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Dr. Maria Barkmeier, Program Analyst
 Office of Community Support for Military Families with Special Needs
                  Office of the Secretary of Defense
FL State Conference on Supporting Military Children with Special Needs
                             June 13, 2012
Objectives

      Background of Office
      Issues
      Research
      Accomplishments
      Tools and Products




We know the system. We can help.
Organizational Structure

                                          SECDEF




                                             USD
                                         (Personnel &
                                          Readiness)




          ASD(HA)                         ASD(RFM)                                        ASD(RA)
      Health Affairs


                                                                     MC&FP
            MHS            MPP     CPP                  DODEA   Military Community
                                                                  & Family Policy


                                                                            OSN
                  MTFs                                                Office of Special
                                                                           Needs




                TRICARE




We know the system. We can help.
Background

    Among military family members, more than
     350,000 may have a special need
       Source: Disability Status Report, 2008-12% of the population

    Who is a family member with special needs?
          One with a chronic medical condition requiring services
           from a specialist
          A child receiving early intervention services or
           special education



We know the system. We can help.                                      4
Exceptional Family Member Program

    Until 2010, the EFMP was a personnel
     function only
    There was no DoD program to support these
     families, with the exception of the Army and
     Marine Corps.




We know the system. We can help.                    5
FY 2010 NDAA Section 563

    Secretary of Defense: Create an office to support
     families with special needs
          Develop policy
          Provide oversight of support to military families with
           special needs
    Military Services:
          Develop family support programs
          Provide appropriate numbers of case managers
          Develop and oversee individualized Services Plans
          Expand assignment coordination – to and within the US

We know the system. We can help.                                    6
Response to the NDAA

   Establish the Office of Community Support
   for Military Families with Special Needs
   Assign responsibilities for:
          Individuals with Disabilities Education Act
          EFMP Identification, Enrollment and
           Assignment Coordination
          EFMP Family Support



We know the system. We can help.                         7
Response to the NDAA

    Exceptional Family Member Program
          Expand the EFMP to include family support
          Expand the EFMP to include coordination of
           assignments within the US

    Study issues that are raised by family
     members regarding access to services



We know the system. We can help.                        8
Response to the NDAA


    OSD augmented Service funding in
     FY 2010 & 2011
    Services hired 120 EFMP family support
     personnel
    OSN drafted a new EFMP policy



We know the system. We can help.              9
EFMP FAMILY PANEL
                        SEPT 27, 2011 and March 6, 2012

    Selected nominees to represent all Services
     , National Guard and Reserve Component
          Spouse
          Child (under 18 years old)
          Child (over 18 years old)
    Focus on families’ successes and challenges
    2013 Formal Panel with worldwide
     representation

   10
We know the system. We can help.
Analysis of Trends

    Focus Groups
    EFMP Family Panel
    Congressional Military Family Caucus
    National Council on Disability report for USMC
    Congressional requirements (currently access to
     special education)
    Issues raised at Joint Service working groups
    General Accountability Office (GAO)



We know the system. We can help.
Challenges to Military Families

 Relocation                     Specialized medical care
 Transfers between schools      Access to Medicaid
 Comparable special services     waivers
 Quality services family
                                 Support when far from
  members with special needs      family




                                                             12
Issues

    Communication
    Consistency
         Access to special education
    Health Care
          Access to medical care following a PCS move
          Discontinuity of medical services between
           TRICARE regions
          Access to Federal/State programs, e.g., Medicaid

We know the system. We can help.                              13
Joint Service EFMP Working Group

    Focus on Family Support
    Has met monthly – since 2009
    Approaching EFMP jointly
    Developed: Joint EFMP logo, communication
     plan, and marketing materials
    Collaborating on DoD policy
    National Guard and Coast Guard represented
We know the system. We can help.                  14
Analysis

   Research:
    Access to Special Education/Ohio State University
    Family Support/Cornell University and Kansas University
    Access to Medicaid/West Virginia University/Tricare
    Functional Analysis*


We know the system. We can help.
Functional Analysis

    NDAA 2010 requires the establishment of a system for:
          Record keeping
          Reporting
          Continuous monitoring of resources for families with
           special needs
    Functional Analysis will analyze current data and case
     management systems
    Outcome will be recommendations for a DoD-wide
     approach
    This is a LONG TERM project

We know the system. We can help.                                  16
EFMP Policy

    Exceptional Family Member Program:
     Family Support
          Case management, non-clinical
                Information and Referral
                Training/Education
                Assistance before, during and after a PCS move
                Represent families with special needs to leadership
          Services Plans
          Referral for medical case management

We know the system. We can help.                                       17
Services Plan (SP)

    An individualized plan written in collaboration
     with the family support provider and the
     family or the family member with special
     needs that documents current situation and
     steps to achieve their desired outcome.




