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MS CHELLAMUTHU TRUST & RESEARCH FOUNDATION

  1. A Lifeline of Hope Secrecy. Shame. Silence. Living with mental illness is never easy in any part of the world. But it can be more so in India.
  2. Recent scientific advances in psychiatry have ensured that all psychiatric illnesses are treatable if the illness is identified early, treatment initiated quickly and followed by appropriate rehabilitation. Despite the significance of timely and appropriate treatment, people suffering from mental illness and their care givers often face critical challenges that pose barriers to seeking basic quality mental health care. Some of them are: 4Lack of awareness about mental illness 4Inadequate human resource in the mental health sector 4Lack of accessibility to treatment centres 4High cost of treatment 4Stigma and discriminatory attitudes towards mental illness that delays treatment seeking behaviour Not surprisingly, in such circumstances, 4An acute illness becomes chronic 4A treatable illness becomes untreatable 4An able person becomes disabled The statistics are grim. According to the World Health Organization (WHO, 2011) 4Globally, one in four persons will experience some form of mental illness at some point in their lives. 4By 2020 mental illness will be the second most common form of illness across the world. 4In India, according to the National Mental Health Survey (NMHS, 2016), nearly 150 million people are in need of active mental health care 4Three out of four persons with a severe mental disorder experience significant disability in work, social and family life 4However, only 20% of people in the country received treatment 4Even fewer than this have access to rehabilitation services, which is an important component in the treatment of people with mental illness
  3. A Different Vision The lived experience of caring for a brother with mental illness and the stigma and discrimination experienced by the family sowed the seeds of Dr. Ramasubramanian’s vision of comprehensive rehabilitation services for people with mental disabilities. It created a deep desire in the “wounded healer” to offer not just medicines to people with mental illness, but new hope… to answer what every parent of a person with mental illness often fears, ‘what will happen to our child after us?’ To see persons with mental illness as assets to their families; not liabilities. Dr. Ramasubramanian hence established the M.S. Chellamuthu Trust and Research Foundation (MSCT&RF) in 1992 based on the personal experience of caring for a person with mental illness in the family and the lack of adequate mental health care services in Madurai. Mental health for all With a vision of mental health for all, the trust promotes holistic mental health care that is available, accessible and affordable. For more than two decades, MSCT&RF is the largest mental health services provider in south Tamil Nadu.
  4. Currently MSCT&RF offers the following services: 4Awareness: Mental health literacy for the community and specific populations such as teachers, students, parents, health care professionals, traditional healers and caregivers. 4Assessment & Treatment: Ahana Hospitals, Madurai, serves as our primary treatment providing centre. Services include detailed clinical evaluation, psychological assessments, pharmacotherapy and psychosocial interventions. 4Rehabilitation: Institution Based Rehabilitation (IBR) and community mental health services 4Vocational Training: Skill development and livelihood promotion 4Human Resource Training & Development: To bridge the gap between growing need for mental health services and inadequate mental health service providers, MSCT&RF has launched courses and training programmes on a wide array of mental health areas as part of their human resource and development initiatives. 4Research: Studies on psychosocial aspects of mental health, the impact of rehabilitation , with special focus on CBR (Community Based Rehabilitation) initiatives have been the areas of research activity. 4Advocacy and lobbying: Several ongoing initiatives with significant stakeholders such as the government, law, judiciary and policy makers for inclusion and mainstreaming of people with mental disabilities.
  5. Rehabilitation Services: Sowing the seeds of recovery… A person with mental disability needs more than just recovery from symptoms. The field of psychiatric rehabilitation treats the consequences of the illness rather than just the illness per se.The circle of treatment is complete only with successful rehabilitation that identifies the person’s unique abilities and provides appropriate training to make them independent and self-reliant. At MSCT&RF, rehabilitation services are designed to promote recovery from mental disability and foster integration with society. A passionate commitment to honour and respect the dignity and humanity of the patients forms the core of the rehabilitation vision of MSCT&RF. Spurred by a belief that recovery from mental disability is everybody’s business, the rehabilitation services work closely with the patient, the family and mental health professionals to add more meaning, purpose and satisfaction to the patient’s life. At MSCT&RF, the rehabilitation services sow and nurture the seeds of recovery through creative programming. The trust offers comprehensive rehabilitation services for diverse population groups such as 4Children 4Adult 4Elderly 4Homeless persons with mental illness The services include institution based rehabilitation, community mental health services and support services.
