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Minority Report: Social Media for 
Decreasing Healthcare Disparities
Decreasing Healthcare Disparities



              SXSW 2011
    Aimee Kendall Roundtree, PhD
    Aimee Kendall Roundtree, PhD
   University of Houston‐Downtown
            @akroundtree
Why this topic?
  y        p
Minorities use social media a lot.




  (Source: Florida State University Center for Hispanic Marketing Communication)
Healthcare Disparities Persist.
•   Minorities are more likely to be diagnosed with late‐stage breast cancer and 
    colorectal cancer compared with whites.
•   When hospitalized for acute myocardial infarction, Hispanics are less likely to 
    receive optimal care.
•   Many racial and ethnic minorities and persons of lower socioeconomic 
    position are more likely to die from HIV. Minorities also account for a 
    disproportionate share of new AIDS cases.
    disproportionate share of new AIDS cases
•   The use of physical restraints in nursing homes is higher among Hispanics and 
    Asian/Pacific Islanders compared with non‐Hispanic whites.
•   Blacks and poorer patients have higher rates of avoidable hospital admissions 
    Blacks and poorer patients have higher rates of avoidable hospital admissions
    (i.e., hospitalizations for health conditions that, in the presence of 
    comprehensive primary care, rarely require hospitalization).

    (Source: National Healthcare Disparities Report  2007)
    (               l    lh                              )
Healthcare Disparities Matter to 
   Healthcare Disparities Matter to
       Individuals and Society. 
“[T]o the extent that minority beneficiaries of publicly funded 
health programs are less likely to receive high quality care, 
these beneficiaries as well as the taxpayers that support 
these beneficiaries—as well as the taxpayers that support
public health care programs—may face higher future health 
care costs." (Unequal Treatment, 1999)

“The personal cost of disparities can lead to significant 
morbidity, disability, and lost productivity at the individual 
  o b d ty, d sab ty, a d ost p oduct ty at t e d dua
level. At the societal level, distal costs follow from proximal 
opportunities that were missed to intervene and reduce 
burden of illness. (National Healthcare Disparities Report
burden of illness ”  (National Healthcare Disparities Report, 
2010)
Community Matters in Health Behavior.
Community Matters in Health Behavior.




      (Source: Social Cognitive Theory, Bandura, 1989)
Community Matters in Minority Health.

 Community‐based participatory research has 
                 p
 numerous examples of communities working    g
 to improve quality overall, while reducing 
               p
 healthcare disparities for vulnerable 
 populations.



      (Source: National Healthcare Disparities Report, 2003)
Research in Progress
• Content analysis of 100 minority‐owned Twitter 
  accounts

• Survey of Facebook users regarding how they use 
  the network for health decision‐making and 
  community

• Content analysis of how 75 minority health 
  advocacy groups use Facebook
   d                       b k
Preliminary Findings
P li i      Fi di
What health info do we share on Twitter?


              The basics.
Diet
Exercise
Body Image
Body Image
General Health
General Health
Does Facebook have potential for patient 
  activation (i.e., encouraging more patient 
involvement in healthcare decision making)?


                 Maybe.
People aren’t currently using Facebook for 
People aren’t c rrentl sing Facebook for
         health decision‐making. 
But Facebook users feel close to their virtual 
          community members.
And Facebook users are generally active in 
And Facebook users are generally active in
        health decision‐making.
African Americans might be slightly more likely 
than others to use health info from Facebook.
How do minority health groups use Facebook? 



           Mostly like old media.
They share studies and findings.
They post flyers, info about campaigns
They post flyers, info about campaigns
They promote events.
They promote events.
They report news and government action.
They report news and government action.
They link to other social media.
They link to other social media.
Only a few use it for activism.
Only a few use it for activism.
They have modest success engaging followers.
 They have modest success engaging followers.

                       Average   High    Low
Members                462       7,377   27
Posts/month            7         80      1
Comments/month         12        283     0
Likes                  27        614     0
Minorities use social media, and social media 
Mi iti             i l   di     d    i l   di
may replicate real‐world social bonds and , by 
         extension, social influence. 
                i      i l i fl

 Social influence can impact health behavior.

   But, on whole, minority health advocacy 
groups haven’t yet capitalized on the media for 
            building communities. 
Recommendations

• Write like a friend, not an agency.
                     ,         g y
• Target patient navigators, rather than patients.
• Share narratives, anecdotes and profiles more 
  than facts and figures.
• Allow your followers to share content as much as 
  you do. 
  you do
• Listen as much as you talk. Respond as much as 
  y
  you initiate. 
• Start from their level of engagement, then 
  scaffold to new behavior. 
Contact Info
       Contact Info

Email:   roundtreea@uhd.edu
  Twitter:  @akroundtree
  Twitter: @akroundtree

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