Workshop material at a Stanford Med-X workshop on information innovation resources within the national health architecture of Sweden.

1. Is Sweden Building an
IKEA for Health?
- a creative challenge

2. Who are we? Sara Riggare, PhD student, Karolinska Institutet,
”Personal observations as a tool for
improvements in chronic disease”
@sarariggare
sara.riggare@ki.se
Maria Hägglund
PhD, Karolinska Institutet
@mariahagglund
Maria.hagglund@ki.se
Johan Eltes. PhD student,Karolinska Institutet,
”Patient Empowerment - pros and cons of
patient-directed sharing of EHR data through
open API:s”
Deputy CTO, Inera AB, johan.eltes@ki.se

3. Ola Cornelius
CEO, Nerve
Twitter: OlaCornelius
Mail: ola@nervelabs.se

4. Eva Helmersson
Community Manager, Nerve
Twitter: evainspirerad
Mail: eva@nervelabs.se

5. Copyright. All rights reserved 2014. ©

6. Who are you?
https://www.mentimeter.com/s/b2a026187f4a163c91fd64e12033347f/465b96bb85d1

7. Sweden quiz
https://www.mentimeter.com/s/79bbc5e8b01beedd71847d6a81033b94/11c29becb157

8. Sweden quiz
Which US'state
has'approx the'
same'population'
as'Sweden?
California Michigan Florida Texas

9. Sweden quiz
Which US'state
has'approx the'
same'area'as'
Sweden?
California Michigan Florida Texas

10. Sweden quiz
What is'the'total'
health expenditure
of the'US'in'%'of
GDP?
Approx 4% Approx 10% Approx 17% Approx 26%

11. Sweden quiz
What is'the'total'
health expenditure
of Sweden'in'%'of
GDP?
Approx 4% Approx 10% Approx 17% Approx 26%

12. Sweden quiz
https://www.mentimeter.com/s/2bee5c54c51705af17c4c28596dee4ef/dff362d213e1

13. Create a service or other solution based on the
infrastructure and data available in Sweden.
Something not existing today that you can
imagine for the future.
CHALLENGE
(YOURSELF)

14. Virtual National+EHR
Provider Directory
Patient+Directory
EHR+(x+
3000)
Citizen=
facing
apps
Quality
registry
(100)
Swedish+HIN
Patient=
and+
employee=
facing
apps
Notification
Identity provider
API+for+
patient=
directed
sharing
API+for+trusted
parties
Open
Data
EHR+(x+
3000)EHR+(x+
3000)EHR+
(3000)
Quality
registry
(100)
Quality
registry
(100)
Innovation(arena(B:(Healthcare
= All+data+is+accessible
= Care+providers+decide+which+apps+to+offer
= Read+&+write+access+to+EHR+data
= No+access+to+PHR
Innovation(arena(A:(Personal(health
= EHR+and+PHR+access+requires+patient+grant
= “No”+restrictions+on+data+use
= Read+access+to+EHR
= Read/write+Access+to+PHR
PHR
Resquest
&response

15. Innovation(resource 1:(
EHR(data(nationally available for(developers
=Encounters
=Lab+order+results
=General+observations/measurements
=Prescriptions+and+vaccinations+(medication+history)
=Maternity+medical+records
=Clinical+notes
=Referral+status+and+outcome
=Imaging+outcome
=Medical+certificates

16. Innovation(resource 2:(
EHR(transactions nationally available for(
developers
= Appointment+management+(patient)
= Referral+exchange
= Questionnaires
= Consent+management
= Medical+certificate+exchange
= Quality+reporting
= PROMs+upload+/+telemedicine

17. !
!
? ?! !
?
The(infrastructure(at(play((
”My(EHR(viewer”(
Innovated(on(Innovation(Resource(1

18. DEMO
• https://kontakt.minavardkontakter.se/mvk/

19. Innovation(resource 3:(
EHR(real@time event(notifications available for(
developers
Apps may subscribe to+close=to=real=time EHR+events
= Encounter created
= Clinical+note+created
= Measurement captures
= Lab+result captured
= Prescription created
= Vaccination+created
= Imaging outcome captured
An#app authorized for#receiving events#is#also authorized for#
accessing the#actual data

20. Innovation(resource 4:(
Open Data(nationally available for(developers
=Care+provider+directory+(with+geo+location)
=Terminologies
=Quality+indicators+(definitions+and+data)
= Treatment+advise
= Care+plans

21. Innovation(resource 5:
National(master(data(sources available for(
developers
• Quality=assured+demographic+data+of+all+
citizen+of+Sweden+(national+citizen+id)
• Quality=assured+care+provider+directory+
(organization,+offering,+personnel)
! "#$%

22. Innovation(resource 6:
A(national(PHR(for(personal(storage of health data
• Available+to+all+citizens+for+storage+of+
health+data
• Read/write+API&'(
)%

24. National+Virtual EHR
Provider Directory
Patient+Directory
EHR+(x+
3000)
Citizen=
facing
apps
Quality
registry
(100)
Swedish+HIN
Patient=
and+
employee=
facing
apps
Notification
Identity provider
API+for+
patient=
directed
sharing
API+for+trusted
parties
Open
Data
EHR+(x+
3000)EHR+(x+
3000)EHR+
(3000)
Quality
registry
(100)
Quality
registry
(100)
Innovation(arena(B:(Healthcare
= All+data+is+accessible
= Care+providers+decide+which+apps+to+offer
= Read+&+write+access+to+EHR+data
= No+access+to+PHR
Innovation(arena(A:(Personal(health
= EHR+and+PHR+access+requires+patient+grant
= “No”+restrictions+on+data+use
= Read+access+to+EHR
= Read/write+Access+to+PHR
PHR
Resquest
&response
6 5
4
3
21

25. • Patients
• Providers
• Industry
• Academia
• Policymakers
STAKEHOLDERS
(WHO/WHY/WHAT)

26. Create a service or other solution based on the
infrastructure and data available in Sweden.
Something not existing today that you can
imagine for the future.
CHALLENGE
(YOURSELF)

27. THE WORKSHOP
COLLABORATIVE INNOVATION
SUMMARY
CHALLENGE
IDEATION
PRIORITY
POLISHING
PITCH

28. – Scott Adams
“Creativity is allowing yourself to make mistakes.
Art is knowing which ones to keep.”

29. http://qrs.ly/4w4vk54
This presentation:

30. Thank
you!
@sarariggare
sara.riggare@ki.se
@mariahagglund
Maria.hagglund@ki.se
johan.eltes@ki.se
@evainspirerad
eva@nervelabs.se
@olacornelius
ola@nervelabs.se