  6. Institution Based Rehabilitation: Restoring dignity and well being Aakaash (Centre for rehabilitation of differently abled children) Established in 1995, the day care centre provides a spectrum of rehabilitation services for children (ages six years to 16 years) with diverse conditions such as mental retardation, autism and Down’s syndrome. A multi disciplinary team of mental health professionals work together to improve the functional abilities and quality of life of children with mental retardation and developmental disorders. Since inception, the centre has made all the difference in the lives of around 5000 children. At Aakaash, disability is no barrier to fun and learning! The planned and therapeutic activities are customised to the needs and disability status of the individual. Besides Individualised Education Plan (IEP), stimulating classroom activities, regular medical care, well equipped vocational training units and field trips and picnics with the parents ensure that for the children, disability is not the end of the road! Most children at Aakaash are from the nearby villages where poverty and low levels of literacy and inadequate awareness are widespread. Hence MSCT&RF provides education, transport, food and uniforms free of charge. Centre for rehabilitation of differently abled adults As the children transition to adulthood, this 40-bed residential centre provides comprehensive rehabilitation services for adults with mental retardation. Established in 2008 in Tirumohur village, 20 km from Madurai, persons above 16 years, both male and female, are eligible to avail the services. The centre offers a range of vocational training activities that include gardening, domestic skills, candle making, tailoring, making incense and packaging pulses.
  7. Centres for rehabilitation of persons with mental illness Shrishti (Short Term Care Centre) Established in 1992, the short term residential care centre is based in Musundaragiripatti village, 25 km from Madurai. Located in lush green premises, this 45-bed centre addresses the rehabilitation needs of women and men with psychiatric disabilities. A multi disciplinary team of mental health professionals provide individual and group rehabilitation services to enhance the quality of life of persons with psychiatric disabilities through appropriate interventions. Bodhi (Short term and long term care centres) Located in the scenic foothills of Alagarkoil, 30 kms from Madurai, the 90-bed centre provides short and long term residential care for women and men with psychiatric disabilities. The important psychosocial interventions consist of individual and group counselling, training in activities of daily living (ADL), social skills training, customised innovative agro based interventions, animal husbandry and micro enterprises.
  8. Vriksha (Rehabilitation Centre for Women) This is an exclusive 26-bed centre for women with psychiatric disabilities. Established in 1998, Vriksha is located in the centre of the city, and provides residential care. The main psychosocial intervention consists of micro enterprises as a livelihood initiative. Rescue home and rehabilitation centre for homeless persons with mental illness The secrecy, shame and silence surrounding mental illness often forces families to abandon family members with mental illness —more often at pilgrim cen- tres. In several instances, affected persons also wander out of their homes on their own and are unable to be traced by the families. The rescue home and rehabilitation centre for homeless persons with mental illness, a novel initiative, an instance of public-private partnership in collabora- tion with the state government, addresses the widespread incidence of home- less persons with mental illness. Currently there are three such rescue homes and rehabilitation centres in Madurai (2009), Ramnad (2009) and Dindugul (2014) districts. Since inception the centres have rescued and rehabilitated 2000 abandoned persons with mental illness, provided them treatment and reunited them with their families.