   18
We know the system. We can help.
EFMP Policy

    Exceptional Family Member Program:
     Assignment Coordination
          Identification and enrollment
          Coordination of assignments
                CONUS
                OCONUS
                Stabilization of tours




We know the system. We can help.           19
Oversight

    Council on Accreditation – EFMP standards on
     family support
    EFMP site visits
    Monitoring of early intervention and special
     education within DoD




We know the system. We can help.
Collaboration

    U.S. Department of Agriculture/Land Grant
     Universities
    Joint Service working groups
    TRICARE/Health Affairs
    DoD Education Activity Partnership Office
    U.S. Department of Education
    U.S. Department of Health and Human
     Services
We know the system. We can help.
EFMP Family Support Reference Guide

    Provides guidance in
     delivering family
     support
    Provides overview of
     federal, state, and
     community resources
    Provides tools and
     information for
     providers specific to
     the military lifestyle

We know the system. We can help.         22
Service Provider
Outreach Kits
 Trade show support
      Pull-up banner
      Table covering
      Outdoor banner
      Easels for displaying materials
 Giveaways
    Lapel pins
    Stickers
    Notepads
 Replenishing the Family
  Information Kits – Summer ‘12

                                         23
Library and Professional Materials

    Every installation library and every EFMP
     received
          32 books for families, teens, children
                Picture books: e.g., Arnie and the New Kid
                Middle School: e.g., Chicken Soup for the Soul: Children
                 with Special Needs: Stories of Love and Understanding
          18 professional books
                Wrightslaw: Special Education Law, 2nd ed
                Fundamentals of Case Management Practice: Skills for
                 Human Services


We know the system. We can help.                                            24
Journals

    Every EFMP family support program received
     subscriptions to seven journals:
            Autism Aspergers Digest
            Autism File
            Autism Spectrum Quarterly
            Exceptional Parent
            Focus on Autism and Other Developmental Disabilities
            Intellectual and Developmental Disabilities
            Teaching Exceptional Children

We know the system. We can help.                                    25
OSD Support for Families

    Online: MilitaryHOMEFRONT
    Online: NEW Military OneSource –
      merging with MHF
    Newsletters: The Exceptional Advocate
    Publications
    Training and Education
    Military OneSource: Consultants
     and materials

We know the system. We can help.             26
DoD Resources

    eLearning Module Early Intervention Services
    eLearning Module: Special Education
    EFMP Family Support Reference Guide

       To be posted on Military OneSource Summer
                          2012



   27
We know the system. We can help.
The Exceptional Advocate – HTML version




We know the system. We can help.             28
The Exceptional Advocate – Flash version




We know the system. We can help.              29
Parent Tool Kits – available through
   Military OneSource

   Provides tools and
    resources to support a
    family member with
    special needs
   Accompanied by an
    online Facilitator’s Guide
    and PowerPoint deck for
    training
   Currently for birth to 18
   Coming – for adults
We know the system. We can help.          30
SCORs (Children and Adults) available through
 Military OneSource

    Redesigned PDF
     enhances usability
          Quick and easy
           document navigation
          Automatic expenditure
           calculations
          Accessible with
           screen readers and
           Braille printers



We know the system. We can help.                 31
Newest SCOR – For Adults

    Users asked for it---
     now it is available.
    SCOR for adults with
     special needs




We know the system. We can help.   32
Translated Materials

    Parent Toolkits
    Adults with Special Needs
    Available on line in eight different languages:
          French, German, Italian, Korean, Russian, Japanes
           e, Spanish, Filipino.




