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Veterans Nearing the
End of Life: Distinct Needs,
Specialized Care
VITAS Healthcare programs are provided CE credits for their Nurses/Social Workers and
Nursing Home Administrators through: VITAS Healthcare Corporation of Florida, Inc./CE
Broker Number: 50-2135. Approved By: Florida Board of Nursing/Florida Board of
Nursing Home Administrators/Florida Board of Clinical Social Workers, Marriage and
Family Therapy & Mental Health Counseling.
VITAS Healthcare programs in Illinois are provided CE credit for their Nursing Home
Administrators and Respiratory Therapists through: VITAS Healthcare Corporation of
Illinois, Inc./8525 West 183 Street, Tinley Park, IL 60487/NHA CE Provider Number:
139000207/RT CE Provider Number: 195000028/Approved By the Illinois Division of
Profession Regulation for: Licensed Nursing Home Administrators and Illinois
Respiratory Care Practitioner.
VITAS Healthcare, #1222, is approved to offer social work continuing education by
the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE)
program. Organizations, not individual courses, are approved as ACE providers.
State and provincial regulatory boards have the final authority to determine whether
an individual course may be accepted for continuing education credit. VITAS Healthcare
maintains responsibility for this course. ACE provider approval period: 06/06/2018 –
06/06/2021. Social workers completing this course receive 1.0 ethics continuing
education credits.
VITAS Healthcare Corporation of California, 310 Commerce, Suite 200, Irvine,
CA 92602. Provider approved by the California Board of Registered Nursing,
Provider Number 10517, expiring 01/31/2021.
Exceptions to the above are as follows: AL: No NHAs, DE: No NHAs, DC: No
NHAs, GA: No NHAs, KS: No NHAs, NJ: No NHAs, OH: No NHAs, PA: No NHAs,
TX: No NHAs, VA: No NHAs, WI: No NHAs and Nurses are not required – RT only
receive CE Credit in Illinois
CE Provider
Information
Goal
This presentation equips the
healthcare professional with a
multi-faceted understanding of
the unique needs of the veteran
patient nearing the end of life.
The goal is to provide the highest
quality care and dignified treatment
that the veteran who selflessly
provided service to our
nation deserves.
Objectives
• Discuss pertinent statistics regarding ill and aging
US veterans.
• Highlight why it is important for non-VA healthcare
entities to develop Veteran Cultural Competency.
• Describe military cultural values that may influence
both the veteran’s help-seeking behaviors and
his/her end-of-life experience.
• Discern factors that might explain differences in
how combat veterans integrate their war experience
as they transition from soldier to civilian.
• Describe how attending to the combat veteran
through the lens of Trauma-Informed Care
supports empathic, effective, quality healthcare.
• Describe the major components of post-traumatic
stress disorder (PTSD) and ways to mitigate symptoms
that may appear as a veteran nears the end of life.
• Define moral injury and describe evidence-based
treatment methods for easing moral or “soul” injury.
US Veteran
Statistics
• 300,000 WWII veterans are
alive today
• 1,800 veterans die every day
• 40% receive care at the VA
• Hospices are now caring
for mostly Vietnam and
Korean War vets
Planning, O. of P. (2010). Veterans Affairs. https://www.va.gov/vetdata/quick_facts.asp
Each
Veteran
Is Unique
• How they adjust to civilian life
• How they cope with life stressors
• Whether they enlist help
• How they experience the
end of life
• Which war they served in
• Whether they had PTSD and
whether it was treated
• Whether they were prisoners
of war or experienced
other trauma
Factors
That
Influence
Veteran
Experience
Military
Cultural
Values
• Youthful indoctrination establishes
identity: core values and beliefs
• Social conformity
• Stoicism
– Emotions = weakness
– Compounded for male veterans
• “No Pain, No Gain…”
• Being in control
• Deference to authority
• Death as the enemy
– “Fight to the bitter end.”
• Support your own
– “The few. The proud. The brave.”
• No soldier dies alone
Military
Cultural
Values
Military values essential for the battlefield might be
contraindicated when the veteran is nearing the end of life.
Stoicism, the need for control, trusting “we” and
not “them,” and putting others before yourself may
shape the way our veterans experience their physical,
emotional, and spiritual symptoms as they near the
end of life and their attitudes about seeking help.
Combat vs.
Non-Combat
Veterans
Non-combat:
• Fewer psychological and
social obstacles transitioning
to civilian life
Combat:
• More psychological adjustments,
physical ailments, and
social adjustments
• Country united behind war effort
• Degree of safety behind enemy lines
• War was glamorized
– No TV coverage of atrocities
• Veterans came back heroes;
we won the war
• Veterans socialized at VFW
after the war
World War II
1941-1946
Korean War
1950-1953
• “Police Action” - limited war
• Did not gain popular support
• Korean vets felt ignored, forgotten;
their experiences were minimized
• Soldiers were young, many
were drafted
• US involvement was unclear
• War was unpopular; massive
protests at home
• No safety behind enemy lines
• More civilian causalities
• Brutality portrayed on TV
• America lost the war
– “We sacrificed ourselves and
our buddies in vain.”
• Veterans wanted to forget the war
Vietnam War
1964-1975
“Theater Veterans” 1988-2013
• Major depression: 37%
• PTSD: 11% of males and
7% of females
– PTSD comorbidities:
• Musculoskeletal conditions
(e.g., arthritis)
• Circulatory diseases
(e.g., heart disease)
• Nervous system diseases
(e.g., deafness)
Marma, C.R., et al. (2015). Course of posttraumatic stress disorder 40 years after the Vietnam War:
Findings from the National Vietnam Veterans Longitudinal Study. JAMA Psychiatry, 72(9), 875-81.
