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IVF patients' preferences
    in service design




      Jan Kremer & Wouter Tuil
   Radboud University Nijmegen MC
INTRODUCTION

                           2001




Saturday, April 21, 2012          2
INTRODUCTION
• Preliminary research (Haagen et al. 2003)
       –    Patients are online                                       (81%)
       –    Patients are on the internet for medical purposes         (54%)
       –    Patients want online interaction with their physician     (69%)
       –    Patients want online access to their medical records      (82%)


• Based on these findings the virtual IVF clinic
  was created
                                       Human Reproduction Vol.18, 2073, 2003

Saturday, April 21, 2012                                                       3
VIRTUAL IVF CLINIC
                           2003




Saturday, April 21, 2012          4
VIRTUAL IVF CLINIC

• Interactive website
       – General information
       – Personal information
       – Communication


• Promote patient empowerment
• Safe, secure and efficient

Saturday, April 21, 2012        5
VIRTUAL IVF CLINIC

        Generic                  Personal
                                                 Communication
      Information              information
 •   IVF treatment         •   Medical record    • Chat
 •   Clinic                •   Dayplanner        • Discussion forum
 •   FAQ                   •   Embryo-pictures   • E-mail
 •   Stories               •   Prognosis
 •   Links                 •   Correspondence
 •   Literature
 •   Videos




Saturday, April 21, 2012                                              6
RESEARCH QUESTIONS

 1. Use and usefulness of the website

 1. What are the time-dynamics of the website?
                • Weeks, Treatment phase


 2. Types of online behavioral styles?


Saturday, April 21, 2012                     13
METHODS
• Questionnaire (n=54)
       – Demographics
       – Usefulness of the website


• Automated logging of viewed pages (n=1050)
       – User
       – Requested functionality
       – Date & time

Saturday, April 21, 2012                       14
1. USE AND USEFULNESS




Saturday, April 21, 2012   15
USE and USEFULNESS
                                                     Useful
General information (top 3)
1. Frequently Asked Questions                         88 %
2. Information about the clinic                       67 %
3. Information about the treatment                    63 %

Personal information (top 3)
1. Medical Record                                     96 %
2. Day planner                                        92 %
3. Embryo photos                                      79 %
Communication
1. E-mail                                             77 %
2. Discussion forum                                   73 %
3. Chat                                               58 %


Saturday, April 21, 2012             Tuil et al. Hum Reprod. 2006: 2955-9.   16
USE and USEFULNESS
                                                     Useful                  Pageviews
General information (top 3)
1. Frequently Asked Questions                         88 %                     7,9
2. Information about the clinic                       67 %                     8.8
3. Information about the treatment                    63 %                     62,2

Personal information (top 3)
1. Medical Record                                     96 %                     36,0
2. Day planner                                        92 %                     30,4
3. Embryo photos                                      79 %                     50,1
Communication
1. E-mail                                             77 %                      2,4
2. Discussion forum                                   73 %                     139,5
3. Chat                                               58 %                     45,3


Saturday, April 21, 2012             Tuil et al. Hum Reprod. 2006: 2955-9.               17
TIME DYNAMICS




Saturday, April 21, 2012   18
PAGEVIEWS OVER TIME

                        Communication (34.2%)                   General information (25.4%)
                        Personal Information (17.9%)            Navigation (22.4%)
             6000

             5000
 pageviews




             4000

             3000

             2000

             1000

               0
                    1        2      3      4        5       6          7         8          9     10
                                               weeks after first visit

Saturday, April 21, 2012                                 Tuil et al. Fertil Steril. 2009; 953-6        19
PAGEVIEWS PER TREATMENT PHASE
                                           Generic Information                  Patient specific                    Communication
 Pageviews per visitor per day (CI)




                                                                                 Information
                                      12

                                      10

                                      8

                                      6

                                      4

                                      2

                                      0
                                           T1   T2   T3      T4     T5     T1     T2     T3      T4     T5     T1     T2      T3     T4   T5
                                                     T1: pretreatment T2: stimulation T3 opu&et T4: luteal phase T5: posttreatment



Saturday, April 21, 2012                                                                 Tuil et al. Fertil Steril. 2009; 953-6                20
3. BEHAVIORAL STYLES