We know the system. We can help.                               33
eLearning

    Initial lessons
     aimed at family
     members
    Provides information
     and access to
     resources
    Available through
     Military OneSource
    Titles: EFMP, early intervention, special
     education and adults with special needs
We know the system. We can help.                 34
Webinars

    Choosing an Exceptional Life: Family-Directed Resource
     Organizations**
    Choosing an Exceptional Life: Disability-Specific
     Resource Organizations and National Clearinghouses**
    Choosing an Exceptional Life: Introduction to
     Government Benefits and Services
    Care Giving: A Journey to a Changing Identity.
    Coping with Caregiver Stress
    Changing Family Roles and Relationships in Family Care
     Giving
                                                  ** Archived

We know the system. We can help.                                35
UPCOMING WEBINARS




    Add iep
    New webinar topics
    Focus on IEPs




We know the system. We can help.          36
Support to Families

    Kids Included Together: Provided funding to
     child and youth programs for inclusion
     training
    Accessible playgrounds
     – over 200




We know the system. We can help.
QR Code for EFMP Mobile Website




We know the system. We can help.     38
EFMP Mobile Website




We know the system. We can help.   39
EFMP Marketing Materials

    Marketing Materials
     were provided to all
     EFMP family support
     programs
    Supporting families
     with special needs
     starts with educating
     them about the
     program.




We know the system. We can help.   40
41
We know the system. We can help.
42
We know the system. We can help.
 Web address for Education Directory
    http://pre.apps.mhf.dod.mil/pls/psgprod/f?p=
     EFMP_DIRECTORY:HOME:0::::EKMT:37.10.0.0.
     0.0.0.0.0




We know the system. We can help.
44
We know the system. We can help.
45
We know the system. We can help.
http://www.parentcenternetwork.org
   46
We know the system. We can help.
www.stompproject.org




   47
We know the system. We can help.
CALL TO ACTION

     Whether a family member or provider:
           Provide feedback when asked for input, in interviews or focus groups


   Help us heighten awareness of EFM
     programs, materials and disability issues within
     your circle of influence

            Encourage families to enroll in EFMP
            Tell them about the support available at the family
             centers and MTFs
            Share our EFMP logo and new materials with others

   48
We know the system. We can help.
Heroes for the Future!


   Cherish and nurture
   our military children
   with special needs.



   They serve us
   well!

   49
We know the system. We can help.
Contact Information

                                   Dr. Maria V. Barkmeier

                                     Program Analyst

     Office of Community Support for Military Families
                  with Special Needs (OSN)

                                      (703) 588-0879

                            Maria.Barkmeier@osd.mil
We know the system. We can help.

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Florida efmp overview june 2012 handouts[1]

