Social media and the Oncology Nurse

D E N I S E C H A U D H A R Y , M A
F O R M E R H E A L T H C A R E C O N S U L T A N T
F E B R U A R Y 2 7 , 2 0 1 4
Social Media and the Oncology
Nurse

Objectives
At the end of this activity, the learner will be able to:
 State the ethical, legal and social justice elements of
social media.
 Describe how to integrate social media into the
practice of oncology nursing.
 Develop tools and skills to apply social media to the
oncology nurses’ professional and personal daily
activities.

Disclaimer
 The speaker is an employee of Prometheus Labs
Oncology.
 The talk is being presented independently based on
previous experience as a healthcare consultant.
 The speaker is not being paid for this presentation,
nor is it being paid by her current employer.
 The speaker has no financial conflict of interest.
 The data presented is based on the speakers
education, experience and published peer review
articles.

Agenda
 Patient Support/ Medical Information liability
concerns
 HIPAA and Social Media.
 Facebook, Twitter and other present and future
venues from a legal perspective.
 “Friending” patients.
 Examples of successful Health Systems use of Social
Media in their oncology practices.
 Nurse-to-patient uses of Social Media.
 Patient-to-patient uses of Social Media.

Agenda (continued)
 Directing healthy self-care through Facebook, blogs
and Twitter.
 Nurse-to-nurse support; your career and more.
 Baby steps for Facebook, Twitter and LinkedIn
 Other social media; blogs, Caring Bridge, company
websites.
 ONS portal and sharing of information.
 Twitter and LinkedIn in 10 days for oncology nurses.

What is Social Media?
“Social media use
widely accessible
Web-based and
mobile technology
to facilitate the
creation and
sharing of user-
generated content
in a collaborative
and social manner”.
1. Dizon, D., et al., (September 2012)
Practical Guidance: The Use of Social
Media In Oncology Practice, Journal of
Oncology Practice, vol. 8 no. 5 e114-e124

Social Media in Oncology
 Uptake of social media
provides new
opportunities for
healthcare
professionals and
institutions to interact
with patients and
other professionals.
Oncology nurses may use social
media for:
 Patient education.
 Professional development.
 Direct patient interaction
(legal and privacy concerns).
Who uses social media in
oncology?
 Support groups
 Health systems
 Pharmaceutical companies
 Patients

Who Uses Social Media
 NCI–designated comprehensive cancer centers have
at least one social media site.
 Most use Facebook, Twitter, and YouTube.
 After a Ca dx, a significant number of pts seek info
online, as well as from other pts and family2.
 “e-patient” movement.3
 RNs are using SM to educate the public.
 Tweets, blog posts, or comments on disease-specific
discussion forums (More targeted).
 In more interactive SM forms; public has opportunity to
actively participate in discussions.

HIPAA and Social Media
 “Direct patient care is probably the
least-used area in social media, and
depending on which social media
applications are being considered, it is
not clear to us that this can be done in a
manner consistent with the principles
of patient privacy and compliance with
regulatory requirements.”1

HIPAA and Social Media
 Following pts on Facebook may be
construed as a HIPAA issue if others
can “reasonably infer that person was
‘friended’ because the individual is a
patient of that specific physician or is
being treated for a disease of shared
interest.” 4

Patient Support/ Med Info
 Chaudhry et al5 concluded that tweets often
contained robust and clinically accessible
information useful for both patients and clinicians.
 SM gives a key teaching opportunity for oncology nurses to
disseminate credible, evidence-based information.
 SM can heighten awareness of clinical trials and drive
participation.
 SM are tools for RNs to share info with other
healthcare professionals.

Safety Tips
 HIPAA
 Careful of stories
 Releases
 Disclaimers
 Represent the views of…
 Personal/Professional
 SM never forgets
 Reference data, but make no claims

