The future of Social Media in Global Health 3.0 - #HISI2016 #hcsm #hcsmSA

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A combined workshop session between South African e-Patient and founder of #hcsmSA, Vanessa Carter and Dr. Jamie Saris from Maynooth University, Ireland (Anthropology Senior Lecturer and Co-Chairman of The Global Diseases of Poverty Consortium) TITLE: How Social Networks could influence the future of Health IT System Development Globally. The presentation was given at the Health Informatics Society of Ireland on 17 November 2016. (#HISI2016)

Health & Medicine

Presented at the Health Informatics Society of Ireland, #HISI2016 – 17 November 2016
Presented by:Vanessa Carter (Founder of #hcsmSA and South African e-Patient activist)
and Dr. Jamie Saris (Maynooth University Anthropology Department and Co-chair of the
Global Diseases of Poverty Consortium)

THE FIRST 8YEARS WERE A FAILURE AFTER MULTIPLE
SURGERIES. SILOED CARE AND POOR
COMMUNICATION BETWEEN DOCTORS WERE A
PROBLEM. RESOURCES ONLINEWERE A MESS.

IN MY 9THYEAR OF SEARCHING ONLINE,
I STARTED WRITING OVERSEAS.

ONE DAY A WORLD FAMOUS FACETRANSPLANT
SURGEON IN BOSTON OFFEREDTO SKYPE ME.
HE HAD SEEN CASES LIKE MINE OFTEN.

ITOOK HIS ADVICE AND SEARCHED FOR DOCTORS IN MY AREA
WHO MIMICKED IT.
WITHIN 8 MONTHS MY SURGERIESWERE SUCCESSFUL.
THE ACCESSTO INFORMATION MADETHE DIFFERENCE.

AS WE MOVETOWARDS WEB 3.0 AND INDUSTRY 4.0,
E-PATIENTS WILL BECOME EVEN MORE INFORMED
WITH CONNECTED OBJECTS AND WEARABLES

IT’S IMPORTANTTO REMEMBER:
E-PATIENTS ARE NOT ALL EQUAL. SOME MAY NOT WANTTO USE DIGITAL
TECHNOLOGY AND STAY IN A PATERNAL ROLE WITHTHEIR PHYSICIAN.
SOME MAY NEED SUPPORTTO UNDERSTAND HOWTO USETECHNOLOGY.
OTHERS MAY EXPECT BETTERTECHNOLOGY FROMTHEIR PROVIDER.

ASWE MOVETOWARDS SMART HEALTH, SOCIAL MEDIAWILL
PLAY A MAJOR ROLE IN CONNECTING PEOPLE

WE HAVE STARTEDTO DEVELOPA COURSE IN SOUTH AFRICAWHICH
TEACHES HCPS AND OTHER STAKEHOLDERS LIKE PATIENTS HOWTO USE
THEWEB AND SOCIAL MEDIATO IMPROVE DIGITAL LITERACY FORTHE
FUTURE DIGITAL HEALTH SYSTEMS

WE HOST A MONTHLYTWEETCHATTO GAIN INSIGHT FROM DIVERSE
STAKEHOLDERS.WE BASE OURTOPICSAROUNDTHE SDG’S.
WE PROMOTE COMMUNITY PARTICIPATIONAND IDEA SHARING

A PROMINENT ASPECT OF SOCIAL MEDIA IS HOW IT
ENABLES COMMUNITY BUILDING. PATIENT
COMMUNITIES ARE ESPECIALLY HELPFULTO PROVIDING
PEER-TO-PEER SUPPORT

THERE ARE MANYTECHNICAL APPLICATIONS USING
SOCIAL MEDIA, WE HAVE FOCUSED ON HOW OTHERS
HAVE BEEN APPLYING ITTO BUILDTHE COURSE

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