  9. Out of Mind, Out of Sight H e was a familiar sight in a well known residential area in Madurai. Matted and tangled hair, dirty torn clothes, a glazed look in his eyes, often muttering and laughing all by himself… his body and mind may have been battered beyond recognition by the ravages of mental illness, but his soul was still unharmed… needless to say, most passers by ignored him and went on with their busy lives… Anonymous, alone and adrift, he would have been yet another nameless faceless statistic—just one among the 10 million homeless wandering mentally ill persons in the country. Fortunately, he was rescued by the team from MSCT&RF, Madurai, and taken to the rescue and rehabilitation home for the wandering mentally ill persons. Renamed Shanmugam, he was provided acute psychiatric medical care. Gradually, over a period of one month, Shanmugam’s symptoms began to subside and he seemed to recover aspects of his self and reclaim his identity as Ramanathan, who lived in Chennai. He recalled his father’s phone number and that his father worked in a pharmacy in Chennai. Armed with this vital piece of information, the staff of MSCT&RF contacted the father. Meanwhile Ramanathan was given appropriate rehabilitation that also included sufficient training in Activities of Daily Living (ADL) such as self-care, dressing and grooming. Ramanathan’s father was overjoyed to know the whereabouts of his son. He told the MSCT&RF staff that Ramanathan was being treated in Chennai for schizophrenia. However, one day he suddenly wandered out of the house and could not be traced. The desperate father lodged an FIR (First Information Report) with the police but was unable to trace him. On World Schizophrenia Day on March 25, 2015, Ramanathan was reunited with his family. Currently he is symptom-free and works in a pharmacy in Chennai. A diagnosis of mental illness is not a full stop to life. With timely andappropriate interventions, there is life after mental illness… a quality of life that enables the affected persons live with dignity and well being. The rehabilitation initiatives of MSCT&RF are evidence of this in both letter and spirit. Anonymous, alone and adrift, he would have been yet another nameless faceless statistic—just one among the 10 million homeless wandering mentally ill persons in the country.
  10. Centre for rehabilitation of persons dependent on alcohol and other substances Trishul (Centre for rehabilitation of persons dependent on alcohol and drugs) Established in 1995, Trishul is a 30-bed centre that provides rehabilitation services for persons dependent on alcohol and drugs. Its committed team of mental health professionals works towards improving the quality of life of such persons through appropriate interventions that include medical treatment, individual and group counselling and family counselling. The centre conducts awareness programmes for the community and treatment camps in villages and has successfully rehabilitated more than 10,000 patients.
  11. Community mental health services: Reaching the Unreachable MSCT&RF provides mental health services at the door step of people living in rural areas. In rural areas, having a mentally ill person in the family results in several crushing burdens. Among them are lack of access to appropriate treatment facilities, loss of a day’s income in accompanying patients for treatment and poor transport facilities. The Community Mental Health Project (CMHP) CMHP was launched in 2000 in Madurai East Block, supported by Andheri Hilfe, a German agency. Since 2014, the project has been extended to Madurai West and Natham block. The project provides prevention, treatment and rehabilitation services to women, men and children with mental disabilities in rural areas. Since inception of the project, 2100 people have availed its services. Working towards bringing sustainable community based mental health care to the doorstep of the people, the interventions consist of the following activities: awareness building, early identification of disability and appropriate treatment, rehabilitation services (home based, day care), formation of caregivers’ associations, formation of Self Help Groups, mental health education and research.
  12. Bringing togther mental health and religion Recognising the close relationship between religion and mental health, MSCT&RF launched its community mental health services in faith-based centres such as the dargah, the church and community mental health camps conducted by Hindu spiritual organisations. Dava (medicine) and Dua (faith) project: The Erwadi fire incident occurred on 6 August 2001, when 28 inmates of a faith-based mental asylum died in a fire accident. Therefore in 2014, MSCT&RF launched the Dava (medicine) and Dua (faith) project in Ramnad District. This novel initiative incorporates the practice of integrating religion in the medical management of psychiatric illness—all under one roof. Patients are examined by a team of qualified mental health practitioners in the dargah premises itself. Faith healers work in tandem with the mental health team and because of their involvement and motivation, patient compliance with treatment is high and outcomes are satisfactory. Community mental health camp: The monthly community mental health camp at Sivakasi, an industrial town 80 km from Madurai, is another such initiative. It is being conducted since 2001 in collaboration with volunteers of the Sathya Sai Samiti, Sivakasi. With a focus on identification and treatment of mental illness, the camp provides treatment, medicines and food—free of charge to all patients. Trained volunteers facilitate placement of recovered people in industrial units in and around Sivakasi.