  • 1. Dr. Maria Barkmeier, Program Analyst Office of Community Support for Military Families with Special Needs Office of the Secretary of Defense FL State Conference on Supporting Military Children with Special Needs June 13, 2012
  • 2. Objectives  Background of Office  Issues  Research  Accomplishments  Tools and Products We know the system. We can help.
  • 3. Organizational Structure SECDEF USD (Personnel & Readiness) ASD(HA) ASD(RFM) ASD(RA) Health Affairs MC&FP MHS MPP CPP DODEA Military Community & Family Policy OSN MTFs Office of Special Needs TRICARE We know the system. We can help.
  • 4. Background  Among military family members, more than 350,000 may have a special need Source: Disability Status Report, 2008-12% of the population  Who is a family member with special needs?  One with a chronic medical condition requiring services from a specialist  A child receiving early intervention services or special education We know the system. We can help. 4
  • 5. Exceptional Family Member Program  Until 2010, the EFMP was a personnel function only  There was no DoD program to support these families, with the exception of the Army and Marine Corps. We know the system. We can help. 5
  • 6. FY 2010 NDAA Section 563  Secretary of Defense: Create an office to support families with special needs  Develop policy  Provide oversight of support to military families with special needs  Military Services:  Develop family support programs  Provide appropriate numbers of case managers  Develop and oversee individualized Services Plans  Expand assignment coordination – to and within the US We know the system. We can help. 6
  • 7. Response to the NDAA Establish the Office of Community Support for Military Families with Special Needs Assign responsibilities for:  Individuals with Disabilities Education Act  EFMP Identification, Enrollment and Assignment Coordination  EFMP Family Support We know the system. We can help. 7
  • 8. Response to the NDAA  Exceptional Family Member Program  Expand the EFMP to include family support  Expand the EFMP to include coordination of assignments within the US  Study issues that are raised by family members regarding access to services We know the system. We can help. 8
  • 9. Response to the NDAA  OSD augmented Service funding in FY 2010 & 2011  Services hired 120 EFMP family support personnel  OSN drafted a new EFMP policy We know the system. We can help. 9
  • 10. EFMP FAMILY PANEL SEPT 27, 2011 and March 6, 2012  Selected nominees to represent all Services , National Guard and Reserve Component  Spouse  Child (under 18 years old)  Child (over 18 years old)  Focus on families’ successes and challenges  2013 Formal Panel with worldwide representation 10 We know the system. We can help.
  • 11. Analysis of Trends  Focus Groups  EFMP Family Panel  Congressional Military Family Caucus  National Council on Disability report for USMC  Congressional requirements (currently access to special education)  Issues raised at Joint Service working groups  General Accountability Office (GAO) We know the system. We can help.
  • 12. Challenges to Military Families  Relocation  Specialized medical care  Transfers between schools  Access to Medicaid  Comparable special services waivers  Quality services family  Support when far from members with special needs family 12
  • 13. Issues  Communication  Consistency  Access to special education  Health Care  Access to medical care following a PCS move  Discontinuity of medical services between TRICARE regions  Access to Federal/State programs, e.g., Medicaid We know the system. We can help. 13
  • 14. Joint Service EFMP Working Group  Focus on Family Support  Has met monthly – since 2009  Approaching EFMP jointly  Developed: Joint EFMP logo, communication plan, and marketing materials  Collaborating on DoD policy  National Guard and Coast Guard represented We know the system. We can help. 14
  • 15. Analysis Research:  Access to Special Education/Ohio State University  Family Support/Cornell University and Kansas University  Access to Medicaid/West Virginia University/Tricare  Functional Analysis* We know the system. We can help.
  • 16. Functional Analysis  NDAA 2010 requires the establishment of a system for:  Record keeping  Reporting  Continuous monitoring of resources for families with special needs  Functional Analysis will analyze current data and case management systems  Outcome will be recommendations for a DoD-wide approach  This is a LONG TERM project We know the system. We can help. 16
  • 17. EFMP Policy  Exceptional Family Member Program: Family Support  Case management, non-clinical  Information and Referral  Training/Education  Assistance before, during and after a PCS move  Represent families with special needs to leadership  Services Plans  Referral for medical case management We know the system. We can help. 17
  • 18. Services Plan (SP)  An individualized plan written in collaboration with the family support provider and the family or the family member with special needs that documents current situation and steps to achieve their desired outcome. 18 We know the system. We can help.
  • 19. EFMP Policy  Exceptional Family Member Program: Assignment Coordination  Identification and enrollment  Coordination of assignments  CONUS  OCONUS  Stabilization of tours We know the system. We can help. 19
  • 20. Oversight  Council on Accreditation – EFMP standards on family support  EFMP site visits  Monitoring of early intervention and special education within DoD We know the system. We can help.
  • 21. Collaboration  U.S. Department of Agriculture/Land Grant Universities  Joint Service working groups  TRICARE/Health Affairs  DoD Education Activity Partnership Office  U.S. Department of Education  U.S. Department of Health and Human Services We know the system. We can help.
