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ICD Revision: Where Are We? 
World Health Organization Classifications, Terminologies, Standards
Overview 
• ICD Revision progress 
– Current status 
– Stability: how similar to ICD10 – ICD10AM 
– Next Steps: 
• Collaborative Authoring Tool improvements 
• Proposals 
• Peer Review 
• Field Trials 
• Other Products 
• …
ICD-11 Revision Goals 
1. Evolve a multi-purpose and coherent classification 
– Mortality, morbidity, primary care, clinical care, research, public 
health… 
– Consistency & interoperability across different uses 
2. Serve as an international and multilingual reference standard 
for scientific comparability and communication purposes 
3. Ensure that ICD-11 will function in an electronic environment. 
• ICD-11 will be a digital product 
• Support electronic health records and information systems 
• Link ICD logically to underpinning terminologies and ontologies (e.g. SNOMED, GO, …) 
• ICD Categories “defined” by "logical operational rules" on their associations and details
Current Status 
• Frozen September 30 
– iCAT continues real time 
– JLMMS is frozen for review 
– A new freeze is expected in Dec 2014. 
• Definitions 
– Top level > 75 % > 10,000 definitions 
• Linearization errors < 465 (from 10K) 
• Duplicates < 105 (from 3K)
The ICD Foundation Component 
• is a collection of ALL ICD 
entities like diseases, 
disorders... 
• It represents the whole ICD 
universe. 
• In a simple way, the foundation 
component is similar to a “store” of 
books or songs.
The ICD Linearizations 
• A linearization is a subset of the 
foundation component, that is: 
• Fit for a particular purpose: reporting mortality, 
morbidity, or other uses 
• Jointly Exhaustive of ICD Universe (Foundation 
Component) 
• Composed of entities that are Mutually Exclusive of 
each other 
• Each entity is given a single parent
Foundation: ICD 
categories with 
- Definitions, synonyms 
- Clinical descriptions 
- Diagnostic criteria 
- Causal mechanism 
- Functional Properties 
Find Term 
SNOMED-CT, 
International Classification of Functioning, 
Disability and Health (ICF)… 
Linearizations 
Morbidity 
Mortality 
Primary Care
Linearizations: 
Zoom-in Zoom-Out
Example of Telescope 
Title Primary C. Joint Lin. Ophthalm. 
Cataract code code code 
Age-related cataract code code code 
Cortical age-related cataract other other code 
Nuclear age-related cataract other other code 
Cataracta brunescens other other code 
Nuclear sclerosis cataract other other code 
Capsular and Subcapsular age-related cataract other other code 
Capsular age-related cataract other other code 
Anterior subcapsular polar age-related cataract other other code 
Posterior subcapsular polar age-related cataract other other code 
Incipient age-related cataract other other code 
Coronary age-related cataract other code code 
Punctate age-related cataract other code code 
Water clefts other other code 
Advanced or mature age-related cataract other other code 
Mature age-related cataract other code code 
Subtotal advanced or mature age-related cataract other other code 
Advanced or mature age-related cataract, total cataract other other code 
Morgagnian age-related cataract other other code 
Calcified age-related cataract other other code 
Combined forms of age-related cataract other other code
ICD Organization 
• Pre-coordination - fixed names 
V12.24 Pedal cyclist injured in collision with two- or three-wheeled motor 
vehicle, unspecified pedal cyclist, nontraffic accident, while resting, sleeping, 
eating or engaging in other vital activities 
• Post- Coordination - extensions 
• Bicycle Accident 
• Hit 
• Role 
• Context 
• Activity
X – Chapter: 
Extension Codes 
Type 1 Type 2 Type 3 
Severity Main Condition (types) History of 
Temporality 
(course of the condition) 
Reason for 
encounter/admission 
Family History of 
Temporality 
(Time in Life) 
Main Resource Condition Screening/Evaluation 
Etiology Present on Admission 
Anatomic detail 
Topology 
Specific Anatomic 
Location 
Provisional diagnosis 
Histopathology Diagnosis confirmed by 
Biological Indicators Rule out / Differential 
Consciousness 
External Causes (detail) 
Injury Specific (detail)
POST COORDINATION MECHANISM 
• Extension codes are implemented in iCAT 
• Sanctioning tables are being generated 
– REQUIRED 
– ALLOWED 
– DISALLOWED 
• First target group is the REQUIRED 
a. ICD-10 categories which have equivalence with 
ICD11 STEM + X codes (around 1000 codes) 
b. other
• 2014 : Beta version & Field Trials Version 
– +2 YR : Field trials 
• 2017 : Final version for WHA Approval 
– 2018+ implementation 
– Continuous Annual Cycles 
• ICD 2018 
• ICD 2019 
• ICD 2020 
ICD-11 Timeline
ICD11 βeta 
http://www.who.int/classifications/icd/revision 
Beta – Browser & Print 
10 look & feel 
+ descriptions – code structure ! 
