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Are Money Follows the Person Program
                                                                                Participants Better Off?
                                                                                A Pre- Post- Analysis of Quality of Life
                                                                                Kristi Fuller, MSW; Lillian Haley, PhD, MSW; Brittney Romanson, MPH; and Glenn M. Landers, MBA, MHA



                                                   RESEARCH OBJECTIVE                                                                                                          CONCLUSIONS
                                                   To evaluate the quality of life of Money Follows the Person   Additionally, fewer participants living in the community      With an intended outcome of providing individuals with
                                                   (MFP) program participants before transition and one year     reported that they had to go without a bath, meal, or         the choice of community living with appropriate supports
                                                   after transition at the state level.                          medicine when they needed it. At the post-transition          and services, the MFP program has attempted to remove
                                                                                                                 survey, participants reported that they had increased         many barriers in order to achieve this goal successfully.
                                                                                                                 access to do the things that they wanted to do outside of     The 183 MFP program participants in Georgia included in
                                                   STUDY DESIGN                                                  the facility or home, and a 26 percent decrease was seen in   this analysis indicated that there were many areas where
                                                   This study analyzed the results of quality of life surveys    participants stating that they have to miss things or         they were exerting increased choice and control, realizing
                                                   that were conducted prior to transition from a nursing        change their plans due to an inability to get around.         more access to medical care and the ability to schedule
                                                   home or intermediate care facility, and again                                                                               plans without having to change them. These participants
                                                   approximately one year after transition to a community                                                                      also suggest that some barriers remain with regard to
                                                                                                                 However, there were multiple indications that the
                                                   setting. The pre-transition surveys were primarily                                                                          accessing social activities and a feeling of community
                                                                                                                 participants had less community integration or inclusion
                                                   conducted in-person, and the post-transition surveys were                                                                   integration which is reflected in that fewer participants
                                                                                                                 post-transition. For example, at the follow-up there was a
                                                   primarily conducted by telephone. Surveys were                                                                              reported doing fun things in the community and more
                                                                                                                 14 percent increase in the number of participants that
                                                   completed either by the participant, a proxy, or the                                                                        reported feeling sad or blue during the past week.
                                                                                                                 stated that they could not see friends and family when
                                                   participant with assistance.
                                                                                                                 they wanted to and the percentage of participants
                                                                                                                 indicating that they go out to do fun things in the
                                                                                                                                                                               IMPLICATIONS FOR POLICY
                                                   POPULATION STUDIED                                            community dropped by 23 percent. Potentially reflective
                                                                                                                 of these limitations, there was an increase in the            The results of this study indicate that the MFP program
                                                   The study population included Money Follows the Person        post-transition responses measuring sadness (+8%),            participants have improved quality of life post-transition.
                                                   program participants in Georgia that completed a              irritability (+9%), and aches and pains (+8%) in the past     To further improve outcomes post-transition, state level
                                                   pre-transition survey and a post-transition follow-up         week. Despite some of the challenges denoted above,           program policy could focus on social outlets and
                                                   survey from January 2009 through December 2011. A total       when asked if the participants were happy with the way        community integration. This may include the provision of
                                                   of 206 participants had matched surveys during this time      the lived their lives, 5 percent more participants were       educational opportunities, work or volunteer placement,
                                                   period, but 23 respondents had passed away, thus a total      happy after the transition.                                   increased emphasis on peer support, added flexibility in
                                                   of 366 surveys from two time points were analyzed.                                                                          transportation services, and family meetings that elucidate
                                                                                                                                                                               realistic expectations of support and interactions with
                                                                                                                 FIGURE 1: COMPARISON OF RESPONSES TO                          family and friends. In some cases, additional services could
                                                   PRINCIPAL FINDINGS                                            SELECTED SURVEY QUESTIONS                                     be considered as reimbursable under the program, and in
                                                   As expected, a significant decrease in the number of                                                                        others additional assessments or planning prior to
                                                   people living in group homes or nursing homes is                                                                            transition may be useful. Further, funding for infrastructure
                                                   observed post-transition. In fact, at the follow-up there                                                                   such as affordable housing and transportation could
                                                   was a 53 percent increase in those reporting that they had                                                                  improve the number of successful transitions. Finally, it
                                                   a choice in where they live, and a 33 percent increase in                                                                   should be recognized that the MFP program service
                                                   participants stating that they liked where they live. The                                                                   period lasts 365 days, thus while the program has great
                                                   participants also reported an increased ability to make                                                                     opportunity for improving quality of life, the impact of
                                                   choices and have control of scheduling meals, bed time                                                                      overlapping long-term care programs such as Medicaid
                                                   and having privacy when they chose to.                                                                                      and non-Medicaid home and community based services
                                                                                                                                                                               should be considered.
   For more information, contact the Georgia       At both time points nearly all participants reported
Health Policy Center at 404.413.0314 or visit us   receiving help with bathing, dressing or preparing meals,
                 online at www.gsu.edu/ghpc.       often by someone who was paid to help them. However,                                                                        RESEARCH FUNDERS
                                                   at the post-transition follow-up there was a 35 percent                                                                     The Georgia Department of Community Health through
                                                   increase in the number of participants stating that they                                                                    grant funding received from the Centers for Medicare and
               ANDREW YOUNG SCHOOL                 picked the people who were paid to help them.                                                                               Medicaid Services.
                              OF POLICY STUDIES