  • 22. EFMP Family Support Reference Guide  Provides guidance in delivering family support  Provides overview of federal, state, and community resources  Provides tools and information for providers specific to the military lifestyle We know the system. We can help. 22
  • 23. Service Provider Outreach Kits  Trade show support  Pull-up banner  Table covering  Outdoor banner  Easels for displaying materials  Giveaways  Lapel pins  Stickers  Notepads  Replenishing the Family Information Kits – Summer ‘12 23
  • 24. Library and Professional Materials  Every installation library and every EFMP received  32 books for families, teens, children  Picture books: e.g., Arnie and the New Kid  Middle School: e.g., Chicken Soup for the Soul: Children with Special Needs: Stories of Love and Understanding  18 professional books  Wrightslaw: Special Education Law, 2nd ed  Fundamentals of Case Management Practice: Skills for Human Services We know the system. We can help. 24
  • 25. Journals  Every EFMP family support program received subscriptions to seven journals:  Autism Aspergers Digest  Autism File  Autism Spectrum Quarterly  Exceptional Parent  Focus on Autism and Other Developmental Disabilities  Intellectual and Developmental Disabilities  Teaching Exceptional Children We know the system. We can help. 25
  • 26. OSD Support for Families  Online: MilitaryHOMEFRONT  Online: NEW Military OneSource – merging with MHF  Newsletters: The Exceptional Advocate  Publications  Training and Education  Military OneSource: Consultants and materials We know the system. We can help. 26
  • 27. DoD Resources  eLearning Module Early Intervention Services  eLearning Module: Special Education  EFMP Family Support Reference Guide To be posted on Military OneSource Summer 2012 27 We know the system. We can help.
  • 28. The Exceptional Advocate – HTML version We know the system. We can help. 28
  • 29. The Exceptional Advocate – Flash version We know the system. We can help. 29
  • 30. Parent Tool Kits – available through Military OneSource  Provides tools and resources to support a family member with special needs  Accompanied by an online Facilitator’s Guide and PowerPoint deck for training  Currently for birth to 18  Coming – for adults We know the system. We can help. 30
  • 31. SCORs (Children and Adults) available through Military OneSource  Redesigned PDF enhances usability  Quick and easy document navigation  Automatic expenditure calculations  Accessible with screen readers and Braille printers We know the system. We can help. 31
  • 32. Newest SCOR – For Adults  Users asked for it--- now it is available.  SCOR for adults with special needs We know the system. We can help. 32
  • 33. Translated Materials  Parent Toolkits  Adults with Special Needs  Available on line in eight different languages:  French, German, Italian, Korean, Russian, Japanes e, Spanish, Filipino. We know the system. We can help. 33
  • 34. eLearning  Initial lessons aimed at family members  Provides information and access to resources  Available through Military OneSource  Titles: EFMP, early intervention, special education and adults with special needs We know the system. We can help. 34
  • 35. Webinars  Choosing an Exceptional Life: Family-Directed Resource Organizations**  Choosing an Exceptional Life: Disability-Specific Resource Organizations and National Clearinghouses**  Choosing an Exceptional Life: Introduction to Government Benefits and Services  Care Giving: A Journey to a Changing Identity.  Coping with Caregiver Stress  Changing Family Roles and Relationships in Family Care Giving ** Archived We know the system. We can help. 35
  • 36. UPCOMING WEBINARS  Add iep  New webinar topics  Focus on IEPs We know the system. We can help. 36
  • 37. Support to Families  Kids Included Together: Provided funding to child and youth programs for inclusion training  Accessible playgrounds – over 200 We know the system. We can help.
  • 38. QR Code for EFMP Mobile Website We know the system. We can help. 38
  • 39. EFMP Mobile Website We know the system. We can help. 39
  • 40. EFMP Marketing Materials  Marketing Materials were provided to all EFMP family support programs  Supporting families with special needs starts with educating them about the program. We know the system. We can help. 40
  • 41. 41 We know the system. We can help.
  • 42. 42 We know the system. We can help.
  • 43.  Web address for Education Directory  http://pre.apps.mhf.dod.mil/pls/psgprod/f?p= EFMP_DIRECTORY:HOME:0::::EKMT:37.10.0.0. 0.0.0.0.0 We know the system. We can help.
  • 44. 44 We know the system. We can help.
  • 45. 45 We know the system. We can help.
  • 46. http://www.parentcenternetwork.org 46 We know the system. We can help.
  • 47. www.stompproject.org 47 We know the system. We can help.
  • 48. CALL TO ACTION Whether a family member or provider:  Provide feedback when asked for input, in interviews or focus groups Help us heighten awareness of EFM programs, materials and disability issues within your circle of influence  Encourage families to enroll in EFMP  Tell them about the support available at the family centers and MTFs  Share our EFMP logo and new materials with others 48 We know the system. We can help.
  • 49. Heroes for the Future! Cherish and nurture our military children with special needs. They serve us well! 49 We know the system. We can help.
  • 50. Contact Information Dr. Maria V. Barkmeier Program Analyst Office of Community Support for Military Families with Special Needs (OSN) (703) 588-0879 Maria.Barkmeier@osd.mil We know the system. We can help.

