My slides for the panel discussion about Patient Engagement in Healthcare at the Detroit Healthcare Leaders Forum. http://www.detroitchamber.com/hclf/

1. Patients as Partners:
Engaging People in Their Care
Joyce Lee MD, MPH
Panel Discussion with Dee Edington

2. I have no ties to any
pharmaceutical companies
Social Media/Web Editor
of JAMA Pediatrics

3. Clinical/Health Services Research
Obesity/Diabetes
Mobile Technology/Online Communities
Design of QI/Learning Health Systems

4. Folk in black turtlenecks and designer
glasses working on small things like the
Apple Watch
Medical Designer?

6. “B”

7. Healthcare Problem #1
“Patients frequently do not understand
how and when to use [the epi-pen].”
Sicherer, 2011

9. >15,000
Unintentional injections
From Epi-Pens in the US
between 1994-2007
“Including nurses, paramedics,
and physicians”

10. Healthcare Problem #2
“Children had only used their EpiPen
device in 29% of recurrent anaphylaxis
reactions. This is perhaps unsurprising
because a fear of needles/injections is
common”
Sicherer, 2011

12. Healthcare Problem #3
“patients often forget [the device],
allow it to expire”
Sicherer, 2011

14. Blackberry iPhone

15. Is it a Patient Problem?
-or-
Is it a Healthcare System
Design Problem?

16. Redesign #1

17. Redesign #2
“To inject place black
end into outer thigh.
5-4-3-2-1
Injection complete.
Seek emergency medical
attention”

18. Redesign #3

20. Patient problems
are really
design problems
Joyce Lee, MD
Medical Designer

21. Fix the design,
and it’s no longer the
patient’s problem
Joyce Lee, MD
Medical Designer

22. Let patients and caregivers
design, and they will
fix the problem!
The Nightscout
Project

23. What are some of the current
shortfalls in the design of the
healthcare system?

26. How can consumers/patients
be more in the conversation,
what kind of insights can
they provide that the
consultants and employers
and providers can’t?

27. User-centered
Design

28. What are the key challenges to
employers/patients to making
better health care decisions?
How do we properly align
incentives and values so we are
making progress?

31. Learning Health Systems
Quality Improvement (Outcomes)
Knowledge Networks (Virtual/In person)
Tools (Real-time metrics/pt-facing tools)

32. What are some innovations or
disruptors that you see
changing the health care
landscape?

36. CGM in the Cloud (Facebook Group)
12,000 members

38. Only pt with NGLY-1
16 cases worldwide
Parent group as organized
Preliminary Treatments
Clinical Trials

40. How do you compel employees
to make long-term behavioral
changes to improve their long-
term health?

44. The End of Sitting
Rietveld Architecture-Art Affordances