15th IPOS - Introducing CancerStories in Rotterdam, NL (Nov2013)
•Descargar como PPT, PDF•
0 recomendaciones•798 vistas
Recomendados
Recomendados
Más contenido relacionado
Destacado
Destacado (6)
Similar a 15th IPOS - Introducing CancerStories in Rotterdam, NL (Nov2013)
Similar a 15th IPOS - Introducing CancerStories in Rotterdam, NL (Nov2013) (20)
Más de Alex J Mitchell
Más de Alex J Mitchell (20)
Último
Último (20)
15th IPOS - Introducing CancerStories in Rotterdam, NL (Nov2013)
- 1. Introducing "CancerStories” An Innovative Video Diary Programme Providing Peer Support Online Alex J Mitchell www.twitter.com/_alexjmitchell Consultant in Psycho-oncology and Hon SnR University Hospitals Leicester
- 2. We are currently looking for Evaluators Partners Co-developers (who help rate) (who help distribute) (who help expand) To help us develop and improve cancerstories
- 3. What is Ideal Treatment? 1. Effective 2. Acceptable 3. Easily accessible (available) 4. Proven (evidence based) 5. Value for money
- 4. Ideal Treatment Conventional Psychosocial Rx. 1. Effective Often 2. Acceptable a little (40%) 3. Easily accessible (available) No 4. Proven (evidence based) mostly 5. Value for money probably
- 6. 1000 Adv Cancer Patients in Denmark (Johnsen, 2013) 90% 80% Had Problem Helped 70% Adequate Help 60% 50% 40% 30% 20% 10% Se xu al ity C on ce nt ra tio n Fa m ily an d fri en ds W or ry Fa tig ue al ac tiv it i es Ph ys ic ai ly ac tiv it i es W or ka nd d D ep re ss i on e fa pp et it La ck o oe a D ys pn N au se a Pa in 0% Johnsen Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems Psychooncology. 2012
- 7. Is it time for a Treatment Revolution? 70% with distress do not receive timely psychosocial treatment 60% do not want a classical psychosocial intervention Provision of services is patchy Community support often unavailable
- 11. Cancer Stories …power of online guided peer support
- 13. CancerStories is a collection of true life accounts of how real people coped with cancer Hugh, Prostate Ca
- 14. CancerStories is about the person’s own account, what is meaningful to them, how they coped Virginia, Lung Ca
- 15. All patients have kindly given their consent to record their account for the benefit of future patients Sue, Breast Ca
- 16. Patients are interviewed in an informal but professional style and asked to give an honest but informative account about their cancer journey Tom, Osteosarcoma
- 17. Accounts are between 3060mins, enough time to tell others what is really important Louisa, Breast Ca
- 18. Patients can share their own accounts with family and friends before deciding to share with the wider community John, Prostate Ca
- 19. Each account is evaluated by a panel of clinicians and also by other patients Rupen, Lymphoma
- 24. Evidence 1. Clinicians 2. Patients 3. Trial
- 25. Would CS be useful in your clinic? Never 0 Sometimes Very Often 5 10 8
- 26. How would you rate CS overall? Poor 0 Average Outstanding 5 10 9
- 28. Improvements to CancerStories Pain Fatigue Distress Depression Anxiety Weight/eating Sleeping Families Work Caregivers Communication Complementary rx We are multiple developing 5 minute themes
- 29. Thanks to the patients of CancerStories! Want to help? Get in touch Coping.with.cancer.uk@gmail.com
Notas del editor
- Agency for Healthcare Research and Quality. Your Guide to Choosing Quality Healthcare. [June 16, 2008]. Accessed at http://www.ahrq.gov/consumer/qnt/qntqlook.htm
- Johnsen AT, Petersen MA, Pedersen L, Houmann LJ, Groenvold M. Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problemsPsychooncology. 2012 Oct 8. doi: 10.1002/pon.3204. [Epub ahead of print]
- Karen Clark Matt Loscalzo City of Hope