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Munchausen
Syndrome
by Proxy
MSBP Definition

  Child’s illness fabricated or induced by the parent
  (usually the mother)

  Mother develops a dependent relationship with her
  child’s doctor / medical staff
Baron Hieronymus Karl Friedrich von
           Munchausen
  The baron was a mercenary in the 18th century.

  In 1785, Rudolph Eric Raspe, badly in need of money,
  wrote a book about the Baron’s travels: Original Travels
  and Surprising Adventures
  of Baron Munchausen.

  The stories were marvelous, but fictitious
Munchausen Syndrome

     In 1951, Richard Asher named a syndrome after the Baron
      describing patients who present histories that are


  dramatic

  captivating

  fictitious
Munchausen Syndrome by Proxy

  In 1977, Roy Meadows published:      Munchausen
  Syndrome by Proxy:
  The Hinterland of Child Abuse

  He described several children who were hospitalized,
  tested and treated for false illnesses that were made up
  by their mothers
Presentations of MSBP

  Persistent, puzzling illness
     unresponsive to treatment
     defies medical diagnosis
     unusual lab data

  Unusual/unexpected/exaggerated illness

  Un-witnessed symptoms w/normal evaluation
Most Common Presentations

  Bleeding

  Seizures

  CNS depression

  Apnea

  Vomiting / diarrhea

  Fever

  Rash
Bleeding                  Seizures

  Warfarin poisoning            Poisons
                                   Phenothiazine
  Phenolphthalein poisoning
                                   Hydrocarbons
  Exogenous blood applied         Salt
                                   Imipramine
  Exsanguination
                                 Suffocation
  Dyes
                                 Carotid sinus pressure

                                 Lying
Apnea                  Infection

  Suffocation        Needle sticks

  Poisoning          Line contamination
    Imipramine
                      Catheterization
    Hydrocarbons

  Lying
Diarrhea        Vomiting

  Laxatives
                        Ipecac
    Phenolphthalein
    Ipecac
    Others
                        Lying
  Salt poisoning
Altered Mental Status

  Drugs
    Insulin
    Depressants
       Chloral hydrate
       Barbiturates
    Anti-histamines
    Tricyclics

  Suffocation
Other Presentations of MSBP

  Fever                  Rash
    Falsifying temp         Poisoning
    Falsifying chart        Scratches
                             Caustics
  Vomiting
                             Paint/Dye
    Ipecac
    Lying                Cystic Fibrosis
Literature review
                      Donna Rosenberg: 1966 - 1987: 117 cases

  mean age at diagnosis: 40 months

  mean time between onset of symptoms & diagnosis: 15
  months

  long term mobility: 9% mortality plus 8% had serious
  morbidity

  all deaths in children < 3 y/o: apnea, LOC, bleeding,
  seizures, diarrhea; 20% had been sent home after
  confrontation
Conditions that should arouse
             suspicion
  Illnesses that are…
    puzzling or unexplained
       “Never seen anything like this”
    not responding to treatment
    following an atypical course
    manifested only in the mother’s presence
Exam / Lab findings that are
             suspicious
  highly unusual results

  discrepant with history

  inconsistent with examination

  clinically impossible
MSBP maternal behaviors

  medically knowledgeable, educated

  may have worked in the health care field

  mother prefers to stay in the hospital rather than home

  uncharacteristically calm

  welcomes medical tests

  reluctant to leave hospital
MSBP maternal behaviors

  more interested in the medical procedures than in her
  child’s welfare

  spends more time with hospital staff than with her child

  excessive praise for medical staff
Histories that are suspicious

  Mother reports…
    she had illnesses similar to her child’s
    other unusual family illnesses
    unsubstantiated family illnesses
    unexplained illnesses / deaths in siblings
Overlap between MSBP
 and the mother of an ill child
  The child’s mother…
    exaggerates child’s symptoms
    is intolerant of minor problem & demands work-up
    is knowledgeable about child’s illness
    is calm about the child’s illness
    gets along well with hospital staff
    brings child to MD frequently
    describes an illness that seems unexplainable
Indications of MSBP that overlap
      with normal illnesses
  MD’s observations differ from mother’s

  Symptoms observed only if mother is present

  Illness resolves after separation from mother
Doctor Shopping / Perceived
            Illness
  Mother is obsessed with obtaining medical treatment
  for her well child.

  Child is subjected to repeated and unneeded testing.



