1. SOCIAL TECHNOLOGIES
POWER IN IN
COLLABORATIVE HEALTH
POLICY AND PRACTICE
A COLLABORATIVE SEMINAR
Gonzalo Bacigalupe, EdD, MPH
Ikerbasque Research Professor
gonzalo.bacigalupe@deusto.es
bacigalupe.wordpress.c
om
Collaborative Family Healthcare Association 12th Annual Conference
October 21-23, 2010 Louisville, Kentucky U.S.A.
Session # C4a
Oct. 22, 2010 - 3:30-5:00

2. Faculty Disclosure
I have not had any relevant financial
relationships during the past 12 months.

3. Need/Practice Gap & Supporting
Resources
What is the scientific basis for this talk?
 Systematic review of research and clinical
literature
 Peer review article by author: basis to justify
need
 An iterative analysis of e-Health sites
 Expert review via open invitation to and
participation by #CHSM #CHSMEU
 Participation of collaborative health

4. Objectives
 Define the scope of collaborative health activities
shaped by the use of social technologies;
 Create a categorical classification of emergent
communication, social media, & social technologies
to evaluate their impact;
 Discuss results of a systematic analysis of the
literature on social networking technologies and its
impact on patients, healthcare providers, and policy
makers;
 Evaluate critically the challenges & ways of
approaching a task that questions professional and

5. Expected Outcome
 Acknowledge potential of
social technologies ability to
strengthen collaborative
health practices.
 Discuss criteria and
categories of e-health tools
in light of collaborative
health care assumptions
and goals.
 Triangulate ongoing
systematic qualitative
research analysis via
participation in checking for
accuracy in development of
model linking collaborative
health and social

6. Social media / Social technologies
 Highly accessible
tools (ICTs) that allow
you to connect with
others via a diverse
set of digital devices.
 Tools allow not only to
observe what others
have produced but
also to engage in the
production of media.

8. Applications
 Blogs: Frequent updates, invites dialogue, identity
defined by blogger
 Microblogs: Brief blog entries (i.e., 140
characters)
 Podcasts: Audio/video downloadable to many
digital devices
 Wikis: Website designed for collaboration
 Social Networks: Virtual communities; main
purpose is social interaction
 Web-Conferencing: Audio/video synchronic
interaction

9. The conversation

10. Information
www.flickr.com/photos/bacigalupe/385042878/sizes/o/

11. The Information Revolution

12. e-Health Scope
 E-Record: Unified clinical history
 Electronic prescription
 Telemedicine
 E-Monitoring
 Targeted Info
 Bottom up Innovation
 Interdisciplinary Sharing
 Networks core
 Transparent/collaborative clinical trials
 e-Patient
 …

13. Why?

14. Why?

15. Why?

17. Methodology
 Sarasohn- Kahn’s (2009) report on how online and mobile
tools help both doctors and patients manage chronic
illnesses was a starting point for generating a draft list of e-
Health tools.
 Extensive search via Pubmed, Google Scholar, Google, and
Twitter. Referenced works from retrieved articles were also
used.
 During data collection period, inclusion criteria refined to
include variables that may inform power to foster
collaboration: interoperability, viability, sustainability,
scalability, number of hits.
 Assessed if there were reports about the tools on
LexisNexis (media), Pubmed (healthcare), Google Scholar
(social sciences), and Google (business, market, general
public)
 For websites that required user accounts for access, we

18. Criteria for Inclusion
 eHealth Core:
 Is it main goal and focus healthcare?
 Is it directed to patients and/or health care
providers?
 Is it recommended/approved by #hcsm experts?
 Technical Access:
 Does the site work?
 Is it not under construction?
 Is it platform neutral?
 Has it have any activity in the last month?
 Should we consider other criteria?

19. Tools: Collaborative Potential
 Very Low: No interaction between creators and
users
 Low: Users able to comment on content but
creators do not necessarily interact with
audience
 Moderate: Users able to interact without
moderation
 High: Intends that users interact with each
other
 Very High: Allows multiple stakeholders

20. Categories
 Static Webpage
(Web 1.0)
 Information
Exchange
 Clinical Networks
 e-Patient / e-Doc
Networks
 e-Patient
Networks
 Health
Research
Networks
 eHealth
Mobile
Applications
 Interactive
Media
 Primary Care
e-Practices

21. Static Webpage
(W1.0)
 “Basic” WWW
doesn’t allow
visitors to modify
content
http://scienceroll.com by Bertalan Mesko

22. Static Webpage
(W1.0)
 “Basic” WWW
doesn’t allow
visitors to modify
content
http://runningahospital.blogspot.com by Paul Levy

