2. Premroop (Person with Hemophilia)
Communicator and Implementation Strategist
Holds PhD in “Hemophilia Management”.
Experience in Project management & client
coordinations. He is also a member of the
National Health Mission (NHM) for
Hemophilia & Hemoglobinopathy,Project
Himplementation in Karnataka state. He is
study subject for clinical study.
Team
Mr. Soma Shekar (Person with Hemophilia)
Redefine and Technology Strategist
Over 20 Years of IT experience . Worked wth
Defence, Aeronautical and healthcare domain.
Advisory Volunteer Team
Dr. Cecil R. Ross, MBBS, MD (Medicine)
Professor in Internal medicine and
hematology. St. Johns Medical College
Dr Renuka Prasad B
Associate Professor
Department of Master of Computer
Application Raashtreeya Vidyalaya
College of Engineering
Dr. Kumuda valli M V
Associate Professor
Dayananda Sagar Institutions
The Regisseur
3. Focus Disorder
Thalassemia Sickle Cell Disease Hemophilia
Life long hereditary blood disorder | NO cure only management | Expensive to manage
Caregivers have minimum awareness | Limited medical fraternity
4. Understand health condition through
patient-reported data captured in a
non clinical settings
Patient-generated information and
electronic health records creates a 360
degree view of the patient.
Eco System
5. Towards
That allows better
predictive analytics centered around
patient health and timely intervention
Create personalize care programs
Aggregated analysis and statistics of
patients to health researchers to find
ways to improve the lifestyle of patients
& CURE
7. Providing an easily
accessible patient portal
or mHealth application
Access
Engage patients frequently
to manage health &
lifestyle
Ability
Provide external cures and
reminders to log daily
progress
Triggers
Personalize their
experience by leveraging
their health information
Motivation
Eco System
9. Regulatory maze
Accessible, Searchable,
Comprehensive,
continuously updated and
validated database
H&FWD
DME
Govt
Schemes
Kar
TN
AP
State
Registry
Product procurement
guidelines
Rx Access
Registry- A womb to tomb
collection of data (2013)
Vision Dr.Cecil Ross
Courtesy Dr. Cecil Ross Slides
11. Management of Thalassemia
Patient
Reports to
Care Center
Registration
Counseling
Treatment
Pre Transfusion
Evaluation
Transfusion
Chelation
therapy
Next Transfusion Date
Quarterly Yearly
Clinical Investigation
Specialty
Care
Heart/
Kidney/
Liver
12. As on Today
Note : Number
shown here is
random, its
demo purpose
only
13. As on Today
Note : Number
shown here is
random, its
demo purpose
only
14. As on Today
Note : Number
shown here is
random, its
demo purpose
only
15. Empower PwH
ಅ अ
A
Multilingual
backend framework
Offline Storage
alert on data sync
Library
texts, links, reference
Updates
national/regional
Security
self managed share
16. Implementation
2017
Pilot implementation in Karnataka
https://hemophilia.karnataka.gov.in/
2018
Showcased in 1st International conference on
Hemoglobinopathies and Hemophilia at Bangalore.
2019 State of Punjab Implementation
https://pshtr.punjab.gov.in/
By Dec’2019 Live in state of Kerala and UP
19. Patient Register implementation strategy meeting at
CDAC with National Blood Cell consultant and
Hematology expert across India
20. Mr. Mohit Saini
System Analyst (IT Wing).
Punjab Health Systems Corporation, SAS Nagar, Mohali.
Department of Health & Family Welfare. Govt. of Punjab.
Department of Health & Family Welfare, Govt. of Punjab has
successfully implement Hemophilia & Thalassemia Registry Software in
the State of Punjab for real time monitoring and utilization of Factors
and online patients registration. This online Software is developed by
Hemolife Service Pvt. Ltd, Bengaluru and hosted at State Data Centre,
Mohali (Govt of Punjab) with domain name
https://www.pshtr.punjab.gov.in . Presently it is operational in all 22
districts in the State of Punjab i.e in all District Hospitals. It is a great
achievement to deduplication and registration of patients of the
entire State.
Karnataka State Hemophilia Registry launched by our Hon.
Health Minister Shri Ramesh Kumar to monitor Hemophilia
patients across our state which is first in our country. I
must appreciate hemolife professionalism by which registry
been developed and completed on time. The efforts by
team to monitor and track expensive medicine for
hemophilia patients is commendable. Software been used in
district hospitals and we have trained treating nurses to
capture data. Thanks once again team Hemolife for the
software.
Dr.Swatantrakumar Banakar
State Nodal Officer, State Blood Cell,
National Health Mission
Bangalore
21. Implementation
Implementation for Blood Cell for the
program Hemoglobinopathies and
Hemophilia.
- Training for data mangers, Nurses &
doctors. Engaging patients mention
disorder
Private, Individual, medical colleges
Number of Patients in
India
Thalassaemia
100,000
SCD
150,000
Hemophilia
20,000
From Dr. Tulika Seth, AIIMS
23. Empowering with wearable
Thalassemia Sickle Cell Disease Hemophilia
Hb Monitoring Pain Deduction Fall Alert
Dr Renuka Prasad B
Associate Professor
Department Master of Computer Application
Raashtreeya Vidyalaya College of Engineering
24.
25. Step Ahead
● Genetic Mapping
● Carrier screening
● Prenatal diagnosis
Connect remote patient to
nearest Primary health center.
Empower near medical time
for timely treatment
● Timely quality treatment episodic, critical
consolidation
● Identifying and provide medical care urban to
remote places
● Reduce blood disorder suffers occurrence in future