  Evaluate degree of harm to child

  Not MSBP
Enforced Invalidism

  Child has no disability but treated as if one exists
    special diet, restricted activities

  Child has a disability
    mother causes the disability to worsen or prevents the
     child from getting better


  Child abuse if harmful to child

  MSBP?
Mother fabricates/causes illness

  lies to the doctor about the child’s health

  fabricates symptoms or signs of illness

  actively induces symptoms

  alters medical records



  Child abuse

  MSBP
Realization of possible MSBP

  staff reluctance to believe deceit
    divided loyalties
    difficult to believe that they’ve been lied to

  confusion between real & fictitious illness
    continued unnecessary testing and procedures

  need to make diagnosis of MSBP with certainty
    continuing or increasing risk to the child
    difficult to act / stop abuse without “proof”
MSBP Investigation

  Review each illness / diagnosis
    comprehensive review of histories / symptoms
       “Unlimited” possibilities for deception
       conference with all involved caretakers/physicians
    detailed investigation of reported events
       temporal relationship: mother / symptoms
    validation of past illnesses / mother’s history
       contact other family members / family physicians

  Psycho-social evaluation of mother
       look for motive / gain
Hospital Management

  Discretion
     control number of involved staff
     limited chart documentation / hallway rounds
     limited chart and record access by mother

  Verification of symptoms
     differentiate those observed by nurse vs mother
     obtain fluids / materials for toxicologic analysis
     if bleeding, test to differentiate child/mother/human
     surveillance of mother and child (video or telemetry)
       Southall David. Pediatrics 1997;100:735-760
Hospital Management

  Removal of child from parent: diagnostic/protective
    voluntary vs enforced
       report to Child Protection Agency
    careful planning: make the most of this time

  Confrontation with mother / family
    explain the diagnosis
    offer psychiatric care for the parent / patient
    anticipate suicidal behavior or escalation of deception
Indices of high risk to the child

  Suffocation or poisoning

  Child under 5 years old

  Deaths of other children

  Lack of recognition by mother

  Mother with Munchausen Syndrome

  Persistence of fabrication after confrontation

  Family dysfunction, drug or alcoholism
MSBP Morbidity

  Unnecessary treatments & hospitalizations
    complications     - pain
    testing   - iatrogenic illness

  Chronic invalidism

  Developmental delay

  Cost

  Mortality: 10%

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Munchausen Syndrome by Proxy