National
Vietnam
Veterans
Longitudinal
Study
• Societal support was split
• Success and failure were/are
hard to measure
• Extensive vivid media coverage
• More traumatic injuries
• High potential for terrorist
attacks and roadside bombs kept
veterans constantly on alert
• 16% veterans suffer from depression
or PTSD (Hoge, et. al., 2004)
Gulf and
Afghanistan
Wars
1990-Present
Vietnam veterans:
• Chemical warfare (Agent Orange)
• Hearing loss
• Hepatitis C
Gulf and Afghanistan veterans:
• Drug-resistant organisms
• Chemical and biological warfare
• Explosive-related injuries
Combat:
Physical
Ailments and
Injuries
Veteran
Suicide
Rates in
the US
• 20 suicides per day
• 2019: 1.5 times more
than non-veterans
• 70% > age 50
• More likely to act on
suicidal plan
Suicide Among Veterans and Other Americans 2001-2014. (2019). National Veteran Suicide Prevention
Annual Report. Office of Mental Health and Suicide Prevention. Retrieved from: Mentalhealth.va.gov
Sher, L., et al. (2012). Post-traumatic stress disorder, depression, and suicide in veterans.
Cleveland Clinic Journal of Medicine. February, 79(2), 92-97.
• Personality and resiliency
• Social, familial support
• Financial stability
• Physical health
• Faith support
• Ability to openly discuss
war experience
Factors
Influencing
Integration
of Trauma
• Integrated response to trauma
• No integration of trauma
• Apparent integration of trauma
Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304.
Integration
of Trauma
A: Stressor* Exposed to death, threatened
death, actual/threatened serious injury, sexual
violence. Direct exposure, indirect exposure
B: Intrusion symptoms* Traumatic event
persistently re-experienced via upsetting
memories, nightmares, flashbacks; emotional
distress or physical reactivity after exposure
to traumatic reminders
C: Avoidance* Of trauma-related stimuli,
thoughts or feelings, external reminders
D: Negative alterations in cognitions and mood**
Inability to recall key trauma features, overly
negative thoughts about self/the world, exaggerated
blame of self/others, negative affect, decreased
interest in activities, isolation, difficulty being positive
Trauma- and Stressor-Related Disorders. (2013). DSM-5.
*One symptom from the list **Two symptoms from the list
Post-
Traumatic
Stress
Disorder
(PTSD)
E: Alterations in arousal and reactivity
Irritability or aggression, risky or destructive
behavior, hypervigilance, heightened startle
reaction, difficulty concentrating,
difficulty sleeping
F: Symptoms last for more than 1 month
G: Symptoms create distress or functional
impairment (e.g., social, occupational)
Trauma- and Stressor-Related Disorders. (2013). DSM-5.
Post-
Traumatic
Stress
Disorder
(PTSD)
(cont.)
Most
Prevalent
Mental
Disorders
in Veterans:
PTSD
• Flashbacks, vivid dreams, hypervigilance,
especially debilitating
• Depression, anxiety, adjustment problems,
distrust authority, survivor’s guilt, adverse
family consequences
• 52% males, 28% females with PTSD
meet lifetime criteria for alcohol
abuse/dependence
• 35% males, 27% females with PTSD
meet criteria for drug abuse
Kessler, R., et al. (2005) Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the
National Comorbidity Survey Replication (2005). Archives of General Psychiatry, 62(6), 593-602.
• 23% women reported sexual assault
• 55% women reported sexual harassment
• More than half of veterans with military
sexual trauma are men
Symptoms:
• Disturbing memories or nightmares
• Difficulty feeling safe
• Depression or numbness
• Alcohol/drug issues
• Feeling isolated
• Anger, irritability
• Sleep disturbances
• Health problems
“Military Sexual Trauma,” retrieved from US Department of Veteran Affairs
https://www.mentalhealth.va.gov/mentalhealth/msthome/index.asp
Military
Sexual
Trauma
Guilt
Commission or Omission of Actions
• Failing to perform one’s duty or
to act during trauma
• Being unable to save fellow
service members
• Feeling a rush or enjoyment
during trauma
• Disproportionate violence
inflicted on others
• Witnessing or perpetrating
violence on civilians, children
• Making decisions that affect
the survival of others
Williamson, V., et al. (2019). Moral injury in UK armed forces veterans: a qualitative study.
European Journal of Psychotraumatology, 10(1), 1562842.
Guilt
(cont.)
Feel guilty for:
• Killing; for not killing
• Surviving…
• What other comrades did
• Seeing others volunteer
• Life and death decisions
• What families went through
– 54% - lifetime post-traumatic guilt
– 41% - current post-traumatic guilt
– 35% - moderate to extreme guilt
Miller M., et al. (2012). The prevalence and latent structure of proposed DSM-5 posttraumatic stress
disorder symptoms in U.S. Psychological Trauma: Theory, Research, Practice, and Policy.
Norman, S., et al. (2014) Trauma Informed Guilt Reduction Therapy with
Combat Veterans. Cognitive and Behavioral Practice, 21(1), 78–88.
When guilt is addressed head-on, it can be appraised and used
adaptively, such as in helping a person clarify their values
or their commitment to repair the action.
When guilt is avoided, however, a possible syndrome
develops in which guilt that accompanies the experiences
is taken as evidence of wrongdoing and can lead to shame.
What is
Moral Injury?
• “Perpetrating, failing to prevent, or bearing
witness to acts that ultimately transgress
one’s deeply held moral beliefs,”
creating dissonance
• Emphasizes the psychological, social,
cultural, and spiritual aspects of trauma
Litz B., et al. (2009). Moral injury and moral repair in war veterans: A preliminary model and
intervention strategy. Clinical Psychology Review, 29:695–706.
• Social problems (e.g., isolation, aggression)
• Trust and intimacy issues
• Loss of faith
• Existential issues (e.g., fatalism, sorrow)
• Intrusive thoughts
• Intense negative appraisals (e.g., shame,
guilt, disgust)
• Self-deprecating emotions
Drescher, K. D., et al. (2011). An exploration of the viability and usefulness of the construct
of moral injury in war veterans. Traumatology, 17(1), 8-13.
Moral Injury
What is
“Soul”
Injury?
• Disruption of fundamental identity
• Sense of betrayal (self, others,
organization, faith)
• Emptiness; meaninglessness
caused by disconnection
from self
• Unmourned grief
• Unforgiven guilt
Grassman, D. Retrieved from Opus Peace www.opuspeace.org
Tick, E. (2005). War and the soul: Healing our nation's veterans from post traumatic stress disorder. Quest Books.