Health Systems use of Social Media
 Beth Israel Deaconess Medical Center
 British Medical Association
 Carolina Health Care System
 The Centers for Disease Control and
Prevention
 Cleveland Clinic
 Compass Medical PC
 Danbury Hospital
 Duke University Health System
 Fairfield Medical Center
 Hospital Sant Joan de Deu, Barcelona
 Inland Northwest Health Services
 Kaiser Permanente
 Lehigh Valley Health Network
 Massachusetts General Hospital
 Mayo Clinic
 Methodist Healthcare
 Ministry and Affinity Healthcare
 Mount Sinai School of Medicine
 The Ohio State University Medical
Center
 Sentara Healthcare
 Sutter Health
 University of California, San Francisco
 University of California, Irvine
 University of Minnesota
 University of Missouri Health Care
 University of Texas MD Anderson
Cancer Center
 Vanderbilt University School of
Medicine
 Washington
 West Virginia University Health
Sciences Center
 Wright State University School of
Medicine

Nurse-to-patient Uses
 Clinical Trials
 Facebook, Twitter, LinkedIn, and Google+ allow investigators
to interact with the public in new ways: “to create interest in
new clinical trials, to enable screening on a real-time basis, to
communicate with enrolled subjects, to collect data, and to
publicize the release of completed studies”. 1
 Send to support
 Corporate sites for reimbursement
 Patient education
 Foundations
 Support groups

Patient-to-patient Uses
 Chat/Forums
 Stupid Cancer
 CancerForums.net
 ACS.org
 Support groups
 Important for more rare
cancers
 Live and online
 Survivorship

Your Career and More
 Facebook, Twitter and LinkedIn
 Do you have a LinkedIn Profile?
 Twitter to do more.
 Facebook to support others.
 ONS
 Other social media; blogs, Caring Bridge, company
websites.
 YouTube channels.
 Follow and care.
 ONS portal and sharing of information.

To do:
 Get a good head shot
 NO selfies
 Go on Twitter; follow ten
organizations/ groups/ people
 Sign on every day for 2 weeks
 Facebook (professional pg)
 Like 15 support groups
 Friend your fellow nurses
 YouTube
 Search for three videos in
areas YOU are interested in
Baby Steps

LinkedIn in 10 days
 Day 1- Use head shot, get CV in hand, get an account
 Day 2- Use company websites for descriptions, fill
out profile more completely
 Day 3- Invite 10 people to LinkIn (Co-workers,
People in ONS)
 Day 4- Post one item about oncology nursing and
invite 5 people
 Day 5- Add to profile. Join ONS,
ACS and 3 other groups

LinkedIn in 10 days
 Day 6- Invite 10 more people to LinkIn. Add 5 skills
 Day 7- Follow 3 cancer experts, and local systems
 Day 8- Invite 10 people to LinkIn with you from
industry
 Day 9- Add to profile. What have you done that is
special?
 Day 10- Invite 15 people to LinkIn
 You now have 50 connections
8 organizations, and a great
plus to your career!

F I N D M E O N :
T W I T T E R @ D E E C H A U D H A R Y
W W W . L I N K E D I N . C O M / I N / D E E C H A U D H A R Y /
H T T P S : / / M . F A C E B O O K . C O M / D E E . C H A U D H A R Y
D E E C H A U D @ A O L . C O M
Thank You:
See you online!

References
1. Dizon, D, et al (September 2012) Practical Guidance:
The Use of Social Media In Oncology Practice, J Oncol
Pract, vol. 8 no. 5 e114-e124
2. Caldwell PH, et al (2010) Strategies for increasing
recruitment to randomized controlled trials: Systematic
review. PLoS Med 7:e1000368
3. Society for Participatory Medicine,
http://participatorymedicine.org/
4. Chretien KC, Azar J, Kind T(2011) Physicians on
Twitter. JAMA 305:566–568
5. Chaudhry A, et al (2012) Trends in Twitter usage by
physicians at the ASCO annual meeting, 2010 and 2011.
J Oncol Pract 8:173–178.

Social Media Terms
Twitter Related: 1
 Tweet. A post on Twitter, a real-time social messaging system and microblogging
service.
 Handle. The unique username selected, designated by an “@username” identifier, and
its accompanying URL, for example: http://twitter.com/username.
 Follow. To subscribe to another user's tweets or updates on the Twitter.com Web site or
using a dedicated application.
 Mention. To refer to another user in a tweet by including that user's @username
handle.
 Timeline. A collected stream of tweets listed in real-time order. For example, when a
user logs in to Twitter, their home timeline is a long stream showing all tweets from other
users they follow, with the newest messages at the top.
 Retweet (noun; RT). A tweet by another user, forwarded to you by someone you
follow. RTs are often used to spread news or share valuable findings on Twitter.
 Retweet (verb; RT). To rebroadcast another user's tweet to all of your followers by
adding the RT tag to the beginning of the tweet.
 Modified tweet (MT). Metadata that indicates that the user has added some
additional text to the original tweet being rebroadcast, typically commentary or an
indication of approval/disapproval.

