Patient feedback and views on their participation in the research programme for movement disorders.

1. What were the best or most positive
aspects of your research experience?
Stephen Harwood
Patient and Public Involvement Officer
Movement Disorders Research
Email: rf-movementdisorders@nhs.net
Tel: 0207 7940500 x 36927
Mobile: 0787 107 4774
“That everything
about the research is
explained in detail
and there is no rush.”
“Having time to be
fully assessed and
listened to.”
Movement Disorders research
Patient experience survey 2016
Some of your views
“Feeling that I am
making a positive
contribution.”

2. What benefits did taking part in the research give you?
Stephen Harwood
Patient and Public Involvement Officer
Movement Disorders Research
Email: rf-movementdisorders@nhs.net
Tel: 0207 7940500 x 36927
Mobile: 0787 107 4774
“A feeling that
I'm helping to
improve the
situation, albeit
in a small way.”
“None directly but it
may benefit me or my
family in the future.”
Movement Disorders research
Patient experience survey 2016
Some of your views
“It gives me more of
an insight into my
condition.”
“I do feel positive
about contributing
and the fact that
research is going on
is all very positive.”

3. Movement Disorders research
Patient experience survey 2016
Some of your views
Any part of the research process you did not enjoy?
Stephen Harwood
Patient and Public Involvement Officer
Movement Disorders Research
Email: rf-movementdisorders@nhs.net
Tel: 0207 7940500 x 36927
Mobile: 0787 107 4774
“Taking of my
blood sample.”
“Coping with the tiredness
from taking part.”

4. Movement Disorders research
Patient experience survey 2016
Some of your views
What helped you decide to take part in research?
Stephen Harwood
Patient and Public Involvement Officer
Movement Disorders Research
Email: rf-movementdisorders@nhs.net
Tel: 0207 7940500 x 36927
Mobile: 0787 107 4774
“If my participation can
help to improve treatment
or achieve a better
understanding of the
illness, then I'm happy to
participate.”
“I feel that if my
contribution may make
a difference then I
should take part.”
“I think that taking part in
research is something I
can give when my
condition is trying to take
things from me.”