“In war, chaos overwhelms compassion, violence replaces cooperation, and
instinct replaces rationality. When drenched in these conditions, the soul is
disfigured and can become lost for life. What is called ‘soul loss’ is an extreme
psychospiritual condition beyond what psychologists commonly call dissociation.
It is far more than psychic numbing or separation of mind from body.
It is a removal of the center of experience from the living body without
completely snapping the connection. In the presence of overwhelming
life-threatening violence, the soul ⏤ the true self ⏤ flees.
The center of experience shifts; the body takes the impact of the trauma.
With body and soul separated, a person is trapped in a limbo where
past and present intermingle without differentiation of continuity.
Nothing feels right until body and soul rejoin…”
• Understand what the veteran has
experienced and what they prefer
to experience in this moment
• Help reconcile ideals and values
with past and present
• Look for opportunities to use
ideals and core values to help
them make peace
Community Hospices: Suicide Prevention for Vietnam Veterans. Sponsored by the Empowering Community Hospices Initiative.
Retrieved from: https://www.wehonorveterans.org/wp-content/uploads/Hospice__Suicide_Prevention-2.pdf
Military
Cultural
Competency
• Pharmacological management of
anxiety and depression
• Cognitive behavioral techniques
– Cognitive processing therapy (CPT)
– Prolonged exposure (PE)
– Trauma-Informed Guilt Reduction
(TrIGR) therapy
– Mindfulness meditation
• Group therapy
Diefenbach, T.M. (2018). Improving the integration of psychoeducation, prolonged exposure, and psychopharmacological
trreatments of combat-related PTSD: A descriptive phenomenological study. (Doctoral dissertation, Northcentral University).
Treatment
for PTSD
Treatment
for Moral
Injury
• Trauma Informed Guilt Reduction (TrIGR)
• Adaptive disclosure (AD)
• Impact of Killing Treatment Program (IOK)
• Life review-based exposure
• Spiritually oriented counseling
• Complementary/alternative therapies
Litz, B., et al. (2015). Adaptive disclosure: A new treatment for military trauma, loss, and moral injury. Guilford Publications.
Maguen, S., et al. (2017). Impact of killing in war: A randomized, controlled pilot trial. Journal of Clinical Psychology, 73(9), 997-1012.
Steenkamp, M., et al. (2011). A brief exposure-based intervention for service members with PTSD. Cognitive and Behavioral Practice, 18(1), 98–107.
• “Re-own and re-home” part of
the self that carries pain and guilt
Treatment involves:
• Grief work
• Unifying the fragmented self
• Learning to forgive
• Complementary therapies
Grassman, D. Retrieved from Opus Peace www.opuspeace.org
Treatment
for Soul
Injury
• Aging brings about life adjustment,
life review, loss
• Advanced illness can be traumatic
• For the veteran, both can rekindle
wartime memories, survivor’s guilt,
unresolved grief
• Can be hard for veteran to “let go”
• May be socially isolated
• May ignore or under-report symptoms
• May be distrustful of helping professionals
The Veteran
Nearing the
End of Life
Ganzel, B. (2018). Trauma-Informed Hospice and Palliative Care. The Gerontologist, 58(3), 409-419.
Trauma-informed care recognizes the nature of terminal illness,
the effects of aging, and the knowledge that many individuals,
including veterans, have experienced lifetime trauma.
Trauma-informed care is provided by first assessing signs or
symptoms of trauma, and then by developing intervention
strategies in ways that prevent reactivation or exacerbation
of possible trauma symptoms.
• Trauma treatment options determined by:
– Nature and intensity of symptoms
– Length of expected survival
– Physical, cognitive, and
emotional energy
• Care does not include probing deeply
into trauma history
Care for
Veterans
Nearing the
End of Life
• Establish rapport in a helpful,
respectful manner
• Manage symptoms pharmacologically
• Restore and support a sense of safety
• Calm and orient distressed individuals
• Connect veteran to sources of
social support
Veterans
With
Advanced
Illness
• Distinguish between PTSD and
“terminal restlessness”
• Assess for environmental triggers
– Loud noises, bed alarms,
violent TV shows
– Avoid restraints
– Avoid noxious stimuli
• Avoid startle response: call out their name,
let them see you first
• Approach patient calmly and slowly,
especially before touching them
Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304.
Trauma
Informed
Physical
Care
• Position patient so he/she is not “boxed in”
• Introduce battlefield metaphors:
– “This is a special bomb-proof room”
– If “enemy soldiers are under the bed,”
put mattress on the floor
– Suggest you’re the sentry posted
to keep them safe
• Providers of Asian ethnicity may trigger
veterans of Vietnam/Korean Wars
• Those of German descent may trigger
WWII veterans
Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304.
Trauma
Informed
Physical
Care (cont.)
• Offer permission to accept declining
health, allow support from others
• Suggest that emotional control and
tolerating pain ⏤ once critical for
battle ⏤ are not helpful now
• Allow as much control as possible
• Help translate their lifetime values
into positive present actions
“What have you done in the past to make
yourself better when things got difficult?”
“Can you think of things that would help
you to feel better?”
Enhancing
Coping Skills
Supporting
Spiritual
Growth
• Help construct a “trauma narrative”
with room for personal strengths,
positive relationships, spiritual change,
appreciation for life
• Examine where values have contributed
to strengths and suffering
• Use rituals, confession, pastoral care,
letter-writing, and role-playing to
release guilt, find reassurance
• Help redefine usefulness, purposefulness
at the end of life
Forgiveness:
Cornerstone
of Healing
• Allows a letting-go of trauma and guilt
• Can alter relationship with the past
• Wanting to forgive is essential
– We do not rush it prematurely
– We accept if the veteran
cannot forgive
• Memories remain vivid
for the veteran
• Externalizing stories
is cathartic
• Both provide
self-acknowledgement,
self-forgiveness,
acceptance, and
reconciliation
“Beholding is more than
listening to stories with our ears.
It involves the spiritual dimension.
We must listen with our
deeper selves.”
—Deborah Grassman
“Listen
with all
your might
and do
not judge.”
