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TeleSCoPE
A Code of Practice for Telehealth
                         Services
                      IFA Prague 2012
 Malcolm Fisk, Roberts Roze and Pierre Boutet
       Health Design and Technology Institute
                          Coventry University




                                                1
TeleSCoPE
  European Telehealth Services
              Code of Practice
  European Commission Contract 2009 11 11
                  www.telehealthcode.eu
12 partners in 7 member states
     Validation in 2012 with 20+
                        services
Final launch of Code at Medetel
                           2013



                                            2
Coventry University (Project Coordinator), UK
                                     MKS Electronic Systems Ltd, Slovenia
                                                         STII-BAS, Bulgaria
                                         Lievens-Lanckman bvba, Belgium
                                                             ICT-CNR, Italy
                                            Work Research Centre, Ireland
Partners                                                  InHAM, Belgium
                                       Apertech Informatics Ltd., Hungary
                                          Istituto Auxologico Italiano, Italy
                                         Telecare Services Association, UK
           National Federation of Disabled Persons’ Associations, Hungary
            National Council of Disabled People’s Organisation of Slovenia




                                                                            3
Aims of the Code
        To respond to Commission Call
       regarding need to build trust and
              establish quality standards
       Facilitate debate and discussion
    Offer framework on basis of which
auditing and certification can take place
        Change ways of thinking about
                               telehealth



                                        4
Change Ways of Thinking?
             Telehealth including health and
            wellbeing … an ‘integrated vision’
                 Telehealth giving choice and
       control to more patients/service users
    Giving attention to the way technologies
                      are configured and used
    Putting effective moral compass in place
 Not so much ‘providing for’ but more giving
                      users ‘access to’ services


                                               5
Telehealth Services – Examples (1)
         Activity and gait monitoring
      Health & motivational coaching
              Medication compliance
          Fall and seizure monitoring
           Social alarms and telecare
 Lifestyle monitoring (incl. nutrition,
                        sleep, exercise)


                                       6
Telehealth Services – Media (2)
                       Fixed phones
                     Mobile phones
                      Smart phones
                           Tablet PCs
                      Interactive TV
… via mobile, terrestrial and satellite
                             networks


                                      7
TeleSCoPE: European Telehealth Services Code
           of Practice Framework

                                       European and              Service
                                    Country Contexts             Location
                                               (A1-A3)           (B1-B2)


             Moral and Ethical
                                                                                  Communications
                        Issues
                          (A4-A8)
                                                                                  Networks
                                                                                  (B3-B5)




          Governance and                                                                Hardware and Other
                 Financial                                                              Technological
     Considerations (A9-A19)                                                            Considerations
                                                                                        (B6-B14)




                                                                                      Interpretation and
                    Personal Data
                                                                                      Response (C9-C12)
               Management (A20-A23)



                                        Contact with Patients,      Staff and Staff
                                        Service Users and           Management
                                        Carers (C3-C8)              (C1-C2)
Draft Code Sampler (1)
               EC Directives (A1.2)
 EU Charter of Fundamental Rights
                                (A1.1)

  Country laws and regulations
                                (A1.3)

        Clear mission based on
   honesty, openness and giving
 ‘precedence to views, opinions
 and choices of service users’ (A6)
                                         Photo: Verklizan / Innospense BV




                                                                            9
Draft Code Sampler (2)
     Good governance (A9-A19) e.g.
           financial management (A9)
          staff skills / knowledge (A10)
                         insurances (A14)
       Service location (B1-B2) e.g.
                                                 Photo: Shimba Technologies Ltd.



                 health and safety (B1)
                 locations security (B2)
 Communications networks (B3-B5)           Photo: Verklizan / Innospense BV Ltd
                                                             Photo: Mediche




                                                                           10
Draft Code Sampler (3)
 Personal data management e.g.
                                             (A20-A23)
      data owned by service user (A20)
   highest level of confidentiality (A21)
        storage, sharing, erasure (A21)                              Photo: Hebrides Today


          access by service user (A21.4)
                      audit trails (A21.5)
      Personal data is ‘any information relating to an
    individual whether it relates to his or her private,
           professional or public life’ EC Memo 12/41
                                                           Photo: Verklizan / Innospense BV




                                                                                         11
Draft Code Sampler (4)
Interpretation and responses e.g.
                                     (C9-C12)

                authorised staff (C9.2)
            confidential context (C9.3)
             appropriate action (C9.4)
         importance of protocols (C10)
                          reviews (C9.5)
  in-person and virtual visits (C10, C10.3)
                                                               Photo: Mediche Ltd
                                                Photo: Verklizan / Innospense BV




                                                                              12
What Next?
     Validation of the Draft Code –
                             you can help!
              Testing of the clauses –
     in context of different service types
          Getting the ‘balance’ right –
                      not too prescriptive
 Developing blueprint for its adoption
                  in member states –
     for regulation, auditing, certification



                                          13
An Invitation
       Sign the declaration and
receive a copy of the Draft Code
       Give us your feedback –
              suggest improvements
                  identify omissions
tell us about how it fits services that
     you manage or are involved with
 Join us next year at Medetel –
                for the Code launch!
                                          Photo: Verklizan / Innospense BV




