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Patient Digital Design & Services:
The Next Generation of Quality
Susan Woods, MD, MPH
Oregon Health & Science University
Portland VA Medical Center
Points
• Consumer rise of digital tools
• PHRs = consumer meaningful use
• Portal use driven by value, access
• Patient & healthcare team benefit
• Participatory care is PHR 2.0
What do people want?
 Access
 Great care
 Avoid costs
3
Information &
Services
Transforming
Looking online for health information
Pew Research Center’s Internet & American Life Project, 2012 Survey. N = 3,014
73%
91%
58%
30%
37%
47%
61%
41%
42%
43%
2%
5%
19%
26%
4%
10%
29%
34%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Cell Phone
Desktop
Laptop
Game console Tablet
eBook Reader
Adult Gadget Ownership Trends – Pew Surveys
http://www.pewinternet.org/Trend-Data-%28Adults%29/Device-Ownership.aspx
73% 75%
78%
85% 84% 82%
85% 83%
88% 88%
85% 85% 87%
91%
35%
45% 46% 45% 47% 45%
56%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Cell Phone and Smartphone Ownership, Over Time
% of American adults who own a cell phone or smartphone
http://www.pewinternet.org/Trend-Data-%28Adults%29/Device-Ownership.aspx
71%
Got information or care from a health
professional for their last problem
MyGroupHealth Users and PHR Usage
KP.org reaches 65% -- 4 million +
http://thrive.kaiserpermanente.org/innovation
Patient Meaningful Use
Transactions Expert Care
Shared Data
Self-Care
Community
Ahern DK, Woods SS, Lightowler et al. Promise of and potential for patient-facing
technologies to enable meaningful use. Am J Prev Med. 2011
Usage Follows Value
• Test results
• Secure email
• Medication refills
• Notes & summaries
Functions
• Online authentication
• Proxy access
• Usability
• Technical support
Access
Observations on Secure Email
• Drives team-based care
• Great for patients
• Great for front-line staff
• Know more between visits
• Better in-person visits
• Respectful of time
• Rare inappropriate use (they call)
I started radiation treatment at the
University Hospital, 5 times a week. The
cream you prescribed for my rash is
helping, I don‟t have refills.
Thanks and have a happy holiday!
http://www.hsrd.research.va.gov/publications/esp/myhealthevet.cfm#.Ui_0Hj9-rQM
Patient-Facing Digital Services - Impact
Evidence Likely
More accurate information
Better experience
More knowledge of problems
Greater self-care
More prepared for visits
More efficient in-person visits
Greater trust in clinicians
Improved quality measures
Improved outcomes
More preventive services
Less no-shows
Need to mitigate digital divide
Patients
Improved adherence
Better caregiver knowledge/skills
Fewer tests
Better care coordination
Increased use of digital services
Healthcare Teams:
Shifting work
Need different communication
Care Delivery:
More visits for some
Less visits for some
Shenkin B, Warner D. New England Journal Medicine 1973
A 40-year old idea….
• Enhance patient autonomy
• Improve patient-physician relationship
• Serve as educational tool
23
J Med Internet Res 2013;15(3):e65
Communication
“I can go in and ask more intelligent questions
and we don‟t have to spend as much time with
them explaining everything to me.”
“I could see my results. I could see what was
going on and didn‟t get stressed out waiting to
hear back from somebody who might never call.”
Knowledge
Doctors aren‟t real gabby and never tell you
everything. Even if you ask questions, they‟ll sort
of slide around them. They don‟t have time. I
found stuff out that I was just truly amazed at
about myself.
“You could pop over to Google….and see what
it‟s saying instead of sitting there sweating it out.”
Self-Care
“Made me feel more responsible for myself, like
there‟s no excuses. You know, it‟s right there, you
know. You can‟t use „the doctor didn‟t tell you‟.”
“You could pop over to Google or the library, and
see what it‟s saying instead of sitting there
sweating it out trying to figure out what it is.”
Patient Participation in Care Quality
“I had an ultrasound on my liver and saw the
results. It said, „Re-do in 6 months‟. Six months
came and nothing happened. So I called the
doctor. He says, „Yeah, they did say that‟. So, if I
hadn‟t reminded him, I wouldn‟t have got it.”
“I‟d like to know, what you think and what you
know, and what you‟re predicting. Rather than
just write it in there, tell me and then write it.”
Patient Participation in Care Quality
% Agree
Patients PCPs
Takes better care of self 70 28
Better understand conditions 84 41
Remembers care plan better 84 44
More prepared for visits 73 36
More in control of care 84 49
Take medications better 60 31
Views after one year
Inviting Patients to Read Their Doctors‟ Notes: A Quasi-experimental Study and a Look
Ahead
% Agree
Patients PCPs
Felt offended 2 8
More confusing than helpful 3 21
Worries more 7 42
Concerned about privacy 32 --
Views after one year
Inviting Patients to Read Their Doctors‟ Notes: A Quasi-experimental Study and a Look
Ahead
It‟s a good time to re-design
our work.
32
Talk to Patients. They Know Cool Stuff You Don’t.
Thank you!
@SueWoods
susan.woods@va.gov
http://www.sharedhealthdata.com

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Patient HIT, Value & Quality