  13. Tele psychiatry Our telepsychiatry service is the second largest in Tamil Nadu. It reaches patients and challenges barriers to availability and accessibility of affordable basic mental health care. Hewlett Packard (HP)-India, as part of its CSR (Corporate Social Responsibility) initiative, sponsored a mobile telepsychiatry care unit, ‘Ananya’ to MSCT&RF. The mobile unit is equipped with facilities like physical examination couch, ECG Unit, medical consultation cabin and video conferencing facility. Furthermore, using other cutting edge technology, our service reaches unreachable segments of the population. It is a cost effective and time saving strategy with medications being delivered to patients right at their doorstep. Consultations and telecounselling services are offered both within and outside the country. A 24/7 helpline is available for crisis intervention such as suicide prevention and post traumatic stress and also to enable people to access information regarding our services. Support services Recognising the impact of mental illness on families and caregivers, MSCT&RF has launched supportive programmes for them. These include: 4Caregivers’ network (Subitcham); 4Siblings’ network (Synergy); 4Mental health volunteers network (Share) and 4Legal aid services. The members of Subitcham, Synergy and Share initiatives meet once a month to draw strength, inspiration and fellowship from their shared experiences of living with persons with mental disability. The activities include psycho education, counselling, skill development and lobbying. The legal aid services are offered free of charge to sensitise persons with disabilities and their families about their legal rights and provide legal support and protection to persons with disabilities. The services are offered weekly on Tuesdays and Saturdays between 2 pm - 5 pm.
  14. Vocational Training and Livelihood Promotion Centre for Vocational rehabilitation and placement In order to enable people with mental disabilities acquire work and social skills that would make them employable, MSCT&RF offers training in vocational activities such as tailoring, book binding, screen printing, carpentry and baking.
  15. Dairy farming rehabilitation and Agro-based rehabilitation In 2015, the trust launched a three-month skill development programme in dairy farming for persons who have recovered from mental disabilities—a landmark public-private partnership. The course is a collaborative effort of MSCT&RF and the Tamil Nadu Veterinary and Animal Sciences University (TNVASU), Chennai. The course is the first of its kind in the country. Eligible candidates on completion of training are provided a subsidy loan through the District Administration, Madurai, to promote and foster vocational independence. Residents of the rehabilitation centers also actively engage themselves in agro based rehabilitation activities such as growing organic vegetables and orchard development.
  16. R ajeshwari… so serene and graceful that it is difficult to believe that her life was once far from peaceful or happy. Dressed neatly in a maroon sari, Rajeshwari is delighted that her 13-year-old daughter Varsha is spending her sum- mer holidays with her. Rajeshwari, 48, lives in the home for people with mental disability run by M.S. Chellamuthu Trust and Research Foundation (MSCT&RF), Madurai. The younger of two sisters, Rajeshwari’s elder sister Meenakshi was diagnosed with schizophrenia, one of the most common yet serious forms of psychiatric illnesses. Rajeshwari underwent open heart surgery when she was 12 years old. By the time she was 15 years, Rajeshwari too began to develop symptoms of schizophrenia. Their father, a Madurai-based bank official, brought both his daughters to the MSCT&RF for treatment. Rajeshwari responded better to treatment than her sister Meenakshi. Meanwhile their mother died of cancer. Her extended family persuaded her father to get her married, as it would be “impossible to look after two daughters who were mentally ill.” In response to family pressure, Rajeshwari agreed to get married. She, however, insisted that her family disclose her psychiatric illness. On the contrary her father reasoned that since her symptoms were under control it was not necessary to disclose her medical history. This is Rajeshwari’s story… Against All Odds “My husband divorced me because I was mentally ill and here I am today,”
