National Marfan Foundation
Información personal
Organización/Lugar de trabajo
National Marfan FoundationUbicación
Port Washington, NY United StatesSector
Medical / Health Care / Pharmaceuticals
Sitio web
www.marfan.orgAcerca de
The National Marfan Foundation, founded in 1981, is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders. The Foundation accomplishes these goals through: Research-Promoting research to improve diagnosis and treatment and to find a cure through: •A grant and fellowship program for all Marfan-related disciplines •Advocacy for federal funding and policies that support the NMF mission •Medical and Scientific Symposia •Partnerships with government agencies and other voluntary health organizations Education-Providing accurate and up-to-date inf