My talk for the Design Thinking in Healthcare Plenary at the 2017 Pediatric Academic Societies Meeting

1. Design Thinking for Academic Researchers
Joyce Lee, MD, MPH
Twitter: @joyclee
http://www.doctorasdesigner.com/
@joyclee

2. Clinical/Translational Research
Controlled
Clinical Trials/
Studies
Healthcare
Delivery
Basic
Research
T1 T2
@joyclee
• Burden & Association of Obesity and Chronic Disease Risk
• Examining the ADA Screening Policy for T2D in
overweight/obese children
• T1D Outcomes

3. Epidemiology/Biostatistics
Clinical Research
NHANES/CCS/Medicaid data
Physician Surveys
Cost-effectiveness
Child Health Policy Modeling
@joyclee
Research Toolbox

4. @joyclee

5. Grant Support for Design Thinking
• Learning Health Systems for Type 1 Diabetes (T1D
Exchange)
• Patient-centered Data Visualizations for Diabetes
(AHRQ R21)
• Nightscout Project (PCORI)

6. Epidemiology/Biostatistics
Clinical Research
NHANES/CCS/Medicaid data
Physician Surveys
Cost-effectiveness
Child Health Policy Modeling
@joyclee
Research Toolbox
Design Ethnography/Research
User Experience/Interaction
Design
Participatory Design

7. Design will help you ask and answer the right research
questions
Design will improve the user experience of research
Design will lead to greater levels of engagement and
participation by patients in research
@joyclee
Hypotheses

8. @joyclee

9. @joyclee

10. @joyclee

11. @joyclee

12. @joyclee

13. Italy
UK
Sweden
Bulgaria
Spain
Canada
Australia
Finland
Czech+Slovakia
New Zealand
Croatia
Israel
South Africa
Hungary
France
Switzerland
Belarus
Japan
Korea
8000+
Int’l
Poland
Romania
Denmark
Portugal
Turkey
Russia
Norway
Brasil
Germany
20,000+
US
@joyclee

14. “What one person knows, everybody knows…So it’s
travelling at the speed of light.”
Open Source Code

15. @joyclee
“A cyberteam of self-motivated people with a collective vision, enabled
by the Web to collaborate in achieving a common goal by sharing
ideas, information, and work”
-Peter Gloor in Swarm Creativity
Collaborative Innovation Network
Leadership Development Team Support “Makers”

16. @joyclee

17. To promote the participation of patients and caregivers
throughout the research life cycle (ideation to dissemination)
To utilize the tools of mobile technology and social media for
conducting research
To accelerate the research lifecycle in Type 1 Diabetes
@joyclee
PCORI Eugene Washington PCORI Engagement Award (1442-UMich).

18. Design Ethnography
Secondary Analysis of Facebook Group Conversations
Participatory Design with Patient Partners
Active in the strategic design and execution of a
research collaborative
Community Engagement through Design Workshops
Use of Design in Research
@joyclee

19. Community Workshops
@joyclee

20. @joyclee

21. @joyclee

22. @joyclee

23. Nightscout Study Design and Governance
Use of Open Humans Platform
Nightscout Foundation Data Commons
Community-Driven Communications
@joyclee

24. OpenHumans.org
“Projects” or “IRB-covered Research Projects”
Participants decide with whom to share their data
Deidentified data, but capacity for messaging participants
@joyclee

25. Nightscout Study Design and Governance
Use of Open Humans Platform
Nightscout Foundation Data Commons
Community-Driven Communications
@joyclee

26. Nightscout Foundation Data Commons
Data is “owned” by the community
Academic Researchers are a beneficiary of data donation
@joyclee

27. Nightscout Study Design and Governance
Use of Open Humans Platform
Nightscout Foundation Data Commons
Community-Driven Communications
@joyclee

28. Nightscout Study Communication
@joyclee

29. Design will help you ask and answer the right research
questions
Design will improve the user experience of research
Design will lead to greater levels of engagement and
participation by patients in research
@joyclee
Hypotheses

30. Emily Hirschfeld, Ashley Garrity, Sarah Clark, Mark
Newman, Nancy Benovich Gilby, Jacob Dwyer, CGM in
the Cloud Community
Eugene Washington PCORI Engagement Award (1442-UMich)
Email: joyclee@med.umich.edu
Twitter: @joyclee
http://www.doctorasdesigner.com
It Takes a Virtual Village
John Costik, Dana Lewis, Weston Nordgren, James
Wedding, Ben West
@joyclee

32. Takeaways
Design is learned by doing and learning from a
diverse set of colleagues
Participatory design that engages
patients/caregivers as partners is critical for
designing research that matters
Use strategic grantsmanship to support your
design work
@joyclee