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Ethical Considerations in Public Health
Overview  ,[object Object],[object Object],[object Object]
Factors affecting public health ethics
Ethical Values
KEY ISSUES IN PUBLIC HEALTH ETHICS
Disparities in health status, access to • health care and to the benefits of medical research  ,[object Object]
Responding to the threat of infectious diseases  ,[object Object]
International cooperation in health monitoring and surveillance  ,[object Object],[object Object]
Exploitation of individuals ,[object Object],[object Object]
Health Promotion ,[object Object]
Participation, transparency, and accountability  ,[object Object],[object Object],[object Object]
RESEARCH VS. SURVEILLANCE AND OTHER PUBLIC HEALTH PRACTICES From presentation by  Alex John London Ph.D. Associate Professor of Philosophy & Director
Ethical Forrest, Regulatory Trees ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Research Activities ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
(Routine) Public Health Practice ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
What is an epidemiological surveillance system? ,[object Object],[object Object],[object Object],Ghaiath Surveillance (JPFCM, Jan. 2010)
Surveillance: General principle   Health Care System Public Health Authority Data Information Decision Action Feedback Reporting Evaluation Analysis & Interpretation Ghaiath Surveillance (JPFCM, Jan. 2010)
Research vs. non-research activities Research Non-research (surveillance) Goal Producing generalizable knowledge Monitoring & evaluation Population Limited, selected by investigator Public, large groups Time Limited by the time of study Usually ongoing Objective Test hypothesis No hypothesis tested Owners Researchers, funders Public health authorities Methods Novel, not always validated Validated Outcomes Knowledge, product PH intervention Review IRB/REB/REC review Usually none Ethical issues Consent, privacy and confidentiality, access to benefit,  Privacy and confidentiality, human rights, infringement to liberty
Surveillance as Research •  Collection of additional information to what is necessary for public health responsibilities in the population from which data is collected. •  Goal is to clarify general features of a pathogen or problem. •  Research methods are employed to permit generalization of data to other populations.
RESEARCHING THE QUARANTINED AND ISOLATED From Jerome Singh
Researching contagious diseases in the confined ,[object Object],[object Object],[object Object],[object Object]
Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Ethical Challenges
Cultural and Social Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object]
PRACTICAL IMPLICATIONS
Community Consent –  To know community priorities –  To inform individuals better –  To respect the structures that are in place and obtain permission to ask individual potential subjects for consent –  To determine ways to collaborate with local health care providers Diallo D., Doumbo O., Plowe C., Wellems Th., Emanuel E, Hurst S.: Community Permission for Research in Developing Countries.  Clinical Infectious Diseases. 2005,  41(2), pp 255-9
Practical considerations
Practical considerations ,[object Object],[object Object],[object Object]
Practical considerations ,[object Object],[object Object],[object Object],[object Object],[object Object]
DISCUSSION

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Ethical Considerations and Key Issues in Public Health Research and Surveillance

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  • 3. Factors affecting public health ethics
  • 5. KEY ISSUES IN PUBLIC HEALTH ETHICS
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  • 12. RESEARCH VS. SURVEILLANCE AND OTHER PUBLIC HEALTH PRACTICES From presentation by Alex John London Ph.D. Associate Professor of Philosophy & Director
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  • 17. Surveillance: General principle Health Care System Public Health Authority Data Information Decision Action Feedback Reporting Evaluation Analysis & Interpretation Ghaiath Surveillance (JPFCM, Jan. 2010)
  • 18. Research vs. non-research activities Research Non-research (surveillance) Goal Producing generalizable knowledge Monitoring & evaluation Population Limited, selected by investigator Public, large groups Time Limited by the time of study Usually ongoing Objective Test hypothesis No hypothesis tested Owners Researchers, funders Public health authorities Methods Novel, not always validated Validated Outcomes Knowledge, product PH intervention Review IRB/REB/REC review Usually none Ethical issues Consent, privacy and confidentiality, access to benefit, Privacy and confidentiality, human rights, infringement to liberty
  • 19. Surveillance as Research • Collection of additional information to what is necessary for public health responsibilities in the population from which data is collected. • Goal is to clarify general features of a pathogen or problem. • Research methods are employed to permit generalization of data to other populations.
  • 20. RESEARCHING THE QUARANTINED AND ISOLATED From Jerome Singh
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  • 26. Community Consent – To know community priorities – To inform individuals better – To respect the structures that are in place and obtain permission to ask individual potential subjects for consent – To determine ways to collaborate with local health care providers Diallo D., Doumbo O., Plowe C., Wellems Th., Emanuel E, Hurst S.: Community Permission for Research in Developing Countries. Clinical Infectious Diseases. 2005, 41(2), pp 255-9
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