—Deborah Grassman
Do:
• Take your lead from veteran
• Validate their experience
• Thank them for their story and
their service
Do Not:
• Give advice
• Quiz for many details
• Suggest they should not feel guilty
• Ask highly personal questions
• Share your political views
• Acknowledge their sacrifices
• Assess for secondary trauma
• Facilitate an understanding
of how military experience
may affect the present
• Provide psychoeducation re:
moral injury and PTSD
• Facilitate connection,
unfinished business
• Suggest that the veteran
share his/her war experience,
if they’ve not done so
Treating
the Veteran
Family
Recognition
Engenders psychological and spiritual
congruence between personal
values and motivation for enlisting,
vis-a-vis their war actions.
• Leaving a “legacy” is critical
at end of life
– Freedom of speech
– Peace (absence of war)
– Respect for all people
– Patriotism
– Tolerance
Gratitude
• Thank them for:
– Serving our country
– Giving us our freedom
– Putting their life on hold
• Celebrate accomplishments
with them
• Provide ceremonies of recognition
Appreciation
• “You are the peacemakers of today.”
• “It’s because of your service that
we are free today.”
• “We’ll always remember the sacrifices
you and other service members
have made.”
• “This country is great today because
of your service.”
• “The world is a better place today
because of you.”
In closing…
Let’s not allow the soldier dying in our midst be
unknown any longer… Let us BEHOLD and
FEEL BEHOLDEN!
—VA Mission
Open-ended Life Review Questions
Some open-ended questions that
elicit storytelling might include:
• What branch of service were
you in? Why did you choose
that one?
• What inspired you to join?
• What was your job? What was
the most rewarding part of it?
• What is the most important
thing you learned from service?
• What made you most proud
of being in uniform?
Life Review
Questions
Advanced questions might include:
• What surprised you most about being
overseas or deployed?
• What did you do in your free time
when you were deployed?
• How did the United States change
while you were gone?
• Do you think you were changed
as a result of being in the military?
Please describe the changes.
• What was your homecoming like?
• Do you keep in touch with
your war buddies?
Life Review
Questions
(cont.)
www.vetcenter.va.gov Veteran Centers provide counseling free of charge
www.va.gov US Department of Veteran Affairs
http://www.vba.va.gov/ Veterans Benefits Administration Home Page
http://www.va.gov/vso Veteran Service Organizations
https://www.ptsd.va.gov/ VA National Center for PTSD
VA/DOD Clinical Practice Guideline For the Management of PTSD and
Acute Stress Disorder
https://www.loc.gov/vets/ Veteran History Project (Library of Congress)
https://www.wehonorveterans.org/ the National Hospice and
Palliative Care Organization
VA
Resources
Questions
References
American Psychiatric Association. (2013) Diagnostic and statistical manual
of mental disorders, (5th ed.). Washington, DC.
Barno, D., et al. How to Talk to a Veteran, School of International Service
at American University. Retrieved from warontherocks.com
Community Hospices: Suicide Prevention for Vietnam Veterans.
Sponsored by the Empowering Community Hospices Initiative. Retrieved from:
https://www.wehonorveterans.org/wp-content/uploads/Hospice__Suicide_
Prevention-2.pdf
Diefenbach, T. (2018). Improving the integration of psychoeducation,
prolonged exposure, and psychopharmacological treatments of combat-related
PTSD: A descriptive phenomenological study. (Doctoral dissertation,
Northcentral University).
Drescher, K., et al. (2011). An exploration of the viability and usefulness
of the construct of moral injury in war veterans. Traumatology, 17(1), 8-13.
Feldman, D., et al. (2014). Treatment of posttraumatic stress disorder at the
end-of-life: Application of the stepwise psychosocial palliative care model.
Palliative & supportive care,12(3), 233-243.
Ganzel, B. (2018). Trauma-Informed Hospice and Palliative Care.
The Gerontologist, 58(3), 409-419.
Grassman, D. Retrieved from Opus Peace www.opuspeace.org
Grassman, D. (2007). Wounded warriors: Their last battle.
Home Health Nurse, 25(5), 299-304.
Haiken, M. (2013). Suicide Rate Among Vets and Active Duty Military
Jumps - Now 22 A Day. Forbes.
References
Hoge, C., et al. (2004) Combat Duty in Iraq and Afghanistan, Mental Health
Problems, and Barriers to Care. New England Journal of Medicine, 351, 13-22.
Kaiman, C. (2003) PTSD in the World War II combat veteran.
The American Journal of Nursing, 103(11), 32-41.
Kessler, R., et al. (2005) Lifetime prevalence and age-of-onset distributions
of DSM-IV disorders in the National Comorbidity Survey Replication (2005).
Archives of General Psychiatry. Jun;62(6), 593-602.
Kubany, E., et al. (1995). Initial examination of a multidimensional model of
trauma-related guilt: Applications to combat veterans and battered women.
Journal of Psychopathology and Behavioral Assessment, 17, 353–376.
Litz, B., et al. (2009). Moral injury and moral repair in war veterans: A preliminary
model and intervention strategy. Clinical Psychology Review, 29, 695-706.
Litz, B., et al. (2015). Adaptive disclosure: A new treatment for military trauma,
loss, and moral injury. Guilford Publications.
Maguen, S., et al. (2012). Moral injury in veterans of war. PTSD Research
Quarterly, 23(1).
Maguen, S., et al. (2017). Impact of killing in war: A randomized, controlled pilot
trial. Journal of Clinical Psychology, 73(9), 997-1012.
Marma, C., et al. (2015). Course of posttraumatic stress disorder 40 years after
the Vietnam War: Findings from the National Vietnam Veterans Longitudinal
Study. JAMA Psychiatry, 72(9), 875-81.
Miller M., et al. (2012). The prevalence and latent structure of proposed
DSM-5 posttraumatic stress disorder symptoms in U.S. Psychological Trauma:
Theory, Research, Practice, and Policy.
“Military Sexual Trauma,” retrieved from US Department of Veteran
Affairs https://www.mentalhealth.va.gov/mentalhealth/msthome/index.asp
Nash, W., et al. (2013). Moral injury: A mechanism for war-related
psychological trauma in military family members. Clinical Child & Family
Psychology Review, 6, 365-375.