                                                                        14
TeleSCoPE
A Code of Practice for Telehealth
                         Services
                      Thank You
                 Prague IFA 2012
               mfisk@cad.coventry.ac.uk
               rroze@cad.coventry.ac.uk
             pboutet@cad.coventry.ac.uk




                                          15

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Ifa prague 2012 telescope

  • 1. TeleSCoPE A Code of Practice for Telehealth Services IFA Prague 2012 Malcolm Fisk, Roberts Roze and Pierre Boutet Health Design and Technology Institute Coventry University 1
  • 2. TeleSCoPE European Telehealth Services Code of Practice European Commission Contract 2009 11 11 www.telehealthcode.eu 12 partners in 7 member states Validation in 2012 with 20+ services Final launch of Code at Medetel 2013 2
  • 3. Coventry University (Project Coordinator), UK MKS Electronic Systems Ltd, Slovenia STII-BAS, Bulgaria Lievens-Lanckman bvba, Belgium ICT-CNR, Italy Work Research Centre, Ireland Partners InHAM, Belgium Apertech Informatics Ltd., Hungary Istituto Auxologico Italiano, Italy Telecare Services Association, UK National Federation of Disabled Persons’ Associations, Hungary National Council of Disabled People’s Organisation of Slovenia 3
  • 4. Aims of the Code  To respond to Commission Call regarding need to build trust and establish quality standards  Facilitate debate and discussion  Offer framework on basis of which auditing and certification can take place  Change ways of thinking about telehealth 4
  • 5. Change Ways of Thinking?  Telehealth including health and wellbeing … an ‘integrated vision’  Telehealth giving choice and control to more patients/service users  Giving attention to the way technologies are configured and used  Putting effective moral compass in place  Not so much ‘providing for’ but more giving users ‘access to’ services 5
  • 6. Telehealth Services – Examples (1)  Activity and gait monitoring  Health & motivational coaching  Medication compliance  Fall and seizure monitoring  Social alarms and telecare  Lifestyle monitoring (incl. nutrition, sleep, exercise) 6
  • 7. Telehealth Services – Media (2)  Fixed phones  Mobile phones  Smart phones  Tablet PCs  Interactive TV … via mobile, terrestrial and satellite networks 7
  • 8. TeleSCoPE: European Telehealth Services Code of Practice Framework European and Service Country Contexts Location (A1-A3) (B1-B2) Moral and Ethical Communications Issues (A4-A8) Networks (B3-B5) Governance and Hardware and Other Financial Technological Considerations (A9-A19) Considerations (B6-B14) Interpretation and Personal Data Response (C9-C12) Management (A20-A23) Contact with Patients, Staff and Staff Service Users and Management Carers (C3-C8) (C1-C2)
  • 9. Draft Code Sampler (1)  EC Directives (A1.2)  EU Charter of Fundamental Rights (A1.1)  Country laws and regulations (A1.3)  Clear mission based on honesty, openness and giving ‘precedence to views, opinions and choices of service users’ (A6) Photo: Verklizan / Innospense BV 9
  • 10. Draft Code Sampler (2)  Good governance (A9-A19) e.g. financial management (A9) staff skills / knowledge (A10) insurances (A14)  Service location (B1-B2) e.g. Photo: Shimba Technologies Ltd. health and safety (B1) locations security (B2)  Communications networks (B3-B5) Photo: Verklizan / Innospense BV Ltd Photo: Mediche 10
  • 11. Draft Code Sampler (3)  Personal data management e.g. (A20-A23) data owned by service user (A20) highest level of confidentiality (A21) storage, sharing, erasure (A21) Photo: Hebrides Today access by service user (A21.4) audit trails (A21.5) Personal data is ‘any information relating to an individual whether it relates to his or her private, professional or public life’ EC Memo 12/41 Photo: Verklizan / Innospense BV 11
  • 12. Draft Code Sampler (4) Interpretation and responses e.g. (C9-C12) authorised staff (C9.2) confidential context (C9.3) appropriate action (C9.4) importance of protocols (C10) reviews (C9.5) in-person and virtual visits (C10, C10.3) Photo: Mediche Ltd Photo: Verklizan / Innospense BV 12
  • 13. What Next?  Validation of the Draft Code – you can help!  Testing of the clauses – in context of different service types  Getting the ‘balance’ right – not too prescriptive  Developing blueprint for its adoption in member states – for regulation, auditing, certification 13
  • 14. An Invitation  Sign the declaration and receive a copy of the Draft Code  Give us your feedback – suggest improvements identify omissions tell us about how it fits services that you manage or are involved with  Join us next year at Medetel – for the Code launch! Photo: Verklizan / Innospense BV 14
  • 15. TeleSCoPE A Code of Practice for Telehealth Services Thank You Prague IFA 2012 mfisk@cad.coventry.ac.uk rroze@cad.coventry.ac.uk pboutet@cad.coventry.ac.uk 15