Saturday, April 21, 2012   21
BEHAVIORAL STYLES (factor analysis)
                               Individual    Generic information Communication
Content Type
                           information style        style            style
Medical records                   0.89              0.23             0.30
Treatment information             0.89              0.30             0.30
Personalised prognosis            0.80              0.31             0.22
FAQ                               0.67              0.40             0.12
Downloadable documents            0.67              0.39             0.29
Day planner                       0.46              0.41             0.23
Literature                        0.20              0.71             0.17
General information               0.45              0.62             0.23
External links                    0.25              0.62             0.17
Website help                      0.20              0.61             0.13
Hospital information              0.48              0.60             0.23
Bulletin board (viewing)          0.38              0.24             0.86
Bulletin board (posting)          0.14              0.14             0.83
Chatroom                          0.24              0.25             0.62
Saturday, April 21, 2012                 Tuil et al. Hum Reprod. 2008:2501-5   22
BEHAVIORAL STYLES (prevalence)

                               Individual         Generic      Communication
                                                                                          n (%)
                           information style information style     style
None of the
                                  ○                ○                     ○              411 (35.7%)
styles
One of the styles                 ●                ○                     ○              195   (17.0%)
                                  ○                ●                     ○              156   (13.6%)
                                  ○                ○                     ●               52    (4.5%)
Two of the styles                 ●                ●                     ○              138   (12.0%)
                                  ●                ○                     ●               66    (5.7%)
                                  ○                ●                     ●               60    (5.2%)
All three styles                  ●                ●                     ●               72    (6.3%)




Saturday, April 21, 2012                          Tuil et al. Hum Reprod. 2008:2501-5               23
BEHAVIORAL STYLES (dominance)
      40%                                                                   38%
      35%                                     33%
      30%                 29%
      25%
      20%
      15%
      10%
       5%
       0%
                   Generic information Personal Information          Communication


12 november 2008                            Tuil et al. Hum Reprod. 2008:2501-5      24
DETERMINANTS OF BEHAVIORAL STYLES

      Personal information style:
              Sharing emotions (p=0.028)
              Paid employment (p=0.007)

      Generic information style:
              Depression (p=0.028)

      Communication style:
              Anxiety (p=0.005)
              Paid employment (p=0.021)

Saturday, April 21, 2012              Tuil et al. Hum Reprod. 2008:2501-5   25
CONCLUSIONS




Saturday, April 21, 2012   26
CONCLUSIONS
• The majority of functions are used and perceived as useful
     – Discussion forum is used most frequently
     – Personalized information is valued as most useful


• Usage varies greatly over time
     – High number of page views during the OPU and ET
     – Information at the beginning and communication at the end of treatment


• There are three types of online behavior styles
     – Personal information, generic information and communication
     – Anxiety, depression and employment are determinants of these styles


Saturday, April 21, 2012                                                     27
Patients play a crucial role
     in service design




