Sandwell and West Birmingham Hospitals partners with PKB to study how using a personal health record system can add value to diabetes care and promote self-management

1. 0%
10%
20%
30%
40%
50%
60%
70%
80%
Messages Blood tests Clinic letters Skype
Consultation
Adding
measurements
Adding Wearables Viewing
Documents from
library
Saving Time
Definitely saves time Sometime time saving Doesnot save time
46%
27%
27%
Ease of use
Easy Medium Difficult
66%
21%
13%
Registration process
Easy Medium Difficult
10%
27%
33%
13%
17%
Age
<25 25-40 40-50 50-60 >60
36.5%
66.3%
Gender Distribution
Males Females
0%
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40%
60%
80%
Used >once Used once Not used but
plan to use
Use of Secure Messaging
0%
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40%
50%
used more
than once
Used once Not used but
plan to use
No plans to
use
Online blood results
0%
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30%
40%
Used more than
once
Used once Not used but plan
to use
Clinical Correspondence
0%
5%
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15%
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25%
30%
Strognly
agree
Agree Not agree
nor disagree
Disagree Strongly
disagree
Control of own record
0%
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50%
60%
70%
Messages Blood tests Clinic letters Skype
Consultation
Adding
measurements
Adding
Wearables
Viewing
Documents
from library
Enhance Relationship
Definitely enhance relationship May enchance our relationship Doesnot save change our relationship
0%
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70%
Messages Blood tests Clinic letters Skype
Consultation
Adding
measurements
Adding
Wearables
Viewing
Documents from
library
Saving Cost
Definitely saves Money / cost Sometime save money / cost Doesnot save money / cost
Use of a Web-based Personal Health Record (Patients Know Best) to build
closer relationships with people with Type 1 Diabetes
A W Safi, A Basu, PH Davies
Sandwell General Hospital
Objective
We investigated to what extent a web-based personal health record system, "Patients Know Best" (PKB), could add value to diabetes care and promote self-management.
Methods
A PKB account was offered to each person attending our type 1 diabetes service. Basic functions include secure messaging, direct access to laboratory blood test results
and electronic receipt of clinic letters, with more advanced functions include Skype consultations, access to a resource library, storing & sharing measurements and
linking trackers & wearables. PKB is designed to be user-friendly, with no training required for patients to use. After 6 months PKB users were surveyed for their views.
Summary
Personal health records are popular with people type 1 diabetes and have potential to enhance their relationship with their healthcare team.
Evaluation of PKB: September 2015
6%
14%
50%
30%
Skype Consultation
Used More than once
Used once
Not used but plan to
use
No plans to use
14%
49%
37%
Tracker or wearable device
Used once
Not used but plan to use
No plans to use
Results: After 6 months 121 people with Type 1 diabetes had enroled and used PKB. Survey respondents were representative of our patient population, male:female
40:60 and median age 45. 73% had used PKB for more than 3 months. 73% found it easy/very easy to register; 60% found it easy/very easy to use. 92% had used secure
messaging, 64% had viewed blood test results online, 70% had received clinical correspondence, 14% had had a Skype consultation (50% said they planned to use in
future), 14% had added a tracker or wearable device (49% said they planned to use in future); 32% had added/stored Health-related measurements. 60% felt they owned/
fully controlled their PKB record. Time-saving potential was rated between 91-95%; cost-saving between 56-84%; enhancing the relationship with their diabetes team 71-
98% (highest perceived benefit came from secure messaging).