Time Speaker & Topic
10:00 Chair
Welcome
10:20 Ali Mousa
Why Use Digital Technology in Mental Health?
10:40 Paul Irwin – Director, TryLife
The Role of Technology in Youth Services
11:00 Jenny Hyatt – CEO, The Big White Wall
Delivering Best Practice in E-Mental Health
11:30 Refreshments and e-Mental Health Exhibition
11:50 Rebecca Cotton -Deputy Director, Mental Health Network, NHS
Confederation
The Policy Context & Future of E-Mental Health
12:10 James Seward – Managing Director, Buddy App
Psychological therapies in the Digital World: The Buddy App
12:30 Buffet Lunch in Main Foyer
Time
13:00 E-Mental Health Exhibition, Live Computer-based Demonstrations
Opportunity to View & Create Your E-Mental Health Videos
13:45 Interactive Workshop Session (6 Questions on 6 Tables)
15:00 Feedback & Postcard Pledges
15:15 Question Time Debate with:
Ali Mousa
James Seward
Paul Irwin
Jenny Hyatt
Rebecca Cotton
16:00 Sarah Amani & Katrina Lake
Closing Comments
16:15 Closing
“Following a wide eyed collective gasp of realization, we
were quickly swept up in a heady conversation about
how useful it would be to have a designated EIIP mobile
app that could help people manage their mental health
through reminders and trackers.”
Sarah Amani
DH Maps & Apps Competition – 7th out of 500
ideas submitted for health apps
77%
of people have a mobile device
or 5.3 billion at the end of 2010 – U.N. Telecommunications Agency, http://www.itu.int
This was ‘portable’...
<10 years...
Released: 1998 Released: 2007
CPU: 233 MHz CPU: 412 MHz
RAM: 32 MB (512 MB max) RAM: 128 MB
Storage: 4 GB (+ optical drive) Storage: 4 GB (8 GB max)
Display: 38.1 cm Millions of colours Display: 8.9 cm Millions of colours
Dimensions: 40.1 x 38.6 x 44.7 cm Dimensions: 11.4 x 6.1 x 1.2 cm
Weight: 17.3 kgs Weight: 135 g
Your mobile phone has
more computing power than
all of NASA in 1969.
http://www.flickr.com/photos/43533334@N07/5153726732
“For kids like my 13 year-old, the
boundaries between the internet
and life are so porous as to be
meaningless.“
Comment on the Guardian web site
most will grow up connected
http://www.flickr.com/photos/tocaboca/5523598823
Public space
distractions
limited attention
mobile usage can be this...
glanceable?
onehand simple?
tedious input
personal
http://www.flickr.com/photos/oimax/3800475934
1hr train ride Focused user privacy
reliable
network? comfy
Unlimited wifi?
chair
two
hands
Reliable power source?
or this...
comfy
chair privacy
One hand prone to
Reliable power interruptions
source
gravity
...or this?
http://www.flickr.com/photos/joeshlabotnik/2359224681
“ The most profound technologies are those
that disappear. They weave themselves
into the fabric of everyday life until they are
indistinguishable from it…. Mark Weiser
http://www.flickr.com/photos/armaggeusa/3176297283
Mobile Opportunities
touch
screen
tiny hybrid
screen +
keypad large
input touch
navipad
screen
many of these are now <£50
yesterday today
A big screen...
web browser
+
application is now a highly customisable
layer always on, always connected
+ blank canvas...
APIs
With a button or two!
camera
a big screen...
work communication
play
sharing
web browser
learning
+
enabling users to choose
application
layer music their own experience
+
chat
APIs navigation
With a button or two!
discovery
Health
creativity
video
Mobile App Costs, Benefits, Build vs. Buy
Gauge the Opportunity Business Drivers
Examples ROI Decision
Compare Mobile Platforms Mobile Market Overview Platform Analysis and Selection
Focus Business Application
Goals and Objectives Security and Privacy
Requirements Requirements
Development and
Develop the Application Keys to Success Required Resources
Testing
Launch, Measure,
Launch and Promotion Feedback and Metrics Future Releases
Iterate
My Journey
times have
changed
Person
motivation
Ce n’est pas unIntuitive
al phone Usabl
Responsi al
Customiz eHelpf
ve
able ul
• 47 Adolescents & 6 clinicians
• Outpatient Clinic
• Self Reported Mental Health Outcomes for 4 weeks
• First week - 91% entries completed
• 88% said data reflected actual experiences
• 92% adolescents found app ‘helpful’ in understanding
their condition + collaborating with clinician in
managing their health
1. Reid et al (2011) A mobile phone application for the assessment and management of youth
mental health problems in primary care: a randomised controlled trial.
