2. NOTHING TO DISCLOSE
I give consent for the audience to tweet this talk
and give me feedback (@endocrine_witch).
Feel free take pictures of my slides (though the
deck is at www.slideshare.net/isiptan).
3. DO YOU HATE
“DR.” GOOGLE?
HAS GOOGLE ALTERED
THE PHYSICIAN-PATIENT
RELATIONSHIP?
HOW CAN WE
SUPPORT PATIENTS
WHO GOOGLE?
4. Pei-Li Teh & Marc Yates (2013)
researchpartnership.com
Nine in ten had accessed the internet looking
for healthcare information, with almost 3/4s
having done so in the last month.
5. GENERAL HEALTHCARE WEBSITES
ONLINE HEALTH FORUMS
HEALTH COMMUNITY WEBSITES
DISEASE WEBSITES
CLINICAL WEBSITES
PHARMACEUTICAL WEBSITES
WIKIS
E-NEWSLETTER
FACEBOOK
%
0 25 50 75 100
HEALTH INFORMATION SOURCES EVER USED
Pei-Li Teh & Marc Yates (2013)
researchpartnership.com
(Philippines)
6. Internet-hostile
Clearly uncomfortable with, and sometimes seem to feel
offended by patient’s attempts to learn more online
Image by Niklas Hellerstedt
http://www.flickr.com/photos/niklashellerstedt/2414448568/
Tom Ferguson, MD & the e-Patients Scholars Working Group (2007)
“e-patients: how they can help us heal healthcare”
7. “[Most doctors] really
do like to think they
have ALL the answers.
This will never
change, I am afraid.”
Pew Internet Project e-Patient Survey
Image by caricaturas
http://www.flickr.com/photos/caricaturesbynelson/2031107541/
8.
9. WHY DOES SELF-DIAGNOSIS ANNOY DOCTORS?
http://www.endocrine-witch.net/2015/07/05/why-does-self-diagnosis-annoy-doctors/
#Bloggys2015 Blog Post of the Year
13. – Dr. Tracey Delaplain, www.kevinmd.com
“Dr. Google doesn’t really care about your
health. Does that shock you? It shouldn’t. The
Internet will never replace human interaction. It
can’t show you compassion, empathize with you,
give you a shoulder to lean on, hold your hand,
rejoice with you or grieve with you. Dr. Google
will never know you or care as much as I do.”
14. DO YOU HATE
“DR.” GOOGLE?
HAS GOOGLE ALTERED
THE MD-PATIENT
RELATIONSHIP?
HOW CAN WE
SUPPORT PATIENTS
WHO GOOGLE?
17. Accepting Informed
Doctor-
dependent &
uninformed
Doctor-
dependent
but informed
Rarely go
online for
health
information
Go online
before or
after MD visit
From Von Knoop at al of Boston Consulting Group (2003)
“Vital Signs: e-Health in the United States
1 2
Image by iwd
http://www.sxc.hu/photo/1129780
18. Accepting Informed Involved
Doctor-
dependent &
uninformed
Doctor-
dependent
but informed
Junior
medical
partners
Rarely go
online for
health
information
Go online
before or
after MD visit
Prefer to
make joint
decisions but
defer to MD
From Von Knoop at al of Boston Consulting Group (2003)
“Vital Signs: e-Health in the United States
1 32
Image by iwd
http://www.sxc.hu/photo/1129780
19. Accepting Informed Involved In control
Doctor-
dependent &
uninformed
Doctor-
dependent
but informed
Junior
medical
partners
Autonomous
patients
Rarely go
online for
health
information
Go online
before or
after MD visit
Prefer to
make joint
decisions but
defer to MD
Make their
own decision
even if MD
disagrees
From Von Knoop at al of Boston Consulting Group (2003)
“Vital Signs: e-Health in the United States
1 32 4
Image by iwd
http://www.sxc.hu/photo/1129780
21. “Paradoxically, a patient’s interest in knowledge
may not always accompany an interest
in the medical decision making process.”
Gerber & Eiser, Journal of Medical Internet Research 2001
Image by nightRPstar
http://www.flickr.com/photos/ninjanoodles/1586212326/
22. WEB 2.0 THE WRITING & PARTICIPATING WEB
Slide from https://www.slideshare.net/bettamedislem/web-evolution-wlframe-alpha
29. Google Health: Tools to help healthcare
providers deliver better care
https://youtu.be/P3SYqcPXqNk
30. Cacciamani GE, et al. Asking “Dr. Google” for a Second Opinion: The Devil Is in the
Details. Eur Urol Focus (2019), https://doi.org/10.1016/j.euf.2019.10.011
How Google Search
Might Be Helpful or Harmful
37. “As opposed to the doctor-centric, curative
model of the past, the future is going to be
patient-centric and proactive.”
Elias A. Zerhouni MD, NIH Director
Dec 2007
Image by JD Hancock
http://www.flickr.com/photos/jdhancock/4100030094/
38. Participatory Medicine
Image by Liz Grace
http://www.flickr.com/photos/liz-grace/5078868809/
“Movement in which networked patients
shift from being mere passengers to
responsible drivers of their health ...
providers encourage and
value them as full partners”
Society for Participatory Medicine
39. Online community/
support group
Patients as members of
collaborative treatment teams
Community health
decision-making
“Mindfully”
involved in
treatment
“Participatory Medicine”
from Wikipedia
Image from networkhttp://www.sxc.hu/photo/985516
40. Physician-Patient Encounters
Gerber & Eiser, Journal of Medical Internet Research 2001
Informed
decision-maker
Knowledge-acquirer
Image by Kurhan
http://www.sxc.hu/photo/1314902
41. The Knowledge-Acquirer
Provides some personal values to the physician
Image from carbonNYC
http://www.flickr.com/photos/carbonnyc/3440688097/
Interested in learning
more about the
treatment decided
on by MD
Gerber & Eiser, Journal of Medical Internet Research 2001
43. DO YOU HATE
“DR.” GOOGLE?
HAS GOOGLE ALTERED
THE MD-PATIENT
RELATIONSHIP?
HOW CAN WE
SUPPORT PATIENTS
WHO GOOGLE?
44. Internet-friendly
Encourages patient’s online efforts
Image by southerntabitha
http://www.flickr.com/photos/tabithahawk/567135091/
Tom Ferguson, MD & the e-Patients Scholars Working Group (2007)
“e-patients: how they can help us heal healthcare”
46. … the average person with
diabetes spends no more
than 0.1% of their time in
the course of an entire year
discussing health matters
with a medical professional.
Hernandez M. Diabetes Manage. 2013;3(3):203-205
“
48. Collins S & Lewis DM. Clinical Diabetes 2013
Assess patient’s use of online resources
and level of health literacy
49. WHO runs or
created the site?
Can you trust
them?
WHAT is the site
promising or offering?
WHEN was its
information written
or reviewed?
WHERE does
the information
come from?
WHY does the
site exist?
http://nccih.nih.gov/health/webresources
51. Endorses a product. Only quotes people
who say good things about the product.
Presents research findings
that seem too good to be true.
Contains links to a sales site.
Includes only positive reader comments.
You can’t add a comment of your own.
ADVERTISEMENT NOT NEWS
nccih.nih.gov/health/webresources
52. The Internet Prescription
Recommend websites to the patient
Patients will likely seek
a “second opinion”
on the internet
Gerber & Eiser, Journal of Medical Internet Research 2001
Image by Charles Williams
http://www.flickr.com/photos/charlesonflickr/3926259585/