  17. When her marital family discovered that she was being treated for mental illness, they sent her back to her father’s house, along with her three-month daughter Varsha. Today, Rajeshwari, however, admits that her birth family should have been transparent about her illness. “My husband divorced me because I was mentally ill and here I am today,” says Rajeshwari, as she recalls the seven long years of the bitter divorce proceedings. “My daughter has never known her father. She saw him for the first time only in the court,” says Rajeshwari matter of factly. Rajeshwari’s father too died shortly thereafter, after a prolonged illness, during which both the sisters were his caregivers. Thereafter the vulnerability of living as people with mental illness was all too apparent for the two sisters. Their landlord evicted them from the house. The extended family was unwilling to take care of them. In a desperate move, their paternal uncle placed them in an orphanage in Chennai, where the sisters were treated insensitively and harassed. In a desperate bid to escape, they accepted employment as domestic help at a friend’s residence at Pudukottai. However, Rajeshwari recalls that this was like jumping from the frying pan into the fire. Shocked at the blatant instance of sexual harassment by her friend’s husband, Rajeshwari decided to flee the place along with her sister and daughter. She took the bus to Madurai along with her sister and daughter. At 10 pm on June 21, 2012, she knocked at the out patient services of the MSCT&RF to meet Dr C.Ramasubramanian (Dr CRS). “I knew I would not be turned away. Such was my faith and belief in Dr CRS. Since then the place has been a sanctuary for us,” recalls Rajeshwari, who also admits that Dr CRS has taken on the roles of a dual parent for the sisters and a doting “grandfather” for her daughter. It was a strange homecoming for the sisters and Varsha. Since then regular medication and appropriate psychosocial rehabilitation has ensured that the illness is under control for both sisters. Today Rajeshwari, who is skilled in drawing and tailoring, works at the tailoring unit. She is an expert cook and enjoys cooking traditional Tamil Brahmin cuisine. “I am very good at making pavaka pitlay, aviyal and pongal,” she says with a bright smile. Varsha attends a residential school nearby and regularly visits her mother and aunt over the weekends. Both mother and aunt dote on her. “I want my daughter to become a scientist. Perhaps then my family will know that you just can’t write off people with mental illness,” says Rajeshwari with a quiet determination. However, not every person with a mental disability is as fortunate as Rajeshwari. Her story highlights the multiple vulnerabilities experienced by people with mental disabilities, especially women. The absence of supportive spaces, the invisibility and loss of identity experienced by people with mental illness are often far greater burdens than the illness itself. f “I want my daughter to become a scientist. Perhaps then my family will know that you just can’t write off people with mental illness”
  18. MSCIMHR was started in 2008 with the primary objective to develop and strengthen human resources in the field of mental health and thereby increase the availability of qualified and trained mental health professionals. The vision of the institute is to enhance the quality of mental health care in the community. Courses offered in collaboration with: Tamil Nadu Open University, Chennai: 4PG Diploma in Psychological Counselling. (One Year) 4MSc in Counselling and Psychotherapy. (Two Years) Alagappa University, Karaikudi: 4MSW in Mental Health (Two years) 4MSc (Applied Psychology (Two years) 4PG Diploma in Mental Health. (One year) 4PG Diploma in School Counselling. (One year) Training programmes include various mental health topics such as: 4Counselling & Psychotherapy 4Psychological assessments 4Marital and relationship enrichment 4Child mental health 4Mental health literacy 4Mental health first aid 4Leadership and team development 4Stress management 4Research methodology Human Resource Training and Development M.S. Chellamuthu Institute of Mental Health and Rehabilitation (MSCIMHR) Clinical Internship The institute facilitates clinical internship of students specialising in psychology, nursing, social work, and rehabilitation sciences through internship placements at Ahana Hospitals, Madurai, and the various rehabilitation units of MSCT&RF.