2. Reid et al (2012) Using a Mobile Application in Youth Mental Healh
Journal of Australian Family Physician http://www.ncbi.nlm.nih.gov/pubmed/22962650
http://speirs.org/blog/2011/4/1/stop-lying.html
This is the world we are living in and we can either
lie to ourselves about it or we can dive headlong
into the new forms and effects that it produces.
– James Bridle
http://www.flickr.com/photos/tijanav/4885088185
There’s a lot of choice….
Text and listening services
Moodtrackers and buddy systems
Social networks
Self management programmes
(often CBT)
Online therapy
Integrated systems
The Policy Context and Future of E-Mental Health
Rebecca Cotton
Acting Deputy Director, Mental Health Network
Today’s session
• About the Mental Health Network.
• Outline our work on e-mental health.
• Outline some of the policy and strategic drivers that
may help drive spread innovation in e-mental health.
• Opportunity to get involved in future work.
• Q&A
About the Mental Health Network
• Part of the NHS Confederation – the membership
body for all organisations that commission and
provide NHS services.
• We represent 70 providers of mental health services
in England – including NHS Trusts, Foundation
Trusts, voluntary sector and independent sector
providers.
• Governed by a board of members – including Chief
Executives, Chairs, Clinicians and service user and
carer representatives.
What we do
• We help shape and challenge
national policy and legislation
affecting our members.
• We provide members with up to
date news and analysis,
through briefings and events.
• We also work to identify and
spread good practice and
innovation in the mental health
sector, plus carry out original
research.
Work over the last 12 months
• Social media
• Payment by Results in mental health
• Measuring outcomes in mental health
• Suicide prevention
• Housing and mental health
• Mental health and homelessness
• Effectiveness of psychological
interventions for patients with long-term
conditions and MUS
• Race equality in mental health
E-mental health – what’s all the fuss about?
• Discussion paper launched 30th
January
• Asks how can the mental health
sector make the most of
opportunities offered by e-mental
health to not only improve
efficiency, but also to transform the
nature of mental healthcare itself?
• Asserts a national framework for e-
mental health should be developed
to provide a platform for change.
Policy context
No Health Without Mental Health
• Number of objectives are relevant
to e-mental health, inc improving
access, recovery rates and
experience of using services.
• Implementation framework highlights e-mental health.
Information strategy
• Published May 2012. Sets a ten-year framework for
transforming information for the NHS, public health and
social care.
Policy context
Innovation, health and wealth
• Published December 2011. Sets out eight principles
that could help frame a strategy for e-mental health.
Choice, personalisation and Any Qualified Provider
• Making choice work – in terms of choice of provider
and choice of treatment – will depend on access to
high-quality, comparable information.
NHS Mandate
• Sets an objective around increasing in the use of
technology to help people manage their health and
care.
Where do we go from here?
1. How can we build momentum and support real
change, in partnership with service users?
2. How can providers make sense of what is a rapidly
evolving marketplace and make informed choices
about which programmes and applications to use?
3. How do we determine what „quality‟ looks like?
4. How can we ensure that innovations in this field are
developed within appropriate governance
frameworks?
5. At a national level, how can we help spread
knowledge and good practice about what works?
A national framework for e-mental health
• In our view, a two-stage process is needed,
culminating in the development of a national
framework for e-mental health.
Stage one: Comprehensive mapping exercise.
• What are people already doing with technology –
including service users, carers, members of the
public, professionals (including clinicians, managers
and informatics specialists), providers and
commissioners?
A national framework for e-mental health
Stage two: Designing the framework
• Building on the mapping exercise, this would lead to
a shared vision for what people would like to be able
to do with technology, and set out clear actions for
different parts of the system to enable that change to
be brought about.
• Broad engagement process – involving service
users, carers, members of the public, professionals,
providers and commissioners.
What happens next?
• We have secured funding from the SHA mental
health leads group to undertake the first stage of
work – the mapping exercise.
• Scoping work on this is currently underway – we
would very much welcome input and involvement
from MHN members, including any examples of
current work in this area.