National Center for Veterans Analysis and Statistics.
https://www.va.gov/vetdata/quick_facts.asp
National Child Traumatic Stress Network (NCTSN), & National Center for
Posttraumatic Stress Disorder (NCPTSD). (2006) Psychological First Aid:
Field operations guide, second edition. Retrieved from http://www.nctsn.org
National Vietnam Veterans Readjustment Study (NVVRS) www.ptsd.va.gov ›
articles › article-pdf › nvvrs_vol1.
Norman, S., et al. (2014) Trauma Iand Behavioral informed Guilt Reduction
Therapy with Combat Veterans. Cognitive Practice, 21(1), 78–88.
Olenick, M., et al. (2015). US veterans and their unique issues: enhancing
health care professional awareness. Advances in Medical Education and
Practice, 6, 635.
Shay, J. Moral injury. (2014); Psychoanalytic Psychology, 31, 182–191
(quoted PsychiatryOnline.org).
Sher, L., et al. Posttraumatic stress disorder, depression, and suicide
in veterans. Cleveland Clinic Journal of Medicine, 79(2), 2 92-97.
Steenkamp, M., et al. (2015). Psychotherapy for military-related PTSD:
A review of randomized clinical trial. Journal of the American Medical
Association, 314(5), 489-500.
References
Steenkamp, M., et al. (2011). A brief exposure-based intervention for service
members with PTSD. Cognitive and Behavioral Practice, 18(1), 98–107.
Suicide Among Veterans and Other Americans 2001-2014. (2019).
National Veteran Suicide Prevention Annual Report. Office of Mental
Health and Suicide Prevention. Retrieved from: Mentalhealth.va.gov
Tick, E. (2005). War and the soul: Healing our nation’s veterans from post
traumatic stress disorder. Quest Books.
Tick, E. (2014). The Warriors Return. Boulder, CO: Sounds True Inc.
Trauma-and Stressor-Related Disorders. (2013). DSM-5.
U.S. Department of Veterans Affairs. (2014). PTSD: National Center for
PTSD: Acts of Violence, Terrorism, or War: Triggers for Veterans. Retrieved from:
http://www.ptsd.va.gov/public/types/war/terrorism-war-affect-vets.asp
U.S. Department of Veterans Affairs. (2014). Statistics at a Glance. Retrieved from:
http://www.va.gov/vetdata/docs/Quickfacts/Homepage_slideshow_3_31_14.pdf
U.S. Department of Veterans Affairs. Veteran Health Concerns. Retrieved from:
www.va.gov/oaa/pocketcard/unique.asp
Williamson, V., et al. (2019). Moral injury in UK armed forces veterans:
a qualitative study. European Journal of Psychotraumatology, 10(1), 1562842.
2019 National Veteran Suicide Prevention Annual Report. Office of Mental
Health and Suicide Prevention.
References
Veterans Nearing the
End of Life: Distinct Needs,
Specialized Care

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Veterans Nearing the End of Life: Distinct Needs, Specialized Care

  • 1. Veterans Nearing the End of Life: Distinct Needs, Specialized Care
  • 2. VITAS Healthcare programs are provided CE credits for their Nurses/Social Workers and Nursing Home Administrators through: VITAS Healthcare Corporation of Florida, Inc./CE Broker Number: 50-2135. Approved By: Florida Board of Nursing/Florida Board of Nursing Home Administrators/Florida Board of Clinical Social Workers, Marriage and Family Therapy & Mental Health Counseling. VITAS Healthcare programs in Illinois are provided CE credit for their Nursing Home Administrators and Respiratory Therapists through: VITAS Healthcare Corporation of Illinois, Inc./8525 West 183 Street, Tinley Park, IL 60487/NHA CE Provider Number: 139000207/RT CE Provider Number: 195000028/Approved By the Illinois Division of Profession Regulation for: Licensed Nursing Home Administrators and Illinois Respiratory Care Practitioner. VITAS Healthcare, #1222, is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved as ACE providers. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. VITAS Healthcare maintains responsibility for this course. ACE provider approval period: 06/06/2018 – 06/06/2021. Social workers completing this course receive 1.0 ethics continuing education credits. VITAS Healthcare Corporation of California, 310 Commerce, Suite 200, Irvine, CA 92602. Provider approved by the California Board of Registered Nursing, Provider Number 10517, expiring 01/31/2021. Exceptions to the above are as follows: AL: No NHAs, DE: No NHAs, DC: No NHAs, GA: No NHAs, KS: No NHAs, NJ: No NHAs, OH: No NHAs, PA: No NHAs, TX: No NHAs, VA: No NHAs, WI: No NHAs and Nurses are not required – RT only receive CE Credit in Illinois CE Provider Information
  • 3. Goal This presentation equips the healthcare professional with a multi-faceted understanding of the unique needs of the veteran patient nearing the end of life. The goal is to provide the highest quality care and dignified treatment that the veteran who selflessly provided service to our nation deserves.
  • 4. Objectives • Discuss pertinent statistics regarding ill and aging US veterans. • Highlight why it is important for non-VA healthcare entities to develop Veteran Cultural Competency. • Describe military cultural values that may influence both the veteran’s help-seeking behaviors and his/her end-of-life experience. • Discern factors that might explain differences in how combat veterans integrate their war experience as they transition from soldier to civilian. • Describe how attending to the combat veteran through the lens of Trauma-Informed Care supports empathic, effective, quality healthcare. • Describe the major components of post-traumatic stress disorder (PTSD) and ways to mitigate symptoms that may appear as a veteran nears the end of life. • Define moral injury and describe evidence-based treatment methods for easing moral or “soul” injury.