  • 1. Patient Digital Design & Services: The Next Generation of Quality Susan Woods, MD, MPH Oregon Health & Science University Portland VA Medical Center
  • 2. Points • Consumer rise of digital tools • PHRs = consumer meaningful use • Portal use driven by value, access • Patient & healthcare team benefit • Participatory care is PHR 2.0
  • 3. What do people want?  Access  Great care  Avoid costs 3
  • 5. Looking online for health information Pew Research Center’s Internet & American Life Project, 2012 Survey. N = 3,014
  • 6. 73% 91% 58% 30% 37% 47% 61% 41% 42% 43% 2% 5% 19% 26% 4% 10% 29% 34% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% Cell Phone Desktop Laptop Game console Tablet eBook Reader Adult Gadget Ownership Trends – Pew Surveys http://www.pewinternet.org/Trend-Data-%28Adults%29/Device-Ownership.aspx
  • 7. 73% 75% 78% 85% 84% 82% 85% 83% 88% 88% 85% 85% 87% 91% 35% 45% 46% 45% 47% 45% 56% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% Cell Phone and Smartphone Ownership, Over Time % of American adults who own a cell phone or smartphone http://www.pewinternet.org/Trend-Data-%28Adults%29/Device-Ownership.aspx
  • 8.
  • 9. 71% Got information or care from a health professional for their last problem
  • 11. KP.org reaches 65% -- 4 million + http://thrive.kaiserpermanente.org/innovation
  • 12.
  • 13. Patient Meaningful Use Transactions Expert Care Shared Data Self-Care Community Ahern DK, Woods SS, Lightowler et al. Promise of and potential for patient-facing technologies to enable meaningful use. Am J Prev Med. 2011
  • 14. Usage Follows Value • Test results • Secure email • Medication refills • Notes & summaries Functions • Online authentication • Proxy access • Usability • Technical support Access
  • 15. Observations on Secure Email • Drives team-based care • Great for patients • Great for front-line staff • Know more between visits • Better in-person visits • Respectful of time • Rare inappropriate use (they call)
  • 16. I started radiation treatment at the University Hospital, 5 times a week. The cream you prescribed for my rash is helping, I don‟t have refills. Thanks and have a happy holiday!
  • 17.
  • 19. Patient-Facing Digital Services - Impact Evidence Likely More accurate information Better experience More knowledge of problems Greater self-care More prepared for visits More efficient in-person visits Greater trust in clinicians Improved quality measures Improved outcomes More preventive services Less no-shows Need to mitigate digital divide Patients Improved adherence Better caregiver knowledge/skills Fewer tests Better care coordination Increased use of digital services Healthcare Teams: Shifting work Need different communication Care Delivery: More visits for some Less visits for some
  • 20.
  • 21. Shenkin B, Warner D. New England Journal Medicine 1973 A 40-year old idea…. • Enhance patient autonomy • Improve patient-physician relationship • Serve as educational tool
  • 22.
  • 23. 23 J Med Internet Res 2013;15(3):e65
  • 24. Communication “I can go in and ask more intelligent questions and we don‟t have to spend as much time with them explaining everything to me.” “I could see my results. I could see what was going on and didn‟t get stressed out waiting to hear back from somebody who might never call.”
  • 25. Knowledge Doctors aren‟t real gabby and never tell you everything. Even if you ask questions, they‟ll sort of slide around them. They don‟t have time. I found stuff out that I was just truly amazed at about myself. “You could pop over to Google….and see what it‟s saying instead of sitting there sweating it out.”
  • 26. Self-Care “Made me feel more responsible for myself, like there‟s no excuses. You know, it‟s right there, you know. You can‟t use „the doctor didn‟t tell you‟.” “You could pop over to Google or the library, and see what it‟s saying instead of sitting there sweating it out trying to figure out what it is.”
  • 27. Patient Participation in Care Quality “I had an ultrasound on my liver and saw the results. It said, „Re-do in 6 months‟. Six months came and nothing happened. So I called the doctor. He says, „Yeah, they did say that‟. So, if I hadn‟t reminded him, I wouldn‟t have got it.”
  • 28. “I‟d like to know, what you think and what you know, and what you‟re predicting. Rather than just write it in there, tell me and then write it.” Patient Participation in Care Quality
  • 29. % Agree Patients PCPs Takes better care of self 70 28 Better understand conditions 84 41 Remembers care plan better 84 44 More prepared for visits 73 36 More in control of care 84 49 Take medications better 60 31 Views after one year Inviting Patients to Read Their Doctors‟ Notes: A Quasi-experimental Study and a Look Ahead
  • 30. % Agree Patients PCPs Felt offended 2 8 More confusing than helpful 3 21 Worries more 7 42 Concerned about privacy 32 -- Views after one year Inviting Patients to Read Their Doctors‟ Notes: A Quasi-experimental Study and a Look Ahead
  • 31. It‟s a good time to re-design our work.
  • 32. 32
  • 33.
  • 34. Talk to Patients. They Know Cool Stuff You Don’t.

Notas del editor

  1. Example of care coordination: The provider learned more about the patient’s care through secure email. The provider was able to address multiple patient needs in a few minutes time. And they received a warm greeting from the patient!
  2. Statements made from VA patients who accessed their electronic health record information –
  3. That brings us to the 5th and LAST Top Reason for shared records: It’s time for us to re-design our work.
  4. Demonstration of Blue Button – login to MHV website using VISN 20 Test Patient
  5. Patients are cool. They know stuff you don’t. Photocredit: wearewhatwedo.org