• We will continue discussions with DH, NHSCB and
others about future development of a framework for
e-mental health.
BUDDY APP: SIMPLE PROPOSITION
To use ubiquitous text-messaging
to give users a tool for taking
more control of their recovery and
as a resource for collaborating
with professionals to achieve their
goals
BUDDY APP PROVIDES
Buddy is a digital tool to support therapy services.
It enables clients to:
– Keep a daily diary via SMS
– Spot patterns via a website
– Be reminded about session appointments via SMS
– Create their own session plans in advance
– Set and receive behavioural activation goals via SMS
BENEFITS
SERVICE USERS PROFESSIONALS MANAGERS
Spot Patterns Rich Insight Improved DNA rate
Improved Communication Make Time in Therapy Caseload management
Create Control Focus on Goals
Appointment reminders
Happier users, enabled clinicians, and more
efficient services
SLaM Service
SERVICE USERS PROFESSIONALS MANAGERS
Improved quality of life in 63% Compliance 7% DNA decrease
87.5% of users
(from previous trial)
57.1% of users reported 71% users felt it allowed
decrease in CORE-10 for more open and
honest discussion
100% of users said
they would use again
* Published data from the SLaM EIS 100 week trial
USER FEEDBACK
“Buddy helped me communicate
better with my therapist, and it
helped me to spot patterns and see
what I was doing or not doing.
Buddy really felt like a friend
checking up on me at the end of
the day. Sometimes it was the only
contact I would have throughout
the day. It's something that helped
point me in the direction of
change, and which I then felt better
able to act on."
Helena, Service user
CLINICIAN FEEDBACK
Eric Morris, Clinical Director, EIS, SLaM
"The idea of Buddy is to put the person's goals at the centre of their treatment. I've
noticed that the ones who are using it have become more focused in what they want
to get out of our meetings. Early intervention service users usually have problems
with depression and anxiety and Buddy gives them support during the week when
they're not seeing a therapist."
Stockport IAPT, Self Help Services
SERVICE USERS PROFESSIONALS MANAGERS
100% of users satisfied 100% clinicians would
use again in the future 4.5% DNA decrease
with care received
63.8% reported 83% felt it allowed 4% canc. decrease
decrease in PHQ9 and for more open and
GAD7 scores honest discussion
500 additional clinical hours
Improved quality of life
in 89.2% of users
£25k additional income (PbR)
* Published data from the SHS Buddy Trial Outcome report
* All data over historic baseline
CEO FEEDBACK
Nicky Lidbetter, Chief Officer, Self Help Services
“With the increasing demand for providers of mental health services to
deliver more for less, Buddy contributes to system efficiency and enhances
patient experience by promoting the collaborative nature of therapy sessions.
This enables patients to feel more in control of their interaction with the
service. ”
RETURN ON INVESTMENT
• For service providers moving towards PbR, Buddy
offers increased:
– Throughput
– Efficiency
– Outcomes
CLINICAL FEEDBACK
“Buddy is being used in a variety of
ways in addition to routine activity
and mood monitoring. These
include: pain diary, alcohol
diary, monitoring
flashbacks, monitoring for
dissociation, promoting grounding
techniques and mindfulness such
as 'remember to notice where you
are‟ and „what you are doing right
now?” Regarding impact on DNA
and CNA rates, it‟s also having a
positive effect of reducing DNA's”
Dr Alan Barrett, Clinical Lead
SUMMARY
• Buddy has been designed to specifically support mental health
pathways
• Built to improve user engagement
• Designed around everyday lives, and everyday technology
• Improves the relationship between professional and service user
• Empowering and non-stigmatising
ABOUT US
• Incubated by Sidekick Studios, Buddy Enterprises Ltd brings together
business, design, digital and mental health professionals
• Developed in collaboration with SLaM‟s CMHTs & Early Intervention in
Psychosis service & Rethink‟s NE Essex Health in Mind IAPT service
• Current clients:
– NW Regional IAPT for Military Veterans service (Pennine Healthcare
NHS Trust)
– Nottingham Healthcare NHS Trust
– Self Help Services Stockport
– Kent & Medway NHS Trust
– West London Mental Health Trust
– Sheffield Health and Social Care NHS Trust
– Derbyshire Healthcare NHS Trust
– Mental Health Matters
Awards / Recognition
Gold Award Winner 2012 Finalist 2012
Community & Social Mobile App Innovation in Mental Health
www.lovieawards.eu
Thank You
E-Mental Health:
Harnessing the Power of Digital for
Better Mental Health
NHS South of England (East)
Monday 18th March 2013
Notas del editor
Thanks for intro. Thanks for having me here today to talk to you all. I’ve been asked to take the next 20 mins or so to talk about the broader policy environment, and how this may well help to drive further adoption and spread of the sorts of innovations we’re talking here today about.