  • 5. US Veteran Statistics • 300,000 WWII veterans are alive today • 1,800 veterans die every day • 40% receive care at the VA • Hospices are now caring for mostly Vietnam and Korean War vets Planning, O. of P. (2010). Veterans Affairs. https://www.va.gov/vetdata/quick_facts.asp
  • 6. Each Veteran Is Unique • How they adjust to civilian life • How they cope with life stressors • Whether they enlist help • How they experience the end of life
  • 7. • Which war they served in • Whether they had PTSD and whether it was treated • Whether they were prisoners of war or experienced other trauma Factors That Influence Veteran Experience
  • 8. Military Cultural Values • Youthful indoctrination establishes identity: core values and beliefs • Social conformity • Stoicism – Emotions = weakness – Compounded for male veterans • “No Pain, No Gain…”
  • 9. • Being in control • Deference to authority • Death as the enemy – “Fight to the bitter end.” • Support your own – “The few. The proud. The brave.” • No soldier dies alone Military Cultural Values
  • 10. Military values essential for the battlefield might be contraindicated when the veteran is nearing the end of life. Stoicism, the need for control, trusting “we” and not “them,” and putting others before yourself may shape the way our veterans experience their physical, emotional, and spiritual symptoms as they near the end of life and their attitudes about seeking help.
  • 11. Combat vs. Non-Combat Veterans Non-combat: • Fewer psychological and social obstacles transitioning to civilian life Combat: • More psychological adjustments, physical ailments, and social adjustments
  • 12. • Country united behind war effort • Degree of safety behind enemy lines • War was glamorized – No TV coverage of atrocities • Veterans came back heroes; we won the war • Veterans socialized at VFW after the war World War II 1941-1946
  • 13. Korean War 1950-1953 • “Police Action” - limited war • Did not gain popular support • Korean vets felt ignored, forgotten; their experiences were minimized
  • 14. • Soldiers were young, many were drafted • US involvement was unclear • War was unpopular; massive protests at home • No safety behind enemy lines • More civilian causalities • Brutality portrayed on TV • America lost the war – “We sacrificed ourselves and our buddies in vain.” • Veterans wanted to forget the war Vietnam War 1964-1975
  • 15. “Theater Veterans” 1988-2013 • Major depression: 37% • PTSD: 11% of males and 7% of females – PTSD comorbidities: • Musculoskeletal conditions (e.g., arthritis) • Circulatory diseases (e.g., heart disease) • Nervous system diseases (e.g., deafness) Marma, C.R., et al. (2015). Course of posttraumatic stress disorder 40 years after the Vietnam War: Findings from the National Vietnam Veterans Longitudinal Study. JAMA Psychiatry, 72(9), 875-81. National Vietnam Veterans Longitudinal Study
  • 16. • Societal support was split • Success and failure were/are hard to measure • Extensive vivid media coverage • More traumatic injuries • High potential for terrorist attacks and roadside bombs kept veterans constantly on alert • 16% veterans suffer from depression or PTSD (Hoge, et. al., 2004) Gulf and Afghanistan Wars 1990-Present
  • 17. Vietnam veterans: • Chemical warfare (Agent Orange) • Hearing loss • Hepatitis C Gulf and Afghanistan veterans: • Drug-resistant organisms • Chemical and biological warfare • Explosive-related injuries Combat: Physical Ailments and Injuries
  • 18. Veteran Suicide Rates in the US • 20 suicides per day • 2019: 1.5 times more than non-veterans • 70% > age 50 • More likely to act on suicidal plan Suicide Among Veterans and Other Americans 2001-2014. (2019). National Veteran Suicide Prevention Annual Report. Office of Mental Health and Suicide Prevention. Retrieved from: Mentalhealth.va.gov Sher, L., et al. (2012). Post-traumatic stress disorder, depression, and suicide in veterans. Cleveland Clinic Journal of Medicine. February, 79(2), 92-97.
  • 19. • Personality and resiliency • Social, familial support • Financial stability • Physical health • Faith support • Ability to openly discuss war experience Factors Influencing Integration of Trauma
  • 20. • Integrated response to trauma • No integration of trauma • Apparent integration of trauma Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304. Integration of Trauma
  • 21. A: Stressor* Exposed to death, threatened death, actual/threatened serious injury, sexual violence. Direct exposure, indirect exposure B: Intrusion symptoms* Traumatic event persistently re-experienced via upsetting memories, nightmares, flashbacks; emotional distress or physical reactivity after exposure to traumatic reminders C: Avoidance* Of trauma-related stimuli, thoughts or feelings, external reminders D: Negative alterations in cognitions and mood** Inability to recall key trauma features, overly negative thoughts about self/the world, exaggerated blame of self/others, negative affect, decreased interest in activities, isolation, difficulty being positive Trauma- and Stressor-Related Disorders. (2013). DSM-5. *One symptom from the list **Two symptoms from the list Post- Traumatic Stress Disorder (PTSD)
  • 22. E: Alterations in arousal and reactivity Irritability or aggression, risky or destructive behavior, hypervigilance, heightened startle reaction, difficulty concentrating, difficulty sleeping F: Symptoms last for more than 1 month G: Symptoms create distress or functional impairment (e.g., social, occupational) Trauma- and Stressor-Related Disorders. (2013). DSM-5. Post- Traumatic Stress Disorder (PTSD) (cont.)
  • 23. Most Prevalent Mental Disorders in Veterans: PTSD • Flashbacks, vivid dreams, hypervigilance, especially debilitating • Depression, anxiety, adjustment problems, distrust authority, survivor’s guilt, adverse family consequences • 52% males, 28% females with PTSD meet lifetime criteria for alcohol abuse/dependence • 35% males, 27% females with PTSD meet criteria for drug abuse Kessler, R., et al. (2005) Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the National Comorbidity Survey Replication (2005). Archives of General Psychiatry, 62(6), 593-602.
  • 24. • 23% women reported sexual assault • 55% women reported sexual harassment • More than half of veterans with military sexual trauma are men Symptoms: • Disturbing memories or nightmares • Difficulty feeling safe • Depression or numbness • Alcohol/drug issues • Feeling isolated • Anger, irritability • Sleep disturbances • Health problems “Military Sexual Trauma,” retrieved from US Department of Veteran Affairs https://www.mentalhealth.va.gov/mentalhealth/msthome/index.asp Military Sexual Trauma
  • 25. Guilt Commission or Omission of Actions • Failing to perform one’s duty or to act during trauma • Being unable to save fellow service members • Feeling a rush or enjoyment during trauma • Disproportionate violence inflicted on others • Witnessing or perpetrating violence on civilians, children • Making decisions that affect the survival of others Williamson, V., et al. (2019). Moral injury in UK armed forces veterans: a qualitative study. European Journal of Psychotraumatology, 10(1), 1562842.
