Don Derrett gives an overview of the ups and downs of personalisation and self-directed support as it is developing in the UK. He explores some possible new directions.
4. Outline history of the
development of Self
Direction in the UK by
Person Centred
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
5. Outline history of the
development of Self
Direction in the UK by
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
6. Outline history of the
development of Self
Direction in the UK by
Direct 1996
Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
7. Outline history of the
development of Self
Direction in the UK by
Valuing People 2001
Direct 1996
Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
8. Outline history of the
development of Self
Direction in the UK by
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
9. Outline history of the
development of Self
Direction in the UK by
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
10. Outline history of the
development of Self
Direction in the UK by
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
11. Outline history of the
development of Self
Direction in the UK by
Individual Budgets
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
12. Outline history of the
development of Self
Direction in the UK by
Self Directed
Support
Individual Budgets
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
13. Outline history of the
development of Self
Direction in the UK by
Personal
Budgets
Self Directed
Support
Individual Budgets
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
14. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation
System
Personal
Budgets
Self Directed
Support
Individual Budgets
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
15. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation
System
Personal
Budgets
Self Directed
Phase 1 in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
16. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation
System
Personal
Individual Budget
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
17. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation
System
Personal
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
18. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation
System
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
19. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation
System 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
20. Outline history of the
development of Self
Direction in the UK by
Resource
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
21. Outline history of the
development of Self
Direction in the UK by
Resource
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
22. Outline history of the
development of Self
Direction in the UK by
Wales Alliance for
Citizen Directed Support
Scotland
in Control
Resource Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
23. Outline history of the
development of Self
Direction in the UK by
Wales Alliance for
Citizen Directed Support
Scotland
in Control Change to Direct Payments 2009
Resource rules Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
24. Outline history of the
development of Self
Direction in the UK by
Wales Alliance for
Citizen Directed Support Personal Health Budget 2010
Scotland Pilots
in Control Change to Direct Payments 2009
Resource rules Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
25. Outline history of the
development of Self
Direction in the UK by
Personal Budgets for 30% Eligible for Social 2011
Wales Alliance for Care
Citizen Directed Support Personal Health Budget 2010
Scotland Pilots
in Control Change to Direct Payments 2009
Resource rules Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
26. Outline history of the
development of Self
Direction in the UK by Think Local Act
Personal Budgets for 30% Eligible for Social 2011
Personal
Wales Alliance for Care
Citizen Directed Support Personal Health Budget 2010
Scotland Pilots
in Control Change to Direct Payments 2009
Resource rules Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
27. Outline history of the
development of Self 2013
Direction in the UK by Think Local Act
Personal Budgets for 30% Eligible for Social 2011
Personal
Wales Alliance for Care
Citizen Directed Support Personal Health Budget 2010
Scotland Pilots
in Control Change to Direct Payments 2009
Resource rules Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
28. Outline history of the
development of Self Personal Budgets for 100% Eligible for 2013
Direction in the UK by Social Care Think Local Act
Personal Budgets for 30% Eligible for Social
Personal 2011
Wales Alliance for Care
Citizen Directed Support Personal Health Budget 2010
Scotland Pilots
in Control Change to Direct Payments 2009
Resource rules Personalisation
2008
Allocation Putting People
System First 2007
Independent Living
Personal Strategy
Individual Budget 2006
Budgets
Self Directed
Phase 1 Pilots
in Control
Support
Individual Budgets 2005
Report
in Control 2003
Individual Service Valuing People 2001
Funds
Inclusion Direct 1996
Glasgow Payments
Care in the 1990
Person Centred Community
Planning
Social Role 1980’s
Valorisation
Normalisation Government
Author and copyright Don Derrett,
Legislation and self direct
38. Users of Social Care Personal
Budgets
Ipsos MORI report for the National Audit
Office study on the Department of
Health’s regulatory oversight of care
markets
29 July 2011
39. Summary of Findings
Choice and Personal Budgets
Not all budget holders interviewed were offered the
choice between a direct payment, a managed
account, or a combination of the two.