  • 2. MSBP Definition   Child’s illness fabricated or induced by the parent (usually the mother)   Mother develops a dependent relationship with her child’s doctor / medical staff
  • 3. Baron Hieronymus Karl Friedrich von Munchausen   The baron was a mercenary in the 18th century.   In 1785, Rudolph Eric Raspe, badly in need of money, wrote a book about the Baron’s travels: Original Travels and Surprising Adventures of Baron Munchausen.   The stories were marvelous, but fictitious
  • 4. Munchausen Syndrome   In 1951, Richard Asher named a syndrome after the Baron describing patients who present histories that are   dramatic   captivating   fictitious
  • 5. Munchausen Syndrome by Proxy   In 1977, Roy Meadows published: Munchausen Syndrome by Proxy: The Hinterland of Child Abuse   He described several children who were hospitalized, tested and treated for false illnesses that were made up by their mothers
  • 6. Presentations of MSBP   Persistent, puzzling illness   unresponsive to treatment   defies medical diagnosis   unusual lab data   Unusual/unexpected/exaggerated illness   Un-witnessed symptoms w/normal evaluation
  • 7. Most Common Presentations   Bleeding   Seizures   CNS depression   Apnea   Vomiting / diarrhea   Fever   Rash
  • 8. Bleeding Seizures   Warfarin poisoning   Poisons   Phenothiazine   Phenolphthalein poisoning   Hydrocarbons   Exogenous blood applied   Salt   Imipramine   Exsanguination   Suffocation   Dyes   Carotid sinus pressure   Lying
  • 9. Apnea Infection   Suffocation   Needle sticks   Poisoning   Line contamination   Imipramine   Catheterization   Hydrocarbons   Lying
  • 10. Diarrhea Vomiting   Laxatives  Ipecac   Phenolphthalein   Ipecac   Others  Lying   Salt poisoning
  • 11. Altered Mental Status   Drugs   Insulin   Depressants   Chloral hydrate   Barbiturates   Anti-histamines   Tricyclics   Suffocation
  • 12. Other Presentations of MSBP   Fever   Rash   Falsifying temp   Poisoning   Falsifying chart   Scratches   Caustics   Vomiting   Paint/Dye   Ipecac   Lying   Cystic Fibrosis
  • 13. Literature review Donna Rosenberg: 1966 - 1987: 117 cases   mean age at diagnosis: 40 months   mean time between onset of symptoms & diagnosis: 15 months   long term mobility: 9% mortality plus 8% had serious morbidity   all deaths in children < 3 y/o: apnea, LOC, bleeding, seizures, diarrhea; 20% had been sent home after confrontation
  • 14. Conditions that should arouse suspicion   Illnesses that are…   puzzling or unexplained   “Never seen anything like this”   not responding to treatment   following an atypical course   manifested only in the mother’s presence
  • 15. Exam / Lab findings that are suspicious   highly unusual results   discrepant with history   inconsistent with examination   clinically impossible
  • 16. MSBP maternal behaviors   medically knowledgeable, educated   may have worked in the health care field   mother prefers to stay in the hospital rather than home   uncharacteristically calm   welcomes medical tests   reluctant to leave hospital
  • 17. MSBP maternal behaviors   more interested in the medical procedures than in her child’s welfare   spends more time with hospital staff than with her child   excessive praise for medical staff
  • 18. Histories that are suspicious   Mother reports…   she had illnesses similar to her child’s   other unusual family illnesses   unsubstantiated family illnesses   unexplained illnesses / deaths in siblings
  • 19. Overlap between MSBP and the mother of an ill child   The child’s mother…   exaggerates child’s symptoms   is intolerant of minor problem & demands work-up   is knowledgeable about child’s illness   is calm about the child’s illness   gets along well with hospital staff   brings child to MD frequently   describes an illness that seems unexplainable
  • 20. Indications of MSBP that overlap with normal illnesses   MD’s observations differ from mother’s   Symptoms observed only if mother is present   Illness resolves after separation from mother
  • 21. Doctor Shopping / Perceived Illness   Mother is obsessed with obtaining medical treatment for her well child.   Child is subjected to repeated and unneeded testing.   Evaluate degree of harm to child   Not MSBP
  • 22. Enforced Invalidism   Child has no disability but treated as if one exists   special diet, restricted activities   Child has a disability   mother causes the disability to worsen or prevents the child from getting better   Child abuse if harmful to child   MSBP?
  • 23. Mother fabricates/causes illness   lies to the doctor about the child’s health   fabricates symptoms or signs of illness   actively induces symptoms   alters medical records   Child abuse   MSBP
  • 24. Realization of possible MSBP   staff reluctance to believe deceit   divided loyalties   difficult to believe that they’ve been lied to   confusion between real & fictitious illness   continued unnecessary testing and procedures   need to make diagnosis of MSBP with certainty   continuing or increasing risk to the child   difficult to act / stop abuse without “proof”
  • 25. MSBP Investigation   Review each illness / diagnosis   comprehensive review of histories / symptoms   “Unlimited” possibilities for deception   conference with all involved caretakers/physicians   detailed investigation of reported events   temporal relationship: mother / symptoms   validation of past illnesses / mother’s history   contact other family members / family physicians   Psycho-social evaluation of mother   look for motive / gain
  • 26. Hospital Management   Discretion   control number of involved staff   limited chart documentation / hallway rounds   limited chart and record access by mother   Verification of symptoms   differentiate those observed by nurse vs mother   obtain fluids / materials for toxicologic analysis   if bleeding, test to differentiate child/mother/human   surveillance of mother and child (video or telemetry)   Southall David. Pediatrics 1997;100:735-760
  • 27. Hospital Management   Removal of child from parent: diagnostic/protective   voluntary vs enforced   report to Child Protection Agency   careful planning: make the most of this time   Confrontation with mother / family   explain the diagnosis   offer psychiatric care for the parent / patient   anticipate suicidal behavior or escalation of deception
  • 28. Indices of high risk to the child   Suffocation or poisoning   Child under 5 years old   Deaths of other children   Lack of recognition by mother   Mother with Munchausen Syndrome   Persistence of fabrication after confrontation   Family dysfunction, drug or alcoholism
  • 29. MSBP Morbidity   Unnecessary treatments & hospitalizations   complications - pain   testing - iatrogenic illness   Chronic invalidism   Developmental delay   Cost   Mortality: 10%