  • 26. Guilt (cont.) Feel guilty for: • Killing; for not killing • Surviving… • What other comrades did • Seeing others volunteer • Life and death decisions • What families went through – 54% - lifetime post-traumatic guilt – 41% - current post-traumatic guilt – 35% - moderate to extreme guilt Miller M., et al. (2012). The prevalence and latent structure of proposed DSM-5 posttraumatic stress disorder symptoms in U.S. Psychological Trauma: Theory, Research, Practice, and Policy.
  • 27. Norman, S., et al. (2014) Trauma Informed Guilt Reduction Therapy with Combat Veterans. Cognitive and Behavioral Practice, 21(1), 78–88. When guilt is addressed head-on, it can be appraised and used adaptively, such as in helping a person clarify their values or their commitment to repair the action. When guilt is avoided, however, a possible syndrome develops in which guilt that accompanies the experiences is taken as evidence of wrongdoing and can lead to shame.
  • 28. What is Moral Injury? • “Perpetrating, failing to prevent, or bearing witness to acts that ultimately transgress one’s deeply held moral beliefs,” creating dissonance • Emphasizes the psychological, social, cultural, and spiritual aspects of trauma Litz B., et al. (2009). Moral injury and moral repair in war veterans: A preliminary model and intervention strategy. Clinical Psychology Review, 29:695–706.
  • 29. • Social problems (e.g., isolation, aggression) • Trust and intimacy issues • Loss of faith • Existential issues (e.g., fatalism, sorrow) • Intrusive thoughts • Intense negative appraisals (e.g., shame, guilt, disgust) • Self-deprecating emotions Drescher, K. D., et al. (2011). An exploration of the viability and usefulness of the construct of moral injury in war veterans. Traumatology, 17(1), 8-13. Moral Injury
  • 30. What is “Soul” Injury? • Disruption of fundamental identity • Sense of betrayal (self, others, organization, faith) • Emptiness; meaninglessness caused by disconnection from self • Unmourned grief • Unforgiven guilt Grassman, D. Retrieved from Opus Peace www.opuspeace.org
  • 31. Tick, E. (2005). War and the soul: Healing our nation's veterans from post traumatic stress disorder. Quest Books. “In war, chaos overwhelms compassion, violence replaces cooperation, and instinct replaces rationality. When drenched in these conditions, the soul is disfigured and can become lost for life. What is called ‘soul loss’ is an extreme psychospiritual condition beyond what psychologists commonly call dissociation. It is far more than psychic numbing or separation of mind from body. It is a removal of the center of experience from the living body without completely snapping the connection. In the presence of overwhelming life-threatening violence, the soul ⏤ the true self ⏤ flees. The center of experience shifts; the body takes the impact of the trauma. With body and soul separated, a person is trapped in a limbo where past and present intermingle without differentiation of continuity. Nothing feels right until body and soul rejoin…”
  • 32. • Understand what the veteran has experienced and what they prefer to experience in this moment • Help reconcile ideals and values with past and present • Look for opportunities to use ideals and core values to help them make peace Community Hospices: Suicide Prevention for Vietnam Veterans. Sponsored by the Empowering Community Hospices Initiative. Retrieved from: https://www.wehonorveterans.org/wp-content/uploads/Hospice__Suicide_Prevention-2.pdf Military Cultural Competency
  • 33. • Pharmacological management of anxiety and depression • Cognitive behavioral techniques – Cognitive processing therapy (CPT) – Prolonged exposure (PE) – Trauma-Informed Guilt Reduction (TrIGR) therapy – Mindfulness meditation • Group therapy Diefenbach, T.M. (2018). Improving the integration of psychoeducation, prolonged exposure, and psychopharmacological trreatments of combat-related PTSD: A descriptive phenomenological study. (Doctoral dissertation, Northcentral University). Treatment for PTSD
  • 34. Treatment for Moral Injury • Trauma Informed Guilt Reduction (TrIGR) • Adaptive disclosure (AD) • Impact of Killing Treatment Program (IOK) • Life review-based exposure • Spiritually oriented counseling • Complementary/alternative therapies Litz, B., et al. (2015). Adaptive disclosure: A new treatment for military trauma, loss, and moral injury. Guilford Publications. Maguen, S., et al. (2017). Impact of killing in war: A randomized, controlled pilot trial. Journal of Clinical Psychology, 73(9), 997-1012. Steenkamp, M., et al. (2011). A brief exposure-based intervention for service members with PTSD. Cognitive and Behavioral Practice, 18(1), 98–107.
  • 35. • “Re-own and re-home” part of the self that carries pain and guilt Treatment involves: • Grief work • Unifying the fragmented self • Learning to forgive • Complementary therapies Grassman, D. Retrieved from Opus Peace www.opuspeace.org Treatment for Soul Injury
  • 36. • Aging brings about life adjustment, life review, loss • Advanced illness can be traumatic • For the veteran, both can rekindle wartime memories, survivor’s guilt, unresolved grief • Can be hard for veteran to “let go” • May be socially isolated • May ignore or under-report symptoms • May be distrustful of helping professionals The Veteran Nearing the End of Life
  • 37. Ganzel, B. (2018). Trauma-Informed Hospice and Palliative Care. The Gerontologist, 58(3), 409-419. Trauma-informed care recognizes the nature of terminal illness, the effects of aging, and the knowledge that many individuals, including veterans, have experienced lifetime trauma. Trauma-informed care is provided by first assessing signs or symptoms of trauma, and then by developing intervention strategies in ways that prevent reactivation or exacerbation of possible trauma symptoms.
