Profiling People with Functional Diversity through a Smart Home Healthcare Monitoring System

Preliminary Experience in
BackHome Project

Eloisa Vargiu
Barcelona Digital Technology Center
evargiu@bdigital.org

 User profiling

 Profiling people with functional diversity

 Conclusions

DART 2012 @KDIR - October 4, 2012

 Profiling users comes from the need to
acquire information about habits,
preferences, tastes as well as demographic
data of the users of a service or a system

 Profiles can be generated by directly asking
users to fill a questionnaire or inferred by
studying the user behavior in accessing and
interacting with the service/system


 To study the user’s behavior
 To make market researches
 To improve the provided services
 To personalize the provided services
 To make some statistics


 Citizens
 Shopping center consumers
 Internet users
 Everybody!


 Demographic data
 Personal information
 Marriage status
 Educational information
 Political view
 Sports
 Hobbies
 Health status
 Everything!


 City halls
 Shopping centers
 Online shops
 Search engines
 Social networks
 Everywhere!


 The user is asked to fill a given questionnaire
 An automatic system learns the profile


...and if the user has health
functional diversities?


 A relevant part of the profile of people with
health diseases is their Quality of Life (QoL)


 QoL is the subjective experiences or
preferences expressed by an individual in
relation to specified aspects of her/his life,
with a particular reference to the health
status


 People with functional diversity back home
after a discharge


 To study the transition from the hospital to
the home
 To learn how different BNCIs and other
assistive technologies work together
 To learn how different BNCIs and other
assistive technologies can help in the
transition from the hospital to the home
 To reduce the cost and hassle of the
transition from the hospital to the home


Smart-Nodes
Twitter
GAS

Temperature

AmI
Wearable Smart-objects
Sensors
EMG Robot
Gyro
Toys
ECG

AmI is the “glue” technology
providing the intelligent baseline framework


 Physical autonomy
◦ To turn on/off a TV
◦ To open/close a curtain
◦ To set the room temperature
 Social autonomy
◦ To communicate with the therapists
◦ To communicate with relatives
◦ To communicate with friends


 Performing cognitive activities through
◦ a communication system
 to plan future patient activities
 to personalize exercises and activities
◦ sensors-based technologies
 to monitor exercise execution and performance
 to perform cognitive activities (e.g., Brain Painting)
◦ smart objects
 to perform cognitive rehabilitation task (e.g., with a
robot)


 The QoL assessment system will help answer
basic questions about the state of the user,
such as
◦ “is she depressed?”
◦ “has she decreased her activity level?”
◦ “is she more engaged in social interactions?”

Heterogeneous
information collected by BackHome User
the system health status


Quality of Life Assessment


 To assess QoL several questionnaires have
been proposed and adopted
 The user is asked to answer to a predefined
set of questions about her/his
mental and psychological status and
feeling

 It could become boring and annoying for a
user to answer to them, especially if they are
asked to do that very frequently


Pervasive Quality of Life
Assessment


 To be compliant with ICF (ICF core sets)
◦ Standardization effort
 To rely on existing standard (and well-
known) questionnaire(s)
◦ Do not reinvent the wheel


 International Classification of Functioning,
Disability and Health (ICF) is a classification of
the health components of functioning and
disability
 In BackHome, we rely on the ICF core sets for
the etiologies of neurologic origin
◦ Traumatic brain injury
◦ Multiple sclerosis
◦ Spinal cord injury


From: http://ard.bmj.com/content/63/suppl_2/ii40

 The WHOQOL-BREF
 RAND-36
 SF-36
 Barthel ADL index
 EQ-5D
 …


 WHOQOL-BREF
◦ 26 items
◦ Domains:
 Physical health
 Psychological health
 Social relationships
 Environment


 RAND-36
◦ 36 items
◦ Health concepts:
 physical functioning
 role limitations caused by physical health problems
 role limitations caused by emotional problems
 social functioning
 emotional well-being
 energy/fatigue
 pain
 general health perceptions


 Short Form Health Survey (SF-36)
◦ Includes the same set of items of RAND-36
◦ Commonly used in health economics as a variable
in the quality-adjusted life year calculation to
determine the cost-effectiveness of a health
treatment


 Barthel ADL index
◦ Measures performance in activities of daily living
◦ 10 variables describing activities of daily living and
mobility:
 presence or absence of faecal incontinence
 presence or absence of urinary incontinence
 help needed with grooming
 help needed with toilet use
 help needed with feeding
 help needed with transfers (e.g. from chair to bed)
 help needed with walking
 help needed with dressing
 help needed with climbing stairs
 help needed with bathing


 EQ-5D
◦ A standardized measure of health status
◦ Provides a simple, generic measure of health for
clinical and economic appraisal
◦ Provides a simple descriptive profile and a single
index value for health status that can be used in the
clinical and economic evaluation of health care as
well as in population health surveys


 What is of interest to assess in BackHome
◦ Physical autonomy
◦ Social autonomy
◦ Cognitive rehabilitation
◦ Cognitive stimulation


 Daily activities
 Movements
 Transferring from bed to chair and vice versa
 Self-care
 Mood
 Fatigue
 Stress
 Sense of pain
 Anxiety / Depression / Discomfort
◦ Social autonomy


◦ Social autonomy
 Physical interactions and communications with relatives,
friends, and therapist
 Virtual interactions and communications with relatives,
friends, and therapist


◦ Social autonomy
 Performed exercises
 Physical state before and after rehabilitation
 Mood before and after rehabilitation


◦ Social autonomy
 Painting activities
 Music activities


 Monitorable data
◦ Mobility
 through location sensors
◦ Usual Activities (housework, education and/or
leisure activities)
 through the BNCI system


 Inferable data
◦ Usual Activities (family and friends relationships)
 through the support of communication system (e.g.,
Skype)
 through the support of social network (i.e., Facebook
and Twitter)
◦ Pain/Discomfort
 through text mining algorithms applied on social
networking and communication activities
◦ Anxiety/Depression
 through text mining algorithms applied on social
networking and communication activities


 No inferable data
◦ Self-care
 in principle, also self-care activities can be monitored
by relying on suitable sensors
 for privacy issues, we decide to not monitor such
activities


 Information gathering and fusion of all the
acquired data
 To define suitable activities to be monitored
 To define suitable data and text mining
algorithms to infer the user behavior
 …


 Profiling people with functional diversity
◦ QoL assessment
 BackHome challenge
◦ Pervasively assessing the QoL automatically
 Preliminary proposal
◦ A smart home healthcare monitoring system
◦ EQ-5D questionnaire


 The research leading to these results has received
funding from the European Community's, Seventh
Framework Programme FP7/2007-2013, BackHome
project grant agreement n° 288566

 BackHome consortium


 BackHome website
◦ www.Backhome-FP7.eu

 Publications
◦ E. Vargiu, F. Miralles, S. Martin and D. Markey. BackHome:
Assisting and Telemonitoring People with Disabilities. RAatE
2012 - Recent Advances in Assistive Technology &
Engineering, November 26, 2012.

◦ S. Martin, C. Guger, C. Hintermller, D. Markey, F. Miralles, G.R.
Mller-Putz and E. Vargiu. BackHome: Brain-Neural-Computer
Interfaces on Track to Home. RAatE 2012 - Recent
Advances in Assistive Technology & Engineering, November
26, 2012.


Contact:
Eloisa Vargiu


Profiling People with Functional Diversity through a Smart Home Healthcare Monitoring System

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