  19. How you can help You can make a BIG DIFFERENCE in the following ways: By sponsoring food and medical expenses for very poor patients By contributing in provision of special education for rural children By supporting our rural community outreach programmes By buying and promoting products made by our patients By providing work placements and opportunities for our rehabilitated patients By supporting the improvisation of infrastructure facilities required to provide mental health care and training For further details please contact: M.S. Chellamuthu Trust and Research Foundation (MSCT&RF) 643, K.K. Nagar, Madurai 625020 Ph.: +91- 0452-2586448 Fax: +91- 0452- 2580442 Email: info@msctrust.org Website: www.msctrust.org Awards & Accolades District’s Best Non-Governmental Organisation (1996-1997) Nation’s Best Employee Award-(1999-2000) Nation’s Best Individual Award-2008 (Persons with Disability Sector) Nation’s Best Institution Award for the Empowerment of Persons with Disabilities-2007 The first Abdul Kalam Seva Ratna Award – 2015 presented by His Holiness Dalai Lama to Dr. C. Ramasubramanian- Founder, MSCT&RF
  20. Registered Office: 643, K.K.Nagar, Madurai 20. New Office Building: Plot No.7, 5th Cross Street Lake Area, (Near Mattuthavani Omni Bus Stand),Madurai 625107. Ph.: 0452-2586448. Fax: 0452-2580442. Email: info@msctrust.org Shristi Psycho-social Rehabilitation Centre for persons with mental illness: Musundagirypatti, Chittampatty (P.O), Melur (TK), Madurai (dt) 625122. Mob: 9500969662 9629911350. Email: shristi.msctrf@gmail.com De-addiction Centre (30-bed hospital): 7/14A Wellington Road, NGO Colony, Keelakuelkudivilakku, Nagamalai Pudukottai, Madurai 625011. Mob: 9629911354. Email: dactrishulmsctrust@gmail.com Vriksha Rehabilitation Home for Women with Mental Retardation: 19 A, Sudalaimuthu Pillai Lane, East Sandhai Pettai, Madurai 625 009. Mob: 9629911353. Email: vriksha.msctrust@gmail.com Vocational Training Centre for people with mental illness: Ramaiah Street, Shenoy Nagar, Madurai 625 020. Mob: 0452 – 2580405. Email: Peacefulmsvtc@gmail.com. Aakaash Special School: Janadeepam Building, M.S.Chellamuthu Gardens, 1, Ayathampatti village, Alagarkoil, Melur (TK), Madurai District. Mob: 9500969660 Email: aakaash.msctrf@gmail.com Home for people with mental illness: Angayarkanni Kalyanamandapam, Ayyanar Kovil Street, Aruldoos Puram, (Opposite Corporation Water Tank), Madurai. Mob: 96002 86222. Email: mihomemsctrust@gmail.com Bodhi Mental Health Training & Research Centre: M.S.Chellamuthu Gardens, 1, Ayathampatti village, Alagarkoil, Melur (TK), Madurai District. Mob :0452-3202014, Mob: 9629911352, 9994900205. Email: bodhi.msctrf@gmail.com Quarter Way Home: Ramaiah Street, Shenoy Nagar, Madurai 625020. Mob: 9600887555 Home for Adults with mental retardation: East Panchayat Union, Kalyana Mahal, Perungudi Panchayat, Tirumohur Post, Madurai. Mob: 9500969070 Email: mrhome.msctrust@gmail.com M.S.Chellamuthu Institute of Mental Health: 34, T.M. Nagar, Behind Millan Marbles Near Mattuthavani, Madurai 625107. Mob: 0452-4210510, 96299 11357, Email: mscimhr@gmail.com Home for people with mental illness, Erwadi: Govt. Hospital Building, Erwadi, Ramanathapuram. Mob: 9500969071. Email: mihomepmk@gmail.com Occupational Therapy unit: 611, K.K. Nagar, Madurai 20. Ph:0452-2580840,0452-2586320. Mob: 9994474880. Email: msctrf.ot@gmail.com Community based Rehabilitation for persons with mental disability: Shakthi Nagar, 2nd Street, Kannanthel Road, Iyer Bungalow, Madurai 625014. Mob: 9629911349 Email: cmhp.msctrf@gmail.com Text:DrNandiniMurali|Design:rangashree@gmail.com|PrintedatSudarsanGraphics,Chennai17
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