Notas del editor

  1. Run CD with photos of families or Service to Nation
  2. We are not under the same ASD as TRICARE.
  3. 240,000 is an estimate based on 12% of the population of military family members.
  4. The 120 additional staff provided new staffing for the Navy and Air Force and additional staff for the Army and Marine Corps.The new EFMP policy will cover both the family support and assignment coordination aspects of the EFMP.
  5. Briefer: Explain that the office covers IDEA as well as EFMP. The office handles issues beyond what is in the NDAA 2010.
  6. Sometimes it seems like an uphill battle, doesn’t it? When your family is connected to a service member, issues like these really affect your lives. These are some of the reasons why the Office of Community Support for Military Families with Special Needs or OSN was set up by Congress in 2010. We have heard families’ concerns and we are all dedicated to working towards improving military families’ quality of life!
  7. The point here is that we were already working with the Services and HA to address issues regarding EFM families.
  8. Briefer: Explain that the military health system provides medical case management. The family support centers/EFMP family support personnel will provide non-clinical case management and will refer to medical if a family appears to meet the criteria for a medical case manager.Stabilization - meets the needs of the military mission, the service member’s career development and the need of the Family member is documented.
  9. Briefer: Explain that the military health system provides medical case management. The family support centers/EFMP family support personnel will provide non-clinical case management and will refer to medical if a family appears to meet the criteria for a medical case manager.Stabilization - meets the needs of the military mission, the service member’s career development and the need of the Family member is documented.
  10. Portable Kits geared toward service providers attending functions similar to resource fairs or deployment briefs. Outreach Kits will contain resources to assist service providers in raising awareness and visibility of EFMP. Items will be packed into one box or carrying case and shipped to each service provider across all Services.
  11. Show portios of each elerrning
  12. Once the offline flip version is on your desktop insert a link from it into the image. To do so click on the image, go to insert hyperlink, make sure that the document tab is highlighted and browse for the correct document.You will then be able to click anywhere on the image to activate the flip version.
  13. The SCORs are a set of tools we believe can be made even more user friendly and helpful than they already are. The new document is a PDF rather than a Microsoft Word file. There are numerous benefits to utilizing PDFs:• Considerable freedom in formatting and design. Because we can create the layout in InDesign (the software we use for your other large publications) rather than Word, we have much more flexibility in the look of the document. • A bookmark panel is hinged to the left of the document window, allowing users to quickly navigate the document. • The Acrobat toolbar is easy to use, making document navigation and screen navigation simple. • PDFs can be open and viewed across all systems. Acrobat Reader is a free download. PDFs are a safe method for archiving and storing data. Because if this, PDFs are the International Standard for electronic documents. • Can create the PDFs to be accessible for users with disabilities. We can enhance the PDFs so that they can be read with screen readers and used with braille printers. We tweaked some of the language throughout the document to speak to audiences that will use the SCORs in the interactive version on screen, as well as the printed version. Ensured URLs were spelled out, in addition to hyperlinked, so no meaning is lost in translation. The introduction was also customized to speak to the new format. You will also find some handy interactivity throughout the document. • The form on page 67 calculates the total expenditure as numbers are entered. • You can tab through the fields in each section, making it quick to move around. • There are not any character limits in the fields. If the characters surpass the visible area of a field, scroll bars appear to allow additional text in most cases.
  14. The Office of Special Needs is currently engaged in producing a series of asynchronous, online eLearning modules designed to educate military service members and their families about the Exceptional Family Member ProgramThese lessons will be available to the community through MilitaryHOMEFRONT and will provide them with information and resources that will assist them in areas ranging from program enrollment to early intervention services and special education transitioning. Seen here are snapshots from two lessons that are currently under development: The EFMP Enrollment Process and Early Intervention Services.
  15. EFMP mobile website provides families via a SMART PHONE to access information about the EFMPSmart phone uses scan the QR code and are taken to the mobile websiteThe QR code will be available on all EFMP materials.
  16. Access to information, enrollment forms, podcastsAccess to contact information for the closest EFMP family support provider.Access to Service EFMP webpages.