• ICD-11 Beta draft is NOT FINAL 
• updated on a daily basis 
•NOT TO BE USED for CODING 
except for agreed FIELD TRIALS 
βeta
ICD-11 Browser
Visualization
Print Versions
ICD 2014 September release 
• Print version release includes: 
• Frozen “Joint Linearization for Mortality and 
Morbidity Statistics” ( Vol. 1 Equivalent). 
• The ongoing work on iCAT will go ahead in further 
completing the ICD definitions and improvements. 
• A future release is also planned in December. 
Thereafter the releases will be made whenever 
necessary. 
• Incremental changes from August Release are given 
in a separate document to enable tracking which 
parts remained stable – which parts changed.
Diff Files
Diff Files
Taxonomic Check 
• Taxonomic check includes the aggregation equivalence: 
• with the Primary Care versions 
– PC Intermediate Resource version  renamed: Intermediate Version 
– PC Low Resource version  renamed: Short Version 
• With Specialty Versions 
– see whether the specialty extensions roll up to JLMMS ( if this was the chosen option)
Annotation Document & Reviews 
• An updated Annotation Document identifies the architecture, 
principles and known issues. 
• Reviews by Mortality and Morbidity TAGs included for 
common reference and guiding future work
STABILITY ANALYSIS 
• A Foundation based equivalence programme 
identifies equivalences between ICD-10 and ICD-11. 
• a TRANSCODING table between ICD-10 and ICD-11 in 
excel format 
• A CROSSWALK gives the detailed output in excel 
format 
• The ICD11 Beta Browser will display the ICD-10 
equivalents accordingly.
Mapping Tool
Transcoding tables ICD-10 to ICD-11 
in excel
ICD-10 ICD-11 correspondence 
• 3 character – 1183 (w/o ECI & Residuals) 
– 951 Equivalent 
– 191 mapped to a larger entity in 11 
• with post coordination many have equivalent maps 
– 41 not mapped 
• 4 character - 6635 
– 4343 Equivalent 
– 2207 mapped to a larger entity in 11 
• with post coordination many have equivalent maps 
– 85 not mapped
ICD Index 
• Print Index is about 1900 pages with some lead 
terms running several pages. 
• About 3000 ICD10 Index terms are “missing”. A 
human judgement is being made as to whether 
they are necessary and once included they point 
to the right code. 
• Sublead terms missing 
• Improvements planned
Translation Platform
ICD Revision: Where Are We? 
World Health Organization Classifications, Terminologies, Standards

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ICD Revision (Ustun) 2014

  • 1. ICD Revision: Where Are We? World Health Organization Classifications, Terminologies, Standards
  • 2. Overview • ICD Revision progress – Current status – Stability: how similar to ICD10 – ICD10AM – Next Steps: • Collaborative Authoring Tool improvements • Proposals • Peer Review • Field Trials • Other Products • …
  • 3. ICD-11 Revision Goals 1. Evolve a multi-purpose and coherent classification – Mortality, morbidity, primary care, clinical care, research, public health… – Consistency & interoperability across different uses 2. Serve as an international and multilingual reference standard for scientific comparability and communication purposes 3. Ensure that ICD-11 will function in an electronic environment. • ICD-11 will be a digital product • Support electronic health records and information systems • Link ICD logically to underpinning terminologies and ontologies (e.g. SNOMED, GO, …) • ICD Categories “defined” by "logical operational rules" on their associations and details
  • 4. Current Status • Frozen September 30 – iCAT continues real time – JLMMS is frozen for review – A new freeze is expected in Dec 2014. • Definitions – Top level > 75 % > 10,000 definitions • Linearization errors < 465 (from 10K) • Duplicates < 105 (from 3K)
  • 5. The ICD Foundation Component • is a collection of ALL ICD entities like diseases, disorders... • It represents the whole ICD universe. • In a simple way, the foundation component is similar to a “store” of books or songs.
  • 6. The ICD Linearizations • A linearization is a subset of the foundation component, that is: • Fit for a particular purpose: reporting mortality, morbidity, or other uses • Jointly Exhaustive of ICD Universe (Foundation Component) • Composed of entities that are Mutually Exclusive of each other • Each entity is given a single parent
  • 7. Foundation: ICD categories with - Definitions, synonyms - Clinical descriptions - Diagnostic criteria - Causal mechanism - Functional Properties Find Term SNOMED-CT, International Classification of Functioning, Disability and Health (ICF)… Linearizations Morbidity Mortality Primary Care
  • 8.
