Presentation at the Symposium Sur l'inclusion social en autism au Québec, 3 Décembre 2021

1. What makes a service family-centred? Reflections and
Perspectives using MPOC (Measure of Processes of Care)
Olaf Kraus de Camargo
Twitter: @DevPeds
Symposium sur l’inclusion sociale en autism au Québec, 3 Décembre 2021
Team: Peter Rosenbaum, Gillian King, Connie Putterman, Eric Duku, Alison Martens, Dayle McCauley,
Kinga Pozniak, Rachel Teplicky

2. But first let me introduce CanChild…

3. “…. Family-centred service
recognizes that each family is
unique that the family is the
constant in the child’s life; and
that parents are the experts
on the child’s needs and
abilities.”
Family-Centred Service
https://canchild.ca/en/research-in-
practice/family-centred-service

4. PREMISE #1
• Parents know their children best and want the best for their children
PREMISE #2
• Families are different and unique
PREMISE #3
• Optimal child functioning occurs within a supportive family and
community context. The child is affected by the stress and coping of other
family members.
Family-Centred Service

5. Research has found that the way we provide
services is important for:
• Parents’ satisfaction with services
• Parents’ emotional well-being
• Parents’ self-reported levels of stress
Family-Centred Service

6. • Is about partnerships
• Everyone brings expertise
• Is an evolving process, not an end-point
• Trusting and respecting parents’ and children’s views
• Working collaboratively with families
• Addressing family-defined goals
• Measuring what’s important to families
Being Family-Centred …

7. Principal
OT/PT
Teachers
School
Developmental Teams
SLP
Nutritionist
OT & PT
The child & family
A family’s care map…
SERT
Educational assistants

9. A series of 18 tip sheets on
family-centred service are
available on the CanChild
website:
FCS Resources
https://canchild.ca/en/research-in-
practice/family-centred-service

10. So how do you know if you are being
family-centred?

11. • 5 scale scores:
• Enabling and Partnership
• Providing General Information
• Providing Specific Information about the Child
• Co-ordinated and Comprehensive Care for Child and Family
• Respectful and Supportive Care
• No overall score is calculated
• A mean scale score change of .5 or greater is considered
clinically relevant
Measure of Processes of Care

13. Autism Services in Ontario
• Program evaluation
in the Ontario ABA-
based Services and
Supports program
(2016-2018)
• 11,490 responses
from families across
Ontario (53.3%
response rate)
Williams et al., 2021
https://doi.org/10.1111/cch.12852

14. Autism Services in Ontario
Williams et al., 2021
https://doi.org/10.1111/cch.12852
Strengths
• Treating parents as individuals
• Providing a caring atmosphere
• Treating parents as equals
rather than just a parent
Potential for improvement
• Having information available
about their child's ASD
• Having information available
in various forms, such as
websites, booklets and videos
• Providing advice on how to
get information or how to
contact other parents

15. MPOC 2.0
For more information, contact Sarah Earl at wellman@mcmaster.ca

16. Q A
&
THANKS FOR LISTENING
Q & A SESSION