Presented at the Faculty of ICT, Mahidol University on September 28, 2016

1. 11
Ethical Issues in Social Media &
Privacy in Health
Nawanan Theera-Ampornpunt, MD, PhD
Department of Community Medicine
Faculty of Medicine Ramathibodi Hospital
Mahidol University
SlideShare.net/Nawanan
nawanan.the@mahidol.ac.th
September 28, 2016

2. 22
The Age of User-Generated Content
Time’s Person
of the Year 2006:
You

3. 33
Thailand Internet User Profile (2016)
• Electronic
Transactions
Development Agency
(Public Organization)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

4. 44
Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

5. 55
Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

6. 66
Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

7. 77
Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

8. 88
Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

9. 99
Let’s look at some
social media case studies...

10. 1010
Social Media Case Study #1
Disclaimer:
Presented for Academic
Discussions Only

11. 1111
Social Media Case Study #1
Disclaimer:
Presented for Academic
Discussions Only

12. 1212
http://news.mthai.com/hot-news/world-news/453842.html
Social Media Case Study #2

13. 1313
http://pantip.com/topic/33678081
https://www.facebook.com/photo.php?fbid=971229119583658&set=a.37957656541558
6.90794.100000897364762&type=1&theater
Social Media Case Study #3

14. 1414
http://www.matichon.co.th/news_detail.php?newsid=1429341430
Social Media Case Study #4

15. 1515
Social Media Case Study #5
Disclaimer:
Presented for Academic
Discussions Only

16. 1616
http://manager.co.th/Entertainment/View
News.aspx?NewsID=9580000076405
Social Media Case Study #6

17. 1717
Social Media Case Study #7
Real Message on
• "อาจารย์ครับ เมื่อวาน ผมออก OPD เจอ คุณ... คนไข้... ที่อาจารย์ผ่าไป
แล้ว มา ฉายรังสีต่อที่... ตอนนี้ Happy ดี ไม่ค่อยปวด เดินได้สบาย คนไข้
ฝากขอบคุณอาจารย์อีกครั้ง -- อีกอย่างคนไข้ช่วงนี้ไม่ค่อยสะดวกเลยไม่ได้
ไป กทม. บอกว่าถ้าพร้อมจะไป Follow-up กับอาจารย์ครับ"

18. 1818
Social Media Case Study #8

19. 1919
Social Media Case Study #9
Disclaimer:
Presented for Academic
Discussions Only

20. 2020
Social Media Case Study #10
Source: Facebook Page โหดสัส V2 อ้างอิงภาพจากหน้า 7 นสพ.ไทยรัฐ วันที่ 6 พ.ค. 2557 และ
http://www.reuters.com/article/2013/10/16/us-philippines-quake-idUSBRE99E01R20131016

21. 2121
From a forwarded message in “LINE” in
early July, 2015
Social Media Case Study #11:
Online Consultation

22. 2222
Social Media Case Study #12:
Hoaxes - PR Nightmare & Response
http://new.khaosod.co.th.khaosod.online/dek3/win.html (อันตราย! ไม่ควรเข้าเว็บนี้)

23. 2323
Social Media Case Study #12:
Hoaxes - PR Nightmare & Response

24. 2424
http://www.thairath.co.th/content/413776
Social Media Best Practice Resources

25. 2525
http://www.doctorcpr.com/blog/5-things-
doctors-should-never-post-on-social-
media/
Social Media Best Practice Resources

26. 2626
Risks of Social Media
• Blurring lines between personal & professional lives
• Work-life balance
• Inappropriate & unprofessional conduct
• False/misleading information
• Limitations & liability of online consultations
• Privacy risks

27. 2727
How Line Chats Can Violate Patient’s Privacy?
• Multiple viewers in a Line group
• Ability to capture screens or forward
• Posts in the wrong groups
• Cached data
• Unencrypted transmission (latest news: encrypted)
• Admin access to data in Line’s server
• Password Discovery

28. 2828
Social Media Case Study #13
http://sport.sanook.com/84101/น้องก้อย-โค้ชเช-จบยาก-อ.พิทักษ์-ขุดไลน์ปริศนาให้นักข่าวเผยแพร่/

29. 2929
Since social media come with risks
• Should people stop using it?
• Should CIO ban its use by
employees?

30. 3030
Maslow's Hierarchy of Needs
Image Source: http://en.wikipedia.org/wiki/Maslow's_hierarchy_of_needs

31. 3131
Why People Use Social Media?
• To seek & to share information/knowledge
• To seek & to share valued opinion
• To seek & to give friendship/relationship
• To seek & to give mental support, respect, love,
acceptance
• In simplest terms: To “socialize”

32. 3232
Some Social Media in Healthcare: PatientsLikeMe
PatientsLikeMe.com

33. 3333
Some Social Media in Healthcare: CaringBridge
CaringBridge.org

34. 3434
Why People Use Social Media in Healthcare?
• To seek & to share health information/knowledge
– Information asymmetry in healthcare
– Information could be general or personalized
• To seek & to share health-related valued opinion
• To seek & to give friendship/relationship
• To seek & to give mental support, respect, love,
acceptance during medical journeys
• To consult/socialize/give support among colleagues

35. 3535
• Richard Davies deBronkart Jr.
• Cancer survivor & blogger
• Found proper cancer treatment
through online social network after
diagnosis
• Activist for participatory medicine &
patient engagement through
information technology
Meet E-Patient Dave
http://www.epatientdave.com/

36. 3636
• Not “Electronic” Patient
• Engaged
• Equipped
• Empowered
• Educated
• Enlightened
• Etc.
Dave’s E-Patient Definition
From Dr. Danny Sands’ tutorial presentation at AMIA2013

37. 3737
So... How should we use
social media in healthcare as
health professionals?

38. 3838
• Technical solutions
– Restrict use of social media
– Secure platform
– “Secure messaging” applications
• Management solutions
– Organizational social media policy & enforcement
– User awareness training
– Organizational culture & best practices
Solutions for Proper Social Media Use in Healthcare

39. 3939
Organizational Policy on Social Media

40. 4040
Social Media Guidelines for Health
Practitioners Drafting Project
For National Health Commission
Nawanan Theera-Ampornpunt

41. 4141
• Continuous Professionalism
• Pausing Before Posting
• Professional Online Behaviors
• Privacy Settings and Separating Personal and
Professional Information
• Professional Boundaries with Patients and Others
• Respecting Privacy
Social Media Guidelines for Health Practitioners

42. 4242
• Non-Advertising
• Full Disclosure
• Self-Identification
• Avoiding Misrepresentation
• Fact Checking before Sharing
• Cautious Practice for Online Consultation
Social Media Guidelines for Health Practitioners