  • 9.
  • 10.
  • 12. Example of Telescope Title Primary C. Joint Lin. Ophthalm. Cataract code code code Age-related cataract code code code Cortical age-related cataract other other code Nuclear age-related cataract other other code Cataracta brunescens other other code Nuclear sclerosis cataract other other code Capsular and Subcapsular age-related cataract other other code Capsular age-related cataract other other code Anterior subcapsular polar age-related cataract other other code Posterior subcapsular polar age-related cataract other other code Incipient age-related cataract other other code Coronary age-related cataract other code code Punctate age-related cataract other code code Water clefts other other code Advanced or mature age-related cataract other other code Mature age-related cataract other code code Subtotal advanced or mature age-related cataract other other code Advanced or mature age-related cataract, total cataract other other code Morgagnian age-related cataract other other code Calcified age-related cataract other other code Combined forms of age-related cataract other other code
  • 13.
  • 14.
  • 15. ICD Organization • Pre-coordination - fixed names V12.24 Pedal cyclist injured in collision with two- or three-wheeled motor vehicle, unspecified pedal cyclist, nontraffic accident, while resting, sleeping, eating or engaging in other vital activities • Post- Coordination - extensions • Bicycle Accident • Hit • Role • Context • Activity
  • 16. X – Chapter: Extension Codes Type 1 Type 2 Type 3 Severity Main Condition (types) History of Temporality (course of the condition) Reason for encounter/admission Family History of Temporality (Time in Life) Main Resource Condition Screening/Evaluation Etiology Present on Admission Anatomic detail Topology Specific Anatomic Location Provisional diagnosis Histopathology Diagnosis confirmed by Biological Indicators Rule out / Differential Consciousness External Causes (detail) Injury Specific (detail)
  • 17. POST COORDINATION MECHANISM • Extension codes are implemented in iCAT • Sanctioning tables are being generated – REQUIRED – ALLOWED – DISALLOWED • First target group is the REQUIRED a. ICD-10 categories which have equivalence with ICD11 STEM + X codes (around 1000 codes) b. other
  • 18. • 2014 : Beta version & Field Trials Version – +2 YR : Field trials • 2017 : Final version for WHA Approval – 2018+ implementation – Continuous Annual Cycles • ICD 2018 • ICD 2019 • ICD 2020 ICD-11 Timeline
  • 19. ICD11 βeta http://www.who.int/classifications/icd/revision Beta – Browser & Print 10 look & feel + descriptions – code structure ! • ICD-11 Beta draft is NOT FINAL • updated on a daily basis •NOT TO BE USED for CODING except for agreed FIELD TRIALS βeta
  • 23. ICD 2014 September release • Print version release includes: • Frozen “Joint Linearization for Mortality and Morbidity Statistics” ( Vol. 1 Equivalent). • The ongoing work on iCAT will go ahead in further completing the ICD definitions and improvements. • A future release is also planned in December. Thereafter the releases will be made whenever necessary. • Incremental changes from August Release are given in a separate document to enable tracking which parts remained stable – which parts changed.
  • 26. Taxonomic Check • Taxonomic check includes the aggregation equivalence: • with the Primary Care versions – PC Intermediate Resource version  renamed: Intermediate Version – PC Low Resource version  renamed: Short Version • With Specialty Versions – see whether the specialty extensions roll up to JLMMS ( if this was the chosen option)
  • 27. Annotation Document & Reviews • An updated Annotation Document identifies the architecture, principles and known issues. • Reviews by Mortality and Morbidity TAGs included for common reference and guiding future work
  • 28. STABILITY ANALYSIS • A Foundation based equivalence programme identifies equivalences between ICD-10 and ICD-11. • a TRANSCODING table between ICD-10 and ICD-11 in excel format • A CROSSWALK gives the detailed output in excel format • The ICD11 Beta Browser will display the ICD-10 equivalents accordingly.
  • 30. Transcoding tables ICD-10 to ICD-11 in excel
  • 31. ICD-10 ICD-11 correspondence • 3 character – 1183 (w/o ECI & Residuals) – 951 Equivalent – 191 mapped to a larger entity in 11 • with post coordination many have equivalent maps – 41 not mapped • 4 character - 6635 – 4343 Equivalent – 2207 mapped to a larger entity in 11 • with post coordination many have equivalent maps – 85 not mapped
  • 32. ICD Index • Print Index is about 1900 pages with some lead terms running several pages. • About 3000 ICD10 Index terms are “missing”. A human judgement is being made as to whether they are necessary and once included they point to the right code. • Sublead terms missing • Improvements planned
  • 34. ICD Revision: Where Are We? World Health Organization Classifications, Terminologies, Standards