23. Static Webpage
(W1.0)
 “Basic”
WWW
doesn’t
allow visitors
to modify
content
http://thecarrot.com

24. Information
Exchange
 Users able to
add/edit WWW
content and able to
interact with one
another
http://e-patients.net

25. Information
Exchange
 Users able
to add/edit
WWW
content and
able to
interact with
one another
www.imedix.com

26. Information
Exchange
 Users able to
add/edit WWW
content and able
to interact with
one another
www.jopm.org

27. Clinical
Networks
 Health
care
providers
can
meet/inte
ract with
one
another
www.doctrs.com

28. Clinical
Networks
 Health
care
providers
can
meet/inter
act with
one
another
www.simposier.com

29. Clinical Networks
 Health
care
providers
meet/inter
act/consul
t with one
another
www.iconsinmed.or
g

30. e-Patient / e-Doctor Networks
 Online health
social network
in which
patients
connect with
other patients
and receive
consultation
from health
care providers
www.dailystrength.com

31. e-Patient / e-Doctor Networks
 Online health
social network
in which
patients
connect with
other patients
and receive
consultation
from health
care providers
http://ehealthforum.com

32. e-Patient / e-Doctor Networks
 Online health
social network in
which patients
can connect with
other patients
and receive
consultation
from health care
providers
www.medhelp.org

33. E-Patient
Networks
 Patients
or loved
ones,
often with
same
health
condition
s, can
meet or
interact
with one
another
www.patientslikeme.c
om

34. E-Patient
Networks
 Patients
or loved
ones,
often with
same
health
condition
s, can
meet or
interact
with one
anotherwww.disaboom.com

35. E-Patient
Networks
 Patients or
loved ones,
often with
same health
conditions, can
meet or
interact with
one another
www.experienceproject.c
om

36. E-Patient
Networks
 Consumer
s, often
with same
health
conditions
or loved
ones with
same
health
conditions,
can meet
or interact
with one
another
www.FacetoFacehealth.com

37. Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connecting
about
research
topicswww.vivoweb.org

38. Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connecting
about
research
topics
www.scientistsolutions.
com

39. Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connecting
about
research
topics
www.biomedexperts.co
m

40. eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
prevention
www.intel.com healthguide
www.healthhonors.com
www.zumelife.com
29% of adults use their mobile phones
to search for #health or #medical info

41. eHealth
Mobile Apps
 Cell phone
applications or other
mobile devices
geared towards health
management and/or
prevention
http://www.intel.com/about/companyinfo/healthcare/products/index.ht

42. eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
prevention
www.healthhonors.com

43. eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
prevention
www.zumelife.com

44. Interactive Media
 Virtual
games that
allow users
to explore
health
management
with the
ultimate goal
of
encouraging
users to
monitor their
health
conditions

45. Interactive Media
 Virtual games
that allow
users to
explore health
management
with the
ultimate goal
of
encouraging
users to
monitor their
health
conditions
better
http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7

46. Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,
cellular phones,
and other
mobile devices
http://consumersonline.hmsa

47. Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,
cellular phones,
and other
mobile devices
http://hellohealth.com

48. HelloHealth Promotional

49. Primary Care e-Practices
 Gives health
care
providers the
ability to
provide
services to
patients
remotely -
via the web,
cellular
phones, and
other mobile
devices
www.tplusmedical.com

50. Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,
cellular
phones, and
other mobile
devices
www.Inrangesystems.com

51. Primary Care e-Practices
 Gives health
care
providers
the ability to
provide
services to
patients
remotely -
via the web,
cellular
phones, and
other mobile
devices
www.healthvault.co
m

52. Collaborative Variables
Criteria?
 Communication direction
 Audience
 Author
 Ownership? Profit/or not
 Purpose
 Source (clinical, personal, EBM)
 Type of tool
 Interoperability
 Sustainability
 Scalability
 Access (cultural attention)

53. Future Research Steps
 Survey of sites
 Scoring
 Scale development
 Measuring actual impact

54. Rethinking the paradigm(s)
 How could it change your practice?
 What seems difficult to imagine?
 What solutions emerge?
 What challenges are ahead?

55. Alternative Discourses
Critique Possibilities
Isolation Feelings of support
Overwhelming Informed
Wrong information Apomediation + Info Available
Lack of support Finding support
Digital divide Digital availability
Lack of confidentiality Transparency
It’s only virtual It’s real
Boundaries broken Learning opportunities
Collaborative opportunities
Translational research
Clinical trials
Tailoring intervention (long tail)
Interdisciplinary exchange
…