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1. Health Guide for Adults Living with Spina Bifida

14. Appendix A – Personal Health Record Appendix B – Background on Spina Bifida Health Guide for Adults Living with Spina Bifida

19. Family History (parents, sibling and grandparents) Alcohol Abuse Asthma Cancer Diabetes Dementia Depression Heart Disease High Blood Pressure Stroke

28. 3. Record health care appointments on calendar and Health Care Appointment Scheduler form. 4. Take your calendar and Health Care Appointment Scheduler to the health care appointment, and use to schedule future appointment with your provider. Health Care Appointment Scheduler…

30. Blood Pressure Begin checks once a year Breast Exam Once a year Cholesterol Begin checks once a year at age 20 Colorectal Cancer Begin checks once a year Colonoscopy Beginning at age 50 Dental Exam Every 6 months Screening and Diagnostic Test Checklist Depression As needed, speak with physician Diabetes Test Begin checks once a year Eye Exam At least once a year Height and Weight Once a year Mammogram Begin checks once a year at (women) age 40, depending on risk Osteoporosis Speak with physician about (Bone density) when to start bone density test

31. Pap Smear and related Every two years screening (women) Prostate Cancer and Begin checks once a year related screening (men) Flu Shot Speak with physician Hepatitis B Shots Speak with physician Pneumonia Shot Speak with physician Tetanus-diptheria Shot Every 10 years Screening and Diagnostic Test Checklist

32. Bladder Ultrasound As needed, based on symptoms CT Scan/MRI As needed, based on symptoms Cystoscopy 10 years after augmentation, annually thereafter Renal Blood Test As needed, based on symptoms Renal Scan As needed, based on symptoms Renal Ultrasound At least every two years Spine X-Ray/MRI As needed, based on symptoms Urodynamic studies As needed, based on symptoms Urinalysis As needed, based on symptoms VCUG As needed, based on symptoms SPINA BIFIDA SPECIFIC TESTS

36. Update the guide when you change your clocks (Fall and Spring) TIPS FOR USING HEALTH GUIDE

37. Marlene Lutkenhoff, RN, MSN Chair, Editorial Review Committee Cincinnati Children’s Hospital Medical Center Email: [email_address] Adriane K. Griffen, MPH, CHES Director, Public Health Programs Email: [email_address] Download a copy from www.sbaa.org More Information