The Pastors4PCOR Research Network shares its development of Patient-Centered Outcomes research infrastructure development for faith-based partners on Chicago's south side and south suburban Cook County, Illinois
4.
“so we can activate our own research that will
benefit our communities and be part of a
partnership that is meaningful real and faith based “
“…doing this enables research that we think needs
to happen, and the value added is that we identify
the research that needs to take place rather than
[researchers] coming to us and saying, ‘we are doing
research on this’;
“...there is value in matching conversations to
congregants interests that leads to education”;
“..informed congregations lead to greater levels of
health awareness and education”
Why Research Ministry?
5.
To support a newly developing community
academic partnership through the establishment of a
Research Ministry Advisory Board and Network
To develop mechanisms that enable the Research
Ministry Advisory Board to engage in partnership
with local faith based communities and identify
health research priorities
Project Aims
6.
Develop GLUE for Research Ministry Advisory
Board and faith based community members of
research ministry network
Collaboratively design and deliver an event for faith
based communities
Sustain the newly developed partnership by
launching the Research Ministry Network
Ask faith based community representative attending
event to prioritize health issues for research
Objectives
7.
8.
501c3 status for Pastors4PCOR: GLUE
Research Ministry Mission Statement, Research Ministry
Advisory Board Terms of Reference/ MOU for partners :
GLUE
Recruitment of Research Ministry Advisory Board and
MOU for members : GLUE
Eugenie Washington grant proposal: SUSTAINABILITY
Research Ministry Advisory Board norming and storming
– full meeting – with full documentation and planning
for event : MECHANISM
Outcomes to date
10.
Forming
Storming
Norming
Performing
Five stages of Project Team
Development
Meetings to
discuss project
aims/objectives,
journey of
engagement
norms for
working
Transitioning
decision
making to
board.
Working
through and
developing
roles
Partnership
rules for
working
together are in
place. Board is
self directed.
Focus on
reaching goal as
a group –
delivering an
event
11.
Research Ministry Network MOUs for faith based
community partners: GLUE
Launch event of the Pastors4PCOR Research
Ministry Network: SUSTAINABILITY
Identification of health priorities within faith based
communities: SUSTAINABILITY
Outcomes to come
13.
Things we have learned together
Successes
Open lines of
communication
Working relationships
Complement of skills
and personalities
Finding funds to
sustain project
New partnerships
Challenges
Time
Getting to know each
others processes and
infrastructure
Mapping the
geography of faith
based communities
14.
ARCC online directory: Accessed 30 December 2014
Nass, P., Levine, S. and Yancy, C. Methods for
Involving Patients in Topic Generation for Patient
Centered Comparative Effectiveness Research: An
International Perspective.
Berman, R., Iris, M. 2012. Building a Caregiving
Ministry. A Toolkit for Faith Communities. Age
Options
Three resources we have found
invaluable