When a choice was offered, managed budgets were
chosen when the benefit of a direct payment was
outweighed by the added responsibility and work
involved.
Users of Social Care Personal Budgets
Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory
oversight of care markets
29 July 2011
40. Summary of Findings
Choosing, managing and switching providers
Managed budget holders were generally unaware
that they could choose providers, and were not
offered any choice of providers.
Participants wanted to see lists of potential
providers with feedback from other users to help
them choose.
Users of Social Care Personal Budgets
Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory
oversight of care markets
29 July 2011
41. Summary of Findings
Choosing, managing and switching providers
Support to manage and switch providers was
crucial to ensure all users were able to exercise
choice and get the most out of their personal budget,
but it was not always available, or not always of the
right quality.
Users of Social Care Personal Budgets
Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory
oversight of care markets
29 July 2011
42. Summary of Findings
Managing Risks
As budget holders move away from traditional
services to use a wider range of suppliers, and in
particular venture further into mainstream services,
the screening and accreditation of suppliers become
more difficult for local authorities. Their response to
this seems to be focused around information
provision and collating user feedback, to help
budget holders make informed decisions.
Users of Social Care Personal Budgets
Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory
oversight of care markets
29 July 2011
46. Personal Health Budgets
“Health Secretary Andrew Lansley has
announced that by April 2014, subject
to the evaluation, people eligible for
NHS Continuing Healthcare will have
the right to ask for a personal health
budget – including a direct payment.”
49. Julie
Simpson
Family
Carer, self
direct
Australia
www.selfdirect.org.
au
50. Ethical Principle
1. Right to Independent Living
Scenario
Di’s experience of living an ‘Independent life’ in the community
was a nightmare of discriminatory hate crime, she wanted to live
Issue
Do you take action when people say they want to move on from
your service, or live somewhere else or change who they live
with or who supports them?
Identify a
person who
uses your
service and a
family member
who you would
involve in
thinking about
this. How
would you
support them?
Example: Culture – “Listening to what people say about how they want to live”
51. Ethical Principle
1. Right to Independent Living
Scenario
Di’s experience of living an ‘Independent life’ in the community
was a nightmare of discriminatory hate crime, she wanted to live
Issue
Do you take action when people say they want to move on from
your service, or live somewhere else or change who they live
with or who supports them?
Identify a What culture
person who change needs
uses your to take place in
service and a the
family member organisation
who you would and how do
involve in you go about
thinking about this?
this. How
would you
support them?
Example: Culture – “Listening to what people say about how they want to live”
52. Ethical Principle
1. Right to Independent Living
Scenario
Di’s experience of living an ‘Independent life’ in the community
was a nightmare of discriminatory hate crime, she wanted to live
Issue
Do you take action when people say they want to move on from
your service, or live somewhere else or change who they live
with or who supports them?
Identify a What culture What policy /
person who change needs procedure
uses your to take place in needs to
service and a the change or be
family member organisation created in
who you would and how do order to
involve in you go about support that
thinking about this? culture change
this. How and how do
would you you go about
support them? this?
Example: Culture – “Listening to what people say about how they want to live”
53. Ethical Principle
1. Right to Independent Living
Scenario
Di’s experience of living an ‘Independent life’ in the community
was a nightmare of discriminatory hate crime, she wanted to live
Issue
Do you take action when people say they want to move on from
your service, or live somewhere else or change who they live
with or who supports them?
Identify a What culture What policy / What, were or
person who change needs procedure would be the
uses your to take place in needs to outcomes for
service and a the change or be the individual?
family member organisation created in
who you would and how do order to
involve in you go about support that
thinking about this? culture change
this. How and how do
would you you go about
support them? this?
Example: Culture – “Listening to what people say about how they want to live”
54. What next for self direct?
• Raising expectations
• Get information directly to people
• Develop new products to support
people to maintain and take control of
their lives
• Work with the membership