     @JKNL and @WouterTuil

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Berlin design 2012

  • 1. IVF patients' preferences in service design Jan Kremer & Wouter Tuil Radboud University Nijmegen MC
  • 2. INTRODUCTION 2001 Saturday, April 21, 2012 2
  • 3. INTRODUCTION • Preliminary research (Haagen et al. 2003) – Patients are online (81%) – Patients are on the internet for medical purposes (54%) – Patients want online interaction with their physician (69%) – Patients want online access to their medical records (82%) • Based on these findings the virtual IVF clinic was created Human Reproduction Vol.18, 2073, 2003 Saturday, April 21, 2012 3
  • 4. VIRTUAL IVF CLINIC 2003 Saturday, April 21, 2012 4
  • 5. VIRTUAL IVF CLINIC • Interactive website – General information – Personal information – Communication • Promote patient empowerment • Safe, secure and efficient Saturday, April 21, 2012 5
  • 6. VIRTUAL IVF CLINIC Generic Personal Communication Information information • IVF treatment • Medical record • Chat • Clinic • Dayplanner • Discussion forum • FAQ • Embryo-pictures • E-mail • Stories • Prognosis • Links • Correspondence • Literature • Videos Saturday, April 21, 2012 6
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  • 13. RESEARCH QUESTIONS 1. Use and usefulness of the website 1. What are the time-dynamics of the website? • Weeks, Treatment phase 2. Types of online behavioral styles? Saturday, April 21, 2012 13
  • 14. METHODS • Questionnaire (n=54) – Demographics – Usefulness of the website • Automated logging of viewed pages (n=1050) – User – Requested functionality – Date & time Saturday, April 21, 2012 14
  • 15. 1. USE AND USEFULNESS Saturday, April 21, 2012 15
  • 16. USE and USEFULNESS Useful General information (top 3) 1. Frequently Asked Questions 88 % 2. Information about the clinic 67 % 3. Information about the treatment 63 % Personal information (top 3) 1. Medical Record 96 % 2. Day planner 92 % 3. Embryo photos 79 % Communication 1. E-mail 77 % 2. Discussion forum 73 % 3. Chat 58 % Saturday, April 21, 2012 Tuil et al. Hum Reprod. 2006: 2955-9. 16
  • 17. USE and USEFULNESS Useful Pageviews General information (top 3) 1. Frequently Asked Questions 88 % 7,9 2. Information about the clinic 67 % 8.8 3. Information about the treatment 63 % 62,2 Personal information (top 3) 1. Medical Record 96 % 36,0 2. Day planner 92 % 30,4 3. Embryo photos 79 % 50,1 Communication 1. E-mail 77 % 2,4 2. Discussion forum 73 % 139,5 3. Chat 58 % 45,3 Saturday, April 21, 2012 Tuil et al. Hum Reprod. 2006: 2955-9. 17
  • 19. PAGEVIEWS OVER TIME Communication (34.2%) General information (25.4%) Personal Information (17.9%) Navigation (22.4%) 6000 5000 pageviews 4000 3000 2000 1000 0 1 2 3 4 5 6 7 8 9 10 weeks after first visit Saturday, April 21, 2012 Tuil et al. Fertil Steril. 2009; 953-6 19
  • 20. PAGEVIEWS PER TREATMENT PHASE Generic Information Patient specific Communication Pageviews per visitor per day (CI) Information 12 10 8 6 4 2 0 T1 T2 T3 T4 T5 T1 T2 T3 T4 T5 T1 T2 T3 T4 T5 T1: pretreatment T2: stimulation T3 opu&et T4: luteal phase T5: posttreatment Saturday, April 21, 2012 Tuil et al. Fertil Steril. 2009; 953-6 20
  • 21. 3. BEHAVIORAL STYLES Saturday, April 21, 2012 21
  • 22. BEHAVIORAL STYLES (factor analysis) Individual Generic information Communication Content Type information style style style Medical records 0.89 0.23 0.30 Treatment information 0.89 0.30 0.30 Personalised prognosis 0.80 0.31 0.22 FAQ 0.67 0.40 0.12 Downloadable documents 0.67 0.39 0.29 Day planner 0.46 0.41 0.23 Literature 0.20 0.71 0.17 General information 0.45 0.62 0.23 External links 0.25 0.62 0.17 Website help 0.20 0.61 0.13 Hospital information 0.48 0.60 0.23 Bulletin board (viewing) 0.38 0.24 0.86 Bulletin board (posting) 0.14 0.14 0.83 Chatroom 0.24 0.25 0.62 Saturday, April 21, 2012 Tuil et al. Hum Reprod. 2008:2501-5 22
  • 23. BEHAVIORAL STYLES (prevalence) Individual Generic Communication n (%) information style information style style None of the ○ ○ ○ 411 (35.7%) styles One of the styles ● ○ ○ 195 (17.0%) ○ ● ○ 156 (13.6%) ○ ○ ● 52 (4.5%) Two of the styles ● ● ○ 138 (12.0%) ● ○ ● 66 (5.7%) ○ ● ● 60 (5.2%) All three styles ● ● ● 72 (6.3%) Saturday, April 21, 2012 Tuil et al. Hum Reprod. 2008:2501-5 23
  • 24. BEHAVIORAL STYLES (dominance) 40% 38% 35% 33% 30% 29% 25% 20% 15% 10% 5% 0% Generic information Personal Information Communication 12 november 2008 Tuil et al. Hum Reprod. 2008:2501-5 24
  • 25. DETERMINANTS OF BEHAVIORAL STYLES Personal information style:  Sharing emotions (p=0.028)  Paid employment (p=0.007) Generic information style:  Depression (p=0.028) Communication style:  Anxiety (p=0.005)  Paid employment (p=0.021) Saturday, April 21, 2012 Tuil et al. Hum Reprod. 2008:2501-5 25
  • 27. CONCLUSIONS • The majority of functions are used and perceived as useful – Discussion forum is used most frequently – Personalized information is valued as most useful • Usage varies greatly over time – High number of page views during the OPU and ET – Information at the beginning and communication at the end of treatment • There are three types of online behavior styles – Personal information, generic information and communication – Anxiety, depression and employment are determinants of these styles Saturday, April 21, 2012 27
  • 28. Patients play a crucial role in service design @JKNL and @WouterTuil