In that time, I want to do a number of things. First of all, some of you will be aware of the organisation I work for – some of you won’t! For those of you who aren’t familiar with us, I want to briefly outline who we are and what we do – including some of the work I’ve been doing recently with Sarah, Jen – who spoke just now – and some other enthusiasts for e-mental health. Then I’m going to talk about the policy and wider strategic environment, and how this might drive further adoption and spread. I’m going to wrap up by talking about some future work I’m involved in that people in the room might want to get involved in. And, of course, we’ll have time for some questions and answers.
So, just to kick off, let me tell you about the organisation I work for. The Mental health Network is part of the NHS Confederation. The Confed is essentially *the* membership bodyfor all organisations that commission and provide NHS services. Around 90 / 95% of all NHS organisations – Trusts, Foundation Trusts, PCTs, SHAs – are in membership. We’re also, with the NHS Alliance and NAPC, have a membership body for CCGs. The MHN is the part of the Confed that represents providers of mental health services. We represent 70 providers of mental health services in England – including NHS Trusts, Foundation Trusts, voluntary sector and independent sector providers. Governed by a board of members – including Chief Executives, Chairs, Clinicians and service user and carer representatives.
This slide explains a little more about what we do. Firstly, like any other membership organisation, we lobby and influence national policy on behalf of our members. We keep people up to date on news affecting the sector, plus we have a busy events and publications programme throughout the year. We also run a number of development programmes in conjunction with other organisations. One example of that is the IMROC programme we run with the Centre for Mental Health, to help services focus on recovery. We also carry out pieces of original research, which are often pieces commissioned by government.
This slide just gives a flavour of some of the topics we’ve worked on over the past year and the publications we’ve put out – on housing, use of social media, outcomes and pbr. We’ve also done a lot of work with government on developing an implementation framework in support of the mental health strategy and on the NHS mandate. That’s been a particularly big focus for me over the past 12 months, and as people are starting to be appointed to the NHS commissioning board we’re beginning to have conversations there about the sorts of early priorities from the Board should be.
In terms of our work on e-mental health, some of you may have seen this paper that we published in January of this year. That was written by three people – myself, Jen Hyatt – who you heard form earlier – and Matthew Patrick, who’s Chief Exec of the Tavistock and Portman in London. That was the result of conversations we starting having last summer. Jen and Matthew have done so much in this area and are so knowledgeable – it wasn’t an area I could profess to having anything like the area of expertise that they do. But it had struck me for quite a long time that public services in general are – with some very notable and excellent exceptions – very much behind the curve when it comes to making use of technology in terms of the way services are delivered. What also struck me, when I started talking to our members about it and what their organisations were doing, was that there was actually a lot of interest in working out how they can exploit these opportunities – but most people had no idea where to start. The same sorts of questions kept coming up again and again – essentially they came down to wanting to figure out what service users actually want, and how they could make informed choices about what sorts of products and services can meet that need. There was also a big interest in hearing about where else in the NHS, and abroad, there was good practice that might be helpful to learn from. So all those things led to this paper. If you haven’t read it already, then it’s on our website – I hope you give it a look.
In it, we argue that there’s a powerful case for change. Firstly, in simple terms, this is the reality of the world we’re living in. We’re living in a totally different world, in terms of technology, to where we were 10 – 20 years ago. 74 % of households are online.
91 % of adults use a mobile phone. For young people, the rates of smartphone ownership are high, and increasing.It’s this reality, rather than any policy document or anything else, that is going to drive this change. The expectations of the public are changing, and through technology we have more opportunities than ever before to be more active, informed consumers of healthcare. It’s commonplace now for GPs to find their patients coming into surgeries readily armed with information about treatment options and NICE guidance they’ve gleaned from NHS Choices and other websites. People with long term conditions are also making the most of the opportunities presented by social media to get information, support and advice from other people going through the same thing – Big White Wall is one example of that, and there are others cited in the paper.