  • 38. • Trauma treatment options determined by: – Nature and intensity of symptoms – Length of expected survival – Physical, cognitive, and emotional energy • Care does not include probing deeply into trauma history Care for Veterans Nearing the End of Life
  • 39. • Establish rapport in a helpful, respectful manner • Manage symptoms pharmacologically • Restore and support a sense of safety • Calm and orient distressed individuals • Connect veteran to sources of social support Veterans With Advanced Illness
  • 40. • Distinguish between PTSD and “terminal restlessness” • Assess for environmental triggers – Loud noises, bed alarms, violent TV shows – Avoid restraints – Avoid noxious stimuli • Avoid startle response: call out their name, let them see you first • Approach patient calmly and slowly, especially before touching them Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304. Trauma Informed Physical Care
  • 41. • Position patient so he/she is not “boxed in” • Introduce battlefield metaphors: – “This is a special bomb-proof room” – If “enemy soldiers are under the bed,” put mattress on the floor – Suggest you’re the sentry posted to keep them safe • Providers of Asian ethnicity may trigger veterans of Vietnam/Korean Wars • Those of German descent may trigger WWII veterans Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304. Trauma Informed Physical Care (cont.)
  • 42. • Offer permission to accept declining health, allow support from others • Suggest that emotional control and tolerating pain ⏤ once critical for battle ⏤ are not helpful now • Allow as much control as possible • Help translate their lifetime values into positive present actions “What have you done in the past to make yourself better when things got difficult?” “Can you think of things that would help you to feel better?” Enhancing Coping Skills
  • 43. Supporting Spiritual Growth • Help construct a “trauma narrative” with room for personal strengths, positive relationships, spiritual change, appreciation for life • Examine where values have contributed to strengths and suffering • Use rituals, confession, pastoral care, letter-writing, and role-playing to release guilt, find reassurance • Help redefine usefulness, purposefulness at the end of life
  • 44. Forgiveness: Cornerstone of Healing • Allows a letting-go of trauma and guilt • Can alter relationship with the past • Wanting to forgive is essential – We do not rush it prematurely – We accept if the veteran cannot forgive
  • 45. • Memories remain vivid for the veteran • Externalizing stories is cathartic • Both provide self-acknowledgement, self-forgiveness, acceptance, and reconciliation “Beholding is more than listening to stories with our ears. It involves the spiritual dimension. We must listen with our deeper selves.” —Deborah Grassman
  • 46. “Listen with all your might and do not judge.” —Deborah Grassman Do: • Take your lead from veteran • Validate their experience • Thank them for their story and their service Do Not: • Give advice • Quiz for many details • Suggest they should not feel guilty • Ask highly personal questions • Share your political views
  • 47. • Acknowledge their sacrifices • Assess for secondary trauma • Facilitate an understanding of how military experience may affect the present • Provide psychoeducation re: moral injury and PTSD • Facilitate connection, unfinished business • Suggest that the veteran share his/her war experience, if they’ve not done so Treating the Veteran Family
  • 48. Recognition Engenders psychological and spiritual congruence between personal values and motivation for enlisting, vis-a-vis their war actions. • Leaving a “legacy” is critical at end of life – Freedom of speech – Peace (absence of war) – Respect for all people – Patriotism – Tolerance
  • 49. Gratitude • Thank them for: – Serving our country – Giving us our freedom – Putting their life on hold • Celebrate accomplishments with them • Provide ceremonies of recognition
  • 50. Appreciation • “You are the peacemakers of today.” • “It’s because of your service that we are free today.” • “We’ll always remember the sacrifices you and other service members have made.” • “This country is great today because of your service.” • “The world is a better place today because of you.”
  • 51. In closing… Let’s not allow the soldier dying in our midst be unknown any longer… Let us BEHOLD and FEEL BEHOLDEN! —VA Mission
  • 52. Open-ended Life Review Questions Some open-ended questions that elicit storytelling might include: • What branch of service were you in? Why did you choose that one? • What inspired you to join? • What was your job? What was the most rewarding part of it? • What is the most important thing you learned from service? • What made you most proud of being in uniform? Life Review Questions
  • 53. Advanced questions might include: • What surprised you most about being overseas or deployed? • What did you do in your free time when you were deployed? • How did the United States change while you were gone? • Do you think you were changed as a result of being in the military? Please describe the changes. • What was your homecoming like? • Do you keep in touch with your war buddies? Life Review Questions (cont.)
  • 54. www.vetcenter.va.gov Veteran Centers provide counseling free of charge www.va.gov US Department of Veteran Affairs http://www.vba.va.gov/ Veterans Benefits Administration Home Page http://www.va.gov/vso Veteran Service Organizations https://www.ptsd.va.gov/ VA National Center for PTSD VA/DOD Clinical Practice Guideline For the Management of PTSD and Acute Stress Disorder https://www.loc.gov/vets/ Veteran History Project (Library of Congress) https://www.wehonorveterans.org/ the National Hospice and Palliative Care Organization VA Resources
  • 56. References American Psychiatric Association. (2013) Diagnostic and statistical manual of mental disorders, (5th ed.). Washington, DC. Barno, D., et al. How to Talk to a Veteran, School of International Service at American University. Retrieved from warontherocks.com Community Hospices: Suicide Prevention for Vietnam Veterans. Sponsored by the Empowering Community Hospices Initiative. Retrieved from: https://www.wehonorveterans.org/wp-content/uploads/Hospice__Suicide_ Prevention-2.pdf Diefenbach, T. (2018). Improving the integration of psychoeducation, prolonged exposure, and psychopharmacological treatments of combat-related PTSD: A descriptive phenomenological study. (Doctoral dissertation, Northcentral University). Drescher, K., et al. (2011). An exploration of the viability and usefulness of the construct of moral injury in war veterans. Traumatology, 17(1), 8-13. Feldman, D., et al. (2014). Treatment of posttraumatic stress disorder at the end-of-life: Application of the stepwise psychosocial palliative care model. Palliative & supportive care,12(3), 233-243. Ganzel, B. (2018). Trauma-Informed Hospice and Palliative Care. The Gerontologist, 58(3), 409-419. Grassman, D. Retrieved from Opus Peace www.opuspeace.org Grassman, D. (2007). Wounded warriors: Their last battle. Home Health Nurse, 25(5), 299-304. Haiken, M. (2013). Suicide Rate Among Vets and Active Duty Military Jumps - Now 22 A Day. Forbes.
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