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American Society on Aging Poster Presentation

  • 1. Are Money Follows the Person Program Participants Better Off? A Pre- Post- Analysis of Quality of Life Kristi Fuller, MSW; Lillian Haley, PhD, MSW; Brittney Romanson, MPH; and Glenn M. Landers, MBA, MHA RESEARCH OBJECTIVE CONCLUSIONS To evaluate the quality of life of Money Follows the Person Additionally, fewer participants living in the community With an intended outcome of providing individuals with (MFP) program participants before transition and one year reported that they had to go without a bath, meal, or the choice of community living with appropriate supports after transition at the state level. medicine when they needed it. At the post-transition and services, the MFP program has attempted to remove survey, participants reported that they had increased many barriers in order to achieve this goal successfully. access to do the things that they wanted to do outside of The 183 MFP program participants in Georgia included in STUDY DESIGN the facility or home, and a 26 percent decrease was seen in this analysis indicated that there were many areas where This study analyzed the results of quality of life surveys participants stating that they have to miss things or they were exerting increased choice and control, realizing that were conducted prior to transition from a nursing change their plans due to an inability to get around. more access to medical care and the ability to schedule home or intermediate care facility, and again plans without having to change them. These participants approximately one year after transition to a community also suggest that some barriers remain with regard to However, there were multiple indications that the setting. The pre-transition surveys were primarily accessing social activities and a feeling of community participants had less community integration or inclusion conducted in-person, and the post-transition surveys were integration which is reflected in that fewer participants post-transition. For example, at the follow-up there was a primarily conducted by telephone. Surveys were reported doing fun things in the community and more 14 percent increase in the number of participants that completed either by the participant, a proxy, or the reported feeling sad or blue during the past week. stated that they could not see friends and family when participant with assistance. they wanted to and the percentage of participants indicating that they go out to do fun things in the IMPLICATIONS FOR POLICY POPULATION STUDIED community dropped by 23 percent. Potentially reflective of these limitations, there was an increase in the The results of this study indicate that the MFP program The study population included Money Follows the Person post-transition responses measuring sadness (+8%), participants have improved quality of life post-transition. program participants in Georgia that completed a irritability (+9%), and aches and pains (+8%) in the past To further improve outcomes post-transition, state level pre-transition survey and a post-transition follow-up week. Despite some of the challenges denoted above, program policy could focus on social outlets and survey from January 2009 through December 2011. A total when asked if the participants were happy with the way community integration. This may include the provision of of 206 participants had matched surveys during this time the lived their lives, 5 percent more participants were educational opportunities, work or volunteer placement, period, but 23 respondents had passed away, thus a total happy after the transition. increased emphasis on peer support, added flexibility in of 366 surveys from two time points were analyzed. transportation services, and family meetings that elucidate realistic expectations of support and interactions with FIGURE 1: COMPARISON OF RESPONSES TO family and friends. In some cases, additional services could PRINCIPAL FINDINGS SELECTED SURVEY QUESTIONS be considered as reimbursable under the program, and in As expected, a significant decrease in the number of others additional assessments or planning prior to people living in group homes or nursing homes is transition may be useful. Further, funding for infrastructure observed post-transition. In fact, at the follow-up there such as affordable housing and transportation could was a 53 percent increase in those reporting that they had improve the number of successful transitions. Finally, it a choice in where they live, and a 33 percent increase in should be recognized that the MFP program service participants stating that they liked where they live. The period lasts 365 days, thus while the program has great participants also reported an increased ability to make opportunity for improving quality of life, the impact of choices and have control of scheduling meals, bed time overlapping long-term care programs such as Medicaid and having privacy when they chose to. and non-Medicaid home and community based services should be considered. For more information, contact the Georgia At both time points nearly all participants reported Health Policy Center at 404.413.0314 or visit us receiving help with bathing, dressing or preparing meals, online at www.gsu.edu/ghpc. often by someone who was paid to help them. However, RESEARCH FUNDERS at the post-transition follow-up there was a 35 percent The Georgia Department of Community Health through increase in the number of participants stating that they grant funding received from the Centers for Medicare and ANDREW YOUNG SCHOOL picked the people who were paid to help them. Medicaid Services. OF POLICY STUDIES