Social Media Terms
Twitter Related: 1
 Partial retweet (PRT). A tweet that has been edited, usually to fit a username within
the character limit.
 HT. Short for “heard through” or “hat tip,” a piece of metadata added to a tweet to
signify that content originated with another user external to Twitter.
 Hashtag. A community-driven convention to allow users to add additional context and
metadata to a tweet. Hashtags are added in-line to a Twitter post by prefixing a word with
a hash symbol (or number sign). Hashtags (eg, #followFriday) may be used to aggregate,
organize, and discover relevant tweets.
 Reply. A tweet posted in reply to another user's message, usually created by clicking the
“reply” button next to the tweet of interest using the Twitter Web site or a dedicated
Twitter app. A reply always begins with @username.
 Direct message (DM). Also known simply as a “message,” these tweets are private
messages between the sender and recipient. DMs begin with “d @username” to specify to
whom the message is directed. Only the designated recipient can read the content
 Trending topic. A subject algorithmically determined to be one of the most popular on
Twitter at the moment.

Social Media Terms
General SM Glossary: 1
 App. Popularized in the general lexicon by the iPhone, an app, short for application, is a
software program that performs a specific function on a computer workstation, or a
portable device. Apps run the gamut from Web browsers and e-mail clients to specialized
programs like games, online chat clients, or music players.
 Blog. A blog, a shortened form of “web log,” is an online journal composed by a single
author or a group of authors that is updated on a regular basis. Blogs typically represent
the author's opinion and may contain comments by other readers, links to other sites,
and permalinks.
 Crowdsourcing. Crowdsourcing refers to harnessing the knowledge base, skills, and
enthusiasm of a community of users external to an individual or organization for the
purpose of collaboratively solving problems, gaining knowledge, or garnering opinions.
 The cloud (cloud computing).
 The cloud is an Internet-based computing structure whereby digital data reside on
remote network servers and are provided to client computers and other devices on
demand using wireless connectivity. In cloud computing, private files are not stored on
the owner's terminal but rather in a remote location, so they can be accessed from any
location regardless of the physical location of the client device.
 Meme. A meme is a discreet representation of a concept or culturally defined behavior
that is spread through the Web. An Internet meme typically involves humor or satire, and
its propagation is often both instantaneous and inexplicable.

Social Media Terms
General (Continued): 1
 Metadata. Metadata, or “data about data” refers to information—including titles, descriptions, tags
and captions—that describes a media item such as a video, photo, or blog post. Some kinds of
metadata—for example, camera settings such as exposure, aperture, focal length and ISO speed—can
be captured automatically from the device without the need for human data entry
 Micro blogging. Micro blogging is the act of broadcasting short messages to other subscribers of a
Web service. For example, Twitter entries are limited to 140 characters.
 Podcast. A podcast is a digital file consisting of audio content or audiovisual content made available
for download to a portable device or personal computer (PC) for later playback. A podcast uses a
continuously updated feed that lets the end user subscribe to it so that when a new file is published
online, it is automatically pushed to the end user's PC or portable digital device.
 RSS. RSS (Really Simple Syndication), sometimes called a Web feed, is a Web standard for the
delivery of content such as blog entries, news stories, headlines, images, or video that is automatically
pushed to the end user's PC or portable digital device without requiring the user to browse from site to
site. Most blogs, podcasts, and video blogs contain an RSS feed.
 SMS. SMS stands for Short Message Service, a system that allows the exchange of short text-based
messages between mobile devices. Most often, these are referred to as “texts.”
 Tags. Tags are keywords added as a form of metadata to a unit of content, such as blog post or photo.
Tags help users to find related topics or media, either through manually browsing on the site or by
using the term with an Internet search engine.
 Widget. A widget, sometimes called a gadget, badge, or applet, is a small block of content
corresponding to a piece of software code, typically displayed in a small box on a web page, for a
specific purpose. Examples include weather forecasts or news headlines that are constantly updated,
typically via RSS.

Social media and the Oncology Nurse

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