There’s a huge cultural transformation going on. People aren’t passive recipients of healthcare any more – and that applies to mental healthcare as much, if not more so, than any other sector. If the recovery movement is about empowering people and supporting them to recover on their own terms, then services have got to embrace the way people want to make use of technology. That can help support a more collaborative approach between professionals and service users.
But it’s also about the reality of the economic environment we’re in too. The rates of common mental health problems are increasing. And we know that only a relatively small proportion of people with anxiety and depression are in treatment. Stigma is probably a big factor in people not coming forward when they need help – and we know that attitudes are changing, albeit slowly. So, in the future, we’re only going to see the numbers go up. But we’re in a very tough economic climate. Whilst the NHS budget is flat, the proportion of that that’s spent on mental health services went down by 1% last year. And whilst none of us have a crystal ball, it’s unlikely you’re going to see big injections of cash into the health service for the foreseeable future. So, we all have to do a lot more with what we’ve got. Making the most of the opportunities presented by e-mental health might be able to go some way in addressing this resource challenge. In the paper, we talk about products and services can enable existing tasks and practices to be conducted in a more efficient way. That can include applications and programmes to monitor mood or medication compliance. Delivering interventions online is another examples – there’s certainly a growing interest in delivering CBT online and things like that.
So what of the policy context...... There’s a number of documents that have come out over the past two years that are certainly supportive of this direction.The mental health strategy came out 2 years ago – that has a number of objectives that are relevant to use of technology. Last year, the DH published an implementation framework for the strategy. I must confess an interest in that – I helped write it, along with colleagues at the DH and organisations like Mind, Rethink and Turning Point. That sets out a number of priorities for all sorts of public services, not just the NHS, but schools and social services too. The framework cites how mental health services should consider how technology can support self care and peer support. The information strategy came out last year from the Department of Health – again, that document supported this idea of using technology to support cultural transformation.
In December 2011 the DH published the innovation review led by Sir Ian Carruthers. That looked at how barriers to the adoption of innovations can be overcome – the contents of that and the actions taken as a result are all very relevant to the issue we’re talking about today. This idea of supporting choice is a really important one – before Christmas the Government announced that service users will have the same rights in terms of choice of provider by April 2014. That could be a really important driver in terms of changing the way services are delivered, and how responsive they are to the wants of the people who use them – in future, if they’re not happy, the may just simply choose to go elsewhere!Lastly, the NHS Mandate will be particularly key in terms of setting the priorities of the Commissioning Board as it becomes established. The Mandate does talk explicitly about increasing the use of technology to help people with long term conditions manage their health better.
So, what does all this mean for the future?In technology we have something that has the potential to help us support the cultural transformation we need, and also address the massive challenge around resources we have. We have a mental health strategy that supports that. As does the NHS Mandate. In them, we’ve got two documents by which the Commissioning Board are going to be held to account for delivering the kinds of change we all want to see. But that’s not going to be enough.
Back when I started I talked a bit about the conversations I was having with our members about this issue, and what they thought might be needed. The same questions remain - How can we build momentum and support real change, in partnership with service users?How can providers make sense of what is a rapidly evolving marketplace and make informed choices about which programmes and applications to use? How do we determine what ‘quality’ looks like? How can we ensure that innovations in this field are developed within appropriate governance frameworks? At a national level, how can we help spread knowledge and good practice about what works?
In the paper, we argue that there needs to be a national framework for e-mental health.That would take the form of two distinct phases. In the first phase, we’d want to map what people are already doing – do build a better picture about how technology is being used, what lessons we can learn from other sectors and countries, and also to discover what examples of good practice there are out there.
As a second phase, we want to design the actual framework. That would articulate a shared vision, from service users, professionals and managers, about where we want to get to and what actions different parts of the system need to take to enable us to get there. Whilst that might not be a process led by the Commissioning Board, I think it would certainly need the endorsement and support of the Board.
And that’s it from me. Thank you for listening, I hope that was a helpful canter through the policy context for this work, and also about what the MHN is doing in this area. I’d be really happy to take any questions anyone has at this point.
We live in a digital world that has transformed society to put consumers in control, but Public services (the NHS and mental health) have embraced technology for interventions, data management and medication BUT remain analogue in harnessing technology to empower consumers. In mental health, we have:Users who are often passive, not in control, not engaged with treatmentCulture of professionally-led carePaper-based user tools (mood diaries, help books, leaflets)