UMass Medical School, Lamar Soutter Library: Informationist
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Presentation describing NIH-funded informationist project at UMass Medical School. Given at eScience Professional Development Day, November 2012.
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UMass Medical School, Lamar Soutter Library: Informationist
- 1. Librarian > Informationist New Role, New Hat Sally Gore, MS, MS LIS Lamar Soutter Library University of Massachusetts Medical School “Promoting Breast Cancer Screening in Non-Adherent Women” Principal Investigators: Roger Luckmann, MD and Mary Costanza, MD September 6, 2012
- 2. The STUDY: R01 CA-132935 Promoting Breast Cancer Screening in Non-Adherent Women + +
- 3. The RESEARCH TEAM: PEOPLE, PLACES UMass Medical School Family & Community Medicine Principal Investigator Project Director Scheduler, Counselor Instructor Administrative Secretary Medicine Principal Investigator Behavioral Psychologist Biostatistics Biostatistician Analyst Center for Health Policy & Research Director, Expert in Cost Analysis Research Assistant Library Informationist Fallon Community Health Plan Claims Data Representative Reliant Medical Group Research Director Research Coordinator Site Project Director Analyst IT Guru Chief of Radiology Phone Counselors Phone Schedulers Primary Care Physicians Claricode Programmer
- 4. The DATA: AND THINGS STAGING DATA CLAIMS DATA TRACKING SYSTEM DATA ANALYTIC DATA
- 5. + an INFORMATIONIST AIM 1: Improve effectiveness and efficiency of communication w/in team regarding data AIM 2: Articulate technology issues related to implementation of the study AIM 3: Enhance information organization, management, utilization, and access skills of team members AIM 4: Assess value of an informationist to the research team
- 6. AIM 1: IMPROVE COMMUNICATION Develop a catalogue of analytic terms, i.e. a comprehensive data dictionary Develop a standard data request form
- 7. AIM 2: ARTICULATE ISSUES Define the issues encountered during development of the tracking system / database Discover literature related to the topic Identify the gaps in existing literature Develop an electronic catalog of relevant publications and resources Write and publish a paper on the topic
- 8. AIM 3: ENHANCE SKILLS Assist in systematic review of telephone outreach interventions to increase adherence to mammograms Develop system for collection, distribution, and review of articles Prepare and maintain timeline for project Develop catalog of relevant resources on development and evaluation of screening / preventive interventions Establish and/or define rules Set criteria Create maintenance features
- 9. AIM 4: ASSESS VALUE Informationist’s PERSPECTIVE Research Team’s PERSPECTIVE Process Evaluation Reports Focus Group Individual Interviews http://librarianhats.net
- 10. Today: TOMORROW Classifying/Organizing Data Outputs Developing Data Dictionary Integrated Into Team Assess Data Organization Tools Developing Data Request Form 09-2012 03-2013 Identify and Define IT Issues Identify and Organize Literature 08-2013 Information Skill Building Develop Review Processes Process Evaluation Manuscript Preparation (IT Issues) 01-2014 Systematic Review Drafts Develop Review Catalog
- 11. THANK YOU
Notas del editor
- Introduction“Promoting Breast Cancer Screening in Non-Adherent Women”, is a 3-arm randomized trial comparing two forms of outreach to women coming due or overdue for a screening mammogram to the usual practice of a mailed reminder recommending getting a mammogram. One intervention involves the standard reminder letter, followed, if no response, by a scheduler call. The other intervention is a stepped approach that begins with the standard reminder letter and then, if no response, escalates to a second reminder letter and educational booklet. This followed, if no response, by a telephone call from a trained counselor who employs specific behavioral change methods to encourage women to get a mammogram.
- Research Team Makeup:25+ individuals involved, not counting primary care physicians who must approve eligibility of patients – one check-pointLocated in basically 4 geographic locations – UMMS, Reliant Medical Group (healthcare providers), FCHP (insurer), Claricode (computer program consultants, Cambridge)
- Data, likewise, is generated and/or collected via four sources:STAGING DATA – Captures Reliant EMR data – things such as office visits; historical data on labs, prescriptions, procedures; updates demographic and insurance enrollment coverageCLAIMS DATA – Historical data of FCHP captured claims from 1997 forward; Patients with a Reliant Medical Group PCP, claims on services utilized by Reliant patientsTRACKING SYSTEM DATA – Patient responses from counseling and scheduling interviews, including the baseline survey; counselor/scheduler call log entries and call outcomes - ~ 350 variablesANALYTIC DATA – Draws from other three sources, but also adds a number of new variables related to the specific outcomes soughtSummary – 4 sources, four locations, multiple people collecting/entering, 1000+ variables, etc.
- So, why did the research team feel like an informationist would benefit them?During conversations, 4 aims developed
- Give some specifics for each of these, so that you have an idea of what I’m expected to do and/or produce in my role.Improveeffectiveness and efficiency of communication w/in team regarding data
- Articulate technology issues related to implementation of the study Took well over a year – much longer than originally anticipated when the researchers wrote the grant – to develop the tracking system that would be used in the interventions, i.e. the schedulers and counselor calls. Why is this? What’s been written on it? Anything? What can the experience of this study share with future studies?
- Enhance information organization, management, utilization, and access skills of team membersMore “traditional” librarian skills; teaching information literacy, information management, biblographic software tools, etc. Systematic review – Something librarians have done for awhile, but new to me.
- Assess value of an informationist to the research teamProgress evaluation – taking minutes from meetings, writing reports, sharing notes, etc. – not very good at it, decided instead to use a blog to track, reflect upon my experiences. It’s been really fun and, admittedly, kind of cool to see the number of people who are reading it regularly – approximately 500/week, including members of the team.Eventually, we’ll begin to meet and discuss my thoughts – me, the two PIs, the project director, and other key members on the team.Towards the end of the supplement time, we’ll have focus groups for members of the research team, as well as individual interviews – gather qualitative data for analysis; answer question of how much value I brought to the study; how, why, etc.
- Finally, a quick look at the timeline – how I’m spending my time now and will continue to spend it in the future. Very general, but you can see how the work and the deliverables flow, how they overlap and/or inform one another, etc.