopic dermatitis Beikert et al (2014) Arch Dermatol Res
  6. 6. Patient characteristics Value, N (%) Age, y (range) 40.5 (18-68) Disease duration <1 year 1-5 years > 5 years 8 (20) 12 (30) 19 (48) Male Female 12 (30) 28 (70) Race Black Asian White Multiple/other 3 (8) 14 (35) 15 (38) 8 (20) Education High school 2-year college 4- year college Graduate school Professional school 4 (10) 8 (20) 15 (38) 8 (20) 5 (13) Annual income, US$ < 10,000 10,000-49,999 50,000-100,000 >100,000 9 (23) 4 (10) 14 (35) 13 (33)
  7. 7. 0 10 20 30 40 50 60 70 AASISScore(mean) WTP (US Dollars) Willingness to pay for control of disease < $1000 > $1000 < $5000 > $5000 30.4* 53.7* 30.9* 66.3* * p < 0.05
  8. 8. 0 10 20 30 40 50 60 AASISScore(mean) 26.0* Willingness to pay for cure of disease WTP (US dollars)< $1000 > $1000 < $5000 > $5000 47.8* 25.8* 53.2* * p < 0.05
  9. 9. Other findings and take home points • Higher SALT scores correlated with higher AASIS scores • WTP for AA was similar to that for vitiligo, atopic dermatitis, and rosacea • Median WTP as a percentage of monthly income was 10%-20%, comparable to that of atopic dermatitis and psoriasis patients • As expected, severity of disease was associated with quality of life, and quality of life was associated with WTP
  10. 10. Other considerations • What are other predictors of willingness to pay • Role of health insurance in determining WTP • Further ongoing research toward a cure for AA is warranted Augustin et al (2018) PLoS One
  11. 11. Thank You • Dr. Carolyn Goh, UCLA • Dr. Melvin Chiu, UCLA • University of California, Los Angeles, Clinical and Translational Science Institute • Hair Academic Innovative Research Unit, Massachusetts General Hospital • Dr. Maryanne Senna • Dustin Marks • Dina Hagigeorges • Athena Manatis Lornell

Measuring willingness to pay in patients with alopecia areata to gauge their willingness to pay out of pocket for a cure or control of their condition.

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